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fruitgirl

HealingWell Forum
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Member Profile
Display Name
fruitgirl
Profile Created
2/4/2009 10:49 AM
Last Seen
2/2/2023 11:53 AM
Total Posts
7164

Last 50 Posts

Infusion delayed, anxious and worried

That's such good news!...

1/19/2023 6:56 AM

Ulcerative Colitis
Infusion delayed, anxious and worried

I really hope that you can get in on time. Worrying about things like this really sucks....

1/19/2023 6:44 AM

Ulcerative Colitis
argghhh

I'm so sorry you have to deal with all of this. It just really sucks that insurance is via for profit companies. Since they have to make money, they don't at all keep what is best for the patient in...

1/19/2023 6:43 AM

Ulcerative Colitis
Long time no post - flare or not?

I unfortunately can't minimize contact with this person too much. I run a large research facility at a university and this person is a major user of the facility. We have also been friends for 20...

1/19/2023 4:58 AM

Ulcerative Colitis
Long time no post - flare or not?

Yep, it's job-related - it's a pretty complex situation that would take forever to explain. Some of it has gotten better and some if it has not. I have good support from my supervisor, so that's...

1/18/2023 1:18 PM

Ulcerative Colitis
Long time no post - flare or not?

The did biopsies in three places and it was found in all three areas. Yes, still on Apriso. I think this (and the dry eye disease I was diagnosed with a couple of months ago) is due to Lexapro. I...

1/17/2023 6:00 AM

Ulcerative Colitis
Long time no post - flare or not?

Yep, one can have both although it is quite rare from what I’ve read so far. I don’t doubt the UC diagnosis given how bad my colon looked when I was diagnosed. The most common treatment seems to be...

1/16/2023 12:18 PM

Ulcerative Colitis
Long time no post - flare or not?

Biopsy results are back: I have lymphocytic colitis (a form of microscopic colitis) now, too. I mean.... How lucky can I be?!?...

1/16/2023 11:26 AM

Ulcerative Colitis
It's my 14-year anniversary with UC

Hey - it's 14 years for me, too! (ETA - Clearly, I didn't read the entire thread nor did I look at the original date before I replied!)...

1/14/2023 6:27 PM

Ulcerative Colitis
Long time no post - flare or not?

I was off of pred two days before the scope. The GI that did it seemed to think there still would have been at least a bit of inflammation since it was a pretty short course. And the diarrhea was...

1/14/2023 6:26 PM

Ulcerative Colitis
Long time no post - flare or not?

Scope today showed no active inflammation - the doc did note that "..the mucosa vascular pattern in the sigmoid colon was diffusely decreased." He also told me that he didn't think the diarrhea I was...

1/12/2023 12:10 PM

Ulcerative Colitis
Long time no post - flare or not?

Thought I'd updated that I started a 20 day 30mg pred taper last week. My symptoms kept getting worse so I didn't think it was wise to continue to decline until after a scope on the 12th. My symptoms...

1/4/2023 8:27 AM

Ulcerative Colitis
Long time no post - flare or not?

Thanks for the insight and I'll try to address all questions and comments in my reply. It's nice to "see" a lot of you again, too! First, it's helpful to hear that others have seen poor correlation...

12/27/2022 11:53 AM

Ulcerative Colitis
Long time no post - flare or not?

Hi all, It's been a long time since I've posted here. I was diagnosed with UC in January 2009 after the birth of my first child in October 2008. Got into remission, had a second child in March 2013,...

12/26/2022 10:07 AM

Ulcerative Colitis
Anal abscess with UC?

I had an anal abscess and resulting fistula a few years ago. Because my UC was in complete remission when it happened, my GI and colorectal doc saw no reason to question my diagnosis with UC. The...

2/8/2016 11:56 AM

Ulcerative Colitis
night SWEETS !

I don't think I've ever gotten out of bed and eaten anything in the middle of the night. I have eaten in the middle of the night, but that was more like a "eat some food to sop up all the alcohol"...

