Here's a recent study on abx combos for persisters. Do a google search for the full 13 page white paper. "Evaluation of Disulfiram Drug Combinations and Identification of Other More Effective...
I've included ALA 300mg or 600mg per day in my supplement regimen pretty consistently since 2013. Even in the past two years when reducing abx and questionable supplements, I've kept ALA to help with...
I took NutriBiotic GSE 20 drops 2x/day for a long time starting around 2011 and only stopped in 2019 when I discontinued all herbals that could thin my blood and possibly conflict with new meds added...
Mike, I'ld recommend going a bit longer on DSF. I went about 9 month total. Started last January 2020 and ramping up to 375 pretty quickly. Then trying 500mg in June but only stayed at that level for...
Sometimes I stopped all antibiotics, or only one or two antibiotics during OFF week(s), but in some cases continued anti candida and/or antiviral Rx. I was all over the place looking to find the...
Pulsing schedules varies greatly between abx combo and LLMD. I've pulsed TindaMax two consecutive days a week while my other abx were taken daily. Here are some of my other pulse schedules: 3/12/18...
I suggest finding a new LLMD. Testing is the least reliable method of diagnosing Lyme and Co's. If you still have severe Lyme symptoms you most likely are still infected. Treating the symptoms does...
Thanks Girlie. But I've hit 80 to 85% percent twice before then relapsed within 3 months after stopping abx, even when pulsing up to 1 week on then 3 or 4 weeks off. I think the DSF finally helped...
Hey RC, I'm a little over 3 months off DSF and Ceftin. Had a Covid phone consult with my LLMD last Tuesday and doing pretty good off all abx treatment with no noticeable setbacks. I still have...
My neuro issues were the last to improve. I have accepted that this as as good as it gets and I can live with my lingering neuro sx at 85% healed for the rest of my days. I am 3 months abx free and...
I think the dreams are a neuro herx reaction to DSF hitting Lyme or pissing off Bart. I recommend that you to work up to 375mg daily and avoid 500mg dosage. Try alternating 375 then 250 next day to...
Martin, Yes, I noticed some improvements after stopping the DSF and ABX treatment. I still have the foot neuropathy from the 500 mg dose of DSF, but that has improved slightly since stopping as well....
MartinK Improvements were difficult to track since I was at about 80% healed in my long treatment process when I started DSF last January. Then my conditions worsened through the treatment, and were...
MartinK - I only had increased fatigue over my normal neuro issues while ramping up DSF to 375mg, I went to 500mg to see what response I would trigger. I was taking DSF as my last resort option after...
Some Lyme patients have a low tolerance for alcohol. I remember now that this was an early sx before diagnosis. There are only a few abx that exclude alcohol, (Flagyl and Tindamax come to mind)....
Three weeks at 350 mg is not enough in my opinion. I would try upping dose to 375 or so for three months before deciding to stop. I had started DSF late January 2020 and worked up to 375 by end of...
LLMDs can charge $600 to $2000 for first visit, and they almost never take insurance. Most LLMDs are booked tout 3 to 6 months to get a first appointment, First visit can take an hour or two. Follow...
You still have Lyme, even though you had been "treated" with doxy. Doxy alone almost never works ... especially for only 10 days at what I expect was a low 200mg per day dose. Find a real LLMD and...
Here's a current article with Tim Jackson stating high IgG numbers and active infection. I couldn't find the article from an earlier period....
Here's my post from a few years back. https://www.healingwell.com/community/default.aspx?f=30&m=3742574#gsc.tab=0 I do recall reading somewhere that really high Igg ( 3x or 4x above high bracket)...
I also had real high Coxsackie results as well as EB many years ago. My LLMD at the time was not that concerned with either very high titters....
Good luck tomorrow at work Girlie ... let us know how you do....
As long as we have symptoms, we need to continue treatment, either abx, herbal or both. Dr H way back in his guidlelines stated that some of us will need to be on some maintenance treatment for the...
from www.Marylandlyme.com (?) Scroll halfway down to spontaneous bruising and vessel ruptures to see if they look like mine...
Looks similar to what I have had on an off for last 8 years or so. I call them spontaneous blood vessel ruptures caused my Bart destroying blood capularies (sp) I'll look up a link to some photos...
