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sjkly

HealingWell Forum
>
Member Profile
Display Name
sjkly
Profile Created
12/7/2007 7:00 PM
Last Seen
6/20/2014 11:10 AM
Total Posts
2113

Last 50 Posts

hydroxychloroquine for Rheumatoid Arthritis

I have been on it for about 5 years now. It is the only thing that ever let me feel normal-you know get rid of the fever fatigue malaise. Have the eye tests done yearly but really even that is so...

6/20/2014 11:09 AM

Rheumatoid Arthritis
Methotraxate Question - Worried

Obviously a question for your doctor but, when I upped my folic acid the nausea and fatigue vanished. 1 mg was never enough for me I take 3 per day....

6/20/2014 11:05 AM

Crohn's Disease
Shoulder pain getting worse-X-rays normal

Have you had an EMG? Is there some nerve impingement-this would also not show on xray....

6/20/2014 10:59 AM

Chronic Pain
RA Meds

I was so afraid of methotrexate that the first time the doctor mentioned it I told her I wasn't ready to talk about it yet.I also started a thread that ended up following myself and one or two other...

12/26/2013 4:55 PM

Rheumatoid Arthritis
Hand won't fully open

RA can also contribute to PINS syndrome (same concept as carpel Tunnel but deep motor branch of the radial nerve as it goes through a tunnel in the forearm) then you can fully close your hand but...

8/21/2013 12:55 PM

Rheumatoid Arthritis
anyone use plaquenil

Other than food aversions and weight loss when I first started the plaquenil I have had no side effects. Plus, I think they will have to pry it out of my cold dead hands to get me to stop taking it....

8/21/2013 12:53 PM

Rheumatoid Arthritis
Burn-like spots on arms--connection to RA or RA meds?

Have they tested you for staff? That is what it looks like when my dog gets staff infections. That is the only idea I have-but really only a doctor is going to be able to determine what this is....

8/9/2013 5:18 PM

Rheumatoid Arthritis
Anyone else have soft tissue inflamm (bursae, tendons, fascia)?

No, I have to be really careful with pain meds I get Tramadol. The Valerian root my doc told me to take does help with sleep....

8/3/2013 8:19 PM

Rheumatoid Arthritis
Anyone else have soft tissue inflamm (bursae, tendons, fascia)?

Not quite as bad as you described but PINS which is a soft tissue inflammation that caused nerve damage, inflammation in my shoulder and back muscles. My rheumy says its the RA not being well...

8/2/2013 8:09 PM

Rheumatoid Arthritis
Fluid in my knee

If they want to inject steroids while they are in there let them....

8/2/2013 5:59 PM

Chronic Pain
Need MRI but need pain medication to get through it

When I had to have an MRI of my hand and forearm I did not know to ask for pain meds. The awkward position made my entire arm, hand and back spasm the moment they put the weights on my hand. I told...

8/2/2013 3:50 PM

Chronic Pain
Fluid in my knee

I had it done. I have RA. They put in a small needle with some numbing medication (maybe lanicane?) that process hurts a little-especially if like me you don't do well with the cane meds-the doc told...

8/2/2013 3:45 PM

Chronic Pain
Need suggestions on what I should write to doctor that calls me an addict?

A letter you write most likely will not be read by the doctor and certainly will not end up in your file. You can request a copy of your records and you can request errors be corrected but you cannot...

7/30/2013 6:25 PM

Chronic Pain
Flaring even with prednisone

And dosage is everything with prednisone-how much are you on and what else are you taking? That really matters....

7/27/2013 7:22 PM

Rheumatoid Arthritis
(no subject)

Try two things,Your vet may run a charity within the vet clinic (my vet's office calls theirs Have a Heart) to help provide care for pets in need. Care Credit will give you six months to pay with no...

6/29/2013 3:26 PM

Chronic Pain
Article about the rational behind one offices pain managment practice

It is good to keep in mind that this article is a position paper written by a bunch of pain management specialists. However, it is being treated as part of the basis for standard of care by at least...

6/17/2013 5:03 AM

Chronic Pain
Article about the rational behind one offices pain managment practice

1.1 Patients on COT should identify a clinician who accepts primary responsibility for their overall medical care. This clinician may or may not prescribe COT, but should coordinate consultation and...

