Thanks Sara. Can’t believe I was told I ask too many question on a forum designed to help. It’s sad that these kinds of comments are the reason this forum isn’t what it used to be. Sad to see so...
Hi gritty hope. My symptoms are random. I feel like I’m going back into a flare tonight. I’ve had bleeding again though not sure if it’s haemorrhoids. Last calprotectin was 28. I done another one...
Wish I had of listen to this advice....
Do you use enemas on entyvio?...
It was confusing that’s why I made the post. I’ve seen there is a difference but a lot of ppl think it’s the same thing. Grapes seeds are not grapefruit. Grape fruit is yellow and round like an...
Thanks I definitely will ask my GI before starting. Just thought someone might already know the answer....
Yes I’m seeing improvements on some days fully formed stools. Other days mucous but usually at the end of a bowel movement. A lot more formed stools but still some burning afterwards. No pain and...
I came across and old thread which suggest GSE might interact with entyvio. Has anyone on biologics used this supplement?...
That's not what I'm doing and there's no evidence that I'm doing that. I only mentioned my status as a health practitioner because I was trying to frame why I'm here, and the research I'm doing....
I thought all forms of sulforaphane were broccoli extract. I’ve never seen a supplement that’s not isolated from broccoli seeds...
Van Jordan you take the rice bran on cereal (not rice bran oil?...
I think I’ll add one thing at a time. I’m still struggling to increase the broccoli extract. I can handle cabbage juice though and I also get formed stools after cabbage juice. It also had glutamine...
sorry I quoted the wrong person. How did they treat the pyoderma? That’s pretty scary...
Currently using these. I can’t say they’ve made a huge difference. Ive had no side affects at all. I started them when i tapered off pred to keep things stable while I wait for entyvio to work....
With sulforaphane you have to start with smaller doses, like a fraction of a capsule. It causes a shift in gut flora that is positive, but the intermittent die off can easily overwhelm the body in...
A paper will be published soon with all the details. Sincerely, JP This was his reply to my Email...
Thanks poopy doop. I kinda figured it was an old question. Thankyou...
I ask a lot of question? Wow. I notice a lot of comments too and you always seem to be on the end of a lot of negativity. Comments like yours are the reason this forum is half of what it used to be....
The price of $145 is from Amazon's Canadian site. In US the price is $61.75 for the same product. https://www.amazon.com/BROQ-Sulforaphane-Supplements-Independent-Stabilized/dp/B08JG27DSZ Little...
I just read the difference in the BROCQ supplements. A higher quality broccoli seed. Did any of these supplements give you any trouble? You’re right about the price. It’s expensive $145 US. I don’t...
I got an email back off Dr Pravda. Excited for the release...
Thankyou. Let us know how it goes. I will check them out...
Thanks to everyone on entyvio that couldn’t take 2 minutes to answer a question....
I believe it. Where do you follow his work? I wish I knew about this for the twelve months I tried to beat this flare with just enemas. Now I’m scared to not use medication because the inflammation...
I really don’t see what I have to lose. Most of these supplements have benefits well beyond UC. I’ve never believed this disease was auto immune. I just knew something triggered it...
I’ll make my own Van Jordan post. I’m interested in the hydrogen peroxide theory. I can only find two videos on you tube. I have emailed Dr Jay Pravda. Not sure if it’s an old email. Where do you...
There have been many, many scientific discoveries about root causes and cures in the past 60 years. They all got buried by big pharma and profiteers. If you've only read 1% of the insider info I've...
How long did remission take for those on entyvio...
I’m not. I don’t feel like I’m in remission. Normal range result but not symptoms...
What is stelara? Is it immunosuppressive...
Thanks so much for taking the time to help ease my mind or atleast put things into some perspective. Tbh I think of all that’s happened the PE is what plays on my mind the most. Funnily enough I’ve...
Thankyou...
Thanks clo. How did they treat your pyoderma? Is that very common, I’ve read it’s from UC. As if this shitty disease isn’t bad enough (no pun intended) Sometimes I smell eucalyptus which helps a...
They don’t care about root cause they want to keep us on medication...
No definitely not. Mine sits in the esky for the days collection. That’s how it’s always been done. My results during a flare were just under 4000...
I just wanted to share my last two fecal calprotectin results because I don’t see my GI until the end of this month. I’m hoping someone can offer some insight. Two weeks ago I had some constipation...
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. It’s funny you say that. I watched my mother fight addiction from benzodiazepines. I always thought I avoiding medication was the answer. I’ve literally suffered Without medication for 40 years....
I really am actively trying. I don’t want to live like this either. My daughter said to me “it will become your new normal mum, just like it did with the first lot of medication” maybe then I won’t...
That shortness of breath tends to be the first sign. That feeling of not being able to take in enough oxygen to survive, like your lungs have been filled with cement. Your chest starts to ache while...
I took a covid test on the Tuesday before I had my injection. It was negative. Over the last three days I’ve had 3 negative covid tests. I’d say it’s a mild viral infection but it did make me...
Thanks for your reply. Obviously you don’t have anxiety because if you did you wouldn’t make such an uneducated comment. People with anxiety do look for this to be anxious about! That’s what anxiety...
You’re partly correct. It is my anxiety again. I doubt I’ll ever change that. I’ve been like it my entire life. This illness has only made it worse and tbh I don’t see a way of ever being any...
If I had my time again i would of skipped suppositories and went straight to enema and definitely included oral...
What illness have you contracted while on biologics?...
Hi flower gal. Next Tuesday is my first sub cut injection. I’ll post a topic 😊...
I stayed in remission for over 9 years on one enema at night. I started flaring. Increased to two a night for over twelve months hoping it would control the flare. It was bearable. No pain just...
I went from porridge like stools to constipation to, today perfectly formed stools. I was that excited I took a picture....
I agree 100% it’s not something I’m considering yet. I’ve seen enough hospitals to last a while yet. My health will come first and I’m far from recovered mentally or physically yet. Thanks flower gal...
Pryor to my flare and ending up on entyvio I planned to have cosmetic surgery. I had saved for years for this. Does being on entyvio reduce my recovery. I thought once I was on entyvio or...