Hi, Research Gal, Forum rules do not allow posts about research studies without prior approval from the administrator. Have you taken that step yet? Thanks!...
I took andrographis for about 6 months and had no issues except for a bad headache for the first two weeks and then pretty much continuous herxing. (I added it to cat's claw and Japanese knotweed, so...
95 or above is considered normal, but slightly lower isn't necessarily dangerous. It's typical for levels to drop slightly if you are reclining or lying down, especially lying on your back. Mine is...
I'm glad that you posted! Sounds like you are having a truly awful stretch. I'm so sorry. What are you doing for the gut stuff? For some people that makes a huge difference. I know the food...
Hi, Blakeleysmom. I'm always glad to see that you've posted with updates. :) When I first got very ill and started trying to figure out what was wrong, I pushed for an EBV test, which was negative,...
Alcohol intolerance also was a sign for me that my body was breaking down, both in my initial illness and many years later when I relapsed. Alcohol is literally poisonous to everyone, and I figured...
Just emailed you several doctors' names. I saw a lot of neurologists but none I'd actually recommend. The big name in peripheral neuropathy is Peter Novak, so see him if you want a lot of diagnostic...
I have heard that they can throw off your microbiome, but I doubt you will perforate anything. :) I think that people who benefit from them most tend to be people who don't fully eliminate or who...
I had the oniony underarm smell, but only in the first few months of my illness. I know what you mean - it is not a normal body odor variant. The only strain of Bartonella I have tested positive for...
Is dreaming unusual? I thought it was a normal, healthy phenomenon. Even when I have had insomnia, the bits of sleep I have had still included dreams sometimes. Do you mean especially vivid dreams? I...
Hi, Juneka, and welcome to the forum. Keep in mind that Lyme is a clinical diagnosis, meaning based on signs and symptoms in addition to testing, and the diagnosis needs to be made my someone with...
Hi, CLB. I was hoping you'd get more replies. I would recommend doing a little research on homeopathy and Chinese medicine beforehand so that things will make more sense to you. They are both very...
People definitely do power through, but I personally believe that is not the right choice. I would back off until your reaction is less intense, and then increase again slowly....
You could take NAC, which is a precursor to glutathione, or you could reduce the glutathione dose significantly (dump some powder out of the capsules). My guess would be that your body is reacting...
That's what it looked like to me, too, Sunny - more educational, which is important, but I feel like personally I'm pretty well-informed about it already. I wonder if there are more actual repair...
That's what I am wondering, too. I understand why programs do not want to give away too much detail, but it also makes us more hesitant to try them!...
https://nervoussystemreset.com/ Anyone tried this? I came across it while reading about Naviaux's research about the cell danger response. I'd be interested in hearing from anyone else who has looked...
MCAS causes head pressure for me. Have you explored that possibility? Or mold exposure?...
Do you have MCAS? All of those things make sense for MCAS except for "harder to pee at night."...
The rash and tingling sound like a virus from the herpes family to me (Epstein-Barr virus, CMV, varicella, etc.). I hear you that their boils were tested and confirmed to be staph bacteria, though....
dcd - That sounds like such a fantastic option! It's so logical and discrete. Let us know how it works out if you try it. Suppressing the immune system in general just seems insane to me unless it...
Biofeedback is excellent for this. Massage, craniosacral therapy, biodynamic craniosacral therapy, and acupuncture help as well. I also like Garion's idea for progressive relaxation exercises, and...
Mold exposure? Seasonal allergies? Sorry to hear that you are having extra challenges. Goodness knows none of us needs more to deal with! When do you head to the center?...
I definitely have felt this way, often, in the course of being sick. No relation to glutamine for me, as far as I could tell. I chalk it up to neurological inflammation and dysfunction. Take care of...
Any chance this is psoriasis? The back of the scalp is a common spot for that, and it's in the autoimmune realm. Flakes, itches, can even ooze. I has psoriasis on the back on my scalp for a while...
