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poopydoop

HealingWell Forum
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Member Profile
Display Name
poopydoop
Profile Created
12/16/2018 9:03 PM
Last Seen
Today 9:27 AM
Total Posts
179

Last 15 Posts

Feels like a flare but blood work is beautiful

Literally and figuratively :D Also colonoscopies are expensive and in countries with more nationalised healthcare programmes or limited resources they will not do too many of them. I'm doing calpro...

Today 6:18 AM

Ulcerative Colitis
Rhodenase deficiency, sulphates and sulphites

Yes i have no idea if the sulphate thing holds any weight but it does seem like a very complicated diet and quite different from the most popular diets for colitis (i.e. scd, paleo, gaps etc)....

Yesterday 3:21 PM

Ulcerative Colitis
Rhodenase deficiency, sulphates and sulphites

I would dismiss any article which says: "It is a pity that people have their colons removed, because no one has suggested they try a meat, fish and egg-free diet." as 1. Offensive to anyone who had...

Yesterday 3:11 PM

Ulcerative Colitis
Feels like a flare but blood work is beautiful

My bloodwork is beautiful even when im having a major flare - because only the surface mucosa are implicated in colitis it can mean in some people that it just doesn't show up systemically in the...

Yesterday 3:06 PM

Ulcerative Colitis
Hair loss from Entyvio?

P.s. i re read your post and it sounds more likely that it could come from prednisone than entyvio (pred changevcs hormones and any hormonal disruption can cause (temporary) hairloss) - added to...

Yesterday 3:01 PM

Ulcerative Colitis
Hair loss from Entyvio?

Many drugs have hairloss as a side effect - azathioprine/imuran is especially known for this (as are birth control pills) and it's something i felt i experienced while taking it although I must say...

Yesterday 2:56 PM

Ulcerative Colitis
Does pred always lose effectiveness over time?

Yep, from 15mg to 5mg i reduced in increments of 2.5mg (broke tablets in half). Then for the last 5mg i went down in steps of 1.25mg (broke tablets in quarters). I have osteopenia in my hip and...

Yesterday 1:00 AM

Ulcerative Colitis
Does pred always lose effectiveness over time?

I always used the two terms interchangeably ha ha. Just checked a box that i had left over and it does indeed say prednisolone. I am in europe....

2/17/2019 12:33 AM

Ulcerative Colitis
Face/temples swelling when chewing

I would definitely try to get to the bottom of it (maybe your GI doc has an idea if it is pred-related?). Pred can definitely do weird things, when I was on high doses I used to get double vision and...

2/17/2019 12:30 AM

Ulcerative Colitis
Surgery when you "only" have proctitis?

Hi thanks a lot, that's nice to know. Not that scars are the biggest deal in terms of everything else that's going on with surgery but it's an added positive if they are mostly invisible. By the way...

2/16/2019 10:05 AM

Ulcerative Colitis
Surgery when you "only" have proctitis?

I step on my partner's toes all the time. In ballroom we say it's the fault of the person who gets stepped on for not moving them out the way in time ;)...

2/15/2019 6:42 AM

Ulcerative Colitis
Bleeding again :(

Yep, and if you feel you're not responding at 3 months, they should test your 6MP and 6TGN levels to check if the drug is at a therapeutic level. Unfortunately they don't test it earlier because...

2/15/2019 3:21 AM

Ulcerative Colitis
Bleeding again :(

Well I am a difficult case, being one of a minority (11%?) who metabolises azathioprine too much into another enzyme, 6TGN. So the azathioprine was not at a therapeutic level while I had too much of...

2/15/2019 3:03 AM

Ulcerative Colitis
Surgery when you "only" have proctitis?

partlycloudy i am laughing at your ballroom dancing with your husband! glad that it worked though and than you for trying!! nssg - thanks, it's good to get an impression of what it's like. The dr did...

2/15/2019 2:57 AM

Ulcerative Colitis
Bleeding again :(

I started on 100mg from the first day, if that helps......

2/15/2019 2:25 AM

Ulcerative Colitis



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