I have been having extreme anxiety attacks while driving. It’s only started after Remicade but my doctor pretty much told me “ no way”. Thoughts?...
I start tomorrow. Any side effects that I should worry about? Thank you!...
It’s happened 4 times in two months. All of the sudden my heart starts beating fast and then uncontrollably shaking. Feels like a seizure and I just pull over. My doctor just gave me Zanex and I’m...
Still have to pull over! Only in the last 3 weeks!...
What do you do if you’re driving though?...
I’m trying...
I just drove 1300 miles and can’t go a minute down the highway. Same uncontrollable shaking and had to pull over. Two times at the same spot😔...
I have been on Humira for years. When I took the shot last week, it set me into a flare up. Is that normal??...
So sorry! My colostomy was reversed the next day!!! Put back in on the other side!!😞...
It should be but I have yet to get a forum added!😞...
Any info that anyone can share for a child?...
Has anyone here increased their dosage to two shots every two weeks? Any side effects? It hurts when I breath. Also dry mouth. Thank you!...
I paid out of pocket for Humira for years. If you go to Humira.com, there is co pay as sit. I have paid 5 dollars for months!!...
I just had my 15th surgery in 5 years. 12 of which, were to correct my fistula. I have been on Humira for 5 years and to me, it never made a difference. However, my last surgery, so far, has been...
My hernia is the size of a grapefruit. My reversal is set for tomorrow and they will take care of it then....
Well friends, haven't been on here since my last reversal, this past September. That is when they found out that it did not work and put it back in 4 days later. Tomorrow we try again. Surgery # 15....
I never really thought about it until I went to the restroom at work, after feeling sick, and could not button my pants! Weird! Drove to the ER and 7 days later, got off the NG tube from hell...First...
I have had 13 surgeries in the past 6 years. I'm still on Humira....
I have an appointment next week. I have not heard of the hernia belt though. Can the doctor prescribe that? I am just tired of this. My clothes don't even fit! Thanks everyone!...
I have a hernia under the stoma area. It has grown to the size of a grapefruit the last couple of days and today I have had some pain with it. My surgeon didn't seen to concerned about it last month...
I actually get really sick if I feel hungry. I eat a couple of bites of fruit or jello and feel better!...
I too, tested positively for TB prior to Humira. That was 4 years ago. It turned out to be latent, so I did the INH and started Humira. My last test was also positive but I was told that once you...
I found Sure Seal Rings online and love them!! They are the best hat I have found so far!...
Can someone please tell me the difference between an ileostomy and a J pouch???...
I just had surgery #10 for RVF. I am hoping this last one was successful because I really want this to be reversed, again. It is frustrating. Just hang in there and if you need a 2 opinion, get one....
I think that I have been very lucky as far as leakage is concerned. It was a lot of trial and error but I was able to figure it out before I went back to work. I still have some close calls but I...
My surgeon never tightened my seton. What is the norm??...
What is the difference between an ileostomy and J pouch?? Thanks!!...
I went through the entire body scanner and no questions asked!!!!...
I have had 6 fistula repairs in 4 years. When I had the Seton, it was never tightened. Then I went in for the reversal of the ileostomy, and the wrong area had been treated for over year. This is at...
I am praying that you do not have a recto-vaginal fistula. I do. It is nothing but a nightmare. You can tell by passing gas, excessive, through the va-gi-gi, or passing feces. It was one of the most...
I've been on Humira before and after my Ileostomy. I just don't know how to tell if it is effective since I have the bag.....
How do you know when the hernia is at a point to call the doctor? I am in some pain, among other issues....
I'm so sorry as well, for your loss. I wish I had an answer for you but instead I have prayers. God bless....
Quickest take and put back up ever. Monday, my surgeon thought that it would be better if he did the ileostomie again. Two surgeries back to back and I have never felt such pain. My stomach is...
I just had mine reversed last Thursday and already miss it. I only had a few problems with it but I would rate it at a 80% improvement? I may have to have it again. I'll find out tomorrow but now I...
Wishing you the best!!!!...
Happy Belated Birthday!!! Woot woot!!...
I also, have never had to deal with that. Instead, I've been blessed with a recto-vaginal fistula which seems to have permanently attached itself to me! I do agree with you as this is a horrible and...
The last time that I had to change that often, I had a bad tube of paste. Otherwise, without the paste, and I use adapt, I would be lost....
Ugg. Waited 18 months while having an ileostomie, for a fistula to heal. Thursday I had the reversal, which is turning out to be more painful than I thought. However, the fistula (recto-vaginal)...
Thank you so much!!...
Good afternoon. I am scheduled for my reversal tomorrow morning. I was wondering if anyone knows how the recovery might be, what kind of problems might arise and whether or not I will be ready for a...
Thank you for your responses. I do have a fistula and I am on 50,000 mg of Vitamin D a week! Just tired. Think I'm done..Just tired of feeling down, tired, thin, helpless...Ugg, and I don't want to...
I was supposed to have mine after 90 days. I should have it next month. It will be 18 months. However, I understand why and I really think it will be worth the wait!!!!...
I think that it is very dis heartening for people posting, seeing views, yet no comments. Maybe if we all just said "hello", "hope everything goes well" or "I'm not sure how to help but wishing you...
I have come to accept the fact that I can replace my hair, not my body!! Although heart breaking, I can deal with my hair better than my illness... Hope all goes well!!!...
I am not sure if I am in the right room but does anyone know if you can have a flare after you have had a temporary ileostomy? I think that I am having one but I'm not quite sure. I just know that...
Hi Cindy. Vegas doctors made me so much worse. They put me in the hospital during a flare for 10 days. They outsource nursing care so I almost never had the same nurse. I was on Remicaide at the time...