the pedi sent us to the outpatient lab at our local hospital. They applied a solution to her arm (or leg) then attached a small electrode to her arm to make her sweat. Then they collected the sweat...
Hi Jacobsmom- A sweat test (which is simple and painless) could be given just to rule out CF, and then depending on the results, further testing (such as a dna screen) can be done. If possible, it is...
Welcome CF Mom--I also am a cf mom. I'm glad you found this site, there is alot to learn here and always someone that cares/understands how you're feeling. Hope to hear from you again soon....
Hi kait86-have you inquired about high calorie foods at your CF center? They were able to provide me with alot of recipes for everything from drinks to deserts that were high calorie and quite tasty....
Hello-welcome and may I add that you have come to the right place for conversation, understanding, and answers to your questions. Both of my children have CF and are at opposite ends of symptoms and...
Hi El84041- Welcome to the CF forum! I'm curious about the term "adult onset CF" you used. When were you diagnosed and was it at an accredited CF center? Did they diagnose you from a sweat test...
Your sister getting married could be a very good thing! It's important to keep their lives as "normal" as possible and planning a future with someone gives hope and determination. I met a woman with...
Hi Burn-Just watched your slideshow, it brought tears to my eyes and tugged at my heart. An excellent job!...
Hey Stephen-I was wondering the same thing. Sure hope everyone is alright, we had some feeling pretty bad the last time they posted....
During the warmer weather, salty food such as popcorn, crackers, etc. are good snacks. Make sure alot of fluids are consumed frequently. Also, when in the heat for extended periods of time, pedialyte...
I agree with Chaser, thats been my experience also. Our clinic always gave us a list of "salty" foods such as popcorn, pretzels, etc. they recommended as snacks during the summer months. They also...
hi Michele- I know it's a scary time you're going through right now but just take one day at a time. If the test comes back positive, ask your doctor for a referral to the nearest CF center. They...
Morning Twinstride-- Both she and her brother have the delta F508. Somewhere in all my stuff I have the dna breakdown the doctor ordered so we could compare it with a screen from her brother once he...
Hi-Hope you're feeling better. I have to agree with stephen101, sounds like a flare up to me. Call your doctor soon, better safe than sorry!!...
Hello everyone! My name is Kathy and I am a CF parent. My daughter Kristin passed away 11/00 from CF complications (respitory failure) at the age of 10 but I have a 7 year old son (also has CF) that...
Is it possible for a child to test negative on a sweat test but have CF? My sisters granddaughter exhibits many of the symptoms but had the sweat test done when she was a toddler with negative...
When my daughter progressed to the point we were returning to the hospital every 3 months or so, I let myself be talked into trying a PICC line since she was having to restart a new IV every 2-3...
i personally don't have CF but my daughter did. She was 10 years old, diagnosed when she was 2 1/2 and I must admit, learned to cope with it quite well. No, I don't think you're weird, it's only...
the emotions and trials these kids go through each day and realizes the fight these kids put up just to have a tomorrow, it touches my heart. Maybe someday, more people will realize what CF is all...
I can understand your anxiety but I just wanted to tell you my story. My daughter was 2 when she was diagnosed so when I became pregnant with my son, I had the same fears and doubts you must be...
While staying with my daughter in the hospital for her "tune-ups" I met many CF patients and had the opportunity to make quite a few friends. Some of these were women in their 20's and 30's that had...
I don't know the medical opinion of the effect your "surroundings" has on the lungs but I do know when we moved from Salem, OR to Dallas, TX--my daughter's "flare-ups" increased and she didn't have...
/community/emoticons/sad.gif my little girl has been gone for 4 years, 10 months, and 11 days. She passes away in Ft Worth Texas from CF. I miss her so bad that I find myself pulling away from my 6...