I would try to get IVIG if I were you. It will shut off all the antibodies and inflammation and calm things down while you treat. I would not go to Dr P. I’m a huge seller if that guy. I’ve read his...
IVIG can seriously help w dysautononmia. Usually inflammatory. Of course you need to get the infection under control too. As I mentioned in the other post about “my story”, I favor Bicillin for this...
I think Bicillin la injections are the best treatment for long-lasting neuro lyme like this. Must be used as a monotherapy. Bicillin is a very slow acting drug, and as such doesn’t force lyme into...
I just went to one of those vitamin clinics in NYC. I think it helps but it’s expensive. Dr Matt Cook loves em. I’m going to order NAD+ from peptide sciences and just inject it sub q...
Has anyone here ever tried IV glutathione? Just curious, because you read these horror stories about it mobilizing mercury, always curious if it’s true. I did a NAD+ infusion the other day and they...
How come you’d want to try another zeolite if the first one made you feel worse? Also curious what’s the diff between zeobind and acz?...
I've decided that it's not worth the risk. My neuropathy def got worse while i was on it. Some other people had good advice, dont poke the bear...after thinking about it I think theyre right. If i...
Hi Guys, Got the results of my genova OAT test. Curious if any experts out there can lend some help. It seems that I have a few problems: 1.) My citric cycle seems scrweed up to the downside. Dont...
I hear ya. But I feel like everything is an experiment, dont see how this is that much different than anything most people in this group do? That being said, much like everything in the...
Anyone look at that link, there’s a ton of good information in there. My buddy was just telling me post-covid that his stomach is screwed up 2m later and he’s concerned. Altered microbiome......
So youre telling me, if you take 1000 people w/ no vaccine, and 1000 people who have taken the vaccine, and expose them all to covid, there wont be less people who get covid in the vaccine group?...
Update: Ive been having burning neuropathy since starting TRS. At first I thought it might be from a slice of cheesecake I had 5 days ago. I felt better the next morning, but then it returned. I am...
just water and cliniptilolite it says Do people find the ACZ helpful? Maybe ill go w/ that next time...
How many sprays were you on initially before going Rambo (lol) and what did ya notice it was helping?...
TRS is def multi-level marketing. The FB group mods tell you they get a commission on what they sell. That being said, the active ingredient chiliptilolite is in a few other products like ZeoBind, so...
So youre implying that the vaccine doesnt work then? 10s of billions of dollars to develop, massive phase 3 trials, hundreds of millions of doses administered world wide, dramatically falling case...
Funny you ask, i started 4 days ago after my friend urged me again to try it. So far cant tell, i'm only on 1 spray, they recommend 5, starting slow. But the main ingredient cliniptilolite is...
Mine too...my blood glucose levels have stabilized in low 80s. My A1C went from 5.6 (basically pre-diabetic) to 5.2 in the first 3m. Curious where it is now 2m later....
Haven’t had time to dig thru this information but someone recommended I check out this guys stuff. Lots of papers on microbiome and autoimmunity and infection and autoimmunty, seems interesting...
Hey rainy...yea i heard some people say semax can cause anxiety and stuff. I do think I'd like to try Cerebrolyin. Right now I'm going to continue ARA for a full 3m before tryin anything else. Then...
Along these lines of thinking, I think what big tech is doing right now is utterly disgusting and frightening. While I disagree with IsItLyme's view on vaccines, I wholeheartedly support their right...
It depends on the type of crown if an X Ray can see what’s under it. W a ceramic crown they can, some of the newer ones like zirconia they can’t. My teeth are super sensitive because of receding gums...
It’s about risk vs reward. An aspirin can kill you, but it probably won’t and it has many benefits. I guess you don’t drive in cars? You don’t use the stove? You don’t eat chicken wings? If you do,...
Don’t understand what one has to do with the other....
Neuropathy has improved. Woke up today w no burning. I hope this means my nervous system is learning tolerance! It used to be that when I had a flare it was a 3-4 day affair every time I checked my...