6/16/2013 5:22 PM

Chronic Pain
Article about the rational behind one offices pain managment practice

This article was the rational for my rhuemys office's brand new 2013 pain contract/prescribing policy etc. Which I thought was interesting-they want a guiding policy but not a restrictive one. They...

6/15/2013 8:40 PM

Chronic Pain
Article about the rational behind one offices pain managment practice

http://www.arapc.com/pdf/Journal-of-Pain-2009-2.pdf This article was posted on my doctors website as part of their new smart opioid policy. It is not a new article, it is from 2009 and is a position...

6/15/2013 7:46 PM

Chronic Pain
Plaquinil and fever

Do speak to your doctor but, I am much more inclined to think the fever is caused by the RA-since it is a typical symptom rather than the plaquinil for which it is an extremely rare side...

6/11/2013 3:09 PM

Rheumatoid Arthritis
Has anyone gotten anitbiotics for back pain relief?

http://www.webmd.com/back-pain/news/20130510/antibiotics_back_pain Here is a link....

5/19/2013 5:30 PM

Chronic Pain
Has anyone gotten anitbiotics for back pain relief?

They released a study recently that indicated that for a large portion of patients with chronic lower back pain there is an underlying infection that causes or contributes to it....

5/19/2013 5:28 PM

Chronic Pain
Any youngsters around ??!!

I was the same age when I was diagnosed. I didn't want to talk about it either-except with my doctor. There was nothing my family could do, there is really no way for someone else to understand it so...

5/19/2013 3:21 PM

Rheumatoid Arthritis
Folic acid question

When I started MTX I had some pretty horrid fatigue, and some other problems. I upped my folic acid to 3 mgs a day and the side effects stopped immediately. My rheumy says the folic acid is everyday...

5/16/2013 6:57 PM

Rheumatoid Arthritis
dazed and confused

I find that odd.My rheumatologist always schedules a return appointment for new patients-about 2 weeks after the first one to review labs etc. Once a diagnosis is made and a patient is stable on meds...

5/12/2013 5:51 PM

Rheumatoid Arthritis
Methotrexate for Ankylosing Spondylitis

The biologics work best in combination with MTX so are often prescribed together. I don't take biologics. I have been on MTX for years. The side effects went away completely when I started taking 3...

5/4/2013 2:17 AM

Rheumatoid Arthritis
New to all this RA JUNK!!!

You need to go to an Opthamologist for your eyes not just an optometrist. As for disability-it depends. Sometimes it is really hard, sometimes not so much. It actually helps if you have a diagnosis...

5/3/2013 4:25 PM

Rheumatoid Arthritis
Walgreen's has started new narcotic program..

I believe in Virginia it is state law that narcotics scripts require ID to pick up-I even have to show ID to pick up my dog's pain meds....

4/24/2013 5:00 PM

Chronic Pain
RF in Ra patients

There are a lot of different blood tests for autoimmune disorders, RF, ANA, Anti DNA, and a bunch of others depending on what they are looking for. CRP and SED measure inflammation but are not...

4/18/2013 4:36 PM

Rheumatoid Arthritis
Introducing Myself-PVNS-Never ending Pain cycle

Lots of doctors tell patients that they aren't equipped to deal with a particular problem. And you condition is rare. However, that statement should have been accompanied by, so I talked to some of...

4/3/2013 7:24 PM

Chronic Pain
Could this be RA?

It's surprising how much has changed-I was diagnosed almost 20 years ago. I have never had an MRI for diagnosis or monitoring. However, that seems to be the standard now....

4/1/2013 6:30 PM

Rheumatoid Arthritis
"I will never again..." Pet Peeves and Cautionary Tales go here

Cook. About 2 months ago I was chopping vegetables and got my hand-took a tiny little piece off the tip of my finger-apparently damaging a nerve ending-it looks healed now except for a small scar....

3/29/2013 6:25 PM

Chronic Pain
Could this be RA?

I agree go see a rheumy to get an answer-much better then worrying. The only thing typical about RA is that it is never typical. I have seldom had both knees swollen at the same time-it is one then...

