Maleko, As a fellow G10'er and perhaps one of only two of us om the board right now, welcome to a group no one wants to be a part of. As already noted, learn all you can and ask lots of questions...
Tudpock18, Welcome to you and your husband. Very sorry that you have to be here but you will hear from some incredible people with great information. I was diagnosed as a G10 last November. The...
I thought I would move my future comments here as I thought I might be able to help keep this thread more top of mind for those of us who have especially serious PC. For more details, please look for...
Since you list perineal invasion as part of your diagnosis you might want to ask about a bone scan. My PSA was 9.8 and as a G1o metastic spread was considered possible, if not likely. The bone scan...
GoBucks, This is a fantastic program. Thanks for sharing. My problem now is that my Uro has switched me to the generic which they are not going to pay for....
Private insurance - Blue Cross/Blue Shield...
I stared on Zytiga in December during my old insurance plan year and reordered for the first time right after the first of the year in my new plan year. I knew it was expensive (10k per month) but...
Todd, As one who is pretty new to this club and with a pretty serious diagnosis, I can;t tell you how much your story means to me! Thanks so much and God bless you....
I actually do weigh myself first thing in the morning and also later in the day as a second check. I was down another 1 1/2 pounds this morning. I was pretty heavy (298) and enjoyed eating. I have...
I've been on ADT, 6 month Eligard shot in late November and Zytiga since early December. At this point I have lost about 23 lbs. Never did have any weight gain. I've had kind of a strange experience...
Geop, Congratulations!! That is fantastic news and a real boost all of us in the dame situation. I'm a G10 with mets in about 6 different places in my body and it's really good to hear some positive...
Haven't updated recently since there really wasn't much new. That seems to have changed today. Uro put me on Eligard (6 month) Nov 19 and Zytiga/Prednisone on 12/3. Until this week, I have had no...
I have to agree with GoBucks. As a fellow G5'er, I would gladly put up with lifelong SE's if it meant a longer life!...
I had no issues with side effects of any kind while on Casodex. I got my first 6 month injection of Eligard (Lupron) 18 days ago and still don't have any side effects to speak of. Interesting how...
JNF, Thanks. Given your similar experience, you've made me feel a lot better....