I understand your fears. But getting rid of my pouch and getting a permanent ilio was the best thing ever. I finally got real sleep. No regrets....
It sounds like pyroderma. Took steroid injections and pills to get rid of mine. Research it. Hope this helps....
Clo, Thank you for replying. I tried the closed end bags. I don't think they are economically good for iliostomies. Plus it was messy just changing the bag. Halo...
Humara is awesome. But by time they tried it my colon couldn't be saved. It also helped my back pain. Check out Zac and Maggie on youtube. She has lots of information....
Emma...
I've heard of non drainable bags that you throw away than empty. I have a drainable bag two peice. Was thinking of trying the throw aways. Are they more costly or better?...
I found a dr who specializes in it. She shot steroid into the ulcer and had me take steroids orally. Also had a special dressing for it. Can't remember the name. Wish I would have known about the...
You will have a better life with an ileostomy. My first night I got the best sleep ever. Good luck....
Dresses or capris....
Not sure. I had one and the surgeon fixed it. Hopefully someone on here has an idea....
I eat nuts sometimes. I just make sure to drink plenty of fluids. I wouldn't eat them within six weeks of a new stoma. This sight has taught me a lot. Welcome....
Google them. Etsy.com. has good ones. I make my own. Real simple. Good luck....
😇...
Ljm2014 thanks for the advise....
Thank you guys....
Sherrine, Thank you for the suggestion. I will definitely check them out. I will let you know....
Got rid of colon and rectum to get rid of UC. Happy with the ileostomy. But now a year after having rectum removed I keep getting pyroderma. Family dr said he knows someone who deal with it. But...
My feet hurt so much when I walk. I need a shoe that is like walking on air that I never want to take off. Do those even exist? I need to start walking to help my fibromyalgia. I also am battling...
Has anyone had pyroderma under their wafer? I can't get it to stay away. It's so frustrating. My dr finally said he has someone who specializes in it. It's very depressing....
Mines 30mm....
I'm a female and have found sex okay down there. It's been awhile now that I've had to have the wound reopened in Sept. But I definitely look forward to that reconnection. I would express your...
Roy, I am so happy to have it All gone. I had to have a second surgery to open up the pocket that was leaking. They left the incsion open to heal from the inside out. Its healing pretty good. I do...
I use kleenexes. Great size and soft on the soma. I also use them to clean my bag after emptying. Hotels always have tissues, or you could pack a box....
I had a reaction my first time. But my second one I found this site and found out about bct. Benzoine compound tincture. Saved my skin big time. If you have open wounds it will burn but I love it....
Press and seal works great for bathing....
Virdent, Thank you so much for your reply. Thats going to be a long wait. How long did you do the baths to soak the wound? Do you think the soak really helps? I'll do anything to speed this up. How...
I had my J pouch and rectum removed in Dec 2017. My wound didn't heal so the surgeon opened my bottom up to heal from the inside out. My question is how long can I expect for the wound to close? She...
Have you ever tried press and seal? It sticks to your body. It's in with the saran wraps....
When I had a problem one time with pain in thw bladder area. My chiro was an acupuncturist and did a acupuncture treament. He said the nerves sometimes can have a problem calming down. It was a...
Notbob I have tried nuts and carrots. They go through but get backed up behind a srticture. In the shower I checked out my stoma with my finger. I can feel i stricture in there and the carrots and...
Since I have an ileostomy, raw veggies and fruits are taboo. I have munchies bad. I need healthy snack ideas. Please...
I had my rectum removed in Dec of 2017. I thought it had finally sealed up back there. But its not, I just had fluid come out it this morning. I also have had pain back there inside. Like a pressure...
Thanks Drops sound a lot better than the chewable tablets....
Dinkley, Sorry took so long to get back. Had Emma created this week. You can find it anywhere online. I used a qtip to apply. I just use that then my bag. But you have other issues that you got great...
I am back to an end illiostomy. But i need to cut down on the smell. Ive used them in the past. I used Devron i believe. But since its been a few years i thought i would check on the current best...
You have already did one of the best options my joing this site. It has been a God send to me.my nurses and drs couldnt help me the way this site has. No question is a bad question. Welcome...
I am having my pouch removed on monday. The biggest thing i can reccomend is make sure the tissue they use to connect the pouch to the rectum is not infected. Mine was so was a dummed failer from the...
BCT -Benzoin compound tincture has been my saving grace. My first ilieo I had problems like you. I'm allergic to adhesive. When someone told me about this my second time around, huge difference. My...
Thanks Robert...
I am going to a permanent ileostomy. My surgeon I felt was trying to talk me out of it. But I'd rather die than keep it. If you've gone through it, did you have any complications? How long survey,...
I didn't know itching was part of fibromyalgia. How did they connect that? I now know why my ankles and feet inch out of the blue. It drove me crazing trying to figure out why. I get some relief from...
I think I will give the university a chance in Iowa City....
My GI retired and I want a better one that knows about UC and I also have a Jpouch. I live in Iowa, about 35 min west of Cedar Rapids and an hour from Iowa city. Any ideas?...
Bania, For days I don't change my pouch, I cover my pouch with glad seal wrap. It sticks right to my skin. When I'm under the shower spray I keep my arm over the top so the spray don't wash off the...
Yes my stoma let's stool through the exit hole. Was told it's normal. So I end up having small liquid bowl movements and empty my bag. I get my reversal in sept when I'm done with vacations. If you...
I had coloplast on in the hospital and it leaked at the bottom. I hated them so much, I used my Hollister ones I brought with me. So much better....
Byebyeuc, How did they get rid of the abscess?...
How do they check your anus/j-pouch for any abscess ? I have bad pain and if it don't go away will call the dr. But I'm afraid him checking it will hurt worse. Had my j-pouch put in 4-15-14. It. Just...
I wonder if they have pain relievers in suppository form?...
Almost 1/4 c sometimes. I go every 1-2 hrs. Sometimes with less amount. I could probably hold it longer, but going helps relieve some of the pain. When I had just mucus it didn't hurt like this. I've...