2/8/2016 11:16 AM

Ulcerative Colitis
Flare up with 10 weeks pregnancy

I think that at this point, you need to make sure to get the flare under control for your baby's sake. Congrats on the pregnancy, BTW! You may want to ask to see a high-risk OB, or ask your gastro...

2/8/2016 11:14 AM

Ulcerative Colitis
Melatonin

I take 5mg extended release melatonin every night. I stopped taking it in January, and was sleeping fairly well, but then I had a slight uptick in my daily number of BMs (from 1 to 2-3). This was at...

2/8/2016 6:02 AM

Ulcerative Colitis
Diet question - Grains

Yes but look at your signature. If I were on those big gun meds then we could all eat whatever we wanted too.[/quote] I'm fine with grains (and haven't needed to modify my diet at all since being...

2/8/2016 5:55 AM

Ulcerative Colitis
"Prepare to flare after giving birth"

I flared after my first child was born, but that's when I was diagnosed. I did not flare after my second was born, but I had been stable for a couple of years before getting pregnant, was stable...

10/26/2015 5:17 AM

Ulcerative Colitis
What should my expectations be??

I'd try ditching the mesalamine rectals. During the small flare I had a year and a half ago, I became sensitive to mesalamine rectal meds. At first, I thought it was just the sulfate preservative in...

10/20/2015 9:04 AM

Ulcerative Colitis
Cool new faculty position at Purdue - Food and the Human Microbiome

q, thanks. I'm not sure how much I'll post - I just don't feel that I have a ton to contribute. nssg, nope, I won't apply. I'm not qualified (PhD is in horticulture), but I also have decided I don't...

10/2/2015 8:08 AM

Ulcerative Colitis
Cool new faculty position at Purdue - Food and the Human Microbiome

I ran across this today - it's just now being advertised, so it will be a while before someone gets up and running, but this could result in some interesting info for IBDers. Here's some text from...

10/1/2015 6:55 AM

Ulcerative Colitis
GAVIS Mesalamine Enema

I didn't like the tips on the Gavis bottles - I thought they were sort of rough compared to Perrigo....

9/29/2015 10:25 AM

Ulcerative Colitis
rectal med questions

I always just laid on the bathroom floor to do enemas - I was too afraid of drips and the possibility that the enema solution could stain my bedding (and it DOES stain). I'd just do it, get up, wash...

9/29/2015 10:23 AM

Ulcerative Colitis
Would you be gutted if there was a cure, but it was too late for you?

I haven't been here in a long time, but I'll "play." TBH, I really don't know how I'd feel. I think I'd be OK with it, *if* I had a well-functioning j-pouch or were content with my stoma. If that...

9/29/2015 10:20 AM

Ulcerative Colitis
pregnant, living with UC and off medication

Get back on your meds. It's a lot more dangerous to flare than it is it be on mesalamine-based meds during pregnancy. I took Apriso and mesalamine enemas the entire time I was pregnant with my second...

6/20/2015 5:48 PM

Ulcerative Colitis
Somewhat OT - doc in MI to treat systemic yeast/fungal infection

I won't go into too many details because it's a long story and I don't have them all, but my sister in law is certain she has a systemic yeast/fungal infection. She has horrible gi symptoms, has had...

4/6/2015 5:14 PM

Ulcerative Colitis
Question about how colitis works

You can have a flare that involves less, or more, of the colon than what you've had in the past. For instance, I was diagnosed with pancolitis. I had a very mild flare about a year ago, and while I...

3/27/2015 4:03 AM

Ulcerative Colitis
Darn flu caused UC to act up

I think I found that actual study you reference (not a report about the study), and the parents were the ones recording the amount/severity/ect. of coughing, so perhaps THEY were influenced, and the...

3/26/2015 12:13 PM

Ulcerative Colitis
Darn flu caused UC to act up

I imagine that the conditioning would require many instances of reassuring her that the medicine would "make her all better," sort of like a Pavlov's dogs thing. And, who knows how these studies were...

3/26/2015 11:39 AM

Ulcerative Colitis
Bristol Stool Chart - an easy way to keep it handy

Wouldn't that be fun to put in a guest bathroom? ;)...

