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Crazyick

HealingWell Forum
>
Member Profile
Display Name
Crazyick
Profile Created
4/30/2012 12:48 PM
Last Seen
3/1/2021 3:18 PM
Total Posts
205

Last 50 Posts

Quest PSA

Prato, I’ve been getting my PSA checked at quest since my surgery back in 2012 and yes their standard PSA test has a lower limit of . They do have a ultra sensitive test but the doc has to enter the...

11/9/2019 5:51 AM

Prostate Cancer
Finally, T rising

Prato, great to hear that your T is starting to rise!! Mike...

9/17/2019 5:23 AM

Prostate Cancer
PSA or uPSA after SRT/ADT?

SP, I’m somewhat in the same boat. My GP sends my blood work to a lab that does an ultra sensitive PSA and I had that done last December during my annual physical and it came back < .014. Since then...

9/13/2019 4:57 AM

Prostate Cancer
SRT w/ADT and Exercise

https://www.youtube.com/watch?v=pNZwCNSSWlI [/quote] The next time I push too hard on the bike that will be playing in my head lol...

8/16/2019 2:36 AM

Prostate Cancer
SRT w/ADT and Exercise

Jay, I’m definitely wishing you luck with your ADT/SRT journey! I’ve read those same studies and I think you’re doing the right thing with pulling the trigger at your current psa level. In hindsight...

8/15/2019 1:14 PM

Prostate Cancer
SRT w/ADT and Exercise

My PSA did a slow rise from undetectable to when I decided to finally pull the trigger on SRT. It took approx. 69 months to get to which was in Dec of 2017. After my first Lupron shot (which was...

8/15/2019 11:58 AM

Prostate Cancer
SRT w/ADT and Exercise

Jay, I had SRT done last year. I also had 7 months of ADT with the SRT sandwiched in between. As to your exercise question I’m a wannabe cyclist and when I mentioned this to my RO he was all for me...

8/15/2019 11:32 AM

Prostate Cancer
5K run for PC today

Denis, You and your wife have a great day today at the run/walk! Mike...

6/30/2019 3:06 AM

Prostate Cancer
ADT and SRT Journey Part 6

Prato, you read that correctly, baseline of 342 prior to start of ADT and now steady climb up to 448. Believe me when I say that my eyes popped out of my head when my T results were posted on the...

6/15/2019 7:56 AM

Prostate Cancer
ADT and SRT Journey Part 6

Larry, I’m rooting for you to never seeing a psa reading that is anything other than undetectable!...

6/15/2019 6:04 AM

Prostate Cancer
ADT and SRT Journey Part 6

I’m posting these testosterone numbers to give my fellow 2018 SRT guys some hope that T levels can improve. I was on a seven month course of lupron which began with my first shot on 3/6/18. My last...

6/15/2019 3:04 AM

Prostate Cancer
ADT and Joint Pain

Prato, I was on lupron for seven months and I’d say for the first four of those I had no joint issues but during the last three months I had all kinds of issues to include major fatigue and multiple...

1/6/2019 5:08 AM

Prostate Cancer
ADT and SRT Journey Part 5

Just got back from my 3 month follow up with my RO. PSA is undetectable on the standard assay and he says I’m doing really well with recovering from the SRT/ADT. The best part was visiting with the...

12/18/2018 2:46 PM

Prostate Cancer
ADT and SRT Journey Part 5

Good luck and before you know it it’ll all be behind you!! Mike...

12/17/2018 8:42 AM

Prostate Cancer
ADT and SRT Journey Part 5

Progressing, I’m seeing my RO this Tuesday. My RO and URO have it set up where they swap seeing me every three months. This is the plan for the next year or so. As for weight gain I like the others...

12/16/2018 10:12 AM

Prostate Cancer
ADT and SRT Journey Part 5

Thanks guys!! Besides next Tuesday’s PSA result which is a standard PSA assay I will have a ultra sensitive PSA assay done with my annual physical which I’m having done next Friday. I’ll post both...

12/15/2018 1:08 PM

Prostate Cancer
ADT and SRT Journey Part 5

Just wanted to give an update as to how I’m recovering post SRT/ADT. My seven month course of Lupron ended on 10/4 and I just received my latest testosterone level and it came back at 287. In...

12/15/2018 10:21 AM

Prostate Cancer
ADT and SRT Journey Part 5

Prato, happy to hear that things are starting to return to normal for you!! Mike...

11/30/2018 11:50 AM

Prostate Cancer
SRT Complete!

Congrats Captain!...

10/26/2018 6:24 PM

Prostate Cancer
OT: Wish us luck

SP, best of luck my friend and yes please let us know that you and your wife made it through the storm ok once it passes! Mike...

10/23/2018 1:18 AM

Prostate Cancer
OT: Ryder Cup

Congrats to our friends from the other side of the pond! Mike...

10/1/2018 12:58 PM

Prostate Cancer
ADT and SRT Journey Part 4

Lol that was my thinking too-dr giving me permission to eat the foods I normally would skip! After the last radiation treatment they cleared me off the low residue diet but recommended to go easy to...

9/8/2018 1:02 PM

Prostate Cancer
ADT and SRT Journey Part 4

Prat, I followed the treatment protocol to a T and that’s what I mostly credit for making it through SRT with hardly any near term side effects. It’s not easy to do but try your best to follow...

9/7/2018 2:59 PM

Prostate Cancer
ADT and SRT Journey Part 4

Prat, during my treatments they had me on a low residue diet with a daily dose of Metamucil too. Mike...

9/7/2018 2:23 PM

Prostate Cancer
Underarm hair

SP, I’m about to start my sixth month of Lupron and I haven’t lost my underarm hair but I haven’t grown any either. It seems to be stuck at the state it was when I started my Lupron odyssey lol Mike...

