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DjinTonic

HealingWell Forum
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Member Profile
Display Name
DjinTonic
Profile Created
12/24/2019 7:48 AM
Last Seen
Today 8:04 PM
Total Posts
1882

Last 50 Posts

RALP on Tuesday

Definitely getting blood in my urine -- trying to drink more to flush it out and water it down![/quote]...

Today 6:20 PM

Prostate Cancer
RALP on Tuesday

Yes, don't overdo the walking either--your body will let you know what's enough. Djin...

Today 6:10 PM

Prostate Cancer
RALP on Tuesday

Good job and welcome to the other side, AZ! Follow all your discharge instructions, including lifting restrictions, and avoid constipation. Stool softeners and walking are your friends :)...

Today 5:58 PM

Prostate Cancer
Interesting case of "super high risk" PCa

Aleph, however, if I'm reading your Treatment link correctly, your RT was more than a year and a half after your RP. Djin...

Today 1:07 PM

Prostate Cancer
New study out today.

Hi Jack, I posted a thread on this study yesterday: PSA-screening benefits more favorable than previous estimates, especially for Blacks ....

Today 11:37 AM

Prostate Cancer
Interesting case of "super high risk" PCa

Triple combination therapy for clinically nonmetastatic super-high-risk prostate cancer (2022, case report, full text) "Abstract Introduction Patients with nonmetastatic but exceptionally high-risk...

Today 11:35 AM

Prostate Cancer
Interesting Conversation With New GP

I don't remember if my uro/surgeon said age 30 or 35 for first PSA test for men with a family history. Djin...

Yesterday 12:00 PM

Prostate Cancer
OT:Question for the medically trained members

I can't say what's up, but I suggest you buy a blood-pressure unit and start checking your blood pressure at home at rest (you should bring it to a doc visit to check/calibrate it). While you await...

Yesterday 7:55 AM

Prostate Cancer
OT: Tragic Details About Al Roker

Steve, I don't think that article is an obit. He's announced as a host on a Today Show broadcast this Friday, May 20th. Djin...

Yesterday 7:26 AM

Prostate Cancer
Hospital PA emergency codes ("CODE BLUE ROOM 123"): what they are and what they mean

At the univ. hospital where I worked, Code Black was computers, pagers, or phones down....

Yesterday 7:05 AM

Prostate Cancer
PSA-screening benefits more favorable than previous estimates, especially for Blacks

Benefits of PSA Prostate Cancer Screening Found to Be More Favorable than Previous Estimates, Especially for Blacks (May 15, 2022, health-news story) " Prostate-specific antigen (PSA) prostate...

Yesterday 6:22 AM

Prostate Cancer
Interesting Conversation With New GP

When I asked my uro/surgeon what he considers the ideal age for a first PSA screen, he said 40 if there is no family history. Then, if the PSA is normal, you don't necessarily have to test every year...

5/15/2022 12:52 PM

Prostate Cancer
Recurrence or Benign? PSA up, down , up .What The??

I think you meant to type 0.2 (and rising) rather than 0.02. Also, when the working definition of BCR was being iscussed and established, Johns Hopkins doctors proposed 0.4 for the very reason that...

5/15/2022 12:43 PM

Prostate Cancer
Recurrence or Benign? PSA up, down , up .What The??

It can take quite a few data points when there is fluctuation. I would test at the same place with the same test at some regular, small interval to get a better idea of the current trend. PSA can...

5/14/2022 7:38 PM

Prostate Cancer
RALP on Tuesday

We're all rooting for you, AZ! Be sure to post your post-op pathology report when you get it. Djin...

5/14/2022 7:27 PM

Prostate Cancer
Recurrence or Benign? PSA up, down , up .What The??

It's an unexpected rise, so it merits retest after some interval--say, 30 days. I would do that before a scan. Also, was this last reading 0.3 or 0.30 on the lab report? It makes a difference. At...

5/14/2022 7:23 PM

Prostate Cancer
MUST READ: New Guidelines for Localized Prostate Cancer

The new Guidelines discuss the ART vs SRT issue for those men who choose surgery and have positive local node(s); however, I don't see the ART vs SRT discussion for high- and very high-risk men with...

