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saraeli

HealingWell Forum
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Member Profile
Display Name
saraeli
Profile Created
1/14/2019 2:35 PM
Last Seen
Today 3:19 PM
Total Posts
2402

Last 50 Posts

Covid vs herx

If your only potential exposure was on Friday, then it would be unusual for you already to have a fever on Saturday. I would vote for herx (or potential medication allergy) unless you develop other...

Today 6:13 AM

Lyme Disease
TRS detox

Is there anything in this other than nano zeolite?...

Yesterday 4:55 PM

Lyme Disease
seeking amazing herbalist

Yes, he's well-versed in herbs in general and in multiple herbal Lyme treatment protocols. He was happy to work with me when I had reactions to one of the "core" herbs in Buhner protocols or wanted...

Yesterday 2:51 PM

Lyme Disease
seeking amazing herbalist

Folks recommended herbalist Tommy Priester to me, but I never saw him personally. My LLMD fits your description, actually, if you want his information - AB in Waltham, MA. Love him....

Yesterday 12:15 PM

Lyme Disease
Iron suppliments make lyme pain soar?

Welcome to the forum! I'm sorry to hear that you are struggling. Iron supplements have a tendency to constipate people (as do some of the other things you're taking). In my case, even the gentlest...

Yesterday 6:30 AM

Lyme Disease
Girlie, venous pooling symptom

Hi, Cignet! I'm not Girlie, obviously, but just wanted to chime in that pooling in the feet after a shower sounds totally like POTS to me. The shower heat can make POTS worse, plus the standing...

2/22/2021 10:28 AM

Lyme Disease
Tongue and Mouth Problems

Thyroid issues cause burning mouth and excess thirst. I have read that this is especially common in post-menopausal women. Any chance your thyroid is off?...

2/22/2021 6:32 AM

Lyme Disease
Cheated on keto

I never eat sugar, and yesterday I had a divine tablespoon of sorbet. I had a wicked headache for two hours and was wiped out. So for me it was the sugar. But I felt okay afterward, so I don't regret...

2/21/2021 7:50 AM

Lyme Disease
Recommendation for LLMD in VA

I'm sorry that your providers have been disappointing. POTS can be tricky, since it's always part of a larger picture, and there are so few real dysautonomia specialists who really seem to know what...

2/21/2021 7:46 AM

Lyme Disease
Temporary vision loss

Oh goodness, this must be terrifying. I have a retinal condition that has caused me some permanent vision loss, so I know how worrisome it is to have vision problems and not know why or whether they...

2/21/2021 7:06 AM

Lyme Disease
Warning. Bartonella causes Schizophrenia. All of my Hansa Center improvements are GONE.

Love_Yourself, I'm so glad to hear that you have found rife so very helpful! And so sorry for all that you have been through along the way. May the path from here be smooth sailing for you....

2/21/2021 6:59 AM

Lyme Disease
Weight gain

For mysterious weight gain, I think it's smart to look at the meds you are taking. I agree about the steroid being the most likely culprit. If it's not, though.... I have noticed that the only times...

2/21/2021 6:57 AM

Lyme Disease
Hard to describe headache/sensation

This description sounds like what MCAS felt like to me. I also don't have food intolerances, according to testing, but I found that high-histamine foods triggered what you described, every day for...

2/18/2021 3:19 PM

Lyme Disease
Low ferritin

Do you have a normal CBC? My providers seemed to think that regular iron supplements would not help a body convert ferritin and store it. They recommended Ferrochel, but taking it gave me immediate,...

2/18/2021 8:18 AM

Lyme Disease
Low ferritin

Two non-LL functional medicine doctors that treat CFS and two LLMDs have told me that most of their patients have some degree of low ferritin. I got the impression that low ferritin alone doesn't...

2/18/2021 6:13 AM

Lyme Disease
Pekana Detox Kit

This has been recommended to me by a few LLMDs. I have the DesBio detox kit, which they all said was similar, so I just used it instead. I did not notice much difference (maybe a little?) but then I...

