I'd assume your speculation is correct, new owners attempting to modernize the backend and glitches related to that. Mods reached out to the new owners on September 13th when it was first noticed,...
Yeah NCOT's posted today on Reddit, but hasn't posted within IBD related areas in many months. I'd take that as good news that IBD isn't bothering her now, or at least that it's well managed....
Yes that's a reddit rule. HW rules are different there, and haven't changed since forever. I'd agree Peter started a great thing here when there wasn't anything like it. Traffic has slowed...
Same a Google search as everyone else said. At initial diagnosis we're all googling for all sorts of answers on symptoms, meds, for symptom relief, our fears (like colorectal surgery) and more. When...
I recently started modding /r/UlcerativeColitis/ after they were looking for volunteers. There's 11 rules for that sub on the About tab and they're not wholly different than here (very similar), be...
I think EHS has an interesting line to walk, not change too much to turn off the established long-term posters here, but also change enough to draw in new traffic. Advertising helps some, drawing in...
SM equals social media, like Facebook, reddit and other sites....
Interesting point from Old Mike regarding forums versus SM. Essentially the SM site algorithms are designed to raise things to the top for 24 hours at most then rapidly fall out of view into the...
Like me, I know many of you have invested coming and posting for many years at healingwell. We've staid here because of the atmosphere, community of many regular knowledge posters that we all gotten...
Yeah, I do fear some share too much at times in the Internet without consideration of future employment impact, cuz you know employers will Google search you when considering hiring them. Will a law...
Yeah the mods shared this concern and they assured us it's optional. Older folks, like myself, aren't eager to share real names, our social media accounts and photo, etc with this illness. I like the...
It'd be a sign-in option for those who want to use it, but not at all mandatory. Pretty much identical to other sites I'd wager....
I believe EHS said back-end, behind the scenes update at 1st. Likely the September change. So the forums shouldn't look markedly different is my understanding when we all log back in. Essentially...
There's a post from August 10th about it in the announcements forum, which I don't know if anyone ever reads. Worth a read. https://www.healingwell.com/community/default.aspx?f=3&m=4327339 The mods...
Mayo scores 1 mild disease with erythema, decreased vascular patterns and mild friability; 2, moderate disease with marked erythema, absence of vascular patterns, friability and erosions; 3, severe...
A pathologist can only see the biopsy fragments, and nothing else. So the pathologist is speaking from what the biopsies say. A gasteroenterologist makes a colonoscopy report based on what they saw...
I'm in Vermont and it's been regular for a month or more now. I live on the side of a hill with a long view on a clear day, haven't seen far in a long while. Faint burnt smell in the air....
It's a frustrating illness with a lot of trial-and-error, no prognostic testing to identify your versus my solution. No therapy, whether mesalamine, azathiopurine or remicade is perfect and going to...
Pretty much the same here, 1-2 formed, not urgent poops a day without blood or pain. Occasionally I'll skip a day. No dietary restrictions, enjoy a craft beer most nights, occasionally have a greasy...
I honestly wouldn't risk med free. I'd think you'd do well for a while but will ultimately flare-up and without a maintenance med likely severely...
You're welcome, and just know we've all been through a very similar journey ourselves and also struggled with anxiety and worry just like your's. So we get it and can empathize. Honestly depression...
Generally the generic sister meds of azathiopurine (AZA) and 6-meracaptopurine (6MP) are pretty inexpensive and most used for UC. Methotrexate is a Crohn's med, it can be used for UC but not...
Yes, biologics are yet another treatment and not a cure. They've have helped some when other options failed (myself included) but unfortunately they don't work for everyone, like any treatment....
Like I said, you're doing fantastic, don't worry! Remission is the likely outcome. But let's play devil's advocate, what if there is a couple, minor areas with inflammation and what does that mean?...
If your doctor has graded your colonoscopy as a test, you would've got an A+. Did you study hard hahaha? Your gasteroenterologist is likely to say you're in a remission. You explained what the...
