Thanks, Sparky. That's encouraging. The plan is to push for it sooner rather than later....
Count me it. I would have volunteered for a trial, but I would have had to drive 2 hours one way every week in order to be included. Randy is also ready to roll up his sleeve. Donna....
Thank you Tudpock. I'll check on that....
JNF, I looked at ACA Plans, but as you said, no subsidies, so it as close to the same price as adding him as a dependent with higher(hard to believe) deductibles and copays than my work plan. If we...
Buddy, I'm going off topic a bit. I attended a couple of the protests against racism. There was no "rioting" or ugliness at the ones I attended. I don't know why anyone would say protests against...
Thanks, Cali, Randy had failed AUS surgery back in November. After a long complicated, painful ordeal, the AUS was removed in January. Bleeding continued until March. A cystoscopy was scheduled and...
Buddy, there were several towns including Savannah and Athens (the Governor's hometown) that mandated masks prior to Atlanta. The Governor did not push back against those towns. It wasn't until...
Thanks, JNF, I tagged on to his last post about Hyperbaric treatment. I don't see an option to message him. We used to have little envelopes under out names. (?)...
Sonny and CaliJR, I know this is sort of a zombie post, but I have questions. Randy has been diagnosed with hemorrhagic radiation cystitis. The doctor originally told us there is no treatment and no...
Hello, All, Has anyone tried hyperbaric oxygen treatments for radiation cystitis? It was suggested to me by a member of another group. I looked online and found a couple of very small trials which...
Djin, I've thought of that. It's worth a try.......
I voted, but I don't think the correct answer is up there: pure plain selfishness....
Thanks, JNF. Randy's blood count is "borderline". If it continues to bleed and get worse, keeping his job might not be an option. As for asking for ADA allowances, it's a small business owned by a...
The doctor said the good news and the bad news is that bleeding after a bm is being caused by radiation cystitis. It's good news because there is no tumor. It's bad news because it's permanent,...
We have an appointment tomorrow for a systoscopy to hopefully determine what is causing the bleeding. It's now a daily occurrence, but only immediately after a bowel movement. There no visible blood...
Some of you may remember the months long saga of Randy's AUS surgery which ended with the device being removed earlier this year. One of the most distressing and persistent symptoms was blood in...
Wow. No words. Prayers for you and your family. Donna....
I work in a law office and was offered a chance to work from home at the start of the stay-at-home orders. I declined. I like the work/home separation. I want work stuff to be a work and home stuff...
We REALLY need a "like" button....
Nytngale, thanks for you insight. My Son in Law is a Nurse Practitioner in the ER and our dear friend is an RN in the critical care unit of our local hospital. Our county hasn't been hit as hard as...
Congrats!...
I got the letter. I promptly deposited in the garbage. A friend of mine took a red sharpie and corrected it for grammatical errors. (So funny) It's posted on her FB page. It was also suggested by a...
Randy has been on Xtandi (or not) for 2 1/2 years now. He's in a blinded study, so we really don't know for sure. but, so far, so good. PSA has remained undetectable . We only know that because of a...
In the great state of Georgia, our Governor has decided that those professions which have the most close contact and "hands on" duties (hairdressers, massage therapists, nail tech, aestheticians,...
"Trump signed, the CARES Act on March 27. It expands jobless benefits to nearly everyone put out of work, including part-time workers, contractors and the self-employed." Every state where I've...
I saw an interview with an infectious disease specialist which was very interesting. She stated that, if done right and in time, social distancing would look like an over-reaction on the other side....
Alephnull, on March 2, 2020, there were 24 cases of Covid 19 confirmed in the US. Right now there are 265,000 cases and well over 6700 dead. So in 30 days the number of cases has increased over...
Duck2, it's really not as easy as that. I would LOVE to stay home, but am considered 'essential'. I work for a real estate closing attorney, and yes, per the Department of Homeland Security, that is...
I personally, will continue to enjoy home made snacks in the break room, summer pot-lucks, hugs from friends and family, handshakes with new acquaintances, etc. after all this is over. That's the...
Randy had his appointment Wednesday for his Lupron injection and clinical trial check-in at Emory (Winship Cancer). We were met a the door by folks with hand sanitizer who asked about any flu...
Bagman, we had something similar, also at Emory. Randy had a long unhappy nightmare involving an AUS (the details are in other posts). Six weeks after the removal, Randy was still having quite a bit...
Well that stinks out loud. Things are so scattered right now. I hope you get better than expected results. Be safe. Donna....
We really need a "like" button....
I'm pretty much with Halbert. Our children and what we (collectively) have made them. They learned what to value from us. I work in an office that is very largely in the over 50 camp. I live in...
Holliday Hill, I've done some reading on penile clamps and one of the side effects is erosion. Since erosion is the culprit in this disaster, I'm not sure it would be a good idea for Randy....
Yesterday we went back to the doc for the 4 week post-surgical visit after Randy had his AUS removed. They injected contrast into his urethra and scanned to see if there were any remaining leaks from...
I'm just reading that 142 passed. It's heartbreaking. Kudos to those who came along side him in his last days. It's the true definition of a friend. Nobody should be alone in the end, and you guys...
"Once it goes in, there's no hope of returning to natural continence, ever." RobLee, We specifically asked the surgeon if Randy's incontinence would be any worse when the AUS came out than it was...
Hey, Knotreel, Don't worry about 'hijacking'. We're all here to hear from each other and the natural progression of any conversation is fine with me. The Suprapubic catheter isn't meant as a long...
We're hoping that the incontinence isn't any worse than before. The issue here (they think) was damage from SRT. The cuff remained open the entire time. They were sure that was the case, because they...
Thank you Rob. We're hoping this rounds the corner. We are now at a point where a few pads a day doesn't seem so bad....
Randy's surgery was on Monday. The cystoscopy showed the cuff had eroded his urethra (as suspected). The AUS was removed. They also had to make a 3 inch incision along the scrotum to remove a pocket...
Hey, Rob. They think the blood and clots are being caused by infection. The infection could be caused either by the SP tube, foley, or by urine going places where it has no business being. He's been...
Sorry, guys...this is just a whiney, complaining post. The last time I posted about this, Randy was is the hospital with a UTI, blood in his urine and bloodclots. Monday, Randy will be admitted,...
So, so sorry for the news. Thank you for the update....
Thanks, Guys. We went back in today to the doctor (NP). Randy's surgeon is on Medical Leave. She just had surgery herself. His care is being transferred to another surgeon for the time being. Randy...
A few days before Christmas, Randy started having cramping in his bladder. The doc who inserted the supra-pubic catheter recommended Azo. He said that the tube can irritate the bladder. So, Randy...
I can remember when I was in college learning that the US was the only nation in the world where obesity was the number 1 health problem of the poor. It made no sense to me until I reached the point...
Rob, that sounds horrible. I'm so sorry you dealt with all that. Randy had the foley put in three different times, but it was all within 4 days. The surgeon said that putting in and taking out was...
Roblee, we chose the surgeon carefully. She has a great reputation. Randy spent the night in the hospital (planned). When they removed the catheter in the hospital he went just fine. Not a strong...