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HaleyA

HealingWell Forum
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Member Profile
Display Name
HaleyA
Profile Created
4/1/2021 7:22 AM
Last Seen
Yesterday 9:28 PM
Total Posts
206

Last 50 Posts

How do you confirm remission? Is it too soon to know if Inflectra has me in remission?

Rusty: yes I get 5mg infusions every 4 weeks...

Yesterday 8:21 AM

Ulcerative Colitis
How do you confirm remission? Is it too soon to know if Inflectra has me in remission?

Okay so it sounds like the calprotectin is a good test to ask for. My doctor might suggest it anyways but I’ll bring it up as well. I’m feeling great, I would just love some confirmation that this is...

6/28/2022 4:57 PM

Ulcerative Colitis
How do you confirm remission? Is it too soon to know if Inflectra has me in remission?

iPoop: So I had some labs done back in the beginning of April. They did the C reactive protein and it was 0.11 which I think is good? I had to reschedule the appt to discuss my progress and those...

6/27/2022 6:14 PM

Ulcerative Colitis
How do you confirm remission? Is it too soon to know if Inflectra has me in remission?

So I started Inflectra last September. I continued to have a few symptoms and would flare at around 4 weeks from infusion. This March I was able to start getting my infusions every 4 weeks. Since my...

6/27/2022 4:48 PM

Ulcerative Colitis
Bloods drawn and i faint😡 on Remicade!

Getting blood drawn makes me feel whoozy. I have fainted once. I’m not sure why this happens but normally happens if they have to stick me a couple times or have to dig around. Sometimes I feel faint...

6/23/2022 10:21 AM

Ulcerative Colitis
For Fun: What is your infusion day routine?

Chinese food definitely sounds like a good way to treat yourself afterward! I always want a candy bar after but never have one and never stop to get one, this time I got one ahead of time since I...

6/6/2022 8:52 AM

Ulcerative Colitis
For Fun: What is your infusion day routine?

Getting my Inflectra infusion tomorrow and it has me curious….Just for fun I’m curious what everyone’s infusion day routines are. Mine is pretty boring. I go to my infusion and usually come home and...

6/5/2022 10:51 AM

Ulcerative Colitis
Interrupted Sleep

Is your doctor the one at his office that is actually doing the follow up with Cigna or is he relying on someone else to do it? I ask because at the GI practice I go to they have a person who’s only...

5/25/2022 8:21 AM

Ulcerative Colitis
Does being around people-since Covid-bother you?

I have no issues being around others or going out without a mask. I caught covid in a place where everyone was required to wear masks at all times and every person was vaccinated. So covid can be...

5/17/2022 8:48 AM

Ulcerative Colitis
Tell me about Remicade and biosimilars

Clo, at every one of my infusions before they hook me up they confirm my first and last name and the type of drug I’m getting. They also write Inflectra on the IV bag. Does your infusion center not...

5/7/2022 7:52 AM

Ulcerative Colitis
Joint Stiffness

Yeah I think I worry this is something that will make me stop taking Inflectra and it’s working so well for my UC symptoms. I also worry about the pain getting worse, during one bad UC flare I had...

5/2/2022 7:42 PM

Ulcerative Colitis
Joint Stiffness

Bumping this just to see if you all think I should push for anymore testing before my next infusion which is next Monday. Is there a chance the pain could get worse after the next infusion?...

5/2/2022 6:06 PM

Ulcerative Colitis
Joint Stiffness

Everyone is unique and it might not even be an issue for you but it's worth a conversation with your GI. My experience was during or a few days after my infusions and then right before my next...

4/29/2022 12:15 PM

Ulcerative Colitis
Joint Stiffness

Okay, just heard back from my doctor. He thinks it could be a side effect from Inflectra, but since Inflectra in controlling my UC so well he doesn’t want to make any changes yet. He said he can...

4/29/2022 12:13 PM

Ulcerative Colitis
Joint Stiffness

That’s really interesting! I was never on the name brand Remicade, only Inflectra. I highly doubt my insurance will let me have Remicade over Inflectra unfortunately. I did send my doctor a portal...

4/29/2022 11:50 AM

Ulcerative Colitis
Joint Stiffness

Oh one other thing I thought of. I was on budesonide for a long time. I was on it from July of last year up until maybe a month ago when I finally got my infusions to every 4 weeks. Can being on it...