Yes, I was recently away for 10 days on a vacation and left one ev at the airport parking garage and one home, both unplugged. They're fine. They lose a little bit of range (maybe a couple miles) due...
Both my EVs are AWD. I'm a couple miles from pavement, live on gravel, hilly backcountry roads. My driveway is about 500 feet long and gains about 100 feet in elevation. No troubles getting up it in...
Curl3d, I'd just be careful on stopping mesalamine. I'd rather take it daily and have the best odds of the longest possible remission. As needed might not cut it. Ks1905, nice, never drove either of...
@ks1905 and @poopydoop, Yes, I got my first electric car in 2019, and as of 2022 both of the cars in our garage are now electric. It's analogous to a cellphone, you plug it in before bed and it's...
NCOT posted just a few days ago on Reddit. Mostly in /r/AskUK/ and other areas that aren't IBD related, so I'd assume she's doing fine. I can always direct message her, and ask if she'll check in...
Always like healingwell and make a point to check in. Reddit's worth a look for the IBD stuff, if you checkout multiple sites for it (like most of us do I think) for different points of view. On...
Dual biologics for treating an IBD is still a bit expiremental, and you are likely to get health insurance kickback due to cost and that it's not standard treatment. For some it's worked brilliantly....
Yeah healing well is pretty slow these days, compared to a decade ago when there were multiple pages of new and commented pages a day to read. I check in from time to time and answer questions when I...
Glad you're doing well too. Thought they might switch me to a bio-similar as well, but haven't....
Hey, I'm on only remicade atm. Recent colonoscopy a few months ago confirmed a continued deep/quiescent remission, that's 8 years and counting without any symptoms attributed to having an UC. Doing...
Here's one of those rare studies that compare the effectiveness of the biological meds against the small molecules. At least in this study, looks like small molecules are kicking biologics butts. Lay...
I'd say your mild symptoms are likely related to this microscopic inflammation. If this is new, and other scopes are fine, maybe an 8 week course of budesonide is enough to tame it....
I wouldn't panic at all over these results at all, especially if your symptoms aren't bad and the visual colonoscopy was normal. Overall, as an executive summary, you have microscopic signs of...
Glad the longer infusion went better with less side effects. There's a number of infusion nurses where I get mine done. Most are nice, some more chatty than others are. You get to know each other...
Don't know. I'd assume site admin removed some of the oldest posts beyond a set date range to save money on website hosting costs. As large amounts of data (like gigabytes) costs a lot to keep up...
Just make sure to take that test at minimum concentration, just before your next simponi shot is due....
Similar tests are commonly used for remicade and other biological meds. Simponi is an uncommon med....
Here's an example of the test I'm referring to https://www.labcorp.com/tests/504563/golimumab-and-anti-golimumab-antibody-i-dose-i-assure-gol Many labs can order it, LabCorp just used as an example....
Sorry to hear on the serum sickness, a scary experience for sure. The pains should gradually get better in the coming months. After 12 weeks (3 months) after your last remicade infusion there...
Welcome back Bacon Girl but sorry it's due to a flareup. You were a regular poster back then when I was initially diagnosed and I remember learning a lot from you. Hopefully it's CDIFF, a quicker...
Beyond the aforementioned biological meds there's a number of small molecule drugs like xeljanz/rinvoq and zeposia....
All these doctors offices are overbooked and understaffed, not an excuse for them but the reality we must all face and work within. It's annoying reminding our doctors of basic crap that's on our...
With antibodies, you can try adding a thiopurine like azathiopurine, imuran or 6-mercaptopurine as daily medication along with remicade to reduce the antibodies which might take time to work. In the...
Joint pains as an extra-intestinal manifestation of IBD tends to travel around and not be symmetrical. Ever have an antibody and blood concentration test for remicade? I ask as having antibodies...
I'd do what you can to get the infusion as soon as you can, and I'd stress your symptoms return at not long after the 4 week mark. Good luck!...