From Mycometrics, the test I opted for was the ERMI dust cloth sample. Gathering the sample with the cloth allows you to check nooks and crannies, addressing the rooms in which you spend the most...
Lightlife, I was worried that you might feel discouraged by the daunting amount of stuff I did. One thing I should have pointed out is that not everyone needs to do so much. Another thing worth...
Astro - I have not heard that about CD57 becoming permanently low. The LLMDs I've spoken to about it seem to use it as a marker of whether someone is getting better or not. I guess this is just one...
Another thought - if you react to vitamins and minerals, then have you explored the possibility of MCAS? If that's part of the picture for you, then managing it could allow you to ingest many more...
I've seen a few LLMDs and integrative medicine practitioners, and all of them want to start with basic nutritional bloodwork. Do you have a doctor who could order tests for some of these things?...
The prednisone would stop the itching but depress your immune system, so I would not recommend taking any steroid right now, since you need your immune system to be in the best possible shape to...
This is what comes to mind: The inspector was very chatty and thorough. He recommended mold remediation to remove existing mold, obviously, which was an intense process. The attic floor boards all...
My LLMD explained that the total number (all four G subclasses combined) was significant in the sense that all subclasses protect you against infections, so the ratios can vary a little among them...
There are a lot of unsweetened non-dairy yogurt options, including coconut-, almond-, and cashew-based yogurts. (Careful to get the unsweetened ones, as the regular kinds have as much sugar as the...
One day at a time, Lightlife. I know all of the uncertainty right now is absolutely maddening, and on top of a wild illness like this, things feel so out of control! But all we can do it take it one...
Wow, that's a huge increase in the relative's house's mold level! Do your relatives feel okay living there? Do they have symptoms? Yikes. Sounds like those clothes are bad news. :( I'm going to...
The symptoms you mention all can be caused by mold, yes - night sweats, twitching, nervous system issues, zap sensations, dizziness, numbness, tingling, cognitive issues and brain fog, sinus issues...
These other folks know much much more about pharma than I do, but is it odd that familymatters has seen zero change (no improvement, no herxing) from that very long list of drugs? Is it common for...
I would assume that lifting boxes messed with your alignment and irritated your over-reactive nerves. After all of the precautions you have taken, I would not assume that it's mold, especially since...
I'm so sorry that your mom has been so unsupportive. Unfortunately a lot of people react that way when someone they care about is in poor health. You are her child and she (emotionally) needs for you...
http://bearmedicineherbs.com/home.html Tommy Priester has a good reputation for Lyme treatment, but I have not seen him personally. He does appointments remotely. Good luck!...
Rifampin can have some gnarly side effects, and it also can trigger porphyria, which can affect the skin and nervous system. I hear you that you stopped taking it a couple of weeks ago, but I still...
Hi, Martin. Yes, DNRS was hugely helpful while I was doing the regular practice and for a few months after, but as I said, I didn't do it nearly as much as I was supposed to and symptoms have...
Please help me to brainstorm! Heart arrhythmias are driving me nuts.* Does anyone have ideas for resetting the nervous system, relatively quickly? I'm tempted to electrocute myself, but that's...
I remember a post about this recently, but I can't find it now.... I've noticed that recently when I take a deep breath, it feels just like any other breath - my chest does not feel like it is...
I think I have figured out what these sensations are for me: premature ventricular contractions, or PVCs. So it is my heart, and it's more like an extra beat - thump, thump, thump, thu-THUMP, thump,...
How long have you been on that regimen? How are you feeling so far?...
This screams MCAS to me. Have you tried mast cell stabilizers? Cromolyn sodium and ketotifen are prescription mast cell stabilizers, and DAO and quercetin are natural options. If you are continually...
Tick-borne disease and Candida overgrowth. You're in good company. ;) Do you have an LLMD? How have your symptoms been since the sickness in March?...
I would not bother with the ER. A regular doctor can prescribe doxycycline over the phone. It's still very early, so you have a good chance of knocking out the infection. A reaction like that from a...