I do see a neurosurgeon for my back and my next appt is in a week. I know that the next step would be injections and that is something that is not good for Lyme. I am trying to figure out if the Lyme...
I also have pain and discomfort in the butt area, it feels like I am sitting on a golf ball. I have a 4cm Tarlov cyst. I do take an inflammatory called Arthotec and it does help with back pain but...
I am just finishing up 8 weeks of PT. about[b] two weeks ago, the pain went away and it is now back again and I have not done anything to injure the back.[/2]...
The pain is in the center and somtimes to the right, around the SI joint. I do have a bulging disc and spondy. I have been checked out and it is not kidney stone. Doctor thinks it is bartonella....
I saw my doctor this week and I asked the nurse if she thought that Lyme was still on the increase. She said that her office is not taking any new patients. She said that they are constantly...
Right now, my only symptom left is bad back pain in the area a little below my waist. Is anyone else suffering from back pain? There are days that I can barely walk....
Thanks, RD. I keep reading that patients with Lyme shoud not have steriod injections. I am scared to get them but also scared to do nothing. My back is so bad I can barely walk....
My worst symptom and mainly my only remainig symptom is terrible back pain. I had a MRI of my lumbar spine and I have 3 bulging discs. This doctor wants to give me a cortisone injection. LLMD says do...
Sebastian, I can relate to the back problems. I have osteoarthritis in my lumbar area and three bulging discs as well as a Tarlov cyst. These were found on an MRI. I also have the burning, stinging...
I had an MRI of my lumbar spine recently and it showed that I also have three bulging discs and a Tarlov cyst. I am having difficulty walking for more than 30 minutes, my back gets stiff and burns,...
My lower back pain is my worst symptom. I am trying to figure out if it is the Lyme or Bartonella, does anyone else suffer from this?...
I forgot to add that the balls of my feet hurt all the time. I was told it was the Bartonella....
I had a speech problem and it scared the crap out of me. I felt a disconnect between my brain and my mouth and the words I was trying to say came out garbled. I thought I was having a mini stroke....
I have the short stabbing pains but not in my joints. Mine are in the soles of my feet and in the pelvic area. I have Lyme and possibly Bartonella....
I am not CDC positive but Igenex positive. The bands I have positive are: 18 kDa ++ 30kDa + 34kDa + 41 kDa ++ 58 kDa +++ 83-93 kDa + Do you think that these positive bands are significant for Lyme...
What do these two tests mean? I was positive on the IGM and negative on the IGG. I thought that one means current infection and the other past infection? I do not know what to think, thanks....
How about when you think that the TV remote is your phone and are trying to dial the remote....
I saw the neuro today and received the MRI results. There were no lesions. Thank you all so much for taking the time to answer my questions and for your support....
Oh katiebugok, I have the trembling in the arm as well as the smells. My hand started to tremor and it started going up my arm. I had to control this movement with my other arm. My sense of smell has...
I was tested in 2006 for lyme and all co infections. At that time, I was diagnosed with Lyme only. This time, I was tested for Lyme and Erlichia, but not bartonella or babs. My LLMD does not feel...
Jenna29, I would like to know the answer to this as well. I had an MRI today without contrast. I see the doctor for the results on Friday....
You could say that I was in remission for a year. Some symptoms started back like tingling, headache, neck and back pain and muscle spasm. I have started treatment again but wonder if I should just...
The first LLMD I saw, 09/06, uses the Marshall Protocol. I was unsure if this was the route I wanted to follow. I asked questions on different Lyme forums and there was some controversy. Of those who...
beths, my PM does not work, so I sent you an email with the name. If you do not receive it, check your junk mail it should be there now. Let me know if it does not come through. I wonder if we see...
I am fighting as well. I took Ambien last night and slept like a baby, even my tingling was gone. Have you tried Ambien?...
Oh shadowmom, I am so disheartened to hear about Chris's doctor appt. When I had the bulls eye rash, I was treated with 10 days of a low dose of doxy. My internist would not give me anymore meds, I...
popsie, thanks. The feeling I have in the soles of my feet is not like the normal pins and needles either, it is pretty intense. Thank you for your advice and concern, it is really helpful and...
popsie, thanks so much for your concern. It is my doctor who is performing the test next Friday. She should have my MRI results by then and I will question her as to why this test is being performed....
I read your post about your sister. I hope that she was able to get treatment and hope from the doctor in MD....
Not sure. My lower lumbar spine is really bothering me. I can not walk for more than 30 minutes without becoming stiff and it is very painful. I saw a spine doctor about this and had an MRI. I was...
I would like to know as well. I live in Northern Virginia....
A big congratulations to both Lilly and Mom!...
My feet and lip will not stop tingling. Does anyone else have this 24/7? Is this Lyme or a co infection? Thanks....
Thank you....
I saw the neuro today. I am scheduled for an MRI next Tuesday and EMG/NCS testing next friday. The test on Friday sounds awful. If you had the tests, can you please describe your experience? Thanks....
Gretchen, thanks for the info. I will definitely mention it to her on Wednesday. I would never presume that since you have been diagnosed with MS to tell you to see a LLMD. I am sorry that you had a...
Ticker, thanks for the info. My blood work was sent to Igenenx to test for Lyme and Erlichia. LLMD thinks that I may have Bartonella but does not feel at this time, that testing should be done. She...
Thanks kelly1234, it is good to know that others have the same concerns. I wish that none of us did. Do you also have constant tingling and stabbing in the soles of your feet? This symptom is making...
Cute post, thanks for making smile!...
Turquoise Sky, thank you. I am not anywhere near there but there were a lot of words of wisdom. It did help my outlook and when I am really down and anxious, I will refer to those words....
I was off meds 13 months. I did feel better most of the time on meds except when I herxed. I did not start having symptoms again until around the 21st of April. I am just so darn frustrated with this....
No, I haven't. Is this something the LLMD tests for our my PCP? Is it a blood test?...
I just started a thread about heat intolerance. Hot showers, warm stores, etc and I am like a limp dishrag and profusely sweating. Never had that happen before....
No, I was just diagnosed with severe OA yesterday. I was told before that I had it, but no pain. It must have progressed. My doctors nurse call with the MRI results. He is out of the office until...
I am having a difficult time with heat. It makes my tremors more pronounced and I sweat a lot. I never used to sweat. Even coming out of a hot shower makes me tired and very sweaty. Anyone else, is...
Worrying is definitely a symptom of mine. I am not a crier and that is all I seem to do at times. I worry that every new system I have is MS not Lyme....
Could it be Lyme disease? I thought that someone told me twitches were not a symptom of MS? I had Lyme and may have it again. My symptoms are different this time around and I am afraid that it is MS...
The LLMD herself did not stress me out. It takes anywhere from 2 to 2 1/2 hours to get to her office. Then the visit was long, and talking about all this again was stressful. I was on meds for Lyme...
The doctor talked about a cortisone injection under exray. From what I was told by my Lyme doctor any type of steroid will make the Lyme symptoms worse. I am ruling out the injection for now. Has...
Did the injections make much of a difference? Thanks....