Thank you very much for that information! I've felt bad for awhile now, and what didn't get blamed on my ulcerative colitis got brushed aside. Now so many things make sense as I look at the list of...
Hi! I recently had routine lab work that shows my TSH is 10.560. I am wondering if my doctor will be able to tell me what type of thyroid problem I have based on just this one test? Should I expect...
I started having this symptom back in 2010. I began a bad flare up and landed in the hospital eventually with C-diff. No problem then that I remember but I didn't completely get well and 4 months...
Ok, thanks for the ideas. I'm on the extended release and have pushed the length of time in between doses. Just wasn't sure if I was delaying the inevitable and drawing out the "I feel cruddy"....
Hi, I've got chronic pain they say is related to my IBD. I believe it is inflammation that causes it, as they say I don't have a true arthritis. I've been on various meds for it through the...
I was told I have fatty liver. I assumed it was because of being overweight. They told me to lose weight as if that would help it....
I was originally dxd with cd, then later told uc by a different doctor. All my symptoms are in the colon. They told me it is rare but possible to have both. I will just have to see what the next...
Wasn't there a story of someone who used coconut macaroons to help their IBD? I am able to digest it and love coconut. Try some soups made with coconut milk maybe? Not sure if it would have the same...
I do the same as gumby. Although I normally work swings to avoid the early morning rush when my bowels are at their worst. But when I have to pull an early shift I do allow extra time. I need the...
Hi everyone, I haven't posted in awhile but wanted to share something. I heard about a study where they found a connection with vitamin D deficiency and Crohn's or IBD in general. I "think" it was...
FYI: I found a very yummy popcorn product that is very cd/uc friendly because it has no hulls, and is even gluten-free. It's called Cosmos Caramel Corn out of Oregon. They were giving tastes at my...
So I find myself without insurance coverage and about to run out of meds. Haven't had to deal with this before so I'm looking for advice. Do I just call up docs and find out what they charge for...
I had that the first time I ended up in the hospital and it was a rough time and felt like a long recovery. Nasty little bugs. I remember we had to do a thorough cleaning at home to hopefully...
Not good. Hope you feel better soon!...
So sorry. I find myself smack in the middle of this problem. Hubby lost job in October and thus lost insurance. He and his brother started up their own business and thought it would be maybe just a...
I keep seeing gluten pop up as contributing to different health problems and causing leaky gut symptoms. Some things I read suggest gluten sensitivity may play a bigger role in health problems and...
I'm not sure whether it is hypochondria or not, but I think having a chronic illness, especially one that manifests itself in so many ways in our bodies, makes us think about our health more than the...
That's interesting about the antibiotics. I've never been prescribed those for the iritis, even when it was at it's worst. I'll have to ask about that....
I found an optometrist at Wal-mart who was willing to do an exam and give me a prescription. He was really nice, and told me he's not comfortable treating it long-term due to the crohn's, but was...
Hahahahahaha....that's hilarious! Must be nice to not have any clue why people would use so much tp. Maybe she'll connect the dots and figure out why they need so much air freshener now. And why the...
Along with my cd, I get iritis flare ups from time to time. It's been awhile since my last one, and I now live in another state. My pred drops have expired, and I am without insurance, and not much...
Sorry, I can't help with that. Maybe add "bowel resection" to your title and it will be seen by those who have experience with that. Good luck!...
Sorry for all you are going through. I get it. I come and go too, as time permits for me. I am so thankful for all the nice people here who we can turn to when needed. I sure wish none of had to...
The worst for me was when I was newly diagnosed. I read about all the things that could happen, and that really scared me. I was able to think myself through it and realize that I needed to focus on...
Thanks, it's nice to get some suggestions. I don't know why I seem stuck feeling like the only way to get them loaded with nutrients is raw. I actually had some time to look and some vegis are...
Thanks for the replies! Sarah, I didn't realize they had medical nutritionists. I will look into that when I get my insurance back, hopefully soon. Nanners, that is a bummer. I've done vitamins off...
I want to eat well but how can we optimize our nutrition when we can't digest the healthy foods they recommend people eat, like fruits, vegis, and whole grains??? It seems like every time I try to...
I take a potassium supplement. During my last bad flare I had unexplained severe leg muscle pain. Despite all the tests they could not figure it out. I started taking that and magnesium. I stopped...
I used to be able to drink it daily. Now after several years it seems to give me too much trouble, and that's even with a painkiller that slows things down for me. So, I just have it for special...
Welcome to the group! When I was first learning about cd, I also got scared. But then I learned to look at my situation each day, and realize that not everything that "could" happen necessarily will...
I have gone through a lot of ups and downs with how I feel. Always tired and always have chronic joint pain. But cd seems to be under control lately and I'm so grateful to be getting a break....
I was just told to get extra sleep. I didn't get the impression they could help much. I do not have small bowel involvement so I don't think it's a lack of vitamins, other than I could try to eat...
I hate the risks, but for me it comes down to quality of life now versus later. A later that I really have no idea I'll get. Not even necessarily because of cd. Just the "I could get hit by a bus"...
Oh, from your lips to God's ears, Sniper!...
Thinking of everyone affected by these tornadoes. I used to live where there was the threat of severe storms and they always affected my stress levels and sent me running to the toilet with just the...
Not still on prednisone, sorry I have just not updated my info. Nothing has shown up on any of my latest tests for diabetes and I don't have those symptoms. My cd has not been in the terminal ileum,...
Have been there to hear doctors tell us hubby had cancer. I know the stress and fear and am so sorry you are both facing this now. Will be praying for good news, good doctors and strength for you...
I have this vague memory of an oil commercial with Florence Henderson, and how this oil was high in polysorbate 80, like it was a good thing. Unless I'm remembering this all wrong. I'm having issues...
I did take some flagyl over a year ago. Unfortunately I can't remember when I started noticing the heel numbness. The thigh one that comes and goes has been since Christmas time. I don't think B12 is...
I don't remember ever hearing about a connection with crohn's and nerve problems/neuropathy. I've developed a little bit of numbness in both heals, and some numbness that comes and goes on the side...
I used to get very sharp but brief stabbing rectal pain that got better once I got my cd under control. I thought it was just a weird period thing, but it never lasted long and I didn't want to go in...
Pred use is very common here. No one like having to take it but when the alternative is suffering, it's usually welcome. For me, I figure it is quality of life now, versus potential risks and...
I know, I got lucky. I had been put on darvocet years ago after my pcp tried everything else (celebrex, bextra). So my new pcp in another state just continued it, but she had big concerns over the...
You should mention this symptom to your doctor as it could be your liver. If it's just a skin allergy, there's a gel that benadryl makes that I like. Either that or hydrocortisone....
My docs have decided my pain isn't true arthritis so I take an extended release morphine. I still have to deal with pain, but this gives me the ability to work and be a bit more physical. It's a...
Any idea what this could be? I've tried searching online and I'm having trouble finding anything. I feel pain when pressure is applied to my body in many areas. It doesn't really feel like it is as...
Usually it's inner ear, although I got it once very bad and had no cold or allergy symptoms. They gave me "exercises" to do to train my ears not to be so sensitive. But I had gotten either food...
January birthday. Lived in California til late twenties then moved to Michigan, where I was dxd in mid-late thirties. Back in California now and unfortunately the ibd came with me. :(...
Have been on colazal for several years now and found this interesting. Thanks!...
I have joint pain but my dr says they don't see that I have true arthritis based on my blood work. It does not appear to be related to my flares....