Hi Minnie! I’m so sorry I haven’t been around and missed this! How are you doing at this point? I have been extremely fortunate that my fistula hasn’t returned now 9years later (😮 how has it been...
Hey all, feeling pretty crumby and in pain again. Will comment on everyone soon as I can muster the energy....
Hi Clo and NCOT! So nice to hear from you both. Wish it was under better circumstances of course. Oh my goodness Clo you are 100% right with the “bad news cycle” :( I was on Remicade until my...
Hi All, It’s good to see some familiar faces! I haven’t been here in a while. How are you all holding up? After about 4 years of remission, unfortunately my last routine scope showed active disease...
I’m on Remicade. I got the Pfizer shot in March. No side effects other then a little achy arm for a day or so. I had my antibodies tested two months ago and had a great response to the vaccine. It is...
Thank you U B, and so so glad to hear you are still doing well in remission! Will go find myself some tea tree oil to start with....
Y’all I’m done with this year. I lost my mother/best friend recently and feeling the soul ripping pain of it. The only thing I have going for me right now is that my health is good. last few...
Got my first dose recently only two days after my infusion. Doesn’t seem to be an issue though some suggest if you have the option give it a little space so your immune system will be able to mount a...
Thanks, it rarely happens but last night was not good, no buldge tho. Will probably call about it though just incase....
Those of you who have had hernia repair, do you still experience occasional pain where it was? Every so often I lift something that seems to set off pain there. Yesterday I was working on moving some...
Thanks Clo! Blood work came back perfect! So thats good news! Waiting for the results of the stool tests. I just dropped them off today. Long story about how that ended up taking so long but in an...
I’m so sorry you are dealing with this on top of everything else! I’m not sure if I was posting too much around that time (fall 2019). I had had it for over a decade but the stricture in 2016 caused...
I had inguinal hernia repair a little over a year ago. Make sure you get a surgeon that has done lot of them and understands complex cases with your other health issues. Mine was fantastic. He...
Hi All, No worries at all with the conversation, continue! Family emergency earlier this week so things have been upside down. I just went to get the lab work done today. Still have the discomfort so...
Straydog: we will be meeting via video call. I’ll ask about the MRE though not sure if he will recommend it. The last one did not show up on MRE or CT, only during the colonoscopy. Thank you for your...
Clo!!! So good to hear from you! Have thought of you often and was wondering how you are doing!I hope they are able to get you in soon to get it fixed. I’m so sorry you are going through this during...
Hi Straydog, Thanks! I had a balloon dilation of the fibrotic stricture that opened it up to normal and had not reoccurred 2 years ago....
Hi all, do any of you know if you can develop a stricture with crohns in remission? Everything points to me being in remission but about 2 weeks ago I started having a dull ache in my lower right...
Ack! The uvula! I remember getting an infection in that a few years ago, it was so bizarre and terrible! Glad to hear you are feeling better! I hope you have a good response to the Remicade! Things...
Hi Bucko! How are you doing??...
Check out the diet UMass has been investigating- IBD AID diet. Seems promising at least for some and as a compliment to Medication. They have a step by step way of transition from low residue to a...
Happy Holidays to all of you! I haven’t been around much and luckily Crohn’s has been under control (although some nasty symptoms the last few days that I have to get checked out) . Wanted to stop by...
Thanks Lanie so so much for commenting.I feel very betrayed. I have been going there for about two years. I love the psychiatry residents that I see there, extremely helpful and great at what they do...
I need some perspective: Today my therapist compared me to my father with whom I have a bad relationship and who by most standards has been emotionally abusive to myself and my mother. On one hand...
Yes it’s prescribed. I had it years ago with the fistula i had...
You may have room to increase it. Talk to your doc. I didn’t find that it completely helped on its own....
Started it about 4 years ago. It’s still widely prescribed. Almost all IBD meds are expensive and most insurance will require both proof you need it and sometimes negotiating by the doctors....
Thanks guys for responding! We decided to discontinue it because I was only on a tiny amount of it-25mg. At a higher dose it made me extremely nauseous and I couldn’t eat. The 25 mg that I have been...
Hi all, it’s been a while, hope you are all doing okay. I’ve been in remission about 4 years now on Remicade and low dose of 6mp. Pretty much zero symptoms for the majority of that time. About 2...
Yep, there were also quite a few people that died from infections acquired from FMT recently and it’s safety is being questioned...
Bucko, can you get a visiting blood draw at home? In my region we still have this option....
Barbz, I hope you’re okay. Please keep us posted. Can you call your doctor or get a telemedicine consult? The greenish yellow stuff usually indicates bacterial infection....
Raising my hand. Yes. Also in my early 30s. I’m on an immunosuppressant for a autoimmune disease that’s been in complete remission for several years so otherwise healthy. I take care of my mom who is...
Giving yourself a break with the Xanax will help break the panic cycle. We are all in this together *hugs*...
Been there! When I was having frequent panic attacks and high anxiety two years ago, that concept ( I mentioned something about my own medical experiences to someone with anxiety and it triggered...
Here for you. These are scary times. call your pcp or local urgent care and see if they recommend getting tested.Same here on the anxiety. I’m immunocompromised and I take care of my mom who is...
Hi Forever Positive, I’m sorry you are going through this. Take a look at the anxiety resource thread at the top of the forum. It has a lot of helpful things you can try. Deep breathing exercises are...
Definitely still time to get the flu shot! If you feel okay, getting the shot now can give you protection the rest of the season. It’s worth it....
Might want to ask about xopenex inhaler. I took it years ago as an alternative to albuterol. I only needed it when I was sick. Doctors told me it didn’t have the component that causes the heart side...
Hi maddixone, I hope it works well for you! Everyone is different. It didn’t work for me. I’m on Zoloft and buspar now with good results. As for the inhaler, albuterol is known for elevating your...
Thanks Karen, sick stuff has improved, finances not so much but such is life, I’ll find a way....
Same, if I can recognize it right away as anxiety it takes some of the power out of it....
Feeling better than last week but new supervisor can do a lot of the jobs I was doing so cut back in hours and pay hitting at the worst time- definitely increased financial stresses even more-...
I hope they are able to give you some good advice/help! Let us know how it goes!...
I totally get it! Between what my mother was going through hospitalized in the same hospital I ended up in at the same time with my own problems and trying to manage both of our care I felt like I...
P0tluck I’m so very sorry that you are going through so much! Have you seen a mental health specialist? Are you on any medications for it? I do believe the doctor is right that time will help but you...
Yes,exactly medved, that’s why it sometimes doesn’t work for me. It’s easier for my thoughts to get tangled and to think about my thoughts when I’m not deeply engrossed in a strict schedule during...
Good reminder! Sometimes it helps. Also labeling it just a thought and taking away its power helps. Doesn’t always work. Thankful my vacation will be over soon to keep my mind busy on other things:/...
Sending you strength as well HT! I appreciate the support 🤗 Trying to find a routine I can keep up with....
I hope the holiday treated everyone reasonably well. I noticed right before the holidays and the start of a long vacation, I was feeling amazingly good. A lot of this was reminding me of the really...