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bookworm21

HealingWell Forum
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Member Profile
Display Name
bookworm21
Profile Created
3/19/2008 8:49 PM
Last Seen
7/9/2018 6:25 PM
Total Posts
1766

Last 15 Posts

Antihistamines & Chrons/Colitis

simplified, has your son seen an allergist? My allergist tested for MCAD by doing the tryptase blood test. (It came back normal, so his explanation as to why I had developed so many food allergies...

8/3/2016 12:11 PM

Ulcerative Colitis
Recent dexa scan results

I had osteopenia in 2008 and then my bone density went back to normal in 2010. When I got my DEXA results a few months ago, I was really surprised to see that I was back to having osteopenia--I do a...

8/3/2016 11:56 AM

Ulcerative Colitis
2.5 mgs/kilogram of remicade?

I have never heard of cutting down the dose like--I've heard of people spacing out infusions further or completely going off of Remicade (the latter is my current GI's perspective--either stay on it...

6/7/2016 6:19 PM

Ulcerative Colitis
For those of you on Remicade

1. About 7 months 2. I've had to deal with IBS and several other non-UC issues, but no UC setbacks. 3. I've stayed on mesalamine the entire time and required steroid and mesalamine suppositories for...

6/2/2016 2:59 PM

Ulcerative Colitis
Stopping Remicade

My current GI recommends going off of Remicade IF biopsies show no inflammation--her view is that one should be on the least amount of meds while sustaining remission. However, my old GI has said...

12/15/2015 5:42 AM

Ulcerative Colitis
Oral acne meds

I would err on the side of caution and not use oral acne meds. My derm gave me a topical antibiotic (can't remember what it's called, but it started with a Z) and even the patient instructions said...

4/2/2015 2:58 PM

Ulcerative Colitis
Anyone here looked into Mast Cell Activation Syndrome?

Yes--I asked my allergist about it because I've developed so many food allergies in the past couple of years. He said it was rare but agreed to test my tryptase levels-->20 ng/ml indicates mast cell...

4/2/2015 2:54 PM

Ulcerative Colitis
getting vaccines when you have colitis.

Yep, if you're only on Asacol, you should be okay to get all vaccines (live or dead). For those of us on Imuran, 6MP, Remicade, Humira, etc., we can only get dead vaccines....

2/6/2015 8:48 AM

Ulcerative Colitis
Gone to Goldberg Clinic or Dr. Hoffman?

Goldberg is a total scam--don't waste your time, money, and sanity (seriously, I had to start therapy after seeing him b/c he was so terrible to me and I was angry at myself for falling for it). IF...

2/6/2015 8:44 AM

Ulcerative Colitis
Life After Remicade?

It's funny that you're posting this--I'm kind of in the same boat...my current GI says that if you've been in remission for a few years, she'd rather not have you taking medication if you don't need...

1/21/2015 7:55 PM

Ulcerative Colitis
9 yr old daughter

Cincinnati Children's is one of the top pediatric GI hospitals--see if you can get a second opinion there....

11/25/2014 7:56 PM

Ulcerative Colitis
OT - Wife Diagnosed With "Idiopathic Hypersomnia"

I think I posted this before on a thread about your wife, but I'll post it again: http://www.livingwithhypersomnia.com/ True hypersomnia can be determined by a spinal tap, but I think only Emory does...

11/16/2014 9:08 PM

Ulcerative Colitis
OT - What could make my fiancee sleep so much??

If she's still feeling sleepy after sleeping 9-10 hours and her thyroid is under control and her vit D, B12, iron levels are okay, look into hypersomnia: http://www.livingwithhypersomnia.com/ ....

3/11/2014 3:50 PM

Ulcerative Colitis
11 year old newly diagnosed and I need advice!

I'm sorry to hear about your son's diagnosis. I agree with others that say he needs to be on mesalamine (probably both oral and rectal). Prednisone is not a long-term solution--it can induce...

3/3/2014 8:36 PM

Ulcerative Colitis
Crohn's and Endometriosis ladies?

I have ulcerative colitis and endo. My endo got much worse after UC. When I took birth control to help the endo, it made my periods worse and caused a UC flare (as in, it took me 11 months to get...

2/25/2014 4:53 AM

Crohn's Disease



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