A few years ago I was using cryptolepis and had the same issues. I don't think it was any other herbs. So you have at least one who has experienced the same....
dcd - Did you put all this together by reading about different problems? That is a good piece of detective work. Wil you be able to work remotely while at the Spero Clinic?...
With May, once again coming, which is "Lyme Disease Awareness Month," all the hoping and guessing everyone still goes through shows there is still little being done to improve the Lyme situation....
No need to apologize, dcd. Every post is really about all of us as one can often find an answer in another post. Glad to see you are going to Spero Clinic, though I wish you didn't have to wait....
WBF - I could not find the mold tests. It's strange because I keep every health record, and that one I can't find. The ones from Immunolytics I did find, which also didn't indicate a mold problem. It...
There have been several times I was feeling bad and had the test done. I coach high school track now and think it's prudent to get checked when I start feeling worse, even though my guess is it is...
WBF - Did your mold symptoms ever let up? I ask because you mention a "crisis mode right now." I know it has been an on going issue for you. I did have HERTSMI-2 done, along with one other test I...
Happy Easter to you, WBF. What a beautiful Easter it is around Atlanta. Hope yours is going well....
Thanks for the information to post a picture, dcd. Link is below of one of my feet, but I don't know if I did it right so you can link directly. You can see how Lyme has taken away fat on foot, and...
I have not been on this forum much recently as things have slowly gotten worse. Chimed in a few times, but getting through a day has ben harder lately. Recently, really gotten worse. Fatigue, more...
I have what you mentioned, also. Have had it quite a while. And as mentioned about tests, I've had every test you can to look at it - MRI, ultrasound, scope down throat. Only thing that showed was...
This has been a strange years, weather wise, in Georgia. But with Lyme, strange is the normal. Glad you were able to get to the beach. It would make sense about the pain if you are taking Alinia....
Thanks, WBF. I answered on the post about hand pain and wondered if some of your pain in the last week could be related to our early allergy season in Georgia. It really affects me and thought that...
dcd - Thanks for that information. I have been tested for sjogrens a number of times, but not sure about the early antigen. Would that still show up after months if I were to be tested now?...
My hands, primarily the right one, has had pain in it vary for a year now. Sometimes it swells. All autoimmune tests have been negative. When I use my hands too much, it gets worse. And what you...
WBF - Yes. I gargle and spit it out, but some does go down my throat while gargling, but not much. And you hit on the area I was thrown by when you quote “ Oral nystatin is not absorbed into your...
A week ago, I was prescribed and started gargling oral Nystatin 3 times a day. Not sure if it is a coincidence, but within a day or so, depression started in much more, along with migraines. Just...
What you write makes sense. Nystatin really kicks my butt. Will start with gargling very little and add as I go. When I coached at Kennesaw State, our office, with no windows, was under the football...
Fronton - Seems I did a histamine test, which was normal, if I remember correctly. The burp test (multiple) with baking soda produces no burps, so my guess is it's low stomach acid. Doctors approach...
WBF - Haven't been on antibiotics for a while, except for an occasional Bicillin shot to see if I get a reaction. "Oral Nystatin hits yeat/fungus in the gut." That is what throws me. The Nystatin has...
Doctors can make a person very nervous, especially when Lyme and "strange" symptoms are involved. Then the mind can take over, leading to more nervousness. That, at least in my case, has held true...
astroman - That just shows how different treatments affect people. No problems for me with Diflucan. Nystatin a total different story. Hoping just gargling won't make it so intensive....
An ENT has prescribed nystatin oral suspension for me to gargle with after looking into throat and seeing "white area and signs of inflammation." Having struggled with nystain in pill form in past,...
On almost every test I have had in the last 11 years or more, WBCs are low normal are just below normal. RBCs are usually just below normal and rarely low normal. Have ben through 2 bone marrow...
So correcting the microbiome in gut would help with dealing with Lyme? Am I simplifying this out of ignorance because I can assure you on trying to read Garzie's post, my eyes became crossed and...
