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Stephen S

HealingWell Forum
>
Member Profile
Display Name
Stephen S
Profile Created
10/13/2019 10:46 AM
Last Seen
Today 11:44 PM
Total Posts
270

Last 50 Posts

Eight Years+! Gunner just checking in with a Stage 4 Gleason 9 update

What a great succinct motto. I will never forget it! What a story you have. Today I pulled my overweight rear end out of bed early and restarted my morning walk regimen....

Yesterday 9:55 PM

Prostate Cancer
Vaccine-seeking, DISGRACEFUL

Perhaps but I suspect none to few who suffer from TDS would have complained that he didnt need the vaccine and was depriving others of a potentially life saving dose. We have three vaccines now...

Yesterday 10:54 AM

Prostate Cancer
Small Cell Prostate Cancer - My Journey

Fantastic!...

3/5/2021 9:12 PM

Prostate Cancer
Psa rising while on ADT

You know, it seems that after treatment started they are all less than 0.1, which using a regular psa test.....undetectable. You may be causing yourself unnecessary angst trying to distinguish...

3/5/2021 8:55 PM

Prostate Cancer
Vaccine-seeking, DISGRACEFUL

So last Saturday we were able to get our first shot on a days notice at one of the megasites here in NJ. Previously I had luck setting up an appointment at a local Rite Aid via their website. My...

3/3/2021 3:15 PM

Prostate Cancer
Vaccine-seeking, DISGRACEFUL

One shot is in the tank! Appointment made for Shot #2. As it turns out I received an email yesterday from the state saying there were slots available at a megasite nearby TODAY, so my wife, myself,...

2/27/2021 2:52 PM

Prostate Cancer
Vaccine-seeking, DISGRACEFUL

OK I have advice on how to deal with the Rite aid website. Its a three step process. Step 1 is eligibility. Step 2 Select a Store Step 3 Grab a Slot The trick is you do not have to go through...

2/26/2021 12:02 PM

Prostate Cancer
Hernia repair after prostatectomy

That is funny, I feel exactly the same way. I look at my now odd looking belly button, the scars from the RALP. the still healing hernia repair incision, the radiation tats, and I think to myself I...

2/24/2021 6:42 PM

Prostate Cancer
After the Vaccine

Its heartening to see a number vaccinated! Whats the issue with the long waits in PA?...

2/24/2021 5:33 PM

Prostate Cancer
Welcome new member Dave '68

Yes I get that! That was the exact reason why I went with surgery initially. However I wanted to say that hormone therapy is manageable. The intent at this stage would be its use for a period of...

2/22/2021 10:15 AM

Prostate Cancer
Welcome new member Dave '68

The other challenge us younger guys have is much of the research is based on older guys. Younger guys are in the minority for filling in slots in various clinical trials because PCa picks on older...

2/22/2021 8:57 AM

Prostate Cancer
Welcome new member Dave '68

Dave, The diagnosis stinks and was a bad surprise for sure but in some ways you were very lucky. There are far to many young men who never find out until it has already spread to the bones and they...

2/21/2021 7:06 PM

Prostate Cancer
Covid Progress

Great news out of Israel. https://m.jpost.com/breaking-news/coronavirus-vaccine-99-percent-effective-in-preventing-serious-disease-death-659613 ...

2/21/2021 9:35 AM

Prostate Cancer
Covid Progress

A researcher from Johns Hopkins believes we are closer to herd immunity than we think. https://www.wsj.com/articles/well-have-herd-immunity-by-april-11613669731 The author of this oped is Dr. Makary...

2/20/2021 9:07 AM

Prostate Cancer
1 week post RALP

Yeah I second this sentiment. From a logical perspective at some point PCa goes from manageable to unmanageable. We do not know when the switch is flipped with any certainty. Our tests are...

2/18/2021 8:45 AM

Prostate Cancer
Covid Progress

~56 million+ people have had at least one dose. That is ~twice the number of people who have tested positive (~27 MM). For every positive test how many people do you think went undetected...

2/17/2021 5:05 PM

Prostate Cancer
Six years since RALP

I cannot tell you how good it feels to read stories like this!...

