I started Remicade infusions almost 4 years ago with no side effects. I also take Lialda. And yes I was scared. I do take premeds Claritin and Tylenol before each infusion. My maintenance dose has...
Update: This is my last post. There really is no support forum for lung cancer on the healing well site and I do not want to start one, so I have decided to not take you all on my last Rodeo. But I...
Thanks Swan! I'm working on it....
Had a CT scan done looking for twists and kinks in my large intestine before doing a Scope. The results for the abdominal and pelvis were ok?? but the scan showed a problem with my right lung. So...
Good timing...Thanks for the quick response and before my doctor messages me again. Wow those are great results and with a Calprotectin of 50. Congratulations! I will defiantly be considering xeljanz...
poopydoop.... Thanks for the suggestion :) I don't know if I'm allowed to bridge my meds but will ask my doctor when he messages me back! By the way how do you like the xeljanz?...
I'm the one who had my Remicade changed to a biosimilar and than back again. I'm still getting my Remicade 10mg/kg every 6 weeks with no problems at all. But it isn't working as good as it used to,...
You might be able to get your doctor to prescribe you some Ambien. That's what my doctor gave me so I could sleep....
Jayce..Thank you for your genuine and sincere concern, I am so sorry your daughter isn't doing well right now. I hope my story helps you both in some way and that your daughter gets back to a...
This happened to me on October 24.The Biosimilar Renflexis was sitting there all prepared and waiting for me when I walked in the door at my infusion center. I have been going to the same infusion...
Thanks Sara for your sincere response. I was wondering if a bump up in your dosage and frequency would help you. Might be something you might want to ask your doctor about before making a change to...
,Yes I have hair loss. It started on Lialda, and got worse on the Preds and later the Biologics. Not sure if there is anything we can do about it though....
I haven't had the lab test you mentioned above so I can't comment on that but I can relate me experiences with Humira, Remicade and Entyvio. I started out on Asacol, then Lialda, Cort, and melsamine...
I have had great results with the Biologic Remicade over the last 2 years. I wish I had started it earlier before my symptoms and u/c became severe and progressed to pancolitis. . Good Luck to you in...
I had my first bad flare 4 years ago. I've been in my current bad flare for several months now. Was on Humira for over a year with no results. Than on to Remicade, last dose 10 mg/kg every 6 wks. but...
Congratulations! :)...
Thanks for the support Mark. What your saying makes sense. My system was pretty suppressed with the double dose of Remicade plus we changed my infusion from every 8 weeks to ever 6 a year ago for...
Welcome.. Sorry to hear about your diagnosis of pancolitis and that you are now suffering with it. As far as treatment and later remission goes. It can take a long while to reach total remission. But...
iPoop..Thanks for the info and support.. It's greatly appreciated! Still stuck at home, Waiting to see if I get better. As of now no change yet in rash. Gastro, starting to flare more the last few...
I know this is a old thread but I found it very helpful to me with what I am now going through right now and really didn't know where to start. So here I am and here it is. I have been on Remicade...
Your on the right track messaging your doctor right away. Just wanted to let you know that the doctor can adjust your Remicade dosage and frequency if warranted and if they think it will help you....
Well wishes for a speedy recovery....
Sorry I have no info to offer at this time. I am in the process of maybe being changing over from Remicade to the drug Xeljanz due to a secondary skin condition thought to be caused by Remicade. I...
So so sad. So sorry for your loss. Prayers sent for you and your family as you grief such a great loss....
It took me a couple of months to loose the moon face once I was completely off all the preds. I maybe a little fuller in the face not really sure, that was 5 months ago. I feel I am ageing more...
I was in a bad flare and was started on humira every 2 weeks for 7 months than weekly humira for 3 months plus we added cort enemas nightly, lialda 3 tabs daily, finally we added preds in the end...
I haven't had any side effects from Remicade so far. I am a little tired the day before my Remicade infusion because my body is starting to go into a slight flare because I need my infusion again. I...
I was in a bad flare for 2 years. Tried Humira for 10 months with no improvement. Moved on to Preds with no improvement. Went into the hospital in October where I was started on Remicade at 10 mg/kg....
It's ultimately your choice. If you can pull it off. More power to you. If not, jump back on the meds and if your lucky they will work again. If not than you can always try new meds. Good Luck!...
I try to drink 4, 8 oz. glasses of water daily. I also have started drinking orange juice and eating bananas and other high potassium fruits and vegetables. Dr said my potassium levels were to low on...
My thoughts: Last year I was on Humira and I got the flu shot and then got the flu anyway which turned into Pneumonia in 2 days. Had to stop my Humira for 1 month while taking antibiotics and waiting...
I was on humira for 11 months, first bi weekly than weekly for 3 months with no improvement. I ended up in the hospital on October 20th started Remicade while there and am doing a whole lot better...
I went to weekly humira injections for 3 months with no increased side effects after 7 months of biweekly injections with little improvement. The weekly injections did not help me and my flare...
Great to hear you are improving on the Entyvio. By the way I am doing well too, on my second infusion of Remicade. I agree it may not be perfect but it sure beats the uc symtoms hands down so far....
Here's some info that might help you on your search for Health and Wellness through a integrative approach. It comes out of the University of Arizona. www.integrativemedicine.arizona.edu and also I...
Wonderful news. Thanks for sharing the good news and giving the rest of us hope....
Best of luck to you. Sending positive energy your way....
Hi momto2boys! Nice to meet you. Thank you so much for sharing your positive information with me regarding how you do your labs and appointments. Sounds like a great plan. I am trying to get my Dr....
Hi FlowersGal! Nice to meet you. Thank you so much for your condolences they are much appreciated. And thank you for the great tips for ways to try to get help with the cost of the medicines. I feel...
iPoop, Thank you for the condolences. It was a great loss....
Thanks ks1950 for the info. I will give the ER a try if there is a next time. I hope not though....
Thanks for the heads up blksteeda. I'll check it out. I checked out a payment assistant program when on Humira but the do not assist with payment for those with VA benefits. May be this one will be...
Good Morning iPoop! Thank you for the positive support. So the good news is we have a plan I got the Remicade and I am feeling better. Thanks again!...
Good Morning Everyone! I am feeling so much better today. The Remicade seems to be working. Thank you for sharing your experiences with me. I really didn't know what to expect from my health care...
Just wondering how often everyone gets their labs done? They have been doing mine every 6 months. I just asked that they be done more often to monitor my condition better. How often do you see the...
Was hospitalized on Oct. 20 for a 18 month flare that was not being treated properly by the healthcare professionals. Anyway it got so bad that I had to be admitted to the Hospital and was put on...
For me personally, emotional stress especially prolonged stress definitely causes my U/C symptoms to flair in a big way. Of course having u/c is stressful in its self too. I guess we are all...
Great news! Wishing you many happy days ahead!...
Yes I am pretty much housebound during severe flares and my partner shops for our supplies when needed. I have been flaring for 4 years now. I am looking forward to getting into remission so that I...
I get you with the Anger and lack of sleep caused by Preds. Just started a low dose of Preds one week ago today plus the Cort enemas I was already using. Things are calming down a little now both...