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Simon1729

HealingWell Forum
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Member Profile
Display Name
Simon1729
Profile Created
4/21/2021 7:35 AM
Last Seen
Today 12:44 AM
Total Posts
44

Last 50 Posts

UCyousee

Noticed you are posting again UCyousee....how has your Stelara experience been for your bowel and joints? You are on it a year now right?...

6/22/2022 2:46 AM

Ulcerative Colitis
gas pains

apparently for asking a simplistic question ....but how does trapped gas in the intestines actually cause pain....in particular left sided pain...or shoulder pain...

3/6/2022 10:25 AM

Ulcerative Colitis
time to response for IBD meds

I found this an interesting article....the expected time to response seems a lot longer for all drugs compared to what we may wish for:...

2/19/2022 1:37 PM

Ulcerative Colitis
what to do

I've recently been switched to Entyvio. 3 weeks in and have had 2 infusions. I'm still dealing with symptoms but these have worsened. Significant joint issues with no swelling, severe left sided pain...

2/5/2022 3:18 AM

Ulcerative Colitis
iron overload

As part of this flare I have been feeling quite bloated and fatigued. My GP took my iron levels however far from being anemic they came back with normal ferritin but with serum iron (50%) and trans...

1/14/2022 10:04 AM

Ulcerative Colitis
joint issue theory

Does anyone feel that their joint issues with UC are less to do with the immune system randomly picking on a joint and more to do with day-to-day or sports or work injuries that do not heal properly...

12/31/2021 5:36 AM

Ulcerative Colitis
game-changers

Feeling a tad miserable at moment with my UC....just wondering for those enjoying better times now...what was your game-changer?....the 1 or 2 things that really moved you from suffering to living???...

12/8/2021 11:54 AM

Ulcerative Colitis
CCinPA....Vedo link

How can a gut selective drug bring about a cessation of symptoms outside of the intestines?...

11/26/2021 4:13 AM

Ulcerative Colitis
Reaction to Remicade

My reaction was 10 days later....i spoke to my GI today....the IBD nurse gave him the wrong info and he thought i got the reaction at the infusion day....hes going to keep me on it for...

11/25/2021 11:53 AM

Ulcerative Colitis
Reaction to Remicade

Yes. It was a delayed 1 week reaction and followed all the details giving on Remicade website about such; rash, fever, headaches, muscle pain. Cleared up within a day. My GI confirmed it was a...

11/23/2021 7:27 AM

Ulcerative Colitis
Reaction to Remicade

I had an allergic reaction to Remicade a week after my first infusion. The IBD nurse said I must have built antibodies and that Remi was now off limits. But also said that Humira and the other...

11/23/2021 5:12 AM

Ulcerative Colitis
Started Stelara yesterday. The journey begins!

Glad you are making progress UCyousee. I may be starting Remicade similar to you to try and sort out bowel, joint and fatigue issues. Has your doc indicated that the joint and fatigue issues are IBD...

11/3/2021 8:17 AM

Ulcerative Colitis
Started Stelara Monday….

Another poster UCyousee also started a post recently about his journey with Stelara. I think he was doing good by Week2. Hopefully he will give us an update soon....

9/29/2021 12:29 PM

Ulcerative Colitis
Started Stelara yesterday. The journey begins!

Any update on Week2, UCyousee??...

9/27/2021 9:44 AM

Ulcerative Colitis
Switching from Humira to Remicade

Yes I think you are right here damo...it was discussed in a previous thread...i think UCyousee was saying his GI had advised him not to try Remi after failing Humira but to go down the Stelara route...

9/25/2021 12:59 PM

Ulcerative Colitis
Upcoming surgery 9/22

Andreita, How has you inflammatory arthritis held up during all of this?...

9/24/2021 3:36 AM

Ulcerative Colitis
Started Stelara yesterday. The journey begins!

Did you lose response to Humira UCyousee or was it an issue with antibody formation? Did you have any flares of bowel or joints on the Humira?...

9/18/2021 4:40 AM

Ulcerative Colitis
FDA latest warning re: Xeljanz

While I do not want to get directly into this debate or argument I do think it is the case that there is an amount of information provided on these forums that is simply not true. There is also some...

9/18/2021 2:25 AM

Ulcerative Colitis
Started Stelara yesterday. The journey begins!

Wow that sounds like a really good start to your Stelera journey. They do say that it is the fastest of all the bios to kick in. It is very interesting that all your joint issues are improving. How...

9/17/2021 1:01 PM

Ulcerative Colitis
Started Stelara yesterday. The journey begins!

Cheers. Have gone back on Pred and even after a week it has gotten rid of the flitting joint pain. Still some left sided issues which I think are muscular. Let us know how you are getting on......

9/11/2021 10:25 AM

Ulcerative Colitis
Weak response to Stelara every 8 weeks that significantly improved by upping frequency?

What are your symptoms like at the start of your Stelera journey UCyousee? Do you still have significant joint issues?...

9/11/2021 1:13 AM

Ulcerative Colitis
fluctuating ANA

Does anyone have an interpretation for fluctuating ANA blood results. Sometimes my titer is mildly positive, sometimes moderately positive but it can just as easily return a negative. What would this...