Symptoms: 13 years Diagnosed: 10+ years ago On Healing Well: 6 years Tick removed from groin June 2005 with EM rash appearing a week later. PCP put me on 30 day Doxy and had first LabCorp Lyme WB...
Thanks Duncan, I treated fully based on sx only for the past 10 plus years. This set of IGeneX labs were my first CDC lyme positive results ever. Other than that I did have a SPECT scan back in 2010...
Babs is a cousin of malaria.... there is no cure and it can return anytime in your life. You just hope to put it into remission and your immune system can control it from there on. Lyme and Bart are...
My LLMD reviewed IGeneX labs with me today and said no concern for the WB pos results since the PCR tests were all negative. I did have Babs Duncani IgG give a marginal 40 result with a reference...
PnP, thanks, that explains why I always get IgM 23 positive on every WB I've ever taken in past 15 years. The text you quoted was part of what I copied from Dr C's post, and not my thoughts. This was...
Following quote on IgM v. IgG Western Blot taken from Dr C of Missouri post in Lymenet forum many years ago: "With most infections, your immune system first forms IgM antibodies, then in about 2 to 4...
Bart is very difficult to get under control. Some say it is more difficult to get into remission than Lyme, and that Lyme is actually a co-infection of Bart. I spent the first 5 years of abx...
Same here, low RBC and WBC are below and MCH is mostly always high as well for most of my 10 years of tracking labs, But RCB and WBC have edged back to normal range the past two years. But WBC still...
Yes I still have lingering neuro symptoms, mostly foot neuropathy, upper body tremors/vibrations, some short term memory issues and head pressure (although improved greatly), and spontaneous bruising...
Been off DSF for two weeks now. At my last LLMD conference call when I decided to stop DSF, my LLMD suggested that since I was now on Medicare maybe we should get a full Lyme/Co-infection lab set...
My normal foot neuropathy is burning in left foot and tingling in right foot. I would also have an occassional light burning sensation in my face, but that's not occurring much anymore....
Welcome Adam, I agree that the sudden weakness in your legs after 6 week was probably not a neuropathy side effect from DSF. Its tough sometimes to discern what's a side effect from a herx during DSF...
My bart neuro sx did improved greatly over time, but some still linger. So not sure if some of the damage is permanent....
Today is my last DSF dose of 125mg. I started my part time auto parts delivery driver gig today and my foot neuropathy was pretty bad by mid day. I put on over 100 miles without leaving more than 6...
Yes, I have relapsed after 3 or 4 months after stopping or weaning off abx several time in the past, and even while staying on an herbal only maintenance protocol. It usually takes six or seven...
NYH99, I didn't make the connection, but my cognition is been pretty good the past few months after almost 9 months on DSF. Probably clearer than anytime at 85 to 90% in the past. I have though...
Girlie, Sorry for late reply. I've been on DSF only from January until, now. I added Ceftin in mid July. I'll stop DSF maybe next week and see how it goes with only Ceftin for a while. I doubt that...
Girlie, My short term memory and cognition continues to return over time... took a long time and progress is slow so its hard to measure and setbacks do occur from time to time. Hang in there....
Here's a couple my longest stretches on Rifampin combo protocols: 4/9/19 to 4/19/19: Alinia (x2), Rifampin, Biaxin, Nystatin, Liposomal Oil of Oregano, LDN full time 10/18/18 to 4/8/19: Alinia,...
No, I'm just over the state line in RI, more towards CT. I had started to see Sam Donta for Lyme treatment back in March 2010, My PCP was not very supportive so I had to fire him. I then found a good...
You should have better luck with finding a more Lyme friendly PCP in MA....
Check in with a local Lyme support group to see if there is a local PCP that's at lease Lyme friendly....
I'll be weaning off DSF after 8 months and see how I feel. Right now I'm at about 85% and remaining neuro sx may be in part from DSF side effects, and most likely permanent nerve damage. I'll stay on...
I took IHA (Isatis, Hout, Alchornea) blend from Woodland Essence, Add JK Plus, and pick a Cat's Claw should be a good base. I have heard that Chinese Cats Claw is best, but I personally never tried...
WV Mike, Rest up a few days and try just 62.5 every other day, then every day when stable. I found physical exersion difficult on top of the fatigue I felt starting DSF....