I was recently in your situation a few months ago. My DT was six months. My PSA was rising steadily about 0.1 every month, but a very low value. When it got to 1.0 I opted for an Axumin PET scan and...
Thanks for the replies. I’m scheduled for some tests tomorrow, kidney function, CT, and abdominal ultrasound. I’m hoping the MO has results by Monday. I had to chase these tests down myself today....
Received a call from my MO early this morning. That’s never good. Apparently the Zytiga and Pred I started a couple of weeks ago is frying my kidneys. MO advised I stop taking all Rx’s as well as all...
Unfortunately, PSA is not always a reliable indicator of disease progression. Although it may be rare, it happens. I am one of those lucky guys who had a very low PSA but developed my first bone met...
Initially my URO was all about statistics...you only have a 25% chance of having cancer, you only have a 20% chance it got out, you only have a 2% chance of having aggressive cancer that will...
Congratulations, Pratoman. I’m in a similar situation, and was supposed to be done 12/31 after 32 years in state government work here in Florida. My wife is younger and still wants to work. She went...
Thanks for the advice mattam and Argent. I understand your reasoning and thank you for sharing that. unfortunately, I find myself in a bit of a hyper vigilant state at the moment with all that’s gone...
I was about to start Xtandi but just saw the study last night and called my MO For an appointment tomorrow to discuss. I’m thinking Zytiga may be the better choice at this point but want to get his...
Thanks mattam. Glad to hear you’re doing well on yours. Hoping for a similar experience and time will tell. Appreciate all your feedback through this thread and I’ll consider myself lucky if I’m one...
Saw the MO today and confirmed the two Mets are definitelyPCa. Had my first bone met two years ago, had it biopsied, and results were benign “boney island”. Wrong... Axumin revealed it has gotten...
Yep AK123, looks familiar from your stats. Agree it’s frustrating, to say the least. I hope you have a good RO and MO on your team. My URO is useless. Anyhow, I’ll update after my MO appt on Monday....
Thanks GoBucks. It’s bone Mets not nodes. They’re in the field already radiated to the max level. You can only get so much. I’ve been to Moffitt in Fl and I think you hit it with “better to be alive...
Well, I met with the RO today and so much for zapping as an option. The metastases are Directly adjacent to the area already radiated In my SRT, which obviously failed. The RO says zapping these...
Thanks, trailguy. Guess it wouldn't hurt to share the Axumin results with the RO and see if there's anything he might recommend. I'd much rather get zapped than start the ADT/Xandi route......
Yes, he’s very much that way. He said if I got too far out of line he’d let me know. He’s sent me numerous journal articles in the mail and seems to favor delaying QOL impacts in the absence of data...