Rusty: yes I get 5mg infusions every 4 weeks...
Okay so it sounds like the calprotectin is a good test to ask for. My doctor might suggest it anyways but I’ll bring it up as well. I’m feeling great, I would just love some confirmation that this is...
iPoop: So I had some labs done back in the beginning of April. They did the C reactive protein and it was 0.11 which I think is good? I had to reschedule the appt to discuss my progress and those...
So I started Inflectra last September. I continued to have a few symptoms and would flare at around 4 weeks from infusion. This March I was able to start getting my infusions every 4 weeks. Since my...
Getting blood drawn makes me feel whoozy. I have fainted once. I’m not sure why this happens but normally happens if they have to stick me a couple times or have to dig around. Sometimes I feel faint...
Chinese food definitely sounds like a good way to treat yourself afterward! I always want a candy bar after but never have one and never stop to get one, this time I got one ahead of time since I...
Getting my Inflectra infusion tomorrow and it has me curious….Just for fun I’m curious what everyone’s infusion day routines are. Mine is pretty boring. I go to my infusion and usually come home and...
Is your doctor the one at his office that is actually doing the follow up with Cigna or is he relying on someone else to do it? I ask because at the GI practice I go to they have a person who’s only...
I have no issues being around others or going out without a mask. I caught covid in a place where everyone was required to wear masks at all times and every person was vaccinated. So covid can be...
Clo, at every one of my infusions before they hook me up they confirm my first and last name and the type of drug I’m getting. They also write Inflectra on the IV bag. Does your infusion center not...
Yeah I think I worry this is something that will make me stop taking Inflectra and it’s working so well for my UC symptoms. I also worry about the pain getting worse, during one bad UC flare I had...
Bumping this just to see if you all think I should push for anymore testing before my next infusion which is next Monday. Is there a chance the pain could get worse after the next infusion?...
Everyone is unique and it might not even be an issue for you but it's worth a conversation with your GI. My experience was during or a few days after my infusions and then right before my next...
Okay, just heard back from my doctor. He thinks it could be a side effect from Inflectra, but since Inflectra in controlling my UC so well he doesn’t want to make any changes yet. He said he can...
That’s really interesting! I was never on the name brand Remicade, only Inflectra. I highly doubt my insurance will let me have Remicade over Inflectra unfortunately. I did send my doctor a portal...
Oh one other thing I thought of. I was on budesonide for a long time. I was on it from July of last year up until maybe a month ago when I finally got my infusions to every 4 weeks. Can being on it...
It’s been almost 4 weeks since my last infusion. I’m due for my next one very soon. Would a reaction come this late after having the infusion?...
Did you have joint pain all the time on Remicade? Or did it get better? I’m not overly concerned, the pain isn’t extreme. It’s really just a lot of stiffness....
Is RA something that happens with UC? And if it was RA wouldn’t the Inflectra be helping?...
So the past week I’ve had a lot of joint stiffness in my knees. The worst is as soon as I get up in the morning and also if I’ve been sitting for a while. The pain isn’t really bad but they are so...
I had a vaginal yeast infection recently. My doctor told me it can cause a very small amount of bleeding if the yeast infection is bad. But it shouldn’t be much blood. She said the blood appears to...
I’ve had thrush before. It was a very long time ago caused by some strong antibiotics. It wasn’t a sore though. I was what Keith described, the white on the tongue. An anti fungal mouth wash treated...
Thought I’d give an update in case someone has to use this medication and has the same question one day. Using the cream with no issues. I’ve felt a little nauseous but I really don’t know if that’s...
Yeah not sure why it has stomach upset listed as a side effect when it’s a cream but it worried me. The last time I had a yeast infection long time ago I did take the diflucan but it gave me diarrhea...
So I got my first yeast infection in at least 10 years, I assume it’s from being on Inflectra. Anyone else on biologics start getting yeast infections? My doctor prescribed me Terconazole 3 day...
My doctor talks about stress all the time with me and how it can induce symptoms and she says she believes it’s the cause of all my flare ups, I agree with her haha...
So I did follow their advice and tried to be low sodium right before and right after my infusion. No swelling this time!...
They give me Zyrtec and Tylenol before the infusion. They take my blood pressure several times during. They don’t have me stay afterwards...
Yes she was great. She even told me what she would do if a reaction were to happen and stayed close by until I was more relaxed. As much as I’ve been anxious and disliked getting the infusions they...
Yes definitely working. Haven’t seen any symptoms in a little over a month now. And now that I’ve started on my 4 week infusion schedule I hope it stays this way 😊...
If you are able to use rectals, hydrocortisone enemas are magical...
Having the right nurse makes a WORLD of difference. New nurse today since the other one is gone. Oh my gosh she made me feel so comfortable and at ease when I told her my concerns. She was so kind...
Clo: thank you for the kind words! Faithmac: I bring my iPad with me but I’m always too nervous to actually pay attention to whatever I’m trying to watch. For premeds they give me Zyrtec and Tylenol....
Yeah that totally makes sense about not worrying because if it’s gonna happen then it’s gonna happen. I wish I could not worry but my mind just runs away and gets the best of me. I do get calmed down...
So I have my 6th Inflectra infusion tomorrow, and my first at the new 4 week schedule. Feeling really good and normal, no symptoms at all right now. However, I’m still so anxious over getting...
Met with my doctor yesterday. She believes it was probably just some fluid retention from the fluids that are infused with the Inflectra since I had no other symptoms. She did tell me to watch my...
Did you not discuss continuing taking prednisone with your doctor at your appointment today? What did he advise?...
Bumping this back to the top just to see if anyone else experienced this. I have an appointment with my doctor on Friday but curious if anyone has any insight on this. Or maybe it was just an...
Well insurance approved! I was expecting them to fight back because usually they’re difficult to work with but thankfully not this time! I hope this is what gets me to feeling good!...
They do check my blood pressure before, twice during and then after the infusion. My blood pressure is always high before because I’m nervous. But during and after it’s normal and they even commented...
So I had my Inflectra infusion last Wednesday. The next morning my feet and ankles were puffy and swollen. This subsided the same day. But is this something I should speak with my doctor about? Ive...
Thanks for the input. Encouraging to see that upping the frequency helps. Still waiting to hear from insurance. Just got home from my normally scheduled infusion so hoping it helps and that I can get...
This has happened to me many times. Like someone said above, I was told it’s connected to vasovagal reaction. I would get flushed and feel a little faint but as soon as I had a bowel movement the...
I’m not expert here as I started Inflectra around the same time as you I believe. But I am confused as to why you’re tapering off steroids before your infusion. Someone let me know if this is normal....
Still waiting on my insurance to approve Inflectra every 4 weeks. But while I wait I have a few questions maybe some of you who get them every 4 weeks can answer. Does getting them more frequently...
My doctor has a similar view of not being so worried. After I got my vaccines we had a long conversation she really settled my fears. I also ended up catching covid and while I felt awful, I ended up...
Well results are in, my hemoglobin actually went up! It’s a 9.6 now. I have no idea how it went up but I’ll take it. Good news on a Friday...
My doctor told me yesterday that a blood transfusion wouldn’t be done until level 6. But that we could do iron infusions now for what my levels have been...
My doctor did tell me this was fine and wrote me a new prescription to use if I need to until my next infusion...
If my friend hadn’t asked me about it I wouldn’t have ever thought about it either, so it worried me. Helps to get peace of mind though!...