Bump....
One bottle of wine? That’s a fair amount. Haha. I don’t have any alcohol when I’m on abx not because of interactions, but to allow my liver to concentrate on the meds and not meds plus alcohol....
Anyone here ever drink alcohol? I realize it’s not ideal, but a drink every now and then is a real treat for me. I never have one when I am on abx of course....
I think if you have treated adequately, flares are common place every now and then. I have wondered the same thing recently, though. I am getting over something these past few days (maybe COVID?),...
I'd say Babs. You see Dr. H in NY, right?...
I used to get hives from contact, called dermatographia. It started with a couple hives along my forearms. I never got them after a shower, but after a shower my lower legs would be extremely itchy...
When I say once per year, I guess I really mean when they flare up (infrequent), it is treated with a short course of abx. I have read that numerous places, usually an article. I didn't just stop...
Chapelle, I'm kind of in the same boat, though I have not "relapsed" or flared yet. I have been off of abx for 6 months now and feel great, but deep down know there is a good chance of it coming back...
I would say so. Everyone is different and shows different symptoms. I am not for certain it was MCAS, but I for certain had a histamine issue a couple of years ago that caused dermatographia (skin...
Do you think higher blood oxygen levels deter Lyme Spirochetes from multiplying, as oxygen kills them?...
Why did you decide to restart again if your symptoms were not returning? I know easier said than done. We come to put a lot of faith in abx. It’s a comfort blanket unfortunately....
Yeah, I think Jordan Fisher Smith (Park Ranger) treated for closer to 8 or 9 years. He talks about a period where every time he would stop abx, symptoms would come right back within a couple of...
Does running send you into a flare/herx?[/quote] It doesn't, no! I get a nice runner's high. I actually feel worse when I don't run. . .I can notice it usually after 2 to 3 days of not running. It's...
I bought a Garmin fitness watch this spring when I was getting pretty doughy due to COVID and staying inside most of the time. Since then, I have lost 40 pounds. I now run 20 miles per week and bike...
Good point. The strange thing is my stools are normal color and normal shape, but they just float. It seems like if it were a bile duct issue, it would be lighter like a gray or clay color....
Thanks Garzie! I guess I'll see what the GI says. I'm sure they will have to perform some additional tests, like the breath test. And Girlie, good to hear from you. I am pleased with 6 months! Hoping...
That’s a good thought. I will give that a try if the GI doc doesn’t find a root cause....
Hi guys and gals, I have not posted in a long time because I am doing very well. I have weaned off of abx and have now gone almost 6 months without a single abx, and so far no Lyme symptoms have...
Timely post. I just got back from a 2-nighter in Oregon's Eagle Cap Wilderness. It was fantastic. I try to go at least once or twice per year. I am terrified of ticks, and have yet to see one in...
Did you ever figure out what the white ball was? Seems odd if it was candida but anti fungal meds didn’t do a thing......
I know what you are going through. I also got sick at 26 (now 32), and had really bad sleep disturbances as you describe. They are called Hypnic Jerks and are a real PITA. I guess a minimal amount...
I drink a ton of Tulsi Daily Liver and Kidney Support tea. For me, this lowered my ALT and AST enzymes to an acceptable level (within range). Highly recommend, but YMMV....
Are you pulsing all those meds?...
I developed this a few years ago. My legs would itch for about 10 minutes after a shower and I would react to fermented products (itchy skin). I also developed dermatographia (skin writing). I...
RM is great. I have seen her a couple of times w/ J is not available....
I have been pulsing for quite some time now, usually 2 weeks on 1 week off or 2 weeks on and 2 weeks off. I still have symptoms, though very mild in nature. My symptoms are occasional muscle...
[/quote] Moved out here for a better quality of life!...
This sure is coincidental: lymedriven Regular Member Date Joined Sep 2014 Total Posts : 445 Fronton Regular Member Date Joined Sep 2014 Total Posts : 445...
I don't live in Montana, but I did just move to Boise, ID. Kinda close I guess???...
I have struggled with this for the past 1.5 years or so, and have mostly come to the conclusion that omnicef was the culprit for me anyway. Although you were not on cephalosporins, certain abx...
How do you know that Smith was on ceftin? And if I recall correctly in essence he pulsed because every time he would try to stop abx he would relapse within a week or two and go back I them....
Mino makes me feel like I’m walking on a ship in rough seas. You are not alone....
Providing the state she lives in would be helpful....
Now I know why I feel better after a couple gin and tonics :idea:...
I have had a similar spot on my right abdomen for years, even before lyme. Has not grown nor faded....
I sometimes get that thumping as well. Pretty nuts. Congrats on being the poster-child for Bart! Do you have swollen glands, raised nodules along shins, morning foot pain, headaches, and strange...
i have one week since i stopped. no symptoms returned so far. but that is way way too early to call it a win. must wait for at least 6 months in my opinion, to get some clues about where i...
I am interested to know how quickly your symptoms creep back in after stopping abx? I am currently testing the waters myself and I have been off of abx for 29 days and so far so good. I will probably...
Sgirl, do you suspect it’s playing a role for you? If so, what makes you think so? There does seem to be some Lyme patients with mcas symptoms. Some full blown and others a symptom here and there....
Yeah, that’s what is tricky about mcas. Mast cells don’t just release histamine, but other chemical mediators as well. So it’s not too surprising antihistamines are not working. You have to find...
No, she never did long term antibiotics. Her MCAD appears to be triggered by products which moved around heavy metals.[/quote] Can you elaborate in regards to those products that move metals around?...
The cephalosporin class of abx are associated with DAO degradation and that causes histamine issues. I believe that is how I acquired my histamine issue. I don’t have full blown mcas, but do have...
Exactly. These two links are worth the click as well and substantiate our curiosity. https://www.huffingtonpost.com/dana-parish/its-a-scandal--daryl-hall_b_11118332.html...
Great info here. Thanks for the response. I had the opposite experience when I was first infected....the whole list of symptoms hit me like a freight train 3-4 weeks after the tick bite....
Muscle twitching seems to be one of the last symptoms to leave for a lot of folks. I know Chapelle (who is better now) still had twitching for over a year after she stopped abx. I think a lot of it...
Hi Healing98, I wanted to bump this thread and see how you ended up doing going back on abx (back in 2014) and switching to herbs. I see you still post, so I assume you are still treating?...
I was constant for quite some time as well...maybe 6 months or so. My last 10% is occasional muscle twitching, occasional knee pain, and occasional ice pick/frontal lobe headaches. And Girlie, I...
I've been really curious about this lately. I am at about 90% better, but have remained here for the last year or so...you could say that I have plateaued in treatment (I pulse antibiotics). In...
This. I enjoy the smoky/peaty varieties of Scotch. Never had any setbacks from having a couple pours each week. If anything, I do feel better (and no, not better from the buzz, I mean symptoms). I...
I had this really bad in the beginning too. Every time I would fall asleep I would jerk awake. It went away mostly with treatment, although I still get it when I nap in the day, as well as a few...