8/28/2018 1:35 PM

Prostate Cancer
ADT and SRT Journey Part 4

Larry, seeing your post about some of the newer guys about to start their ADT and or SRT journey reminded me that I need to post an update. I took my last casodex pill this past Friday and my 7 month...

8/19/2018 5:03 AM

Prostate Cancer
ADT and SRT Journey Part 4

Richard, the less than sign is my favorite in the book, keep em coming! Mike...

8/12/2018 3:34 AM

Prostate Cancer
ADT and SRT Journey Part 4

Larry, I’ve worked for the FAA for the past 31 years and never heard a story like that! Just happy to hear you’re ok!! Mike...

8/1/2018 3:00 PM

Prostate Cancer
Latest Radiation Equipment

I hear ya Prato, the commack location is relatively new so I would have been surprised if that was the one closing. I grew up in queens (Astoria/ozone park) and worked for a few years out of an...

7/2/2018 2:52 PM

Prostate Cancer
Latest Radiation Equipment

Prato, is the suburban location that’s closing the Commack location in Suffolk county? And as to equipment, I got nuked on the varian edge at stony brook and they called it their Ferrari. They use...

7/2/2018 1:31 PM

Prostate Cancer
ADT and SRT Journey Part 3

Progressing, I can’t second what Larry said regarding exercise enough. I’ve been an avid cyclist since my surgery in 2012 and I credit it with how well I’ve done so far regarding ADT/SRT. I started...

7/2/2018 6:21 AM

Prostate Cancer
ADT and SRT Journey Part 3

Progressing, one day at a time and before you know it you’ll be on the other side! Mike...

6/21/2018 11:24 AM

Prostate Cancer
ADT and SRT Journey Part 3

lol Gary!!...

6/21/2018 8:17 AM

Prostate Cancer
Radiation Oncologist Appointment

Prato, my timeframe includes ADT so it would definitely pan out differently for SRT only. But knowing you are at least considering adding ADT I thought it would be helpful for you to see my schedule....

6/21/2018 5:05 AM

Prostate Cancer
ADT and SRT Journey Part 3

SP, early on when I was doing the math I came up with the same number and scratched my head over it. My RO had told me 68.5 would be the total and that is was 1.8 per fraction so either it really is...

6/21/2018 2:14 AM

Prostate Cancer
ADT and SRT Journey Part 3

Well, today was my 38th and last radiation fraction. No bell ringing but I did get a graduation certificate and pin along with many hugs from all the radiation therapists. As much as I won’t miss the...

6/20/2018 2:12 PM

Prostate Cancer
ADT and SRT Journey Part 3

That’s great news John! Mike...

6/20/2018 6:14 AM

Prostate Cancer
ADT and SRT Journey Part 3

Larry, I know you will disagree with me but to my eyes you are an elite guy! As the founding father of this thread you brought great ease to me as I approached SRT. Today is my 30th fraction and...

6/8/2018 4:57 AM

Prostate Cancer
ADT and SRT Journey Part 3

Noggin, congrats on taking your last casodex pill! My last one will be taken on August 18th and like you that will be a happy day for me too! Mike...

5/28/2018 5:02 AM

Prostate Cancer
ADT and SRT Journey Part 3

Hey guys, just wanted to give a quick update as to my progress. Yesterday was fraction 16 of 38. I’m starting to feel some fatigue in the late afternoon which seems to clear by the next morning. No...

5/19/2018 5:53 AM

Prostate Cancer
ADT and SRT Journey Part 3

Congrats AZ! Enjoy the steak!! Mike...

5/9/2018 11:40 AM

Prostate Cancer
ADT and SRT Journey Part 3

Rob, congrats on making it to the finish line with SRT! Mark, I’ll be wishing for you to get a great PSA result next week! Mike...

5/7/2018 2:07 PM

Prostate Cancer
ADT and SRT Journey Part 3

SP, even though you’re melancholy prior to your last fraction it’s making me happy knowing you are at the finish line regarding SRT! Mike...

5/7/2018 2:30 AM

Prostate Cancer
ADT and SRT Journey Part 3

Progressing, today was fraction 4 of 38 for me. The actual treatments for me take about 15-20 minutes between getting lined up on the machine, imaging to insure you’re lined up, and zapping. They...

5/1/2018 10:26 AM

Prostate Cancer
ADT and SRT Journey Part 3

John, that’s interesting to know about variable amounts of grays per fraction. I’m getting 68.5 over 38 treatments and just assumed it was 1.8 grays per fraction. I will ask my RO about this when I...

4/29/2018 6:34 AM

Prostate Cancer
ADT and SRT Journey Part 3

First day getting zapped went without a hitch. They were happy with how full my bladder was and how empty my colon was. Told me to keep doing what I’m doing regarding prep. While under the machine I...

4/26/2018 10:22 AM

Prostate Cancer
ADT and SRT Journey Part 3

Great news on the zero Larry!! Mike...

4/26/2018 6:19 AM

Prostate Cancer
ADT and SRT Journey Part 3

I just got home from my final dry run under the varian rapid arc contraption. Tomorrow will be treatment one of 38 for me. So far so good with dealing with the combo of Lupron/casodex so hopefully...

4/25/2018 8:32 AM

Prostate Cancer
ADT and SRT Journey Part 3

Wow Larry, so really sorry to hear about your riding friend. I know last year when I was riding my first century I’d joke about not blowing my heart up as I got closer and closer to the finish line....

4/25/2018 2:26 AM

Prostate Cancer
ADT and SRT Journey Part 2

Larry, thanks for the update and good luck with your 5K today!! Mike...

4/21/2018 3:44 AM

Prostate Cancer
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