I don’t know :( that’s the problem. I was in hospital on IV so assuming it was probably through the roof but I think I’m more inflamed than I was few weeks ago. Stupid disease!!!!!!! Going to get a...
Hey ipoop! Hope you’re doing well. Yes have informed my IBD team who Will do a scope & may give me an extra dose of infliximab. Just wish I could end this flare so frustrating :( Thanks again m xx...
Hey everyone, Currently having issues getting out of this flare. Have had three loading doses of infliximab, on 20mg pred and today got my results back from my cal protection of 321. Is this a high...
That’s really helpful poopydoop! They have mentioned perhaps switching me to entivyo not sure if they do one more infliximab infusion as a last ditch effort. Are you on entivyo now??? Thanks so much...
Hey! Thanks oh gosh I missed that I will have a look thanks again!!...
Hey everyone, Sorry for another post I hope everyone is well. I’m so gutted. I have tapered to 15mg of pred for about a wwwk and today have had diarrhoea twice with a tiny bit of blood and mucus. The...
Hi all, Hope everyone is keeping well!! I’m just wondering if anyone has experienced this. I’m down to 15mg of pred (yay!) due to taper down to 10mg on Wednesday and had my 3rd infliximab infusion on...
Hey everyone, Hope everyone is doing ok and keeping safe. I have been doing well since my pan-colitis flare which put me in hospital over Christmas! I am currently on 30mg pred (tapering) & had my...
Thanks so much for this @ipoop! So so helpful. Good idea about the aza too. I have another quick qs. I’ve been doing really well since coming out of hospital. One BM a day no blood. However, the past...
Hello all, Happy New Year! After spending Christmas in hospital with an horrendous pan colitis flare up I have been stabilised on pred & was given my first infusion of infliximab which seems to be...
Thanks so much both. If this disease has taught me anything it’s expect the bloody unexpected. After a few really low days of being upset and feeling pretty alone as can’t have visitors with Covid...
Hey both! I know I’m in shock, was scoped on the 8th November! Trying to stay positive but just starting to worry about the what ifs :( I’m scared of things like toxic mega colon and having to get...
Writing this in somewhat disbelief! Two months ago I diagnosed with Proctitis (20cm), I went on various treatments but they weren’t doing much, about a week ago I started to feel really unwell. Going...
Hey Q! Hope you’re having a great weekend! Just thought I’d update you. Unfortunately I’ve had a rough time. My symptoms persisted and turned into watery diarrhoea, more blood and stomach pain....
Thanks so much @quincy! Really helpful. Is the fact I’m having looser stools ok? Usually have been more solid but am thinking it’s just the meds..... Thanks so much !...
Hi both, Hope you are doing ok!! 😊 So, have been on them for a week or so now and am not sure if they are agreeing with me or not! I am going once or twice a day, usually the first stool is very...
Thanks so much @ipoop! I have a follow up appointment with my GI in a few weeks, if things have not improved I will certainly speak to him about the above treatments you’ve mentioned. Thanks again 😊...
Thanks so much @ipoop! Trying to get my head around everything and have so many questions so thanks for taking time to answer. Due to me being anaemic I’m quite anxious for the blood to stop but I...
Hi :) I have a moderate to severe case of Proctitis (20cm) affected. I’ve been prescribed Salofalk enemas 2g one in the evening & Salofalk granules 3g once in the morning. I’ve been taking them for 5...
Hi daisy, Thanks very much. This forum is so helpful, I will defo get on to my GI about oral mesalamine and enemas. Thank you :)...
Hi @quincy, Thanks ever so much. I will speak to my GI about getting other meds. Feeling better now have rested and glad to know what’s wrong so I can work on getting better. Will keep you posted!...
Hi all, Sorry about the slow response! Unfortunately I was admitted to hospital on Tuesday as my RBC was dangerously low but am home now and feeling better! What a rollercoaster! @quincy 20cm...
Hi everyone, Today I’ve been diagnosed via colonoscopy with Proctitis! I’ve been waiting for the appointment for a while and found this forum whilst waiting and it has been such a great help and...