2/17/2021 12:58 PM

Lyme Disease
Genova Diagnostics: GI Effects Stool Profiles

Through this test, I was found to have high levels of several potentially pathogenic organisms, and almost no beneficial organisms. Somehow I had no GI symptoms, aside from mild IBS when I got...

2/15/2021 6:21 PM

Lyme Disease
Genova Diagnostics: GI Effects Stool Profiles

Genova gives seminars to teach doctors to interpret their results. :) They can be ... not straightforward. Can you post a photo? I have results from 2016 and 2019, but from your description, the test...

2/15/2021 2:46 PM

Lyme Disease
Lyme?

The diagnosis of fibromyalgia really just describes a set of symptoms. It's a disorder that can be caused by a variety of things. You can have fibromyalgia that was triggered by a past or ongoing...

2/12/2021 10:29 AM

Lyme Disease
Herx from b-vitamins, bone broth, and eating liver

Is it you who also mentioned recently that they feel a pleasant calm feeling after certain supplements? If I am remembering that right, plus your description of of feeling amazing after bone broth,...

2/12/2021 7:52 AM

Lyme Disease
Babesia...again...

If you are not convinced that Babesia is driving the bus for you these days, then I would look into the sweats being from hormonal dysfunction, especially with the fatigue and sleep issues. Do you...

2/12/2021 7:38 AM

Lyme Disease
Swaying

I actually swayed, too. http://mdds.nyc/...

2/11/2021 7:38 PM

Lyme Disease
Swaying

This sounds to me like Mal de Debarquement Syndrome (MDDS). It's a maddening feeling, and definitely makes functioning hard! If you look it up, you may notice that there's suicide hotline numbers at...

2/11/2021 7:09 PM

Lyme Disease
Doctor Says Stomach Acid Levels Normal But Reflux Symptoms

Maybe this is an unhelpful question, but why is chronic gastritis nothing to worry about?...

2/11/2021 7:03 AM

Lyme Disease
Doctor Says Stomach Acid Levels Normal But Reflux Symptoms

Definitely more anxious and depressed when my gut is not in good shape! 90% of serotonin and other neurotransmitters are made in the gut, so it makes sense, but it's so tough to handle. I'm sorry you...

2/10/2021 10:39 AM

Lyme Disease
Doctor Says Stomach Acid Levels Normal But Reflux Symptoms

People can have esophageal irritation for a number of reasons that don't involve high or low stomach acid. Valve issues, nerve issues, tissue being worn away by past reflux, lying down or reclining...

2/10/2021 8:27 AM

Lyme Disease
Bart Symptoms flaring?

Neil Nathan's book Toxic is a fantastic resource. He would definitely say to treat MCAS first. Stopping your body's reactivity will help it to tolerate other kinds of treatment better and reduce the...

2/10/2021 8:17 AM

Lyme Disease
Severe reaction to covid vaccine

Quick note: Ashwagandha works great for me, but holy basil amps me up, eleuthero makes me sleep all day, and rhodiola make me want to yell at everyone. I mention this to say that adaptogens are...

2/10/2021 7:34 AM

Lyme Disease
Bart Symptoms flaring?

Lion's mane can flare MCAS, which often presents as itchy skin and rashes. That would be my first guess. Sorry you are dealing with this! I know it's frustrating to figure out all the causal...

2/10/2021 7:29 AM

Lyme Disease
Declining Again

I don't know how much fluctuation is typical with CD57, but I imagine that most people's vitamin D is much lower in February than it is in August, for what that's worth. I definitely can commiserate,...

2/7/2021 2:26 PM

Lyme Disease
Have you taken the vaccine?

We've had a few threads about this, and they tend to get unproductive and heated very fast. I very much hope that we as a community can keep this one respectful and focused. We have had many opinions...

2/7/2021 8:48 AM

Lyme Disease
Cavities

These are new cavities that have not been filled yet? Many dentists do not use amalgams anymore. There are other materials for filling cavities, even from mainstream dentists. If these are old...

2/7/2021 8:09 AM

Lyme Disease
Free Online Summit: "The Truth About Lyme Disease"

Would anyone watching this be able to post your notes or summaries of presenters' points? It would be much appreciated! I will not have the time to watch this series, unfortunately, but would be very...

