OMG! So happy to hear from you. I was getting worried all over again! So glad you're home and on the road to recovery. Take it slow and don't over-do. Take special care of yourself!...
Definitely call them. But I think there is a generic now. My blue shield formulary lists a mesalamine ER of . .375 grams. I don’t know how it is compared to Apriso. Or if it’s any cheaper. Apriso...
Prednisone is your only med? You’re not not mesalamine orally or rectal? You are being undertreated and need to see a dr and get your flare under control. Pred is great for a rescue med but it’s not...
What medications are you on?...
When I was at my sickest my mental state was not good at all. My GI sat me down and gave me a long scientific explanation about how UC can contribute to depression. I don’t remember all the terms he...
Have you done a search in this forum for xeljanz? That should bring up some posts....
This is only my opinion and there are others more knowledgeable than I — but my thought would be that you need a stronger dose of prednisone. I never started below 40 and was usually started on 60...
Can you get hold of any probiotics? Or does that help when you have no colon left?...
Thank heavens you’re better 3tc — except for the diarrhea. Maybe it’s the antibiotics? I suppose the bright side is you won’t have to worry so much about contracting the virus! 🥴...
Good lord OH! Why did they cancel your rx coverage? And how’d you get it back? Curious — are you on Medicare?...
So worried about you champ! Glad you’re feeling a little better. Please keep updating!...
Hi Song! Glad you checked. Yes I’m really worried about 3time and hope he’s doing well. How’s your pouch doing? I hope things have settled down for you and life is good! I just had an infusion this...
As far as fiber supplements — I use Metamucil powder which is made from psyllium husks. I take a heaping teaspoon which probably amounts to a tablespoon at night. I don’t mind the taste. I’ve tried...
I would be worried for sure about walking down hospital corridors! Our local hospital is not allowing any visitors at all so hopefully your is too and that must help a lot in keeping random germs...
If you are having panic attacks I strongly suggest you contact your doctor for an anti anxiety medication. Panic attacks are miserable and there’s no need to suffer through them. No one likes to take...
I agree CGK! The healthcare workers are so brave. And first responders. Thanks to them all!...
Oh no! Dang it! So sorry you’re so ill — especially since you’ve already been through so much. Please know you’re in my thoughts and sending you good wishes and positive thoughts. Please keep us...
Sounds like a good plan! I had my infusion on Tuesday. I called them from the parking lot to let them know I was there and they said they were ready for me so I went in. They had moved all the chairs...
My update: still haven’t received anything from Prometheus so I assume they are resubmitting to try to get paid. Glad to have a bargaining chip that everyone else was charged $75, should I need it....
I’ve had a scratchy little bit sore throat for about 2 weeks. I keep taking airborne and it’s never gotten worse. It’s hard because there are colds and upper respiratory bugs going around. But I’m...
Prednisone can also cause headaches. If your headaches are continuing and are severe then you really should see your regular medical provider to determine if they are migraines or not. I’ve suffered...
Woohoooo! Congrats! May your remission be long and healthy! I have infusion #22 tomorrow (yes I keep track 🤪). Life is good and all those days of misery a dim (but still scary) memory....
I should have mentioned my infusion site is separate from the hospital so that does make me feel better. It’s owned and operated by the hospital but off site about a block away. They call it the...
They just called to change the time of my infusion appt. tomorrow. They’re spacing appts out so they can see fewer patients at one time. Plus I have to call from the parking lot before I go in to...
I can’t figure out why all our local stores — even online — are out of flour and baking supplies. Either every single person is baking every day or someone is buying it all out!!!...
I lost my mom at 91 4 years ago, after a 4-year long ugly battle with dementia/Alzheimer’s. It’s been hard to see past the last 2 dreadful years of her life to remember the good memories. But the bad...
Just wanted to offer my sympathy for the loss of your 93 yr old mother. It’s tough no matter how it happens, but I’m glad she went peacefully. What a long life she had! This must be a rough time to...
I have my entyvio infusion on Tuesday and plan on going. I’ve seen them be sure to wipe the chairs in between patients just during regular times so I’m sure they’ll be taking extra special care now...
Does anyone know (maybe even the authorities don’t know?) once you’ve had the virus and recover— are you immune to this strain? Or is it possible to get it again? Just curious....
Went to the grocery store yesterday. Hasn’t been any hand sanitizers to be found for a couple of weeks now. The fresh chicken section was completely empty and meats were half gone. I didn’t check the...
Thanks for those updates! Especially comforting to me that 2 of the patients were on entyvio and not hospitalized!...
I hope you’re right z-man. If so then Maybe entyvio isn’t so great in that area since it supposedly only affects the gut But I just have to hope that if i do get it it’ll be mild. Hey there’s a huge...
The grocery store was the busiest I ever saw yesterday. But people are going overboard. A lady behind me said she bought 20 cases of water! Now that’s overboard. We still have plumbing and running...
I am still very happily in remission after 3 years of entyvio. No side effects. It wasn’t that slow acting for me. 4-5 months in and I was off steroids and no physical symptoms. Just be prepared to...
I’ve seen that warning in my literature. Again no incidence of cases with entyvio but they put the warning there because it has happened with other biologics and entyvio is new enough that the...
My husband has a friend who had a colectomy 20+ years ago due to cancer. Because it was cancer they removed his rectum too so he has a bag. That man is amazing! Still goes out on multiple-day...
Kinda in the same boat — about 7-10 lbs more than I’d like but so happy to be in remission. I know someone (non UC-Er) who lost a lot of weight by not eating Anything after 4 pm. I’d agree that maybe...
Sheesh! Thanks for the info. Haven’t got a bill yet. Will see what happens!...
I was going to appeal the decision but last time I did that over a blood test I got nowhere. But sounds like your insurance doesn’t cover it either? No one at Prometheus told me it might not be...
This month will be my 3 year anniversary on entyvio. I’m very happily in remission — confirmed by colonoscopy with biopsy. I have zero side effects....
Thanks John! I knew I’d have to negotiate but needed to know a possible goal to shoot for!...
That’s crazy they tried to get $2500!!!!...
For those who have had the Prometheus blood test to measure the level of your biologic (mine was for my Entyvio trough level) — how much was your charge (total charged to insurance). I just saw my...
Wow. So sorry! Some have said xeljanz can have a response in a few days. Hoping that will be the case for you. Hang in there!...
Sorry! I figured that wouldn't go well. Deleting it....
How old is your mom? I have a friend with osteoporosis (not sure how severe or what level). I know she was on medication for it but had to stop for reason. Sorry I don’t know more details. All I do...
I completely understand how depressing it is. I remember so well being in the same position of crying in my GIs office. He was so patient and kind with me and went into a long explanation about the...
Others are more knowledgeable than me so I’ll just offer this — I probably wouldn’t get a wink of sleep taking prednisone later in the day. I might be more inclined to discuss with your dr about...
When I was first I’ll and in a flare I went to the hospital twice. First time I just felt really weird and weak — it was 3-4 years ago so I don’t recall exactly what was going on except that I...
You might find you need your Balsalazide. It could just be your vacation. I’d add back in rectals for awhile. You’ll probably feel better in a few days. Try not to worry too much. I haven’t eaten...