4/29/2022 10:53 AM

Ulcerative Colitis
Joint Stiffness

It’s been almost 4 weeks since my last infusion. I’m due for my next one very soon. Would a reaction come this late after having the infusion?...

4/29/2022 8:55 AM

Ulcerative Colitis
Joint Stiffness

Did you have joint pain all the time on Remicade? Or did it get better? I’m not overly concerned, the pain isn’t extreme. It’s really just a lot of stiffness....

4/29/2022 8:27 AM

Ulcerative Colitis
Joint Stiffness

Is RA something that happens with UC? And if it was RA wouldn’t the Inflectra be helping?...

4/29/2022 7:36 AM

Ulcerative Colitis
Joint Stiffness

So the past week I’ve had a lot of joint stiffness in my knees. The worst is as soon as I get up in the morning and also if I’ve been sitting for a while. The pain isn’t really bad but they are so...

4/29/2022 5:50 AM

Ulcerative Colitis
Mouth thrush @ vaginal yeast infection

I had a vaginal yeast infection recently. My doctor told me it can cause a very small amount of bleeding if the yeast infection is bad. But it shouldn’t be much blood. She said the blood appears to...

4/21/2022 8:33 PM

Ulcerative Colitis
Mouth thrush @ vaginal yeast infection

I’ve had thrush before. It was a very long time ago caused by some strong antibiotics. It wasn’t a sore though. I was what Keith described, the white on the tongue. An anti fungal mouth wash treated...

4/17/2022 9:28 PM

Ulcerative Colitis
Treating a yeast infection caused by Inflectra? Help

Thought I’d give an update in case someone has to use this medication and has the same question one day. Using the cream with no issues. I’ve felt a little nauseous but I really don’t know if that’s...

4/15/2022 12:06 PM

Ulcerative Colitis
Treating a yeast infection caused by Inflectra? Help

Yeah not sure why it has stomach upset listed as a side effect when it’s a cream but it worried me. The last time I had a yeast infection long time ago I did take the diflucan but it gave me diarrhea...

4/12/2022 9:57 AM

Ulcerative Colitis
Treating a yeast infection caused by Inflectra? Help

So I got my first yeast infection in at least 10 years, I assume it’s from being on Inflectra. Anyone else on biologics start getting yeast infections? My doctor prescribed me Terconazole 3 day...

4/11/2022 7:47 PM

Ulcerative Colitis
Stress & Flares: An Epiphany

My doctor talks about stress all the time with me and how it can induce symptoms and she says she believes it’s the cause of all my flare ups, I agree with her haha...

4/11/2022 10:34 AM

Ulcerative Colitis
Swelling after Inflectra infusion

So I did follow their advice and tried to be low sodium right before and right after my infusion. No swelling this time!...

4/10/2022 7:55 PM

Ulcerative Colitis
Will I forever be anxious over infusions?

They give me Zyrtec and Tylenol before the infusion. They take my blood pressure several times during. They don’t have me stay afterwards...

4/8/2022 9:01 AM

Ulcerative Colitis
Will I forever be anxious over infusions?

Yes she was great. She even told me what she would do if a reaction were to happen and stayed close by until I was more relaxed. As much as I’ve been anxious and disliked getting the infusions they...

4/7/2022 8:09 AM

Ulcerative Colitis
Will I forever be anxious over infusions?

Yes definitely working. Haven’t seen any symptoms in a little over a month now. And now that I’ve started on my 4 week infusion schedule I hope it stays this way 😊...

4/6/2022 5:43 PM

Ulcerative Colitis
Interrupted Sleep

If you are able to use rectals, hydrocortisone enemas are magical...

4/6/2022 3:38 PM

Ulcerative Colitis
Will I forever be anxious over infusions?

Having the right nurse makes a WORLD of difference. New nurse today since the other one is gone. Oh my gosh she made me feel so comfortable and at ease when I told her my concerns. She was so kind...

4/6/2022 1:44 PM

Ulcerative Colitis
Will I forever be anxious over infusions?

Clo: thank you for the kind words! Faithmac: I bring my iPad with me but I’m always too nervous to actually pay attention to whatever I’m trying to watch. For premeds they give me Zyrtec and Tylenol....