2/7/2021 8:03 AM

Lyme Disease
Help for cytokine storm?

My LLMD also recommends Cytoquel by Researched Nutritionals....

2/6/2021 6:03 PM

Lyme Disease
Help for cytokine storm?

Curcumin and quercetin quiet down cytokine storms for me the best. Also make sure that no immune-boosters are in the mix. I have really undermined myself by taking lots of elderberry and echinacea...

2/6/2021 12:48 PM

Lyme Disease
Nasal staph flare.

When my child had a MRSA skin infection, her doctors insisted that the whole family use mupirocin ointment in our nostrils, applied by cotton swab twice per day for a week. (Apparently 30% of people...

2/6/2021 7:03 AM

Lyme Disease
How to treat a UTI while on antibiotics for Lyme and Bart?

People get UTIs from a lot of things. No reason to shame yourself for how you may have developed one! Your case sounds tough because you have a resistant strain of staph. Another pharma option...

2/6/2021 6:55 AM

Lyme Disease
Elevated Gliotoxin Levels

The ochratoxin level isn't very significant, but yes, the gliotoxin level is extremely high. :-/ Do you have a sense of where your exposure is coming from? The good news is that now you know this is...

2/5/2021 6:54 PM

Lyme Disease
exo-24

dcd - Do you know of any ways to support exosome activity in our bodies? Would the supplements and other strategies that support natural killer cells in general also support exosome release?...

2/5/2021 10:13 AM

Lyme Disease
UTI - Q. about supplements doc recommended

Two of those probiotic strains raise histamine, and ten lower it, so it probably would not aggravate MCAS. I thought that diuretics, and even just jamming lots of water, were the right thing to do...

2/5/2021 10:06 AM

Lyme Disease
HELP - My Gut is Dying

WBF - How are you doing now? Any improvement with these symptoms?...

2/4/2021 8:14 AM

Lyme Disease
Meditation/Support Group - Week 1

I wish I had more to report, but I have had no time to myself for a while now! We adopted a puppy a week ago. She has some contagious health issues in addition to the usual constant pee and...

2/2/2021 2:57 PM

Lyme Disease
Truth about Lyme conference

Lightlife, how's it going? Have not seen you in a while....

2/1/2021 6:37 PM

Lyme Disease
COVID Vaccine Experience

Thanks, Mitch! I'm definitely curious how this goes for people with chronic illnesses such as ours. A relative in good health got the Moderna vaccine (he works in a hospital) and he felt a very mild...

2/1/2021 6:36 PM

Lyme Disease
HOCATT : Hyperthermic Ozone Carbonic Acid Transdermal Therapy

http://hocatt.co.za/hocatt-plus/ It's a device that combines a lot of treatments - oxygen, hyperthermia, e-stim, etc....

2/1/2021 1:03 PM

Lyme Disease
HOCATT : Hyperthermic Ozone Carbonic Acid Transdermal Therapy

I have not heard of this, but I always appreciate people bringing up new things. I'm sorry that you have not gotten as many replies as you would like. I know it's a crummy feeling when you reach out...

2/1/2021 12:28 PM

Lyme Disease
Biofilms, essential oils

Look into the work of Dr. Greg Lee on essential oils for Lyme. e offers free webinars sometimes on this topic, as well as (pricey) training seminars for professionals who treat Lyme. He relies on a...

2/1/2021 10:53 AM

Lyme Disease
central sensitization

You're right, this is one of the primary principles behind DNRS: "DNRS focuses on reversing central sensitization/ limbic system impairment and regulating a maladapted stress response that is...

1/30/2021 2:25 PM

Lyme Disease
MOLD IS CONTROVERIAL......

I believe the symptoms are likely to resolve, yes. Once the toxins are removed, then other therapies are more likely to work, so even damage and dysfunction stand a good chance of resolving. I know...

1/26/2021 2:19 PM

Lyme Disease
MOLD IS CONTROVERIAL......

Mold certainly is controversial. I think it's hard for people to wrap their minds around how one person can be exposed and feel fine but another person might develop long-term disabling symptoms. I'm...

1/26/2021 11:32 AM

Lyme Disease



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