Stray Dog: you are wrong about FMT for some crohn's (and it may not work for all, just like biologics). The reason you haven't heard of it for crohn's is because the trials for it (unlike for C Diff)...
I finished the FMT clinical trial for crohn's about a month ago. There was a hospital near me and my gastro was involved with (most are not and know little about FMT for crohn's, the trials are rare)...
Our disease progression seems to be very similar, I know what you have gone through, particularly with the leak at the anastomosis (on my 3rd resection as well). The fecal matter transplant was a...
I was on Entyvio for 2 years, the only thing it did was give me a little bit more energy. My crohn's ulcers remained the same, my inflammatory markers (CRP) still high, did nothing for the loose...
I was also told to take ferrous gluconate for anemia by my gastroenterologist. In Canada it is cheap and sold over the counter without prescription here, tho I did have to ask the pharmacist as it...
I have had 3 bowel resections with running D 3 or 4 times a day (I'm 57) and still work full time (and have all that time), not easy but doable, I have an office job on a computer. I take questran...
OTC strength b12 was never enough for me but getting the injections monthly was a hassle so my family doctor's nurse showed me how to inject myself, I purchase the liquid b12 at drugstore, the...
Anytime I see someone stating that they have cured their Crohn's with _____ (fill in the blank) I just stop reading. That statement alone negates the rest of what you have to say in my opinion....
As someone who has had multiple bowel resections, I know exactly what you mean about changing the sheets, showering, cleaning in the middle of the night, its exhausting, embarrassing (and I'm by...
Thank you for your post, that is very insightful for me...
No I have never had an eating disorder, no, I do not receive a "sense of control" when I do not eat and no that did not answer the question I asked...
I've recently read that they now think 90% of seratonin is created in the gut rather than the brain. I have found that if I go without eating for a period of time (3-4 days) because I am not well my...
Where are you? I have had this issue also, if you are anywhere near southern Ontario (sorry can't make it to Labrador :) I would be willing to help. Where I am they will not allow you to take Uber or...
I found very early on in my career that the majority of my employers and co-workers voice the words that they are sympathic to the disease (it seems to be the socially correct thing to do) but when...
I agree that it is not the biologics directly but probably their effect on my immune system that allowed the infection to continue and severely so. Yes, I am having more issues since off the...
That's a hard position to be in but as someone else said there are a number of companies who provide health insurance to even part-time employees in retail, some are Whole Foods, Costco, Lowe’s,...
I wanted to post in case this may help someone else out there. I had been on Remicade for 4 years for crohn's, all fine but then developed a UTI. Multiple rounds of antibiotics (many different ones,...
I'm not embarrassed by talking about the fact that I have Crohn's but I get so tired of "advice" by people who's "cousins son" has it and "ate these things and was better" that I now only talk about...
I am someone who learned early that employers look at the bottom line and people with crohn's/drs appts/sick days are a liability. After being let go from my job while in the hospital after my second...
Over the years I have had many comments in one way or another blaming me or insinuating that its somehow my fault that I have this disease, from the "well...what have you been eating?" question to...
the only thing that helped me and enabled me to work full time was taking extended release codeine (prescribed) daily, its been a blessing (and I've tried them all) and going gluten free...
I had my first in 1994, my second in 1999, my third in 2008....
I don't think NY-Sooner was trying to make anybody feel like a "stupid idiot" he/she was merely stating their opinion as to why there are so many commercials on TV mentioning crohn's, I thought the...
I have bad days with crohn's where I have bad diarreah, am exhausted etc...but I think of those days as just bad crohn's days, a flare for me is far more significant. About 1 1/2 months ago I started...
I take 50mg, 2 pills a day of the "extended relief" Codeine contin (as opposed to the regular codeine) tablets a day and find the effects of the codeine doesn't wear off. When I was on the "regular"...
I think Keriamon hit it right on the head as to cause and remedy...
this made me smile....so true, definitely a "pet me" moment from a captive audience :)...
I have always worked full time throughout the course of my disease with the inevitable time off for hospitalization and as few sick days as I could possibly take. I came to the conclusion early on...
I found it took anywhere from 4-6 months for my bowel to adjust completely after a resection and for the D to subside enough that I was comfortable. I take codeine and find this helps tremendously,...
I too was never lactose intolerant until after the first resection, I noticed that I couldn't tolerate all dairy and that milk especially would make me sick to the point of vomiting. I gradually...
A "tingling" when urinating and a feeling of pressure on my bladder was a symptom all 3 times when my small bowel became blocked....
After my last resection I had recurrant infections of my wound both in hospital and after I was discharged resulting in sepis and I had to be pumped full of iv antibiotics, there was a small part...
I have had 3 bowel resections cutting out 95% of my small bowel. The doctors were very concerned about short bowel syndrome with me too, concerned with malnutrition but since my last resection 2...
I have taken cipro and flagyl on a couple of different occasions, once for as long as 1 year. My doctor has said he has patients that have been taking them for as long as 10 years, but I have not...
I found after each resection it took approx 5 months or so for my bowel to "adapt" and get rid of that fiery burning feeling and living in the bathroom. I just had a ileostomy reversed in January and...