I just fake ballroom danced with my husband, pressing stoma against him really well, and it was fine! He was a little confused, but I told him it was for science. I also googled it and seems like...
I just wanted to jump in and say that I can dance and wear tight clothes with my ostomy too! The appliance is a lot easier to hide than I thought it would be. I wear either tights or an ostomy wrap,...
Even if I knew it was Crohn's before surgery, I would have still gone through with it. It all depends on your quality of life though. It was just so bad. I had gotten so used to being sick that I...
notsosicklygirl -- I did actually buy a wrap because I could not find a comfortable way to tuck the end into my pants. It is really great, gives lots of support, and hides the bag well! That is a...
That makes sense. I didn't think about the cancer possibility. My grandmother is currently battling colon cancer, so I definitely want to be very careful with that. I did not get a second opinion on...
I have had an endoscopy and a MRE done which have both found no inflammation anywhere above the colon. I'm wondering how accurate these biopsies are. Although maybe it always was Crohn's colitis. My...
Keith -- Did any biologics work for you before your j pouch? My big concern is that I have been refractory to every medication that I have ever tried, but my colon was in really bad shape according...
I had my ileostomy surgery on the 11th and we finally got the biopsy results back. I am just shocked. I do not now nor have ever had any inflammation anywhere other than my colon or had any other...
Thanks for the advice! I've been liking my hollister one so far. I do like the two pieces and the snap on part. I haven't had any leaks or irritation. The only thing is that the bag does seem a...
I had tried so many meds and none of them gave me any relief. I had been flaring for three years straight and feel like I lost so much of my life during that time. I've had three GIs whose opinions...
I have two full weeks more off work so I'm looking forward to a lot of Netflix and occasional shuffling around the house. Anyone have suggestions on which ostomy samples that I should order? They...
Looks like I will be going home today! My pain is so much better now. I can get in and out of bed and walk around with almost no pain. All I have left is for my ostomy nurse to put on my new bag, set...
This last day has been a little harder. I think I cut back on my pain meds too quickly, but I got back on more so I'm starting to feel a little better again. I started back on solid foods which are...
Yeah, I'm in the colorectal wing so she's in the middle of her jpouch surgeries too. She can only eat ice chips because juice and broth were making her nauseous. She even complained to her dad that...
I have taken 3 walks so far today. It's only painful getting in and out of bed but I've been refining my technique so hopefully that gets better and better. My incision is horizontal next to my belly...