5/14/2022 9:08 AM

Prostate Cancer
Inverse relationship between BPH and prostate cancer

It was noted some time ago that prostate cancer is under-represented in men with BPH. This is not to say that that men with BPH don't get PCa--they do, and I am one of those men! But despite the fact...

5/13/2022 8:42 AM

Prostate Cancer
MUST READ: New Guidelines for Localized Prostate Cancer

I'm talking about low PSA, not high. Since published Decipher data indicates that 1 in 10 G6 men test high-risk for progressing to higher-grade lesions and metastases within 5 years, I, for one,...

5/11/2022 7:37 PM

Prostate Cancer
MUST READ: New Guidelines for Localized Prostate Cancer

I'm not sure how to interpret these two statements together: "Risk Assessment 2. Clinicians may selectively use tissue-based genomic biomarkers when added risk stratification may alter clinical...

5/11/2022 5:41 PM

Prostate Cancer
MUST READ: New Guidelines for Localized Prostate Cancer

What is the exact definition of "low risk" they are using for AS especially with regard to biopsies? Djin...

5/11/2022 1:50 PM

Prostate Cancer
Learning of a cancer diagnosis from email or online test report, and not from the doctor himself

There is a trade-off. We are entitled to our own health information. I learned only that my biopsy was positive from a call from a nurse I knew in my uro's office. When I asked for the Gleason score,...

5/10/2022 8:38 AM

Prostate Cancer
Well my numbers up again and I’m stressing … again

There are two different calibration standards for PSA tests, one from Hybritech and a more recent one from the WHO. The values for total PSA are in pretty good agreement, with some differences for...

4/30/2022 8:38 AM

Prostate Cancer
Well my numbers up again and I’m stressing … again

I have to disagree with using a PSA of 4.0 as the only red line of concern. Say you are cancer-free and your PSA is 2.0. If you then develop high-grade lesions, your PSA doesn't suddenly jump to 4.0...

4/30/2022 7:37 AM

Prostate Cancer
Low grade PC should or should not be called Cancer

A recent Japanese study looked at post-op upgrading of 403 GGG1 (Gleason score 6) men, of whom 256 had their G6 biopsy status confirmed by an expert 2nd opinion . Of these opinion-matched cases, 71%...

4/28/2022 9:58 AM

Prostate Cancer
SBRT Update - 4 years

3 putt's history of G6 (3+3) disease is an excellent case in point illustrating the contradictory situation in the "G6 is not cancer--PSA testing leads to G6 diagnosis and overtreatment" movement...

4/27/2022 8:16 PM

Prostate Cancer
New Member - my Journey

Yes, you had a 4+3 biopsy--my oversight. Given the intraductal + cribriform findings, you could consider asking your doc if you can be monitored with Labcorp's 3-decimal, ultrasensitive PSA test....

4/27/2022 4:16 AM

Prostate Cancer
Using Bold & Italics

A very serious professor of English stood in front of the class and said "As you all know, a double negative can be used as an emphatic negative, or it can be used to express a positive. I can now...

4/26/2022 8:53 PM

Prostate Cancer
New Member - my Journey

Hi Striper and Welcome to the Forum! Yes, the suspected intraductal + cribriform findings are an adverse risk finding, but your low tumor burden (3%) and pT2 R0 (negative margins) N0 staging are both...

4/26/2022 8:35 PM

Prostate Cancer
How do you think your life would have gone if no cancer had happened?

Douglas Hofstadter pointed out how strange counterfactuals can be. You want to hold everything the same and change only one thing. As I recall it, he was talking with a friend about about...

4/25/2022 12:27 PM

Prostate Cancer
Low grade PC should or should not be called Cancer

1. You are not a candidate for standard AS programs and are advised to have primary treatment if you have a large number of G6 cores (fewer if they are bilateral), your PSA is high (usually >10),...

4/25/2022 11:30 AM

Prostate Cancer
Low grade PC should or should not be called Cancer

For those interested, here is the Full Text of Eggener's recent paper in the Journal of Clinical Oncology : Low-Grade Prostate Cancer: Time to Stop Calling It Cancer (2022)...

4/21/2022 8:59 AM

Prostate Cancer
Low grade PC should or should not be called Cancer

Should Gleason 6 be labeled as cancer? (2016, Full Text, Dr. J. Epstein is a co-author) "Conclusions/Summary The case for removing the label of cancer is largely supported by the following: i) the...

