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tickbite666

HealingWell Forum
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Member Profile
Display Name
tickbite666
Profile Created
3/7/2014 12:20 PM
Last Seen
Yesterday 6:15 PM
Total Posts
2028

Last 50 Posts

Doxy & Biaxin combo for lyme persisters

Here's a recent study on abx combos for persisters. Do a google search for the full 13 page white paper. "Evaluation of Disulfiram Drug Combinations and Identification of Other More Effective...

2/18/2021 3:03 PM

Lyme Disease
Alpha Lipoic Acid - ALA

I've included ALA 300mg or 600mg per day in my supplement regimen pretty consistently since 2013. Even in the past two years when reducing abx and questionable supplements, I've kept ALA to help with...

2/17/2021 1:27 PM

Lyme Disease
GSE - Grapefruit Seed Extract

I took NutriBiotic GSE 20 drops 2x/day for a long time starting around 2011 and only stopped in 2019 when I discontinued all herbals that could thin my blood and possibly conflict with new meds added...

2/13/2021 10:49 AM

Lyme Disease
Second guessing DSF

Mike, I'ld recommend going a bit longer on DSF. I went about 9 month total. Started last January 2020 and ramping up to 375 pretty quickly. Then trying 500mg in June but only stayed at that level for...

2/9/2021 6:47 PM

Lyme Disease
Pulsing Antibiotics Question

Sometimes I stopped all antibiotics, or only one or two antibiotics during OFF week(s), but in some cases continued anti candida and/or antiviral Rx. I was all over the place looking to find the...

2/3/2021 7:03 PM

Lyme Disease
Pulsing Antibiotics Question

Pulsing schedules varies greatly between abx combo and LLMD. I've pulsed TindaMax two consecutive days a week while my other abx were taken daily. Here are some of my other pulse schedules: 3/12/18...

2/3/2021 4:20 PM

Lyme Disease
No More Lyme - But Still Sick

I suggest finding a new LLMD. Testing is the least reliable method of diagnosing Lyme and Co's. If you still have severe Lyme symptoms you most likely are still infected. Treating the symptoms does...

1/20/2021 6:02 PM

Lyme Disease
Disulfiram - Part 14

Thanks Girlie. But I've hit 80 to 85% percent twice before then relapsed within 3 months after stopping abx, even when pulsing up to 1 week on then 3 or 4 weeks off. I think the DSF finally helped...

1/18/2021 3:47 PM

Lyme Disease
Disulfiram - Part 14

Hey RC, I'm a little over 3 months off DSF and Ceftin. Had a Covid phone consult with my LLMD last Tuesday and doing pretty good off all abx treatment with no noticeable setbacks. I still have...

1/17/2021 6:14 PM

Lyme Disease
What helped you with your neurological symptoms from Bartonella ?

My neuro issues were the last to improve. I have accepted that this as as good as it gets and I can live with my lingering neuro sx at 85% healed for the rest of my days. I am 3 months abx free and...

1/5/2021 5:23 AM

Lyme Disease
Intense vivid nightmares on dsf

I think the dreams are a neuro herx reaction to DSF hitting Lyme or pissing off Bart. I recommend that you to work up to 375mg daily and avoid 500mg dosage. Try alternating 375 then 250 next day to...

1/5/2021 5:15 AM

Lyme Disease
Continue or end Disulfiram? Please help!

Martin, Yes, I noticed some improvements after stopping the DSF and ABX treatment. I still have the foot neuropathy from the 500 mg dose of DSF, but that has improved slightly since stopping as well....

12/14/2020 4:04 PM

Lyme Disease
Continue or end Disulfiram? Please help!

MartinK Improvements were difficult to track since I was at about 80% healed in my long treatment process when I started DSF last January. Then my conditions worsened through the treatment, and were...

12/11/2020 5:19 PM

Lyme Disease
Continue or end Disulfiram? Please help!

MartinK - I only had increased fatigue over my normal neuro issues while ramping up DSF to 375mg, I went to 500mg to see what response I would trigger. I was taking DSF as my last resort option after...

12/10/2020 3:48 PM

Lyme Disease
Anyone here enjoy an adult beverage from time to time?

Some Lyme patients have a low tolerance for alcohol. I remember now that this was an early sx before diagnosis. There are only a few abx that exclude alcohol, (Flagyl and Tindamax come to mind)....

