Not to necro a dead thread for nothing, but I get this belching problem too. The only thing that seems to help is a tsp of baking soda disolved in a 1/4 cup of water ; chug - whatever the "bad" is it...
If your sweat tests are iffy I'd suggest genetic (blood) testing. Theres many variations in the genes that can cause CF, and they dont all present the same way....At the least you'd be ruling it out...
Hi! I thought I was alone in this, I always coughed some, usually just coffee-colored, some frank blood during my periods. It got worse as I aged, I haven't had any embos, but I noticed that I had to...
I wake up, eat breakfast, do a sinus flush, inhale pulmozyme, vest for 30, and then I start my day! hehe. Typically I'll take my dog for a walk or go swimming in the afternoon. If my lungs're bad I...
Bit delayed with my answer here, but I bought a Turtle case to protect mine - it had foam that I cut to the size of my machine, and while it is a large case - my vest has travelled all over the US...
Thank you, thats pretty much the decision that I had come to, its nice to hear someone else take the same position. :) *hugs*...
Wow that is a very good idea! I've always been a strong supporter of playing video games while having physio (just seems to pass the time faster) but to have a system that can also give you feedback...
Hi Vera, My hands get very wrinkly too - as I understand it its got to do with the process of osmosis (transfer of salty body fluid through her skin into the water because the water has a less dense...
Hello all. I'm sure you've all seen my posts before so you probably figure that I think I know it all! (which I don't, I just know what works well for me!) On that note, I'm here to reassure you that...
Hi, i'm Christina and I'm 25. My MSN is abiance@hotmail.com My AIM: TayraDouglas...
Ok here's the bestest (haha my favorite word) advice I can come up with - Avoid other CFers and ppl who're sick. You're more likely to "share" lung bugs with eachother and then no one ends up happy....
Hi, I've got hypothyroidism and take synthroid 100s for it. I was caught on routine screening, I didn't really have any of the severe symptoms that can be associated....
Nope. Rain, shine, sleet or hail I always have my treatments. Doesnt matter if I'm 3/4 dead with an infection. I do it anyway. Had surgery in Dec, couldn't vest so I began doing my own variation of...
1. How long have you had CF? Since birth 2. When did you find out? My mom diagnosed me at about 4months, drs confirmed it thereafter. 3. How do you feel about it? Sucks. But we dont get to pick. Got...
Hello everyone. I know its been awhile since I posted. A brief update, then my question. I'm 25, diagnosed by my mom when I was 4 months, (See back posts). and CFRD when I was 17. I typically see the...
Hi. I'm 25 and 180lbs....
Hi, just to throw my two bits in here. If you pick up a nice pair of headphones you can watch tv while vesting. I was warned to keep my lungs as good as possible for as long as possible, a lung...
Feel better soon!! *hugs*...
Hi Just want to confirm - doctors who believe sugar water doesn't bump up sugars are nuts. We had this fight with the nurses in my small town hospital - after showing them the pre and post sugar...
I rinse mine in hot water about once a week *blushes* not as good as I should do but I haven't had any problems yet that I know of. I have two Pari Nebs that I swap back and forth with. So one gets a...
Hello Phil. Welcome to the forum! I have posted on a very effective sinus remedy that has served me well. My sinus's were so bad I had to have my nasal polyps removed (they were huge!) when I was 9....
Hi Kathy, I told my mom about your son's fingernail problems and she suggests he increase his intake of glycerine. IE - Any meds available in gel caps vs taking them in tablet form. You can buy...
After 20 years of IV's we started using PICC lines for my veins - perhipherally inserted central catheters. They are desgined to stay in for 3-4 months for IV med delivery. Now my last run required 4...
Hello. I've made a few posts here and I read about some of the sinus problems that we (cystics) are prone to. So I just thought I would write now to share what I was told to do for my accute...
My parents diagnosed me (not the doctors). They said I had large foul smelling stools and I was hungry all the time. My mom saw a commercial on TV that talked a bit about CF and asked the parent to...
Twinstride, if it rubbed their bellies than their vests didnt fit properly. If it is just that it is too low on them, they should look at getting the other model of vest (same compressor but...
Hello everyone. I have CF. I'm 24 years old and was diagnosed in 1981 at 4 months of age. I have severe problems. However I pride myself in having good lung function and keeping a positive attitude....
It may not be possible to have a natural conception - however if he is not totally sterile you may be able to think about artiicial removal and impregnation that way. BUT this is best discussed with...
Hi, I agree with Littlebird. Its likely NOT The CF thats cuasing his nails to stop growing, as I have no problems with this. If he's really desperate to have finger nails, start making him Jello -...
I strongly recommend forgoing the high fat part. Focus on high protein. Consider the simple facts. People with CF dont process fat. We poop it all out. Why would we put fat in, it just acts like a...
Hello Julie. I also have CF - had alot of sinus problems in the past as well. When you kiss her - does she taste like salt? Feel free to give her a little lick LOL I dont think she'll mind. if she...
alywymark you can go google for "The Vest" (in quotes) and it should pop up right away for you. It is a physiotherapy device that you put on - looks like a flak vest with two rubber ports on it....
I was 17 when I was diagnosed with type I diabetes. I cant say balancing CF and diabetes is easy but it is manageable. Here is the way my doctor explained the risks to me: from birth to 12 years old...