Prednisone makes you retail sodium (salt) and will make you puffy, so you may want to watch your salt intake, especially if you have a history of high blood pressure. It also makes the body excrete...
The standard recommendation is 40mg for 2-4 weeks, then start tapering. The average person experiences positive impacts on inflammation within one week. One week is typically how long adjustments in...
Increased frequency, cramping, softer stool, smellier stool, gas, and just feeling a bit crappy. But I started with too much and I think that's why. 1/8 cap every other day sounds pretty good....
Eating spinach gave me kidney stones. Nope....
Oh thanks for the recipes! They look good. The problem is that I am bed ridden and meal prep is really hard right now. Once I start regaining strength I usually make my own shakes and what not....
Take boron or do a borax protocol. It will get rid of your joint pain. If immune suppression causes joint pain then it can mean fungus in the joints. The immune system uses boron to to make...
I'm avoiding the vaccine until my flare is under control. In the past, vaccines have increased my inflammation. They're currently doing trials in the UK on IBD patients who are immune suppressed to...
I need some easy, high calorie meal replacement shakes. Not Ensures or Boost. They have to have healthy ingredients. Most ones on the market have high fructose corn syrup and dairy in them. I found...
Tumeric adding to cooking and golden milk are not effective delivery methods. The amount of curcumin absorbed is marginal, and it only stays in the blood stream for an hour or so. It's why modern...
I'm taking megaspore now. It's part of my regimen. It helps a lot, more than regular probiotics ever have. I had to start very small. 1/4 of a capsule every 3 days. The spores are really strong and...
LDN works for me once I get off prednisone. The two don't seem to work well together, for some reason. However, as soon as I'm off pred I start taking LDN in the evenings, and my healing time speeds...
I forget the name of the study, but they've been doing it for a few years now. In Crohn's patients, they inject them with inactivated e. coli bacteria and water, sort of like a vaccine. The body then...
Remission! The word we all love to hear. May your UC never come back....
There are three parts of a flare. Mucosal inflammation and damage, malabsorption, fast transit time. These three things can all heal at the same time or at different times. So you get good absorption...
You can live indefinitely with UC, as long as you can handle varying quality of life. There are a lot of alternative treatments out there that have worked for me. I achieved drug free remission...
i agree - too bad more folks don't die from UC - that would certainly stir things up a bit - What a ridiculous, outrageous thing to say? Don't "agree" with me by putting words in my mouth that I...
Just to clarify, yet again... I never said nobody should get surgery. I said that it's pathetic this is the best modern medicine can do. I am upset with modern medicine, not with UC patients....
You should read that study fully. "A retrospective analysis of 666 patients with UC who underwent a colectomy reported that 27 % experienced severe postoperative complications, with the mortality...
Vile smell can be anything from malaborption, to infection, to inflammation. Stool tests won't necessarily pick up on everything, unless you get expensive private ones done. The standard ones done by...
I think removing organs from the body is a mistake, and I am furious that this is the best that modern medicine can do toward "curing" the disease: permanently disfiguring people. Colon bacteria are...
I do probiotics and prebiotics like crazy, otherwise I start to flare post-scope....
I take curcumin phyotosome every flare, along with boswellia. In combo with prednisone, they really get my inflammation under control faster. Every person is different, so nobody can say for sure if...
CRP indicates major inflammation that is doing a lot of damage. The CRP value increases when tissue in the body dies due to inflammation. It doesn't mean there's absolutely no inflammation. Some...
I'm waiting for the Astrazeneca vaccine because it has fewer allergic reactions. I don't trust the synthetic nanotech in Moderna and Pfizer as I already have MCAS and the last thing I need is a...
Google proteobacteria, hydrogen sulfide bacteria, and ulcerative colitis. Your skepticism isn't proof of invalidity, though I know you like to show up in every thread that remotely talks about...
Yes, the bad bacteria, like proteobacteria (i.e. ecoli) which are high during flares because they eat the blood of the ulcers. Instead of protein being fully absorbed in the small bowel, some of it...
