Noticed you are posting again UCyousee....how has your Stelara experience been for your bowel and joints? You are on it a year now right?...
apparently for asking a simplistic question ....but how does trapped gas in the intestines actually cause pain....in particular left sided pain...or shoulder pain...
I found this an interesting article....the expected time to response seems a lot longer for all drugs compared to what we may wish for:...
I've recently been switched to Entyvio. 3 weeks in and have had 2 infusions. I'm still dealing with symptoms but these have worsened. Significant joint issues with no swelling, severe left sided pain...
As part of this flare I have been feeling quite bloated and fatigued. My GP took my iron levels however far from being anemic they came back with normal ferritin but with serum iron (50%) and trans...
Does anyone feel that their joint issues with UC are less to do with the immune system randomly picking on a joint and more to do with day-to-day or sports or work injuries that do not heal properly...
Feeling a tad miserable at moment with my UC....just wondering for those enjoying better times now...what was your game-changer?....the 1 or 2 things that really moved you from suffering to living???...
How can a gut selective drug bring about a cessation of symptoms outside of the intestines?...
My reaction was 10 days later....i spoke to my GI today....the IBD nurse gave him the wrong info and he thought i got the reaction at the infusion day....hes going to keep me on it for...
Yes. It was a delayed 1 week reaction and followed all the details giving on Remicade website about such; rash, fever, headaches, muscle pain. Cleared up within a day. My GI confirmed it was a...
I had an allergic reaction to Remicade a week after my first infusion. The IBD nurse said I must have built antibodies and that Remi was now off limits. But also said that Humira and the other...
Glad you are making progress UCyousee. I may be starting Remicade similar to you to try and sort out bowel, joint and fatigue issues. Has your doc indicated that the joint and fatigue issues are IBD...
Another poster UCyousee also started a post recently about his journey with Stelara. I think he was doing good by Week2. Hopefully he will give us an update soon....
Any update on Week2, UCyousee??...
Yes I think you are right here damo...it was discussed in a previous thread...i think UCyousee was saying his GI had advised him not to try Remi after failing Humira but to go down the Stelara route...
Andreita, How has you inflammatory arthritis held up during all of this?...
Did you lose response to Humira UCyousee or was it an issue with antibody formation? Did you have any flares of bowel or joints on the Humira?...
While I do not want to get directly into this debate or argument I do think it is the case that there is an amount of information provided on these forums that is simply not true. There is also some...
Wow that sounds like a really good start to your Stelera journey. They do say that it is the fastest of all the bios to kick in. It is very interesting that all your joint issues are improving. How...
Cheers. Have gone back on Pred and even after a week it has gotten rid of the flitting joint pain. Still some left sided issues which I think are muscular. Let us know how you are getting on......
What are your symptoms like at the start of your Stelera journey UCyousee? Do you still have significant joint issues?...
Does anyone have an interpretation for fluctuating ANA blood results. Sometimes my titer is mildly positive, sometimes moderately positive but it can just as easily return a negative. What would this...
What brand or particular strain of probiotics has worked best for you?...
You mentioned I think UCyousee that you have failed pred in the past....did pred do anything for your joint issues or did it fail there too....like you im trying to work out of my joint issues are...
Thanks for the update. Sorry to hear that your issues still persist. Even though your calpro is low it is still possible that that your symptoms are directly UC derived. You said you had very little...
I agree but in this particular case the OP cannot access those DMARDs for a few months. It then seems totally reasonably that (s)he look at the most powerful med available to bide time and stall the...
UCyousee, how are you doing with your joint and throat issues....have they returned full pelt like you were suggesting last week? D...
Keith, you said you were locked out of this forum by the mods due to arguments on vaccinations. You cannot be back that long (a week?) and you are already at this again. What I decide to put into my...
I did mention that but he did not think Imuran toxicity would present as fatty liver. I do believe there is more going on here. I have a host of superficial symptoms that do not seem to warrant...
I had an abdominal scan in May which showed fatty liver deposits. After some further extensive tests and scans my GI is confident that this is all benign fatty liver disease and just warrants...
A fair bit of talk on joint issues on forum in last while.... Does your IBD joint related pain present with swelling or without swelling? Does it tend to jump around or focus always on some...
UCyousee, I get that feeling in my throat as well. For me it initially seems as if I'm gonna be developing a sore throat but later it seems more like a muscle or gland in my throat has become...
Does anyone feel their doctors do not take their complaints seriously unless there blood marker readings are way off? And if so how do you convince your doctor that intervention is needed because you...
also had left side redness on my scope this summer...Have had pain under the ribs on left side in past but up to now have not equated this with IBD. Could yours be IBS spasms? Not sure if rib or back...
A question for iPoop or anyone else who might want to chime in. Is the scale used for a CRP test linear or is it a log scale? So if your levels go from 2 to 4 does this imply they have doubled (as...
That is a super fast taper Sara....how long were u on pred and what was the max dosage this time?...
I notice that people talk about cramps and spasms particularly on their left side when flaring. What does a spasm feel like? Or I guess I'm asking what is the difference between a spasm and a cramp?...
Hi, For anyone who was on Imuran or 6MP for an extended period and who slowly build up drug intolerance issues to it...how did these come about? what did the drug make you feel like? And what did it...
I agree with you. Lots on this site seem to link patchy inflammation with Crohns. It does have a greater prevalence but it simply is not a diagnostic tool. Patchiness can indeed be found in UC....
Patchy inflammation is usually a sign of Crohns. However, and this is a mistake I see a lot on this site, patchy inflammation will also present in UC when it is medicated. UC will develop...
I had the same experience as you...bloods looked really good all yea, no symptoms, scope showed mild redening of the distal colon but my GI was happy....are you getting any right sided pain...
So my GI feels that after reviewing my scans that I may have fatty liver either due to an autoimmune response itself or else due to toxicity from Imuran therapy for 8 years. My colonoscopy was clear...
Thanks quincy. It was just a 4-year surveillance scope. In 2016 the scope did not show any pseudo-polyps. This scope did. Does that mean that I had active diseases during those 4 years even though I...
Hi. I'm a new member though I've read from these boards for quite a long time. I've been in remission from UC pancolitis now since 2012. I had a colonoscopy last week and the report read "Mild...