2/14/2021 4:47 PM

Prostate Cancer
1 week post RALP

one other trick to beat the dribbles.....learn to exhale on effort. So for example when you go to standup instead of holding your breath as you begin standing exhale instead. Your diaphragm then...

2/10/2021 3:30 PM

Prostate Cancer
1 week post RALP

On the subject of kegels.... The trick to kegels is that you don't do them always the same way. So for example, while in bed lay on your left side and do kegels. Lay on your right side and do kegels....

2/10/2021 7:43 AM

Prostate Cancer
1 week post RALP

Yes i misspoke for sure. 6 and 12 weeks for the upsa tests....not 4 and 8....

2/10/2021 6:39 AM

Prostate Cancer
1 week post RALP

Welcome to the other side! I would not wait 3 months for that first PSA test. I would ask for psa tests at 4 and 8 weeks. Make sure its the ultra sensitive psa test. Basically since your renegade...

2/9/2021 5:10 PM

Prostate Cancer
OT: Shot Clock

First dose scheduled for first week in April....

2/9/2021 5:03 PM

Prostate Cancer
Is It Inflammation/Prostatitis or Metastasis

So the only way to know with certainty is to get scans that can give you the answer. Right now you have pain and you seem to want it resolved. Period. You dont need to wait for another psa test. Even...

2/6/2021 6:47 AM

Prostate Cancer
RALP recovery

A recliner/comfortable chair to sleep in. If you do not have one they are rentable....

2/4/2021 12:33 PM

Prostate Cancer
Wondering if I'm the only jokester here...

https://www.bmj.com/content/363/bmj.k5094?fbclid=IwAR1Kjop8KYIkdk_ySM-UbG0nF_cIDz_RLmHjhX5DJU8uLDufXOagM2ELsP8 ;)...

2/2/2021 10:16 AM

Prostate Cancer
Hernia repair after prostatectomy

Open incisional hernia repair Same day surgery 8 inch incision 1 week of recliner time pain meds:just lots of motrin. Abdominal band for 8 weeks....

1/28/2021 6:54 PM

Prostate Cancer
Inguinal hernia surgery options following RALP

I had an incisional hernia that opened up just above my belly button near one of the entry points from my RALP a year earlier. It was same day surgery. Lots of covid precautions. Glad I purchased a...

1/26/2021 5:29 PM

Prostate Cancer
Using 177Lu-PSMA-617 Earlier, A New Clinical Trial

So it seems Novartis is going to start a new clinical trial to determine the effectiveness of 177Lu-PSMA-617 treatment after failure of surgery/radiation primary treatments. It looks like a really...

1/26/2021 5:35 AM

Prostate Cancer
Tough Decisions....Advice Appreciated

There is a new clinical trial you may want to ask your MO about. It is for this exact case. https://clinicaltrials.gov/ct2/show/NCT04720157 Basically the theory is the same radionuclides they use for...

1/26/2021 5:26 AM

Prostate Cancer
Political Posts

All however is not lost. Look at the other threads that truly dominated the last two days. Some seriously good advice was dispensed to people who we have never met....and not a single soul cared who...

1/24/2021 4:30 PM

Prostate Cancer
30 and 22

Congratulations! The less than sign has become my favorite character on the keyboard!...

1/24/2021 3:37 PM

Prostate Cancer
Political Posts

Damn I missed it ;) Seriously , I will tell you this much, posts with the title“ It's a new era, with new Hope” on a board where people are facing real life/death kinds of decisions and...

1/24/2021 3:33 PM

Prostate Cancer
NewDiagnoses

I know it was “bad” news, but they did find something with the number “4” attached to it, and two different pathologists think they see a “4”. So yeah you have PCa and you will have to take some...

1/21/2021 9:19 PM

Prostate Cancer
It's a new era, with new Hope!

...and here I thought I was going to read news about some interesting research for PCa. ...

1/21/2021 7:24 AM

Prostate Cancer
Ooops! Well, it seems we should have possibly been looking into this a bit more

Amazingly there is no flu this year. Only Covid. It seems that either 1) Nobody is wearing masks and Covid is legion or 2) Everyone is wearing masks and preventing the flu or 3) Flu is being...