9/10/2021 3:58 AM

Ulcerative Colitis
probo

What brand or particular strain of probiotics has worked best for you?...

9/3/2021 8:51 AM

Ulcerative Colitis
Q for UCyousee

You mentioned I think UCyousee that you have failed pred in the past....did pred do anything for your joint issues or did it fail there too....like you im trying to work out of my joint issues are...

8/29/2021 1:44 AM

Ulcerative Colitis
Q for UCyousee

Thanks for the update. Sorry to hear that your issues still persist. Even though your calpro is low it is still possible that that your symptoms are directly UC derived. You said you had very little...

8/25/2021 1:31 PM

Ulcerative Colitis
Possible RA now with UC

I agree but in this particular case the OP cannot access those DMARDs for a few months. It then seems totally reasonably that (s)he look at the most powerful med available to bide time and stall the...

8/25/2021 12:42 AM

Ulcerative Colitis
Q for UCyousee

UCyousee, how are you doing with your joint and throat issues....have they returned full pelt like you were suggesting last week? D...

8/24/2021 2:34 PM

Ulcerative Colitis
Anyone not having vaccine?

Keith, you said you were locked out of this forum by the mods due to arguments on vaccinations. You cannot be back that long (a week?) and you are already at this again. What I decide to put into my...

8/24/2021 2:31 PM

Ulcerative Colitis
fatty liver and SVT

I did mention that but he did not think Imuran toxicity would present as fatty liver. I do believe there is more going on here. I have a host of superficial symptoms that do not seem to warrant...

8/23/2021 10:53 AM

Ulcerative Colitis
fatty liver and SVT

I had an abdominal scan in May which showed fatty liver deposits. After some further extensive tests and scans my GI is confident that this is all benign fatty liver disease and just warrants...

8/23/2021 10:37 AM

Ulcerative Colitis
joint swelling

A fair bit of talk on joint issues on forum in last while.... Does your IBD joint related pain present with swelling or without swelling? Does it tend to jump around or focus always on some...

8/12/2021 4:28 AM

Ulcerative Colitis
Starting Xeljanz

UCyousee, I get that feeling in my throat as well. For me it initially seems as if I'm gonna be developing a sore throat but later it seems more like a muscle or gland in my throat has become...

8/12/2021 1:24 AM

Ulcerative Colitis
getting your doc to take you seriously

Does anyone feel their doctors do not take their complaints seriously unless there blood marker readings are way off? And if so how do you convince your doctor that intervention is needed because you...

7/24/2021 7:45 AM

Ulcerative Colitis
left sided issues

also had left side redness on my scope this summer...Have had pain under the ribs on left side in past but up to now have not equated this with IBD. Could yours be IBS spasms? Not sure if rib or back...

7/24/2021 7:40 AM

Ulcerative Colitis
CRP test scale

A question for iPoop or anyone else who might want to chime in. Is the scale used for a CRP test linear or is it a log scale? So if your levels go from 2 to 4 does this imply they have doubled (as...

7/19/2021 8:48 AM

Ulcerative Colitis
Not Feeling Myself After Prednisone

That is a super fast taper Sara....how long were u on pred and what was the max dosage this time?...

6/24/2021 10:09 AM

Ulcerative Colitis
spasms v cramps

I notice that people talk about cramps and spasms particularly on their left side when flaring. What does a spasm feel like? Or I guess I'm asking what is the difference between a spasm and a cramp?...

6/24/2021 10:08 AM

Ulcerative Colitis
Imuran Effects

Hi, For anyone who was on Imuran or 6MP for an extended period and who slowly build up drug intolerance issues to it...how did these come about? what did the drug make you feel like? And what did it...

5/7/2021 9:41 AM

Ulcerative Colitis
Colonoscopy results - help

I agree with you. Lots on this site seem to link patchy inflammation with Crohns. It does have a greater prevalence but it simply is not a diagnostic tool. Patchiness can indeed be found in UC....

5/5/2021 6:05 AM

Ulcerative Colitis
Colonoscopy results - help

Patchy inflammation is usually a sign of Crohns. However, and this is a mistake I see a lot on this site, patchy inflammation will also present in UC when it is medicated. UC will develop...

5/5/2021 2:44 AM

Ulcerative Colitis
Colonoscopy results - help

I had the same experience as you...bloods looked really good all yea, no symptoms, scope showed mild redening of the distal colon but my GI was happy....are you getting any right sided pain...

5/4/2021 1:18 PM

Ulcerative Colitis
fatty liver and IBD

So my GI feels that after reviewing my scans that I may have fatty liver either due to an autoimmune response itself or else due to toxicity from Imuran therapy for 8 years. My colonoscopy was clear...

4/29/2021 5:14 AM

Ulcerative Colitis
colonoscopy report

Thanks quincy. It was just a 4-year surveillance scope. In 2016 the scope did not show any pseudo-polyps. This scope did. Does that mean that I had active diseases during those 4 years even though I...

4/22/2021 12:04 PM

Ulcerative Colitis
colonoscopy report

Hi. I'm a new member though I've read from these boards for quite a long time. I've been in remission from UC pancolitis now since 2012. I had a colonoscopy last week and the report read "Mild...

4/21/2021 8:00 AM

Ulcerative Colitis
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