4/6/2022 6:10 AM

Ulcerative Colitis
Will I forever be anxious over infusions?

Yeah that totally makes sense about not worrying because if it’s gonna happen then it’s gonna happen. I wish I could not worry but my mind just runs away and gets the best of me. I do get calmed down...

4/5/2022 7:25 PM

Ulcerative Colitis
Will I forever be anxious over infusions?

So I have my 6th Inflectra infusion tomorrow, and my first at the new 4 week schedule. Feeling really good and normal, no symptoms at all right now. However, I’m still so anxious over getting...

4/5/2022 5:33 PM

Ulcerative Colitis
Swelling after Inflectra infusion

Met with my doctor yesterday. She believes it was probably just some fluid retention from the fluids that are infused with the Inflectra since I had no other symptoms. She did tell me to watch my...

4/2/2022 9:19 AM

Ulcerative Colitis
Interrupted Sleep

Did you not discuss continuing taking prednisone with your doctor at your appointment today? What did he advise?...

3/30/2022 2:07 PM

Ulcerative Colitis
Swelling after Inflectra infusion

Bumping this back to the top just to see if anyone else experienced this. I have an appointment with my doctor on Friday but curious if anyone has any insight on this. Or maybe it was just an...

3/28/2022 11:22 AM

Ulcerative Colitis
Questions about more frequent Inflectra infusions

Well insurance approved! I was expecting them to fight back because usually they’re difficult to work with but thankfully not this time! I hope this is what gets me to feeling good!...

3/15/2022 5:47 PM

Ulcerative Colitis
Swelling after Inflectra infusion

They do check my blood pressure before, twice during and then after the infusion. My blood pressure is always high before because I’m nervous. But during and after it’s normal and they even commented...

3/14/2022 2:35 PM

Ulcerative Colitis
Swelling after Inflectra infusion

So I had my Inflectra infusion last Wednesday. The next morning my feet and ankles were puffy and swollen. This subsided the same day. But is this something I should speak with my doctor about? Ive...

3/14/2022 11:36 AM

Ulcerative Colitis
Questions about more frequent Inflectra infusions

Thanks for the input. Encouraging to see that upping the frequency helps. Still waiting to hear from insurance. Just got home from my normally scheduled infusion so hoping it helps and that I can get...

3/9/2022 2:57 PM

Ulcerative Colitis
Sudden flushed feeling before urgency in public

This has happened to me many times. Like someone said above, I was told it’s connected to vasovagal reaction. I would get flushed and feel a little faint but as soon as I had a bowel movement the...

3/9/2022 10:20 AM

Ulcerative Colitis
Interrupted Sleep

I’m not expert here as I started Inflectra around the same time as you I believe. But I am confused as to why you’re tapering off steroids before your infusion. Someone let me know if this is normal....

3/7/2022 8:15 AM

Ulcerative Colitis
Questions about more frequent Inflectra infusions

Still waiting on my insurance to approve Inflectra every 4 weeks. But while I wait I have a few questions maybe some of you who get them every 4 weeks can answer. Does getting them more frequently...

3/6/2022 2:05 PM

Ulcerative Colitis
Finally saw my GI...

My doctor has a similar view of not being so worried. After I got my vaccines we had a long conversation she really settled my fears. I also ended up catching covid and while I felt awful, I ended up...

2/21/2022 5:52 AM

Ulcerative Colitis
Anemia and flying….

Well results are in, my hemoglobin actually went up! It’s a 9.6 now. I have no idea how it went up but I’ll take it. Good news on a Friday...

2/18/2022 12:11 PM

Ulcerative Colitis
Anemia and flying….

My doctor told me yesterday that a blood transfusion wouldn’t be done until level 6. But that we could do iron infusions now for what my levels have been...

2/18/2022 9:25 AM

Ulcerative Colitis
Budesonide pills and steroid enemas together?

My doctor did tell me this was fine and wrote me a new prescription to use if I need to until my next infusion...

2/17/2022 1:04 PM

Ulcerative Colitis
Anemia and flying….

If my friend hadn’t asked me about it I wouldn’t have ever thought about it either, so it worried me. Helps to get peace of mind though!...

2/17/2022 12:08 PM

Ulcerative Colitis
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