3/26/2015 11:19 AM

Ulcerative Colitis
im going to cure my ulcerative colitis

This exactly. Except that oral mesalamine does a lot for me....

3/26/2015 11:15 AM

Ulcerative Colitis
Darn flu caused UC to act up

My daughter had flu last year as an 11 month old. She woke up in the middle of the night with a 104* fever and we took her to the doctor that next morning, where she tested positive for flu. We...

3/26/2015 11:12 AM

Ulcerative Colitis
Remicade update / two questions

My GI told me there's been ONE reported case of diarrhea in an infant whose mother was taking mesalamine. And given what baby poop is like, how accurate might that be, even? I was not at all worried...

3/19/2015 6:19 AM

Ulcerative Colitis
New drug for Crohn's disease shows early promise

Interesting, OM. As for the questions why CD first, I think it's because CD is generally thought to be a much more serious disease. It can affect the entire digestive tract, not just the colon, and...

3/19/2015 5:47 AM

Ulcerative Colitis
OT - this is an interesting little blurb with my son's awesome GI doc !

First, that's awesome that you have such a good feeling/relationship with your son's GI. It makes things more tolerable (not sure if that's the right word, but I hope you know what I mean) when...

3/16/2015 10:52 AM

Ulcerative Colitis
avoiding travellers d?

Ditto to not take imodium if you get traveller's diarrhea. Whatever "bad guy" got in there needs to get OUT, and stopping the diarrhea is not a good idea! Avoid fresh fruits and veggies, as the water...

3/16/2015 9:27 AM

Ulcerative Colitis
Speaking of food

sue, can you share the recipe? I like spicy stuff!...

3/13/2015 8:58 AM

Ulcerative Colitis
What's next

Congrats!!!!...

3/13/2015 6:27 AM

Ulcerative Colitis
Speaking of food

This quinoa pad Thai recipe is REALLY good. I added more sriracha than what the recipe called for and started with leftover roast chicken. http://www.cookingforkeeps.com/2013/12/03/quinoa-pad-thai/...

3/13/2015 5:32 AM

Ulcerative Colitis
Don't eat potatoes, tomatoes, eggplants

And to clarify, I think it's great that people share what food bother them - it can give others ideas of what to try, if they think they need to modify their diet. However, I really do think the idea...

3/13/2015 4:57 AM

Ulcerative Colitis
Don't eat potatoes, tomatoes, eggplants

Sorry, but wrong again. I eat dairy daily. And while I don't eat a lot of processed foods because I like to cook and I like to avoid them for overall health, I do eat some....

3/13/2015 4:46 AM

Ulcerative Colitis
Pregnancy and safety of enemas

I have never seen that enemas aren't safe in the third trimester. Where did you see that? I used them the entire time I was pregnant with my daughter. She was born the day before her due date...

3/13/2015 4:21 AM

Ulcerative Colitis
Don't eat potatoes, tomatoes, eggplants

I'm in remission - I had 5-year very solid remission (zero symptoms), then a very minor flare, and have been back in remission for over 9 months now. I eat all of those things, and especially eat a...

3/13/2015 4:19 AM

Ulcerative Colitis
Melatonin

Papers are absolutely peer-reviewed, if published in "peer-reviewed" journals. They don't have to be presented at a conference to be considered peer-reviewed, either. The journal editors send the...

3/9/2015 8:15 AM

Ulcerative Colitis
Social Security Disability

(Another MSU grad checking in - PhD in horticulture/plant breeding. Go Spartans!)...

3/4/2015 10:13 AM

Ulcerative Colitis
Do you think coffee is bad for colon

I have a cup or two every morning....

3/4/2015 8:30 AM

Ulcerative Colitis
Social Security Disability

My aunt is on SSD due to severe RA, and she lives with my grandparents. When they pass on, though, she's going to have to go into subsidized housing, because she's impossible to live with (I don't...

3/4/2015 6:04 AM

Ulcerative Colitis
GF-ers, need your support

I still just don't see how the anemia could be due to Celiac since you're already gluten-free. Have you point-blank asked your GI this? I'd want a really good answer for that question before I'd...

3/3/2015 12:11 PM

Ulcerative Colitis
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