Ouch! Hope they can get that cyst taken care of ASAP! I have them develop from time to time on my left ovary and it for sure makes my UC worse when they show up....
I weigh 100 pounds and take 100 mg of Imuran a day. I get regular blood work to make sure that my liver function is good and that my white blood cell count is in the normal range. The accepted does...
I would say they aren’t working well enough. Ask for oral salofalk, it are safe to take while pregnant. That in combination with the rectal meds should help you start to feel better in 2/3 weeks....
Glad you are doing well!...
I'm also only 4'11", but 4 Lialda was the magic number for me for a long time. I switched to Colazal 6 weeks ago because I was having issues not breaking down the coating on the generic version of...
I’m sure it doesn’t help. I always have an unhappy digestive system if I don’t sleep enough. You could also try to go up to 4 lialda (3 is a strange number to be on). Flare ups stink, they put us on...
The tough part of UC is that being pregnant can make some folks worse and other folks better. If you just have UP, the salofalk supps should work. If they don’t you can ask for oral 5-ASA and see if...
I take 100mg of Imuran a day and since taking it I haven't had a single cold. It does lower our immune response, which is why it works for those of us with overactive immune systems. So it could be...
Make a paste with baking soda and water and rub it on the bites and leave it to dry. I often react to mosquito bites and get those big, swollen kind that are the size of a quarter and this helps a...
I'm being pretty strict with my distancing. I've been in the grocery store twice since March, my kids can't see their friends except in outdoor situations like hiking or kayaking (in individual...
My experience is that healing doesn't happen in a linear fashion. There are certainly good days and bad days, and they don't seem to make any sense. If you are still struggling, I would suggest...
Yes, it happens for sure and it makes up play the worst head games. Give yourself a couple of days with a bland diet and see how you do. I suspect the cabbage was just too much fiber for your body...
Prednisone is a beast. I was on it from November 2018- April 2019 and it was so hard to come off of it. I think you are at the point where you might want to consider something to help your mood for a...
Time is just about the only option we have. Since you don't have urgency or pain, I think just stay the course and see what happens with the oral meds. If it really doesn't improve you could ask for...
I definitely had some serious nausea for the first 8 weeks on Imuran and I have the odd day here or there when I take it without a proper meal. I take mine at night with dinner, it seems to work well...
My symptoms before I was diagnosed, in order of appearance: Mucus, squealing colon, gas, bloody mucus, urgency....
I was very close to switching to humira a year and a half ago myself. I held out and added imuran instead, but I find that my disease is best managed with regular use of rowasa, have you tried that?...
Thanks, straydog! I've been bad about checking in every day lately, my kids are on their last week of "school" so we have been been triple checking that everything was done and turned in. OldHat,...
And Roxane is exactly the brand that my pharmacy gave me! If the issue is in the capsule shell, I can always open the capsule and take it that way. It says you can put it on applesauce if you can’t...
Thanks, Old Hat! Good to know about Colazal, hopefully it will work, I haven't picked them up yet since I want to stagger the med switch from Rowasa to Canasa first and I have enough of the junky...
Since I haven’t been able to fill my sfRowasa script (it is out of stock again) I was switched to daily Canasa. So far things are going well with that switch, which I am happy to report. It has only...
Yes, Solgar, methylcobalamin. Sorry for the delayed reply!...
My DH has crazy low B-12 levels and no one can figure out why. He has IBS, but not UC, that's me. He gets all of the same symptoms if he doesn't take the sublingual B-12 every other day. His GI...
It could be the preservative in the enema that is giving you trouble. They use potassium metabisulfite in the regular version of the enema so you might not react to the sulfite free formula. Good...
Meda is the absolute worst! I had a crp year done with my routine blood work in early May and it was up from 0.7 to 0.9. So it went up but not badly. My disease is only to 27 cm, so not that far up,...
I use sfRowasa because I have a sulfite allergy and it is out of stock once again. Right now it will be back in mid-June but that date isn’t set in stone, in fact it usually takes 2-3 months. I...
Glad the scope went well and the experience felt comfortable. As far as the enemas go, that number seems wrong to me, I would check back in with your doctor. 7 days won’t do much to keep inflammation...
Hope everything goes well for your DD!...
Prednisone can mess with the balance of white and red blood cells as well as cell sizes. If you are also anemic that plays a part. I was told not to worry too much about these results being off until...
Yes, the achy back, tiredness, and shakes can be caused by the prednisone taper and the meds itself. I would see if you can slow down the taper a bit, perhaps you are dropping by too much and a more...
I found that when I tapered prednisone my symptoms would sometimes come back for a bit right has I lowered my dose. One of the things that helped me was to alternate the old dose and the new dose for...
In my state these procedures are on pause until May 15 and possibly longer if things don’t start to settle down....
I had all of those same pains, ribs, achilles tendon, plus some really hideous pain in my tailbone a year ago. My Gi suggested that it could be one of two things: 1- a reaction to tapering off...
There is an updated report from the Ecco-IBD folks today which details their findings on IBD, immunosuppressants, and Covid-19...
I ended up having to take Progesterone only BCP to deal with crazily heavy bleeding which has helped with cramping too. I have a lot of scar tissue from my second c-section and it looks like I may...
I'm not aware of anything else, sadly. Hopefully someone else has good advice!...
Hope meds kick in quickly and you feel better and you can keep the baby in as long as possible....
I take Imuran and I am extra cautious about wearing and reapplying sunblock. However I get horrible headaches if I am not wearing sunglasses. I have had this problem for as long as I can remember,...
I've had good luck with blackstrap molasses, 1 TBSP 20% of our daily requirement. I added it to almost everything for a couple of months along with wheatgrass powder and lots of spinach. I have never...
Thanks, Quincy, I can never make links clickable from my phone!...
I use it quite often in place of Parmesan cheese. I don’t seem to react to it for better or worse, but I’m not eating large quantities of it either....
Received this link today with updates on how to deal Covid-19 and IBD patients. I’m sure this will change as we learn more but a worthwhile read....
There are hydrocortisone enemas and suppositories, but it is a steroid. You could ask about those but given that you are pregnant they may want to be extra cautions. Sorry you are going through this...
So glad you are home and your daughter is helping out! Hang in there and make sure you rest!...
I know of someone in the hospital with Covid-19 right now who has been given imuran. I thought it was odd, given how slowly the drug treats UC, but I don’t know what the dose is that she has been...
Glad to hear you are on the mend!...
Oh no! I hope you heal quickly!...
Sounds like food poisoning or a stomach bug. How bad would it be to take some activated charcoal with a jpouch? I don’t know how that would work, but that’s my go to thing to take post stomach bug...
Did they test you for coronavirus? Lots of folks in my area are also dealing with norovirus. could have been that perhaps? Hope you are feeling better....
Thanks, John! This is great to see....