I looked in the archives couldn't find anything suggesting headaches like this. Do you take anything for the headaches, you may want to consider one of the OTC migraine pain relievers. Some of your...
Hi Dennis, this forum is really slow. Taking Methotrexate is something only you can decide. I sense some hesitancy on your part & totally understand. Was this a rheumatologist that gave you the...
Midge, I went to the Cleveland Clinic's website & read about ketones in urine. Ketones in blood or urine indicates that your body is burning fats instead of glucose for energy. Having ketones means...
Hi Zoeyz, this forum is very slow. If you will use the search box, top right & type in the name of this medication you will find plenty of posts discussing this medication. Good luck....
Hi Debbiedoo, this forum is pretty slow. You can read through several pages here & see what others eat & how they manage. Reading labels on food is an example. Good luck....
Do not drink anything with red or orange coloring several days before your scope. White grape juice is acceptable before a scope. You need to make a list of questions to ask the nurse before your...
Old Hat asked about this post, I found it....
Call & ask the nurse at your drs office....
Songlady, good to see your post. Like you, I have been on regular Medicare & with the same supplemental plan as you. I was put on disability back in 2004, result of crohns disease. When my husband...
A lot of us do liquids 2 days before the scope, it makes the prep much easier. Your drs office give you instructions on which prep you will using. I suggest you call & talk to the nurse about your...
I do this if I've had too much sugar or I get a little sloppy with my diet, lol. I really don't eat a lot of sweets, however, if I fall off of the bad wagon sometimes. As for the gas, do a search on...
Hi Idris, to my knowledge we do not have any members living in Dubai, this forum is pretty slow. Remicade's website will have a contact person that you can call & ask about a facility in that...
@Happy Living, congrats on being in remission, that's wonderful. Not everyone has one BM a day including those in remission. My only thought is maybe when you go the first time try not to rush...
Hi Paul, if your dr agrees to starting you on Humira he will have to get approval from your insurance first. You will need to have a TB test before starting Humira. Humira will come from your...
I had high cholesterol for years which was not medication induced. I could clean up my diet & it would go down to an acceptable level. My level a year ago was 220,my cardiologist did not feel it...
Iheartjeeps, I understand your situation much better now. Witnessing a parent or loved one pass is hard to tuck away in your mind for quite some time. I walked into the ER that my dad was in, saw the...
@Rusty, look at Keith's signature line, he had surgery & is on Stelara for pouchitis which is totally different from your situation. So far I haven't seen anyone have issues moving doses closer...
I was prediabetic for several years & the prep had no effect on me at all. Typically it's suggested to eat light for a few days before the scope. The prep is always harder than the actual test. You...
Minnie, some members had their cholesterol go up during the initial phase of Rinvog, once they dropped to the maintenance dose it went back to normal. From what I have read on here many decided to...
Wayne, this sounds like the fecal calprotectin test, do you know how much out of normal range it was? You can probably look on your patient portal to get the numbers. With this test some people can...
Congrats on getting the approval. I haven't read of anyone having issues moving the shots closer together. I can't really answer your question on the length of time it will take. Send an email to...
When I was on Remicade the only other drug I was on was Imuran to help prevent antibodies from developing. It's a toss up with each dr, some stick to Inflectra only. I see in your prior posts back in...
Minnie, yes the medications for nausea cause constipation. I suspect your ongoing nausea is a result of your constipation issues. I would contact both drs & see which one can see you the quickest....
Hello Iheartjeeps, I don't usually post in this forum but happened to see your post & wanted to respond. I am sorry for the loss of your father, losing a parent is so hard. I remember losing both of...
RS2022, yes we have had crohns members in the past that had PG. People with autoimmune issues are a little more prone to get it., same with people with arthritis. Anyone can get PG. I urge you to go...
Once you get approved have the person in your dr's office notify them of the change in frequency. Hopefully the dr can get you approved without a bunch of grief....
I'm the odd one out, the only time I note bm's is when I am flaring. As far as food goes, after 20 years of having crohns I know what foods bother me. I am not about to let this insidious disease...
Ouch, I am sure the pain was bad when you leaned on your cane. No matter how careful we try to be there is always that one time. I'm not a dr, but I think a full recovery of a fused joint like an...
Rusty, whenever I am put on an antibiotic my dr has me take Florastor, it's an OTC probiotic. As long as I take this I never have any issues. Even when I have been put in the hospital for unrelated...
Haley, my dr allowed me to do Remicade infusions as long as I had no fever. I have a lot of sinus problems year round & take MucinexDM for congestion. Take care....
Of course surgeons make money off of their trade, lol. There are still plenty of good conservative surgeons out there too. Keep in mind insurance dictates the approval on any surgery. I had 2...
My suggestion is to get a 2nd opinion with the best colo-rectal surgeon you can find in your area. It never hurts to get another set of eyes to evaluate your situation. I'm sure your thoughts are all...
@CCinPA, Admin@healingwell.com....
Glen, it sounds like you've gotten a little improvement. I guess some improvement is better than none. I hope as more time goes by there will be more improvement. Everyone heals differently, I know...
@Quincy, unfortunately the new people have not shared one thing with us mods so we have no clue about what they are doing. Trying to contact the admin & getting a reply hasn't changed either....
Talk to your dr about this & get his/her opinion. Not getting enough sleep is hard on the body overall. Everyone reacts differently to medication so I wouldn't give much thought to what someone says...
Stay on the shortest time possible with prednisone. It's not a drug that you want to become dependent on any time you have a flare. Have you considered getting a 2nd opinion with another gi? It may...
Let us know how the lab work comes back & what your gi has to say about this. I would move to the shots being being moved to 6 weeks & take it from there....
Midge, so glad to read that you had a good appt with your dr. I am fortunate that my dr listens to me when I have questions & does not rush through my appt. About those spasms, it's called tenesmus &...
Healing Well is undergoing a change in software & the process is still ongoing. This change in software has created issues for people to access Healing Well. If you are unable to login contact the...
Yikes, with those lingering symptoms & what you are doing it sounds like you have hit a wall. My guess is once the dr gets your lab results he will make his recommendation of moving your shots closer...
It sounds like you had a reaction. My thoughts are like U B Tough, you should try pre-meds before the next injection is done. I would try this before kicking it to the curb. Let us know what your dr...
Rusty, what kind of issues are you having? Have you discussed this with your dr & had your trough levels checked? Stelara can be adjusted which is a good thing for patients....
I had severe diarrhea for over 2 years after a small bowel resection. My gi offered me Creon, however, I declined it because at that stage I was already on many different meds for other things...
Minnie, contact your dr/IBD nurse ASAP for guidance. Maybe drop the Rinvog until you get an answer from the drs office. I hope everyone clears the virus soon....
Keith, they are still working on upgrading the system, so it's probably going to be a little wonky for a bit. Keep in mind HW was running on an antiquated system. While Peter gave the place a...
It's always good to read positive stories, it gives others hope. Please keep us updated. Enjoy the cooler temps in Texas!!!...
Clo, I haven't seen or heard anything yet. You may want to go into the Texas BCBS website & see what you can find there. Each state is different. I am thinking October 15 is when the new rates will...
Lab, wonderful news on your scope. I am glad that you figured it out on the migraines. My son gets the projectile vomiting with migraines followed by dry heaves. His dr finally gave him something to...
Midge, the usual dose is 5kg & the amount you get is weight based. Your drs office relayed to the infusion center your weight. Unless you have gain or lose more weight it will not change. Starting a...