I’m on Inflectra. I’ve been on it for 2 years now. I still take mesalamine daily. As far as side effects I think I’ve only had fatigue right after the infusion. I was terrified of getting Inflectra...
The nurse today took my temperature, I didn’t have one. She said having a cold was okay. So we proceeded with the infusion. I live in an area where allergies are bad and colds are very common this...
Thanks to you both. Checked with my doctor just to be safe and was told as long as there is no fever and just the cold symptoms it will be fine....
Hey everyone, its been a while since I’ve posted! Luckily that’s because I’ve been doing so well. It’s that time of year again when colds hit. So my question is this, I have an Inflectra infusion...
I had very bad nightmares that felt so real when I first started Inflectra which is the biologic of Remicade. I tried to find information on this being a side effect and found nothing so I thought it...
CCinPA: yes I’ll definitely tell her I want the pump if I do end to with her again Flowers: I’ve actually never had anyone have me stay after for any Inflectra infusion. The first center I was going...
Thought I’d give an update on this. Went to my second infusion at option care about 2 weeks ago. Had a different nurse. She was extremely kind, used the pump, checked on me a lot and never mentioned...
She kept coming back and adjusting the speed on the filter on the tubing. It took about 3 hours. They definitely had a pump because it was on the pole but she told me it was normal to not use one....
Is the medication supposed to be titrated over a certain amount of time? At my last center they had the pump set to where it started out very slow and then gradually sped up and was fast at the end...
So had infusion at new place today. Nurse was very nice, got needle in first try so that’s all great. But other things had me anxious. They didn’t use a pump, just let it drip so it took a longer...
Straydog: I only meant I would switch afterwards if I dislike this new place. Right now I just want to make sure I get my infusions before my wedding and honeymoon. I haven’t had an infusion at this...
So when I got my iron infusion recently we were all in one big room. And it wasn’t too crowded so it was okay. The chairs were VERY comfortable haha At my doctors office for Inflectra in the infusion...
They were able to get me approved today and scheduled for my next infusion. I feel like that’s only because I stayed on them and called daily. My insurance approved it the same day they submitted it...
No not IVX. It’s called Option Care Infusion. The girl I have been speaking to at the corporate office is awful and so rude. I did get to talk to the nurse at the local office today and she was very...
Ah okay that makes sense. I was really worried I’d have to deal with the corporate office. They are just being very slow with this whole process. They’ve had my referral for a week and haven’t sent...
So I had posted last week about having to change location do my infusion center. I’m having some issues with the one my doctor referred me to. The actual local center is fine, but it’s a nation wide...
Flowers: that’s a great idea ! I will definitely ask them tomorrow !...
Agreed! I’m definitely going to check into this place they’re trying to send me to. The city I live in I would say is a decently sized city and from what I can tell there are a few infusion centers...
That’s a good idea to check out other infusion centers. I’ll do some research and see what’s in my city. I guess it’s not as normal as I thought to go to an infusion center that only does biologics,...
So this week I found out I can no longer get Inflectra at my infusion center. I’ve been getting Inflectra at the infusion center that is part of my GIs office since I started in 2021. Not sure why...
I am on Inflectra now. Mesalamine wasn’t working for me anymore. But since being on Inflectra I am symptom free and feeling great...
I always flared before and during my period before I got on Inflectra. Now it doesn’t happen...
I had my first one today and it was a breeze. It was an iron push actually. She set up the iv and then pushed the iron in with a syringe and then ran fluids for 30 minutes after that. I wish...
RS2022 : so glad they made you feel better. Did they bring you up to a normal level?...
My insurance FINALLY approved my iron infusions. They approved me to get 5 infusions of Venofer over 5 weeks and I start Feb 20. I’m getting married in April so I hope that I’m feeling great for it....
I have Inflectra through UHC. My doctors office did all the paperwork for the assistance program....
It’s just so stressful when we need this medication and have to be late on it. Plus the stress can possibly make symptoms worse. I’m just glad the infusion nurses I have are so understanding and kind....
I spoke with my infusion nurses today and they are able to squeeze me in tomorrow at 8:30am. This is such a relief! They were so kind and understanding about it unlike the scheduling woman who called...
The infusion nurses are able to fit people in if they feel like they have room to. My infusion center is in my doctors office. I did put a message into my doctors nurse this evening through the...
I was supposed to get an infusion of Inflectra tomorrow but my infusion has been delayed due to the medication shipment not arriving today. They say it will be here tomorrow afternoon. The woman in...
Hope you can get it worked out. I have United Healthcare and that’s why I’m on Inflectra and not Remicade. I know United sent out a letter making everyone switch to Inflectra last year I think. Im...
I’ll definitely try a sitz bath too!...
Today I met with my GI and discovered I have a small anal fissure. I thought I had a hemorrhoid but turned out to be a fissure. Since being in a really good place on Inflectra I’ve had the most...
I was on it off and on for I think 9 months...
I was diagnosed September 2019. I was very lucky that I was diagnosed very quickly. From onset of symptoms (bloody stool) to diagnosis was only about 5 weeks....
I used Pepto bismol tablets when I was flaring. It helped me and I didn’t become dependent on it. I didn’t use it everyday though, just when I needed to go somewhere or had something to do....
I’ve been on Inflectra since September 2021. I’ve been on the every 4 weeks dose since April 2022 I think....
My B12 numbers are great. My doctor checked those a couple of months ago. My hemoglobin has gone up a little bit. Iron I think only went up a tiny amount. Not sure if that’s due to eating and iron...
I was taking oral supplements but they did not make my iron go up at all and they really hurt my stomach. I have been trying really hard to eat an iron rich diet to improve my numbers....
I haven’t posted in a while it feels like…and that’s because I’m doing really well! I’ve been on every 4 week dose of Inflectra since I think April now. I think one of the last things I posted was...
I had covid in December and it made me flare. I had a lot of diarrhea near the end of getting over covid, I was able to get my Inflectra infusion 10 days after contracting covid and this made the...
Yeah I’m going to see what happens since getting my infusion yesterday. Today was actually totally normal with no issues so hopefully it just continues. Unfortunately rectals don’t work for me. I...
Infusion went well. Fingers crossed things go back to normal. I actually didn’t have any cramping this morning with my bowel movement. The nurse acted like stress was a pretty common issue with GI...
Should I make the nurse or doctor aware of it at my infusion tomorrow? (I get my infusions at my doctors office) Or just see what happens after the infusion?...
My levels were below 5 and they only told me I had no antibodies detected. I was really really stressed about a vacation because before Inflectra vacations weren’t super fun because I was always...
Clo, I had my levels checked in I think February. My levels were lower than they needed to be which is when we changed the medication to every 4 weeks. I am getting 5kg every 4 weeks. My doctor...
I have been on Inflectra since September 2021, getting it every 4 weeks with good results. So over the past two weeks I’ve experienced some cramping and some mucus when having a bowel movement. These...
Yes ferrinject is the same thing I believe. Did you notice a difference after getting the infusion? Did you have more energy? Did your levels go up a lot?...
The crazy part, to me at least, is I don’t feel overly tired even though my iron is so low. I’ve probably just gotten used to it being low I guess. It’s been about 4 months since all my UC symptoms...
So my iron has been an issue since being diagnosed with UC. Supplements have done nothing for me. My hemoglobin has improved since my UC symptoms have been better but my doctor wants to do the iron...