Nice summary, thank you. It is like detective story ... So far I have no clue what is the culprit :-)...
Yeas, there is no solid proof that Probiotics can cure UC. They might be beneficial at certain stages of UC. Fot me, if I am near to remission or in remission Probiotics are helpful. I used to...
That is great that you have found out solution. I developed UC while using well water for years. Then after two decades we switched to tap water and I did not observe any change. Regarding carnivore...
It has been suggested that environmental factors including diet play an important role in the pathophysiology of IBD and especially in UC, a chronic colonic inflammation. In the present article,...
Mark, placebo effect is responsible up to 30 % of total effect of a medication. If you are constantly reading and thinking about adverse effects of drugs you might experience nocebo effect. It means...
We should not confuse arguments with the evidence. For example in this article:...
Measles not only weakens your immune system in the short term, bouts with the virus seem to wipe your immune system's memory, causing the body to forget how to fight off things that you may have...
Globetrotter, I have not read research papers for a while. I might have missed something important. Could you provide us a link to some interesting article? Thank you...
Diet & UC has been discussed here several times. So far we do not know: 1. is altered microbiom a cause ??? 2. is altered microbiom a consequence ??? 3. is there another hidden cause that causes UC...
I have had tinnitus for 5 years. When it started I thought it had been result of using 5ASAs for decades. So I decided to stop using 5ASAs for two months. It did not help at all. After two months I...
I tried PBD for several months and it did not help. Problem is that PBD contains a lot of fiber. My intestines do not tolerate fiber even in remission. The most problematic is insoluble fiber. It...
Interesting: Auto-brewery syndrome or gut fermentation syndrome is a condition in which ethanol is produced through endogenous fermentation by fungi or bacteria in the gastrointestinal (GI) system....
Yes, you are probably right. I have stopped taking D3 completely and I am waiting what will happens....
Interesting article. I still take 2000UI of D3 a day even though I do not see any difference....
Hoda, I have been there several times. I stopped my meds because I was afraid of side effects. Then I had wonderful 1-4 months period of superior health. I felt invincible. I felt I could make it...
Mark, we really try to help you. But we have very limited options. Take the advantage of a research hospital near you. You and us have lot of hypothesis but without proper diagnostic tools we are...
I trade financial markets. But I could not recommend it. There is high probability that something will go wrong. UC is stressful enough itself....
My GI always prescribed me Algifen NEO for cramps and pain. It helps. In my country any physician can prescribe it. This drug is only for temporal usage (several weeks). No long term using!!! It can...
My bowel does not tolerate these categories of food: - Whole grains are big NO for me (gas, bloating, general discomfort) - Uncooked Fruits are big NO for me (gas, bloating, general discomfort) -...
My flares started this way: constipation and then out of the blue diarrhea. I would start to take maximal dosage of oral 5ASA + maximal dosage 5ASA enemas. Then after colonoscopy GI will adjust your...
Very interesting. Thank you for sharing. This drug has both anti-inflammatory and antiviral properties (HIV). https://www.nature.com/articles/s41598-018-37813-y ...
Very interesting. Thank you for sharing. There might be similar mechanism in UC. Resistant bacterias can create a biofilm on the surface of bowel mucosa and our immune system attacks them....
If you take some supplement/herb you really do not know what it contains. Herbs usually contains plenty of alkaloids and nobody knows what these alkaloids do to your body in long term using. Claim...
Thank you for sharing,. Very interesting. Brilacidin represents a new class of antibiotics (polymer-based antibiotics) https://en.wikipedia.org/wiki/Brilacidin If it works we will have to reevaluate...
There might be some kind of viral infection alongside your UC flare. I suppose that doctors tested you for bacterial infection and it was OK. If it is viral infection you can not do much. Just wait....
Nana, it is great that it has helped your daughter and her husband. I have never heard about MM before. I have done quick research on the Internet. I have to say that he (Anthony William) is typical...
Thank you for sharing. Very interesting. If you decide to try it observe closely your body. There are only few pieces information about safety. Looking forward for you report....
Mark, I have only heard anecdotal stories about fasting. I would not do it. It might bring temporal relieve but you can not do it forever. Try low residual diet but rich in calories instead....
I was big fan of PBD. I got an inspiration from this guy: https://nutritionfacts.org/ So I put his recommendations in a test (as he says :-) ) an applied his diet. After months of experiments I can...
Hi I have similar problem. I have trouble to take off t-shirt or sweater because pain in my shoulders. Try Omega-3 polyunsaturated fatty acids (basically fish oill) with normal dosage. It helps me....
Do not allow negative thoughts/emotions to make a nest in your mind. Do not fight with them. Try to gently divert attention from them. It is not easy during demanding circumstances but it is feasible...
I am convinced vaccines are generally safe. From time to time people (as crowd) get crazy....
Sara14, I do not want to fight with you, sorry :-) Good luck...
This topic has been discussed here several times. There are many people who had been on PBD (vegan, vegetarian) and then got UC. There are anecdotal reports from people who claims to cure their UC...
OK Bruce, so why there is not explosion of virulent/irritative bacteria in normal healthy intestines? 1. There must be another cause (for example broken "quorum sensing mechanism") 2. There must be...
Hi Sara14, You wrote: "Most antidepressants arent any more effective than placebo. You can find that research if you Google it." Can you provide link on the research? I have found this study:...
Hi Andrina, You have gone through very stressful situations. I would be probably in the same mess if I had to go through this. I recommend you to start taking antidepressant as soon as possible....
Hi Bruce, "quorum sensing mechanism" is very interesting idea. I have never heard of it before. When I read your post for the first time I did not understand it properly. So hypothesis that broken...
My rheumatologist told me that they(doctors) could not prove/disprove that it is related to my UC. I believe it is related....
Now it is manifesting in form of RSI/Carpal tunnel syndrome. I have to limit using keyboard and mouse every day to certain limit. Nonsteroidal anti-inflammatory drugs are helpful but I use them only...
Alteration of Gut Microbiota in Inflammatory Bowel Disease (IBD): Cause or Consequence? https://www.mdpi.com/2076-0817/8/3/126/htm ...
Hi damo123, It was my case. I had been having joints, tendons and muscle pain for several months before my UC manifested itself....
Hi Bruce, thank you for sharing interesting story. Regarding your microbiome hypothesis: If microbiome is cause of UC : 1. Why Immunosuppressants are so effective in treating UC? 2. If there is...
I second that. Please summarize in a post what helped you. Thank you...
Actually the second trial was terminated prematurely because the pulmonary arterial hypertension in a patient who used self-purchased IN for 6 months....
Another trial: https://www.gastrojournal.org/article/S0016-5085(17)36382-5/fulltext ...
Yes, you are right. We need more trials on safety. I have posted the article here because in this forum there are several people that are taking it....
https://onlinelibrary.wiley.com/doi/abs/10.1111/jgh.14823 ...
PixieAlida, that is great that you are in remission. I would be very cautious regarding alternative (natural, holistic) medicine. I strongly believe that majority of alternative approaches works only...
I have discovered that my intestines are super sensitive to sulfur derivatives. In my country these are additives E220-E228 (SO2, Sulfites ...). They are used mainly as preservatives. Basically they...