Until Lyme Disease, which has been many years, I did not really believe stress could cause such problems. I always handled situations, or even if stress kicked up, it didn't last long. Now? Any...
Deep Sleep - That was an interesting read. Great information for anyone taking olive oil but especially with Lyme and stomach problems. SO how did you figure out olive oil might be causing problems?...
"Weird stuff keeps puffing." Great way to put it. Never know what is coming next or what could "set off" something new or return of old. The primary question I has still not been answered - Do I have...
Tu Wang - I also get dry mouth, especially while sleeping. I think it may be from reflux that comes up at night. I cannot elevate my pillow much as mentioned by astroman because of disc problem in...
Glad you had seen it. Wanted to mention just in case. You have had more than your share of mold issues....
WBF - This has nothing to do with your subject, but I thought this would be best way to contact you. I noticed ILADS is having a mold webinar February 27. I'm sorry it is not a live link, but you can...
Tu Wang - My doctor aid the same ting. Each time I have endoscopy, it has shown "mild gastritis," and it is ignored. Which leads to saraeli's question, which is a good one and no doctor has answered....
saareli - We've all experienced doctors who do not help. Some just chalk it up to "it's in your head,' while others simply don't know what to do, fail to answer questions for lack of an answer. Then,...
This is an interesting area. My patience to sit for long is not good, so wokring on meditation is not easy. Does music help when meditating? Is there a certain thought process that helps more than...
So many good points and information. All are appreciated. Seems Lyme messes so much with gut. Anyone more emotional when gut issues are worse? The test I took was "serum gastrin," which the doctor...
Is it possible to have reflux symptoms if your acid levels are in normal range? I'm not convinced they are as the gastro just did a blood test (I had never heard of it and will see what it is named...
When I took the Rawls formulas with much of Buhner's herbs in them, my stomach really got bad - much more than it is now. Knotweed seemed to be the worst one....
Your story is familiar to so many on this forum. Doctors who don't understand, symptoms that can't be explained, pushing through it even though you feel bad. It took 11 years to get a Lyme diagnosis...
Skeletonflower - What is your creatinine level/GFR?...
dmw - When I originally posted this a few years ago, I mentioned "lipodystrophy." But there is lipodystrophy, which causes fat loss and the build up of fat in certain areas, like on shoulders (causes...
Our story, astroman, must be a standard for gastros when he or she doesn't know really what is going on, like in the case of Lyme. I had forgotten the gastro told me I must have too much stomach acid...
All the above comments are very interesting. There are so many views and different thoughts on reflux, or what feels like reflux. It is an area that really throws me as I have had what feels like...
Wishing you and everyone else a Christmas miracle (or at minimum and push) toward better health. The years blur together, but each day brings and new challenge, but also new hope. Best to you, and...
So great to read your post. It's easy to get into a Christmas funk with just life, much less Lyme. But to see you are feeling more again about what this season is really about. You are a great asset...
maracas - I didn't realize you were new until Girlie mentioned it, so welcome. I'm glad you are doing better and wish you continued improvement. Has it been a long time since all this started for you?...
Hey marcas - How is your treatment going and how do you feel overall now? And thanks for the response. I'm guessing it will go away if I do the right treatment and my hands get warmer. Glad it did...
As some have suggested, maybe go very slow with JK. I'm one of those who could not handle it, even at low doses. I've read for years it can help stomach issues, but it did the opposite for me. Now...
One of my daughters insisted I go to see someone to make sure it is not an infection, which I didn't think it was,,,, and it wasn't. But I appreciate her. Add one more to the list of symptoms doctors...
The finger next my my little finger on left hand has turned purpulish red. It runs from just below middle knuckle to near fingernail, but the finger nail is not purple. Doesn't seem to be Raynaud's....
When I trued fasting even for one day, it was a struggle to get through. Became lightheaded, bad mood, weak feeling. This was a couple of years ago. But I do remember reading supplementing with...