1/16/2021 9:33 AM

Prostate Cancer
Small Cell Prostate Cancer - My Journey

What an incredible story! I hope you continue to heal and like oceanfisher58 you too will be added to the list I keep when talking to the creator of all....

1/16/2021 6:13 AM

Prostate Cancer
Bad Karma-Skipping to the Front of the Line-OT

https://www.reuters.com/article/us-health-coronavirus-vaccine-retail/some-big-u-s-pharmacies-will-not-check-id-before-administering-covid-19-vaccines-idUSKBN29K15N “ State and local guidelines vary...

1/15/2021 3:07 PM

Prostate Cancer
Bad Karma-Skipping to the Front of the Line-OT

The fastest way to herd immunity is get it while you can. Everything I have read in the last two days is they want to accelerate the rollout. Every person who gets vaccinated ultimately has a good...

1/15/2021 2:48 PM

Prostate Cancer
From CDC: COVID vaccine priority recommendations: who gets it first

The Johnson and Johnson vaccine is also stable at typical refrigeration temps for three months. Good news for many more places in the world that do not have the infrastructure to support the extreme...

1/15/2021 5:58 AM

Prostate Cancer
PSA up to 1.9 after 4yrs RaD

psma is state of the art. Recently fda approved. https://www.cancer.gov/news-events/cancer-currents-blog/2020/prostate-cancer-psma-pet-ct-metastasis...

1/14/2021 4:49 AM

Prostate Cancer
Use of subliminal messaging in cancer texts/videos. Does it happen? Does it work?

The funny/odd thing about medical commercials generally is the voiceover that lists all of the horrible things that can happen to you if you take the meds paired with a video of individuals doing fun...

1/13/2021 9:23 PM

Prostate Cancer
From CDC: COVID vaccine priority recommendations: who gets it first

Indeed, in todays washington post there was an article about just this....

1/11/2021 12:00 PM

Prostate Cancer
Use of subliminal messaging in cancer texts/videos. Does it happen? Does it work?

I think that >>>> subliminal >>>> is a fascinating >>> area of study! ;)...

1/9/2021 8:33 PM

Prostate Cancer
From CDC: COVID vaccine priority recommendations: who gets it first

So here in NJ they, finally, have a website up where you can, in effect, get in line. So I registered but at age 54 I will be waiting. On the bright side my wife (asthma) is way ahead in line as is...

1/9/2021 8:29 PM

Prostate Cancer
The Gleason 9 and 10 Crew - Welcome and how ya doin'? (Part 4, continued thread)

So I am in the G9 club, and I am literally looking at my script for a PSA test.....the first since my T has undoubtedly started to rise (my last Lupron shot would have started to dissipate in late...

1/7/2021 5:49 PM

Prostate Cancer
From CDC: COVID vaccine priority recommendations: who gets it first

Since this is the virus thread of the week here is an interesting tidbit. Using your fav search engine type in “flu season non existent” and click on the news results. Sit back and enjoy some good...

12/31/2020 9:12 AM

Prostate Cancer
From CDC: COVID vaccine priority recommendations: who gets it first

Do you guys have a preference of Moderna or Pfizer?...

12/30/2020 2:43 PM

Prostate Cancer
From CDC: COVID vaccine priority recommendations: who gets it first

I wanted to relate what my experience has been like here in NJ the virus death capital (per capita) of the USA when it comes to testing. Back in October I received a call from a contact tracer...

12/29/2020 8:45 PM

Prostate Cancer
From CDC: COVID vaccine priority recommendations: who gets it first

Has anyone found a decent website that is tracking the dissemination of the vaccine?...

12/29/2020 11:44 AM

Prostate Cancer
From CDC: COVID vaccine priority recommendations: who gets it first

It was interesting info. Here in NJ (highest per capita death rate due to the virus in the USA despite masks everywhere and lots of compliance) they are renting out empty Sears stores in malls across...

12/28/2020 8:59 PM

Prostate Cancer
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