Low fiber, low acid, no spices, no gritty things (like seeds). Plain food. I make veggie soups but I puree the product before eating it. Even if there's meat in it. I personally avoid dairy and high...
The other thing I wanted to add is, IBD rates are skyrocketing around the world. So it's not just genetics. It's probably something to do with the way modern humans are living. Pollution,...
CBD seems to work well for mild to moderate disease. I didn't find it helped me at all once the major inflammatory cascade started. Only prednisone does that....
I think diagnostics will get better, but treatments won't. They are so focused on the profitable biologics track that it seems like they're going to stay that way for a long time. The people doing...
I've tried it but it goes right through me, literally within a few hours. I know it's supposed to feed good bacteria but I don't get how it can do that if it transits so quickly. Any advice on how to...
Omg can we please stop talking about HW policy in my thread? It's going on 2 pages now. I didn't mean to be rude to champ I was just asking an honest question. I've read champ's story and scarring...
I am asking you nicely -- please stop posting in this thread. Your replies haven't been helpful, and have in fact been hurtful. Thank you. Thanks. My UC has been more on the severe side, but each...
3timechamp, I don't know why you're coming here to talk about surgery? That has nothing to do with my question. quincy, no need to be rude. PP, thank you for your explanation, makes a lot of sense....
Can someone with experience give me some factual info on UC scar tissue? In Crohn's, their scarring gets so bad that portions of the bowel become strictured. What is the real threat of UC scar...
The plan seems to be to keep me at 5mg but prescribe me hydrocortisone which has a shorter half life. Then I can taper off the 5mg without having to go down 1mg at a time. I'm still nervous that my...
I've been on prednisone for 2 years and now I'm tapering. No maintenance drugs -- they don't work. I have refused colectomy. Bowels are doing much better now, thanks to various alternative methods....
UC is caused by proteobacteria overgrowth in most cases....
I avoid this problem with the following mineral stack I take each day: 5mg boron 400mg magnesium (divided into two doses of 200mg) Zinc 25mg D3 liquid 5000IU daily I also take DHEA 25mg and...
They didn't cut corners in making the vaccine. It was done fast because they had unprecedented cooperation between government, big pharma, manufacturers and distributors. That's what emergency powers...
Thanks for the info on 5-ASAs but I'm really asking about aspirin. The H+ permeability thing is interesting. That would suggest that aspirin-induced acidity corrodes the bowel wall....
I've been reading so many positive things about preventative aspirin use, I couldn't possibly list them all. Unfortunately, it's not recommended for people with IBD. Yet I am having trouble finding...
Refined sugar is basically poison. Nobody with IBD should be ingesting it, except maybe on special occasions cause we all have to live a little. In my IBD support group there was a new guy who is on...
I started an iodine protocol a month ago that includes 200mcg of selenium daily, and I have noticed a big difference in my inflammation. My CRP went from 25 to less than 1 in about 2 weeks, despite...
Colonoscopies create a very high chance that I will flare. It has happened three times now. So I get them rarely. I know it's not ideal, and I do still get them, but I try to only do it if there is...
My issue is poor transulfuration, determined by getting my genetics done. My body builds in homocysteine and ammonia more easily if I eat foods high in sulfur. Then the sulfux fixing bacteria that...
There is a propensity in the medical community to endorse c-sections at this time in history. The rates are extremely high especially in the USA. A lot of women get categorized as high risk when they...
Chocolate is bad for another reason. It contains theobromine which is a nervous system stimulant and laxative. Chocolate is generally contraindicated in IBD if you consult most diet plans. For many...
Is it normal to be able to eat more kinds of foods without a bad reaction while you're on high dose pred? I'm on 40mg of pred right now and I find I can actually consume dairy without having intense...
I have worked with turmeric for many years. It has a very, very short half life in the body. So short that it's almost useless. What you need to do is get a type of turmeric extract called curcumin...