Update March 27, 2023: Doing so much better! It's been 2 weeks since I injected a double dose of Humira, and now I'm back in my usual medication schedule of one shot every 2 weeks. I am doing WORLD'S...
@Sara thank you for the perspective! My doctor is stodgy and conservative but he does always listen to my opinion when I have one, and when I was first hospitalized he spent half an hour on the phone...
Update: Only 2 BMs yesterday, down from 7-10 for the past month. The Humira is working :)...
@Bacon Girl, thanks for the support :)...
Thanks so much for the support, everyone. It really means a lot. I've been feeling so isolated this week and it's nice to know that there are people out there who know what this disease is really...
My GI has never given me a colonoscopy, even when I was hospitalized, and has never suggested I have one. Which seems odd to me. Maybe because I'm 31? I've only ever had a sigmoidoscopy and abdominal...
Just venting here. I've been flaring badly for the past month. My gastro listened to my symptoms and then asked: What questions do you have for me? And I asked: What can I do about the flare? He went...
I'm so happy for you!!!! I so understand what you're feeling. I'm still in the "it's all just mush" phase. The day I have a solid BM again I will be so happy....
I took a break recently from humira because I suspecting it was causing muscle stiffness and joint aches around my shoulders and shoulder muscles. When I stopped taking the Humira, the aches went...
I'm on Humira's patient program. Income is irrelevant with these programs. Only requirement is that you have insurance. I have no idea how or why it works, but there is a coordination between the...
Update: I have an appointment scheduled with my gastro for this Thursday! Even better update: I had a solid stool for the first time in an entire month!! I think the Humira is working! Some...
I have found that the Humira I'm on totally eliminated my normally severe cramps. I do still get the occasional bad cramp around the heaviest flow day, but CBD helps slow down the cramping a lot....
I am a former smoker. Smoking DEFINITELY lowered my fecal calprotectin last year, but it also dramatically raised my CRP. I think my immune system decided to attack my lungs instead of my colon....
Floravital iron is a really good source for iron. It's a liquid that you drink twice a day. Vitamin D3 + Vitamin K are ESSENTIAL for autoimmune disease. Vitamin D helped get me out of a flare last...
Thank you, GrittyHope! I am Buddhist and the Buddha said that humans need only four things in order to live a happy and faithful life: food, shelter, clothing, and medicine. I'm starting to accept...
In my most severe flare 2 years ago, I was fasting out of pure listlessness. I would go days without food, but still have 20 bowel movements a day of pure blood. I'm in a flare now and am barely...
I'm scared to take pred again because it makes me really manic. Been on it multiple times in the past 3 years... but if I don't respond to the Humira I'll make an appointment with the gastro. He will...
Thanks for the replies! It really helps just to know I'm not the only one struggling, and there are people out there who have gone through the same pain. I've been on Humira for the last 2 years. I...
I've spent the last 3 months trying to induce remission without the use of medications. And I've just been getting worse and worse. Today I injected Humira. I'm afraid it won't work this time around,...
I had debilitating shoulder pain for two months, and now I have an inflamed knee with limited range of motion. I'm 31 but my body feels like it's 80 right now. Random joint pain is very comorbid with...
Why do you assume that the cashews triggered the colitis? It's very possible that the colitis caused your intolerance to the cashews! Instead of looking at the cashews as the cause of the UC, look at...
I am currently on a very similar diet to what Kenny Honnas recommends (vegetarian, though). Because I'm flaring and can't tolerate anything else, I am on a liquid diet at the moment. My liquid diet...
I'm currently megadosing curcumin to see if it can induce remission. If it works, I'll post back....
Cordyceps militaris mushroom is amazing for energy. I brew it with licorice for energy since I can't have much caffeine in a flare....
@Ms2011. I'm black with dark skin, so I have a pretty solid natural sun resistance. But secondly, I truly believe that sunlight helps every aspect of my health (might be different for you, but for me...
Just an update here. I started taking CBD again around the time I posted this out of sheer desperation (and yea, I got addicted to cannabis again and had to quit again). But my fecal calprotectin as...
Interesting! I feel so much better after reading these reponses! I'm a very healthy weight, super active, lots of hiking and Pilates, meditate often, practice intermittent fasting, don't consume any...
I have ulcerative colitis and take Humira. My fecal calprotectin was NORMAL for the first time since my diagnosis!!!! But my C-Reactive protein extremely high, around 35 (normal is 8 or below). For...
Hey, folks. I'm currently on Humira, and it worked well for a year. It seems to be loosing efficacy, though, and I'm slowly slipping back into a flare. I was thinking about asking my doc to prescribe...
IMMODIUM. Seriously. It's an excellent short-term soultion to prevent constant pooping on the plane. I flew from Peru to NYC whilst in a flare AND with a parasite I caught in Peru. I couldn't find...
Oh god, my addict brain will do anything to take up cannabis again. I did order some CBD. Maybe that will help. If my numbers go down then I'll be living proof that cannabis helps UC :D...
Another thing to note: between January and now I quit vaping cannabis flower. I was vaping cannabis daily from August 2021 - December 31, 2021 and then quit on New Year's Day this year. Do you think...
Hello friends. I'm currently on Humira. My bloodwork is great -- no abnormalities and CRP is like 1.5. My fecal calprotectin was 150 back in January (normal range is below 50), so I was given a...
Just got blood work done. My Humira levels were good and I have no antibodies. So it looks like this current resurgence in symptoms has been caused by recent stress or that my body is not responding...
I tried both for a year when I only had UP. The food anxiety did a real number on my mental health. I did learn a lot though from the diets. My current diet is vegetarian, very simple and has no...
My current insurance (Aetna) and my last insurance (MVP) both exclude Entyvio from their formularies. For people who ARE on entyvio, what insurance company are you with?...
Holy bananas! You didn't even have diarrhea with a fecal calprotectin that high!??? Is your UC very high up in the colon?...
My CRP was a completely normal 2.1mg/L (normal range is less than 8mg/L ) when I was hospitalized with a fecal calprotectin greater than 1000mcg/g (too high for the test to even measure, lol; normal...
Hello, friends! I've been on Humira for a year to treat my UC. It has really helped calm my symptoms, and I've had a relatively healthy year. However my symptoms are slowly returning. My doc...