12/9/2020 7:09 PM

Lyme Disease
Continue or end Disulfiram? Please help!

Three weeks at 350 mg is not enough in my opinion. I would try upping dose to 375 or so for three months before deciding to stop. I had started DSF late January 2020 and worked up to 375 by end of...

12/9/2020 5:45 PM

Lyme Disease
Joint pain 18 months post Lyme treatment

LLMDs can charge $600 to $2000 for first visit, and they almost never take insurance. Most LLMDs are booked tout 3 to 6 months to get a first appointment, First visit can take an hour or two. Follow...

11/19/2020 6:03 PM

Lyme Disease
Joint pain 18 months post Lyme treatment

You still have Lyme, even though you had been "treated" with doxy. Doxy alone almost never works ... especially for only 10 days at what I expect was a low 200mg per day dose. Find a real LLMD and...

11/19/2020 5:01 PM

Lyme Disease
Coxsackie Virus?

Here's a current article with Tim Jackson stating high IgG numbers and active infection. I couldn't find the article from an earlier period....

11/16/2020 7:29 PM

Lyme Disease
Coxsackie Virus?

Here's my post from a few years back. https://www.healingwell.com/community/default.aspx?f=30&m=3742574#gsc.tab=0 I do recall reading somewhere that really high Igg ( 3x or 4x above high bracket)...

11/16/2020 5:18 PM

Lyme Disease
Coxsackie Virus?

I also had real high Coxsackie results as well as EB many years ago. My LLMD at the time was not that concerned with either very high titters....

11/16/2020 3:33 PM

Lyme Disease
Update - back on antibiotics

Good luck tomorrow at work Girlie ... let us know how you do....

11/14/2020 6:25 PM

Lyme Disease
Update - back on antibiotics

As long as we have symptoms, we need to continue treatment, either abx, herbal or both. Dr H way back in his guidlelines stated that some of us will need to be on some maintenance treatment for the...

11/13/2020 7:21 PM

Lyme Disease
what is this

from www.Marylandlyme.com (?) Scroll halfway down to spontaneous bruising and vessel ruptures to see if they look like mine...

11/6/2020 5:56 PM

Lyme Disease
what is this

Looks similar to what I have had on an off for last 8 years or so. I call them spontaneous blood vessel ruptures caused my Bart destroying blood capularies (sp) I'll look up a link to some photos...

11/6/2020 5:41 PM

Lyme Disease
How Long Have You Had Lyme Symptoms/ Been Diagnosed/Been on Healing Well Forum?

Symptoms: 13 years Diagnosed: 10+ years ago On Healing Well: 6 years Tick removed from groin June 2005 with EM rash appearing a week later. PCP put me on 30 day Doxy and had first LabCorp Lyme WB...

10/15/2020 6:29 PM

Lyme Disease
Disulfiram - Part 14

Thanks Duncan, I treated fully based on sx only for the past 10 plus years. This set of IGeneX labs were my first CDC lyme positive results ever. Other than that I did have a SPECT scan back in 2010...

10/15/2020 10:48 AM

Lyme Disease
Disulfiram - Part 14

Babs is a cousin of malaria.... there is no cure and it can return anytime in your life. You just hope to put it into remission and your immune system can control it from there on. Lyme and Bart are...

10/15/2020 7:00 AM

Lyme Disease
Disulfiram - Part 14

My LLMD reviewed IGeneX labs with me today and said no concern for the WB pos results since the PCR tests were all negative. I did have Babs Duncani IgG give a marginal 40 result with a reference...

10/15/2020 6:28 AM

Lyme Disease
Disulfiram - Part 14

PnP, thanks, that explains why I always get IgM 23 positive on every WB I've ever taken in past 15 years. The text you quoted was part of what I copied from Dr C's post, and not my thoughts. This was...

10/14/2020 6:25 PM

Lyme Disease
Disulfiram - Part 14

Following quote on IgM v. IgG Western Blot taken from Dr C of Missouri post in Lymenet forum many years ago: "With most infections, your immune system first forms IgM antibodies, then in about 2 to 4...

10/14/2020 11:44 AM

Lyme Disease
Could I still have bartonella?

Bart is very difficult to get under control. Some say it is more difficult to get into remission than Lyme, and that Lyme is actually a co-infection of Bart. I spent the first 5 years of abx...

