Nope. Just slept propped up with pillows....
I also have ongoing issues with bloating. I've found watching my diet and keeping a diary works well for me. I've been able to pin point some foods that make is worse. Adding a probiotic can help as...
Do you keep a food diary? It can be a pain figuring our what foods bother you, but once you do = game changer. Dairy, and not just the lactose, but more specifically whey and casein bloat me, as do...
I'm always for diet first! I'm a total health nut. And I'm a believer that sugar has more to do with high cholesterol than fat does. So folks try and go heart healthy and eat low fat. Low fat foods...
Generally Plavix for 6 months to a year, depending on type of stent. Sometimes longer. Aspirin daily. Not stenting when you have blockages is dangerous. Both the stent and Plavix help to protect...
I'm about to start Warfarin following a second aortic valve replacement. From all I have spoken too, other patients and doctors, blood thinners shouldn't be to big of an issue with Crohn's. As my GI...
This does help, thank you very much, I appreciate your input....
Hello fellow Crohnnies. I will begin anticoagulant therapy, most likely with warfarin, here in a couple of months, following my second aortic valve replacement. I've of course spoken with my doctors,...
You can talk to your doctor/healthcare provider about MK7 (Vitamin K2). K2 is associated with the reduced risk of coronary calcification. Are you limiting Vitamin K intake? All I've talked to said...
Foods can cause inflammation, meds can cause inflammation, all the GI tests they put you through can cause inflammation. If they didn't see ulcerations and the biopsy comes back negative, I'd say...
Agree with all the above. I will add, if you are healthy and not symptomatic, I would also limit the number of tests you allow them to do. Test enough, you will find something. And that something...
Totally. I supplement a lot as I'm an athlete (power lifting). I add BCAAs and aminos to my pre and post workout, along with a vegan protein (I can't process whey protein). Do they help, I'm going to...
I'm interested to hear from any of you out there that have a mechanical valve. How do you like it, what is the blood thinner management like, how active are you? I have a prosthetic tissue valve...
It could be Thrush (candida overgrowth) or a yeast infection in your mouth caused by antibiotics. A round of oral Diflucan usually fixes me right up. Another idea, do you take Pepto-Bismol? It can...
You can always try edibles if you don't want to smoke. I actually find the dosing a little easier to control....
Only suggestion would be eat light for several days prior too and liquid the day before. Always makes the prep work a little easier for me with less camping. I also take Phenergan with mine, to help...
I ALWAYS get a flu shot and any other vaccines I can and have never had a problem....
hemorrhoids?...
I would say yes it can be manged on blood thinners, it just creates a more delicate balance. I would suggest having your GI and cardiologist communicate and have some detailed discuss with your GI on...
I have Crohn's Disease and congenital heart disease. I had a aortic valve replacement and went tissue over mechanical valve so I didn't have to take blood thinners for many reasons, one being the...
Everyone has to make their own decisions and figure out what is best for them. And if I remember correctly, with a lot of these biologic, once you stop taking them, it's possible they will not work...
Emergency appendectomy. I presented with intermittent lower right quadrant pain and diarrhea. Had a "nervous" stomach since I was a teenager. CT scan showed what was thought to be a ruptured...
Oh... I never did. I rode home from the hospital 4 days after open heart surgery in the front seat. I started driving 5 weeks post-op. I did however, stay off my bike for 4 months in case I crashed....
Why are you afraid to exercise? Because of the dizziness? I would think yes, it could be your meds dropping you to low. It could also be your breathing. A lot of people tend to hold their breath when...
Emergency appendectomy. I don't suggest this method :)...
You can go straight salt tablets. If you want the added electrolytes, do those, but check the sodium content. Something like saltstick electrolytes have a good bit of sodium. Not all electrolyte tabs...
Hi! I have congenital heart disease, Bicuspid Aortic Valve disease to be exact. My aorta is dilated to about 3.9 currently. I had my natural valve replaced 5 years ago with a bio-prosthetic aortic...
I've never had that effect from beta blockers, but I'm fairly sure they do not build up in your system and flush fairly quickly. Therefore, I would think after a few days of not taking them, the side...
Are you near a children's hospital? In your shoes, I would want a referral to a pediatric cardiologist, preferably at a children's hospital as they are multidisciplinary and can do more investigation....
My thoughts go to gas and/or gallbladder actually. Do you notice the pain more after a meal or at different times of day?...
I had OHS 5 years ago to replace my aortic valve. I had endocarditis at the time, so they couldn't repair my AA. I was 36. I was in the ICU for 17-20 hours, hospital for 4 days. Walking up stairs at...
You can also look at the Paleo Auto Immune Protocol (Paleo AIP). Of course it's even more restrictive. But it's a good clean elimination diet. I discovered many foods I had an intolerance too when i...
I control my disease with diet an exercise. I never reached clinical remission on drugs. However, I have been in clinical remission for 4 years and drug free for 5 years now. I was diagnosed 17 years...
appendicitis is more upper right quadrant and can radiate to the back and middle abdomen. There is generally no question with an appendicitis.... it hurts. Bad. it is often removed during surgeries...
I took Cimzia as a first time biologic. My insurance covered it no problem. it was NOT effective for me and I never reached remission on the drug (took 2 years). ultimately, I got endocarditis while...
My understanding is the way to strengthen your heart and any muscle is through a healthy diet, exercise and eliminating bad or damaging habits (if you have them) rather than medications.........
Hey y'all. Do I have any fellow exercise junkies out there? I have congenital heart disease, bicuspid aortic valve disease with an aortic aneurysm. My aortic valve was replaced 5 years ago...
Yep, it's more common for your murmur to be nothing than something....
liked your post @Pratoman. I agree with the school of thought that cholesterol is not the issue. I would watch "low-fat" foods as they have added sugar. I am in the thought that heart disease is more...
gallbladder?...
Yep, I'd think reflux too. I'd also consider gallbladder before heart. Good luck....
Try keeping a food journal. For me, dairy, onions, bananas, cauliflower all make me bloat big time....
Should I have discomfort after an upper endoscopy with biopsies (test was yesterday morning)? First of all, I slept for 22 hours after the procedure, holy moly too much drugs. So I haven't eaten in...
Yes, I do. I'm 41, diagnosed 16 years ago, one resection 16 years ago. It's different for everyone though....
I was in your spot when I was 24. Now I was not responding to any drugs, and this was before any of the big ones were available and I had a stricture of scar tissue.... but I went with a small bowl...
Yeah, I was a stomach sleeper prior to my OHS in 2012. Sleeping sitting up with several pillows behind me was the only way I could do it. Now I sleep on my back propped up regularly....
I STRONGLY suggest finding an adult congenital heart clinic in your area. https://www.achaheart.org/your-heart/clinic-directory/ What was the surgery you had as a child? To repair what?...
The meds may keep your heart rate from hitting what's defined as a "peak heart rate" however, this shouldn't prevent you from increasing distance or stamina. It just changes your personal heart rate...
I'm 40, diagnosed 16 years ago at 24. I had SB resection at TI 6 months after diagnoses (stricturing disease, partial obstruction) and have had a few flares post surgery. Currently, for the first...
Yes, generally when your appendix becomes inflamed, appendicitis, they surgically remove it, appendectomy....