I think it’s pretty clear that the vaccine is safe for healthy people. Like pots said, were now at the 200m mark for shots across the globe, and there are a handful of isolated incedents and adverse...
Hey rainy! I’m glad someone else is looking at peptides! I’ve been using ARA-290 for my neuropathy and it’s awesome. Wish I’d heard about peptides earlier. My friend with SFN is doing cerebrolysin....
Had been feeling quite good so I cheated on keto today w a cheesecake at dinner and 3 hours later I’ve got burning neuropathy down both legs, after being burning free for a long time. I mean knew...
Hydrocortisone is a steroid and can def cause weight gain. I’d be more concerned about the potential affects on your blood sugar tho. How long were you on it? Def best to taper off...
Is it possible that high alk corresponds to specific type of ammonia producing gut bacteria/yeast? And visa versa too much lactic acid producing bacteria can swing it too far in the other direction?...
Martin, you may barking up the wrong tree w lyme treatment if you’ve done all that w no improvement. I’ve read pretty extensively about ME/CFS since it overlaps a bit w my autonomic issues, and I...
The other thing worth mentioning is that given the drenching night sweats you could potentially have/have had babesia. Something to consider. Esp if you get air hunger...
WBF and I were both thinking the same thing, it sounded more like a gut issue (candida, parasite, etc) than lyme. But the results now that you’ve posted them sound lyme positive with the band 23 IgM....
Curious what your lyme testing looked like and if you were still IgM positive for lyme all these years or just IgG? Like garzie said, all these years later I’m not sure doxy will do the trick. Works...
I would second garzies advice, spot pn...
I actually think its a form of neuroinflammation. The glial cells get activated which causes them to keep emitting cytokines, which upregulates gluamate and ion channels and you have...
ugh. did you test postive for the GAD65 antibody? thats the blood test for stiff person. stiff person usually starts in the abdomen too I thought? how bad does this lyme stiffness get? does it jsut...
Anyone get this? lately i been noticing my legs feel weird when walking like theyre stiff and i have trouble extending my legs to take steps, and i keep checking my calves for clots because they feel...
Oh cool, thanks!...
Geez, that is awful I’m so sorry. Too bad you can’t move to the desert or something for a while. Mold just sounds like such an insidious neurotoxin I had a product w Clinoptilolite here, all our...
I would definitely buckle back down and try it again if it helped. I went on a big microbiome kick a couple months ago if you all remember, i was posting about this quite often. I came to the...
What ever ended up happening w this WBF? Was it the zeobind? Did you continue using it?...
There are no standards for provoked testing. Everyone uses a different test, and the levels have no established ranges. In theory you could do a provoked test before chelation, and then after, and...
This isnt some quack supplement by a mass marketing company, it was invented at the University of Kentucky. That it is a chelator I dont think is even in question. Here's an article on the history:...
The people in ACC dont use hair test results the same way you think. Measuring mercury in the hair is useless since its stored in the tissue and not excreted. They're looking at the essential...
Skinny joe is right, there's no way to test for it. Mercury doesnt stay in your blood stream, it collects in the body tissues....
Yea definitely. A lot of them were people who had tried ACC or other protocols/interventions and moved onto OSR. Again, I'm not trying to convince anyone to use OSR. I'm a bit afraid myself, mostly...
Garzie, I hear you. I was concerned at first, still am to some extent. But like I mentioned, I spent about a year in the mercury chelation groups speaking with people who have used it and other...
Hahaha. That group is so creepy! Theyve got their own little odd dynamic and it’s just such a strange vibe, makes my skin crawl How much ALA do you take? I tried maybe 10 rounds of ACC at 5mg. I...
Interesting skinny Joe, I’m glad it helped you. Will you give it another shot? The critique that several people I know had I’d ACC is that they ended up w adrenal fatigue and crashed 8-12m in. Also...