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gela

HealingWell Forum
>
Member Profile
Display Name
gela
Profile Created
6/16/2005 6:19 PM
Last Seen
11/29/2008 8:21 PM
Total Posts
133

Last 50 Posts

ohio 43?

ok, so now i'm wondering what in the world i'm having. it's not a fissure and doesn't seem to be a fistula. so, you cant see the fistula? i had a spincteroplasty on sept 22. the incision's were open...

11/29/2008 8:21 PM

Ostomies
Ostomy Leakage

if your skin is "weepy you might need hollihesive from hollister. that's what i have to use. my skin never heals and i use that under my wafer. it's a barrier. if you still leak, ask your nurse for...

11/29/2008 11:00 AM

Ostomies
ohio 43?

i spoke to you through a post about sphincter surgery. i have a few questions: what was the fissure like? in appearance and pain WHat was the "bulge"? i'm having some problems after the surgery and...

11/27/2008 2:01 PM

Ostomies
sphincter surgery

i'm not surewhen i'll know if it's successful. i; go to the doc tomorrow. my incisions are open now, which scares me, but he says that 90% end up that way. i'm hurting pretty bad a t times still,...

10/6/2008 7:24 AM

Ostomies
sphincter surgery

sorry it took me so long to get back. yes i had the surgery 2 weeks ago. it hurt like $%^& but as long as i don't have incontinence i'll be happy. ohio, were any of those surgeries to repair the...

10/2/2008 6:02 PM

Ostomies
raw skin

so if you use the maalox, do you also use the stoma powder? do you put the no sting on before or after the maalox?...

9/16/2008 10:44 AM

Ostomies
raw skin

mine started out this way also, it's now all the way around my stoma. it helps to use the no sting barrier wipes before putting anything on. my was originally from cutting the opening too small and...

9/12/2008 2:43 PM

Ostomies
sphincter surgery

i had step 1 done in july. while he was in there, he noticed i had a lot of scar tissue that was caused from a 4th degree laceration during childbirth. he said he would need to clean up the scar...

9/12/2008 11:05 AM

Ostomies
Sould I buy anything special to have after getting home form surgery?

bennie-- do you eat the marshmallow right before you are changing?...

7/31/2008 2:23 PM

Ostomies
humira before surgery?

i'm on humira, and may be having step 1 of surgery for j-pouch surgery. i'll ask my surgeon at the consult, but in the mean time, does anyone know for sure if i need to be off humira for a certain...

7/4/2008 12:11 PM

Ostomies
surgeon in Okla?

bump...

7/2/2008 7:48 PM

Ostomies
how long off work?

i'm hoping to have step 1 of j-pouch surgery soon. for those of you with "light jobs", how long did you have to take off work? i will be able to sit down as much as possible....

7/1/2008 6:35 AM

Ostomies
surgeon in Okla?

anyone with any recomendations in oklahoma for step 1 surgery? i hope to have a j-pouch later. i know of dr. postier and dr. davis. any info on these surgeons would be helpful. thanks....

6/28/2008 2:44 PM

Ostomies
UC Meds and Breastfeeding

while pregnant and nursing i took 12 asacol a day along with prednisone, gastrocrom and colestid. My OB said that around 5 % or less gets passed through the milk and even less than that is absorbed....

6/27/2008 1:42 PM

Ulcerative Colitis
UPDATE... I need surgery :((((((((((((((

that really sucks! i'm so sorry that you are having to go through this. have you been to www.j-pouch.org? i'm contemplating surgery because i've been sick about 9 out of the past 11 years. it's taken...

6/27/2008 8:40 AM

Ulcerative Colitis
questions about surgery

i know that having surgery is in my future so i have a few questions. my hope is to eventually have a j-pouch, but i know some can not. i have left sided ulcerative colitis with inflammation also in...

6/26/2008 8:01 PM

Ostomies
UC and painful feet, joints

my doc put me on remicade for my uc and my pain went away after each infusion. i was also told to go on vitamin D 800mg a day that that would help. it has helped me a ton. i also take ultram, a...

6/26/2008 7:44 PM

Ulcerative Colitis
pain meds?

how many of you have to take pain meds and what kind to deal with our uc?...

6/24/2008 2:19 PM

Ulcerative Colitis
Respritory issues at Remicade?

i got an infection every time i got my infusions. i had to stop the remi and start humira (due to antibody build up). i now seem to constantly have an infection with humira also....

6/24/2008 8:26 AM

Ulcerative Colitis
stretch marks from prednisone

i have huge divits under my arms, belly, thighs. my doc said it was "steroid toxicity" from being on way too much steroid. they lighten over the years, but my divits are there forever. i've never...

6/11/2008 6:32 PM

Crohn's Disease
Starting Humira

if you are in remission, i wouldn't start it. it's goal is to get you in remission so your doc isn't making sense to me. humira is expensive and if not necessary the risks would be too high. im on it...

5/19/2008 5:26 PM

Ulcerative Colitis
stopping remicade - has anyone done it?

i stopped it but i would suggest that you get the antibody test to see if you have antibodies built up from it. if you do, then you definately need to stop. i'm on humira now. too soon to say if it's...

5/19/2008 5:22 PM

Ulcerative Colitis
humira and gas?

and how long does this ridiculous gas last?...

5/12/2008 8:52 AM

Crohn's Disease
humira and gas?

has anybody noticed an excess amount of gas after injections? i had my worst day in a long time after my 2nd injection. there was tons of gas and diahrrea....