4/20/2022 6:17 PM

Prostate Cancer
Worrying About the Wrong Thing

I assume Randy in in the Xtandi-only arm of the trial (pills but no injections). What has his PSA been doing since the drug restart? Djin...

4/19/2022 2:42 PM

Prostate Cancer
Time to get back in the PCA fight...

Hi Startech. Was adjuvant therapy advised in 2011 when your post-op report showed G9 (5+4) with EPE? All the best to you, Djin...

4/15/2022 12:15 PM

Prostate Cancer
Friday ponder: Does playing music during prostate biopsy ease the discomfort?

I never had the option of music (or perhaps I did and don't remember). I made all my biopsies go (apparently) faster by chatting with the uro during the procedure. Probably no surprise to you all, I...

4/15/2022 10:22 AM

Prostate Cancer
End of Treatment

You have our luck, but also much more, Jerry. Thank you for sharing so much with the Forum. Djin...

4/15/2022 10:18 AM

Prostate Cancer
Treatment Options - Question on Next Steps

If a Gleason score in a post-RP path report is G7 (3+4), it is of no consequence whether there was a G8 (4+4) lesion at biopsy. The prostate-wide percentage of tumor that was pattern 4 was less than...

4/15/2022 10:10 AM

Prostate Cancer
Awkwardness When Mentioning PCa?

I just said I'd be out for elective surgery, and came back a couple of weeks later. Unless you want to disclose more, they don't have to know any more at work. Djin...

4/13/2022 1:15 PM

Prostate Cancer
I just took my 3 month post RP PSA test...

Excellent. That puts you in the "nadir below 0.010" group, which is even better than the "nadir between 0.010 and 0.030" group" for risk of BCR! Djin...

4/13/2022 1:11 PM

Prostate Cancer
I just took my 3 month post RP PSA test...

Does the staging "pT2" appear in the report? I do not understand the sentence as written, other than that there was a positive margin limited to one spot ("focal") and there also was EPE. Does...

4/13/2022 7:14 AM

Prostate Cancer
I just took my 3 month post RP PSA test...

I questioned Your Friend's path report when he posted a more complete version. If he was "pT2 with negative margins," there shouldn't be any "focal" EPE. I think he should ask his uro to explain how...

4/12/2022 7:22 PM

Prostate Cancer
Accidentally found a fix for cough/sneeze leakage

Indeed, I try to do a kegel-like brace before I sneeze or have a bout of coughing . Djin...

4/10/2022 9:31 AM

Prostate Cancer
New member ... biopsy back.

Bob, please remember we are not doctors . I try to give information that help guys ask questions and bring up topics with their docs--and to do their own research as well. In the case of 4+3 biopsy,...

4/7/2022 8:29 AM

Prostate Cancer
New member ... biopsy back.

Usually a bone scan is done only if the biopsy is G7 (4+3) or higher. The newer PSMA scans are much more sensitive than bone scans for picking up mets and not only in bone, but also in soft tissue,...

4/7/2022 8:15 AM

Prostate Cancer
New member ... biopsy back.

Assuming for the moment that a 2nd opinion from an expert such as Dr. J. Epstein at Johns Hopkins confirms the Gleason scores of your cores, it is not easy to know which of your two Gleason patterns,...

4/7/2022 7:59 AM

Prostate Cancer
Treatment Final Decision Made

The treatment decision can be difficult for the very fact that there are often two valid paths and weighing the various factors is not always easy. This is why we suggest to newcomers that they learn...

4/5/2022 3:29 PM

Prostate Cancer
Kegels long after treatment?

You mean like kegels and cream cheese??? Djin...

4/5/2022 9:39 AM

Prostate Cancer
Prostate Cancer Support?

I look at only some of the OT posts, but as long as they have "OT" in the thread title, members are free to ignore them. If there are so many that they take up too much real estate, especially on...

4/5/2022 7:04 AM

Prostate Cancer
Kegels long after treatment?

Hi Paul, When I told my uro/surgeon I was about 99% continent after my RP with just a few drops leakage sometimes after a sneeze or laugh, he suggested PT. I had a session with a PT who had much...

4/4/2022 12:41 PM

Prostate Cancer
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