3/29/2013 3:41 PM

Rheumatoid Arthritis
Sever knee pain -- need advice

The same amount of pain in both knees all the time seems odd to me-tendonitis or any soft tissue injury would normally affect one knee-or if both to an unequal degree. However, everything else you...

3/29/2013 3:37 PM

Rheumatoid Arthritis
Tramadol now a "controlled substance" in NY

The practice may also have a lower limit for nurse practioners writing out the script and when your doctor comes back from vacation your script may go back to normal....

3/29/2013 3:32 PM

Chronic Pain
Everyone Tip

If you take high risk medications (plaqunel) your MEDICAL insurance will pay for your indepth eye exam. Retinal photography, visual field test, and slit lamp exam. So even if you don't have vision...

3/28/2013 8:44 PM

Rheumatoid Arthritis
Sed-Rate 50

Uhm. YUP. My rheumatologist said I was the sickest patient she had seen in years when my sed was 50. I have constant dry inflamed sinus membranes-but never a perforated septum. I developed my first...

3/28/2013 8:40 PM

Rheumatoid Arthritis
Someone tell me there's hope

There is an old thread from about three years ago when myself and another healingweller were starting methotrexate-I was completely terrified and dependent on steroids. We kept the thread going...

3/28/2013 8:37 PM

Rheumatoid Arthritis
warning about the DEA

I live in Virginia, I get long term pain management from my PCP-although admittedly low numbers of tramadol not oxy. My dog is also getting long term pain management-I don't think I will have to take...

3/28/2013 8:30 PM

Chronic Pain
RA induced Pneumonia

Talk to your Rhuematologist about immune suppresent drugs. When RA attacks systemically the damage can be pretty bad....

3/13/2013 7:47 PM

Rheumatoid Arthritis
Concerned for the health of my 14 year old daughter.... help?

What did they base the diagnosis on? Was there a previous injury Is her skin warmer on the effected limb Are there changes to the skin, hair or nails on the effected limb...

3/13/2013 7:45 PM

Rheumatoid Arthritis
Methotrexate question

My doctor has me skip doses only if I have bronchitis, pnuemonia or a high fever not for normal colds, sinus infections and things. She also has me go right back to the full dose if I miss a week. So...

3/10/2013 6:53 PM

Rheumatoid Arthritis
Celebrex question

Within a week my knees were so much better. Within two weeks I had so much edema in my hands and feet that I couldn't walk without pain or hold a pen. I did not do well on the cox inhibitors....

3/10/2013 6:48 PM

Rheumatoid Arthritis
TMJ Dr. Tanenbaum? NY/NYC/NJ Doctors?

I don't know how far you are willing to travel, but, Dr. Edward Sall in Syracuse NY is a pretty great doctor. I knew him years ago, and he would personally call all of his surgery patients the day of...

3/10/2013 6:42 PM

Chronic Pain
Plaquenil & Weight Gain/Loss

Why would your rhuematologist want you off plaq? Plaquenil caused a loss of appitite and weight loss for me. Both times I started taking it, the first time it was so serious I had to stop taking it....

3/10/2013 7:49 AM

Lupus
RA diagnosis

I don't think they checked you out well enough either. I also don't think this really sounds like RA. Have they checked you for AS, or Psoriatic arthritis (do you have any scaly patches, thickend...

3/8/2013 7:09 PM

Rheumatoid Arthritis
New test for medication metabolism done by endocrinologist

Tramadol works great for me. It is metabolized differently then codiene, it relieves my pain makes me a bit drowsy but not to the point I can't function....

3/8/2013 3:24 PM

Chronic Pain
RA diagnosis

Can they diagnose RA without blood tests? They generally don't although if the tests are negative they still may diagnose you but not doing the tests makes no sense if they think you have RA. RA...

3/8/2013 5:45 AM

Rheumatoid Arthritis
New test for medication metabolism done by endocrinologist

I don't know specifically what test you had but I do know a little about genetics and drug metabolism Take codiene for an example. In a normal body codiene is metabolized into morphine at a...

3/8/2013 5:23 AM

Chronic Pain
Plaquenil

Plaquenil did that for me too-I needed other meds for the inflamation but the plaquenil got rid of the horrible fatigue so I felt alive again....

3/1/2013 1:16 PM

Rheumatoid Arthritis



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