Thanks- right now our insurance won’t cover this so we are paying out of pocket and it is a lot of money- $600 for 30 day supply. Doc doesn’t think 5-ASA supp would be enough....
How did the c-diff test turn out? My son got c-diff (he has crohns) and the smell is something completely different than anything else. Also, having c-diff will throw you back into a flare so if you...
My son has Crohns and is in good control except rectum per scope last week. Doc wants to add methotrexate to his Stelara and 1-2 months of the suppository with methotrexate kicks in. He is a college...
The management of the Humira syringe sounds a lot like HGH. The cumulative time out of light and out of the fridge allows you to take it out for up to 30 minutes prior to each injection or more...
Thanks for all of that insight...that will help us in making this decision and give us some more insightful questions to ask his new doctor. My son was on growth hormone injections daily for 2.5...
We certainly consider that risk and this is why we are planning to have him go on a biologic. We are just deciding between Entyvio and Humira and carefully weighing the pros and cons of both meds for...
I do agree about irrational news and data often perpetuated by the internet and pundits on TV. I have been a physical therapist for almost 30 years and this can also make our jobs more difficult and...
NiceCupOfTea, Please don't put me down for worrying about my son. That is not why this website is a resource for many of us. I had a kid with Transverse Myelitis, a son with Crohns, another with a...
I will find that out when I order the more detailed report today. However, there are peer reviewed studies that do show cases with monotherapy and with methotrexate...just not as many....
Yes Beave, the numbers from the FDA come from their Adverse Event Report and include all HSTCL cases reported for those using Remicade and Humira. This is not exclusive to those with IBD who take...
My son has not had a fistula in 4 years (that we know of). He had a fistulotomy at that time that fixed it. He also went on methotrexate and his studies were much better in the terminal ileum. There...
My son has Crohns and has been on methotrexate for a while after developing a fistula and peri-anal abscess. Over the past 18 months his Fecal Calprotectin and CRP have been increasing to all time...
I know this is a very old thread but Alana2000's son has a very similar history to my 15 year old and I feel similar to her and am considering LDN for my son. If you get this, can you please share...