10/12/2020 6:35 PM

Lyme Disease
Blood Cell Counts Low for Years/Will not Rise

Same here, low RBC and WBC are below and MCH is mostly always high as well for most of my 10 years of tracking labs, But RCB and WBC have edged back to normal range the past two years. But WBC still...

10/11/2020 11:31 AM

Lyme Disease
Disulfiram - Part 14

Yes I still have lingering neuro symptoms, mostly foot neuropathy, upper body tremors/vibrations, some short term memory issues and head pressure (although improved greatly), and spontaneous bruising...

10/11/2020 6:51 AM

Lyme Disease
Disulfiram - Part 14

Been off DSF for two weeks now. At my last LLMD conference call when I decided to stop DSF, my LLMD suggested that since I was now on Medicare maybe we should get a full Lyme/Co-infection lab set...

10/10/2020 6:14 PM

Lyme Disease
Burning & Bartonella

My normal foot neuropathy is burning in left foot and tingling in right foot. I would also have an occassional light burning sensation in my face, but that's not occurring much anymore....

10/5/2020 4:09 PM

Lyme Disease
Disulfiram - Part 14

Welcome Adam, I agree that the sudden weakness in your legs after 6 week was probably not a neuropathy side effect from DSF. Its tough sometimes to discern what's a side effect from a herx during DSF...

10/4/2020 6:30 PM

Lyme Disease
? For those who have had a lot of twitching

My bart neuro sx did improved greatly over time, but some still linger. So not sure if some of the damage is permanent....

10/4/2020 5:06 PM

Lyme Disease
Disulfiram - Part 14

Today is my last DSF dose of 125mg. I started my part time auto parts delivery driver gig today and my foot neuropathy was pretty bad by mid day. I put on over 100 miles without leaving more than 6...

9/28/2020 2:52 PM

Lyme Disease
Memory :(

Yes, I have relapsed after 3 or 4 months after stopping or weaning off abx several time in the past, and even while staying on an herbal only maintenance protocol. It usually takes six or seven...

9/24/2020 11:34 AM

Lyme Disease
Disulfiram - Part 14

NYH99, I didn't make the connection, but my cognition is been pretty good the past few months after almost 9 months on DSF. Probably clearer than anytime at 85 to 90% in the past. I have though...

9/24/2020 10:54 AM

Lyme Disease
Memory :(

Girlie, Sorry for late reply. I've been on DSF only from January until, now. I added Ceftin in mid July. I'll stop DSF maybe next week and see how it goes with only Ceftin for a while. I doubt that...

9/23/2020 5:29 PM

Lyme Disease
Memory :(

Girlie, My short term memory and cognition continues to return over time... took a long time and progress is slow so its hard to measure and setbacks do occur from time to time. Hang in there....

9/20/2020 6:20 PM

Lyme Disease
Long Term Rifampin

Here's a couple my longest stretches on Rifampin combo protocols: 4/9/19 to 4/19/19: Alinia (x2), Rifampin, Biaxin, Nystatin, Liposomal Oil of Oregano, LDN full time 10/18/18 to 4/8/19: Alinia,...

9/20/2020 8:15 AM

Lyme Disease
PCP

No, I'm just over the state line in RI, more towards CT. I had started to see Sam Donta for Lyme treatment back in March 2010, My PCP was not very supportive so I had to fire him. I then found a good...

9/16/2020 11:51 AM

Lyme Disease
PCP

You should have better luck with finding a more Lyme friendly PCP in MA....

9/16/2020 3:55 AM

Lyme Disease
PCP

Check in with a local Lyme support group to see if there is a local PCP that's at lease Lyme friendly....

9/14/2020 4:00 PM

Lyme Disease
Disulfiram - Part 14

I'll be weaning off DSF after 8 months and see how I feel. Right now I'm at about 85% and remaining neuro sx may be in part from DSF side effects, and most likely permanent nerve damage. I'll stay on...

9/14/2020 3:55 PM

Lyme Disease
Herbs for Bart and Babs

I took IHA (Isatis, Hout, Alchornea) blend from Woodland Essence, Add JK Plus, and pick a Cat's Claw should be a good base. I have heard that Chinese Cats Claw is best, but I personally never tried...

9/14/2020 3:42 PM

Lyme Disease
Disulfiram - Part 14

WV Mike, Rest up a few days and try just 62.5 every other day, then every day when stable. I found physical exersion difficult on top of the fatigue I felt starting DSF....

9/9/2020 5:52 AM

Lyme Disease
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