I actually did this a month ago. Definitely eat less two days before the prep day. Refrigerate the prepared prep the day you are scheduled to take it. Take 2 ducolax laxatives two days before. get...
has anyone switched to another GI? and if so, did you have to go through all the tests again to reconfirm the diagnosis?...
I got the same exact generic form letter response too today. I agree that they just want us to call the airlines. That is all I could get from it....
This is what ccfa.org has posted on their website (does not seem like much help for us) NEWS FEATURE Airline Restrictions May Affect IBD Patients New restrictions in air travel on some or...
I have an international flight coming up in March. I did the same thing as the previous post--emailed TSA about the new regulations. Although, my email was not as eloquent as the one here--I feel we...
JOsh Golder made a movie a few years agor called True Guts to bring awareness to the disease. He won an award for it. While I feel it is good to bring as much awareness as possible I feel his...
I have had an abscess that burst, fistula, and skin tags. Now, they think I have a virus down there. I have bumps on my skin and they want to remove them. they think it is from being on the Remicade...
What has been your experience with Crohn's in this area? Symptoms? Anyone ever get a virus down there b/c ther immune system has been compromised by Remicade or antoher immunosuppressant?...
I tried all of oyur suggestions and called the doctor. Now they have me on a steroid eye drop called Alrex. According to the package insert, I should be see ing results within two days. it has been...
I was given Pataday for eye allergies and now my eyes are red and swollen. It seems I have reacted to the drops. Any suggestions on how to relieve the redness and swelling? thanks....
Did you try contacting Centocor? They have a "Remistart" program that you may be elgible for. I fyou qualify, they reimburse you a couple of hundreds of dollars. You may want to check out their...
The medicine you are talking about is actually Remicade. I am on it and am having moderate success with it. i.e. my symptoms are still there, but not as intolerable. You may want to check the other...
I am on Remicade, 6mp, Nexium, and Asacol. I have had 3 Remicade transfusions. I found out this past Friday that my liver enzymes are elevated. The doctor said I need to go for another blood test in...
Hi, I livein NYc and I know what you mean about missing out on all the fun b/c you do not feel well or just tired. I feel the same ways at times, so what i do is on days that I feel fine or better I...
when you go to buy toilet paper the shelves are empty b/c it is on sale.. and this scares you,so you go to another store and buy so much of it you cannot carry home.b/c you can never have enough of...
happy to report the stomach pains have gone away. I guess it is a temporary "common side effect." They give me two tylenol and two benadryl before the transfusion. another question, I am still on 6mp...
I had my second Remicade infusion today. Ever since then I've been experiencing pain in my sotmach. According to the information they gave me, this is a "common side effect." Anyone experience this,...
I had my first transfusion on Thursday. Not much has changed except the abdominal pain has decreased. I slept for 4 hours this afternoon. I would like to know how others have felt after the first...
If you can get up early and are able to eat a small breakfast at least an hour before you run that is great. make sure your body feels ready to go before you start running. You can also drink an...
Yes. I have the same problem. My toes fell swollen and have a burning sensation. It starts in the morning and never really subsides. Do you think it could be the meds?...
Today's NY Times has an article stating that this drug has been shown to cause liver damage within 6 days of people taking it. You may want to talk to your doctor if you are on it....
I agree with what everyone has said. My prep ws just fasting. I was allowed to eat a light snack a few hours into the procedure. The worst part is having that thing on you. To me, it felt like I was...
I am smaller than you.. around 90 lbs. I take 500mg 3x's a day. I have found that if I eat a meal and then take the pills the nausea is decreased considrably. After I take the pills, I usually have a...
I have been waiting for weeks now to start Remicade. I think the insurance may be holding up the process. Do you think if I went to the hospital ER they'd give it to me?? has anyone encountered this...
A nutrtionist at Mt. Sinai told me the following: Most Root veggies are safe--potaotes ( no skin) , sweet potatoes, carrots, beets, squash, zucchini, summeer aquash, green beans, parsnip, rutabega,...
Hi, welcome to the club... a club none of us would voluntarily join. I have the same problem you are talking about. I went to the doctor today and he told me it is an abscess with a fistula. he gave...
Anyone have this problem?? I have what appears to be swelling on one butt cheek right near the top. It is tender and sore. Sitting is literally a "pain in the butt." I have taken sitz baths which...
Hello, I was reading all your responses about having your period and this disease. Has anyone had this happen..I had mine for my normal two days then it stopped. Now, it just started again in full...
Bursitis is an inlfamed bursa sack. Your best bet is to ice it for 20 minutes at least once a day if not more up to three times a day. The bump you see may actually be a calcium deposit that needs to...
I go to Dr. Ben-Zvi. He is associated with Lenox Hill Hospital, and his Manhattan office is 911 Park Ave. No complaints from me....
The cramping has subsided. I think it might have been b/c there wasnot enough food inmy sysyem. I have noticed an increase in fatigue. I guess that is why everyone here says take it at night...
Just started 6mp . Anyone have pain in the abdominal area from it? Before, I started the medication I did not have this throbbing in my abdomen and side. Could it be the medication or from the...
I had a transfusion this summer. I was scared that they would use the wrong type or something, but they are EXTREMELY careful about checking all information. I even checked it myself as well. The...
thanks for all of your help. I ended up drinking most of it, with a toss here and there down the sink. I did chase it with apple juice and sucked on a hard candy. That helped a little. I was cleaned...
I am trying really hard to get this stuff into my system, but it has not been going well. I threw up and have only gone three times since I began taking it. Any suggestions or help would be...
Anyone develop develop diabetes while on Prednisone? Besides a blood test, were there any symptoms you noticed at home?...
If you can tolerate exercise, a good workout always makes me hungry. Otherwise, I just eat b/c I know I have to....
It says on the Pred. bottle "take with food." I also take Asacol and Flagyl....
Do you take your morning dose of pills before a colonoscopy or just skip that dose? In particular, prednisone since it has to be taken with food....
I had it diagnosed right away, too before they did on the show. Read the blog on TV.Guide.com.. it calls the disease "a weird GI disorder." That person should only know.....
1. people comment on your weight/appearance? 2. people ask you how you feel? These questions/statements are asked often mostly by colleagues. Unfortunately, sometimes complete strangers say things...
When you have low energy days, has anyone drank a red bull for a little pick me up?? (of course, minus the vodka.;) Sometimes the one cup of coffee that is tolerable, is just not enough....