5/8/2008 11:31 AM

Crohn's Disease
humira and headaches

does humira cause headaches? i have had a migraine for the past 4 days. it goes away for a while, but then comes back. i normally only get them when something has been different. i started humira...

5/1/2008 10:05 AM

Crohn's Disease
Limit side effects from oral pred

my doc always puts me on every other day pred. i'm currently on 30 mg every other day. this helps tremendously with side effects....

4/15/2008 10:11 AM

Ulcerative Colitis
RemiStart Program

no financial strings attached at all. it takes about a week once they process your EOB. they send out a credit card that you can use anywhere mastercard (i think) is accepted. i just gave the # to...

4/4/2008 12:34 PM

Ulcerative Colitis
Apparently it's important to prep for Humira!

how did you get your insurance to approve the humira?...

4/4/2008 10:00 AM

Ulcerative Colitis
Saw my GI today... Remi vs Humira

have they checked you for antibodies against remi? i develped them and now am getting ready to do the humira research study for uc....

3/31/2008 10:56 AM

Ulcerative Colitis
I pushed myself to the limit! Flagyl question

i have taken it as soon as the day after drinking....

3/31/2008 10:54 AM

Ulcerative Colitis
delayed allergic reaction to remicade

have the antibody test done. it takes about 10 days to get back, but if you've developed them you need off remi. i haven't had remi for 8 weeks and my joints are terrible. i've been on alternate day...

3/27/2008 10:14 AM

Crohn's Disease
humira

i am going to be starting humira for the uc study. does anybody know if once it's stopped,can you start it again or is is like remicade and you can't start it again. also, what side effects do you...

3/24/2008 7:43 AM

Crohn's Disease
daughters constipation

it has helped tremendously, along with the mineral oil. we go to see the ped gastro on monday...hoping to get some answeres as to why she chronically has the proble,...thanks for the responses!...

2/6/2008 8:02 AM

Crohn's Disease
daughters constipation

we've been givng her tons of apple juice, fiber one bars, apples, you name it. she's gone some the past couple of days, just waiting to see what happens.....we go to the ped gi on feb 11th....

1/24/2008 9:50 AM

Crohn's Disease
daughters constipation

she's been on miralax for almost a week. she did go a little yesterday and today. went to our pcp yesterday. he doubled her miralax, added 1 tsp of mineral oil 2x a day, and an enema tonight and...

1/23/2008 12:45 PM

Crohn's Disease
daughters constipation

the contulose, from what i've been told, is both stool softner and laxative. do they make a children's otc softner?...

1/22/2008 12:31 PM

Crohn's Disease
Crohn's psoriasis

i've been to so many docs and they say, it must be immune mediated or from the remicade, yet NO ONE has ever seen what i have.!!!...

1/22/2008 11:38 AM

Crohn's Disease
daughters constipation

i have uc. my daughter has had severe constipation for months now. i've been told crohn's can also cause constipation. what can i do for her? her doc put her on contulose liquid every day. that...

1/22/2008 11:33 AM

Crohn's Disease
Crohn's psoriasis

anyone have pictures of this? i've been to 5 doctors now.........

1/22/2008 11:28 AM

Crohn's Disease
Stretch marks?

i got what we thought were stretch marks, but when i went to my current doc, he said they weren't, they were actually from being on too much pred. mine are actually deep and have scarred under my...

1/5/2008 12:01 PM

Ulcerative Colitis
rashes/diagnosis

opps, i mean ana test...

12/11/2007 9:50 AM

Lupus
rashes/diagnosis

can anyone tell me what kind of rashes they have experienced? my asa came back elevated again,so i am going to have more testing to see if i have lupus. also, what testing is there besides the asa...

12/11/2007 9:48 AM

Lupus
Agh! I'm officially falling apart!

i want to know when they stop saying it's "autoimmune disorder" and just life. i've decided if they think that i am the "mystery patient" i shoudl be getting some kind of funding!!!! or at least a...

12/8/2007 11:52 PM

Ulcerative Colitis
does life seriously go on?

i am just so tired of life right now. i am so tired of people who have "healthy lives" thinking they have a cure! do they really think that we haven't thought of every last resort? i'm sorry for...

12/8/2007 11:46 PM

Ulcerative Colitis
Remicade denial

you need to ask about the rebate program remistart. they reimurse you up to a year....

11/27/2007 9:52 AM

Ulcerative Colitis
GI wants to put me on Remicade for just 3 infusions and then start Imuran - anyone else just do 3

my doc doesn't take you off remi until it STOPS working. after a 12 week break from it you start developing antibodies to it and i t will no longer work. as for there being something else out there...

11/13/2007 11:26 AM

Ulcerative Colitis
so stinking tired!

i have had the b-12 deficiency test run and am normal. i know when my uc is flaring i am tired constantly, but this is ridiculous! i could barely get out of bed this morning and am getting 9 hours of...

11/9/2007 12:35 PM

Ulcerative Colitis
lab results

i don't have to go see anyone else right now. i am currently seeing an infectious disease guy b/c of what happened to my skin before i got this other rash,,,they think fungal and am waiting on the...

11/2/2007 10:34 AM

Ulcerative Colitis
lab results

so i went to a dermatologist b/c i have had this weird rash for 2 months that no one seems to know anything about . he asked me if i had been tested for lupus...i don't think so, so he ordered a ton...

11/1/2007 5:38 PM

Ulcerative Colitis
Remicade - how soon did you start getting better?

i felt better within a week....

11/1/2007 11:24 AM

Ulcerative Colitis
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