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DjinTonic

HealingWell Forum
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Member Profile
Display Name
DjinTonic
Profile Created
12/24/2019 5:48 AM
Last Seen
Today 8:15 AM
Total Posts
2322

Last 50 Posts

PSA dropped after TURP surgery

Hi Tom, I hope your kidney function returns to normal soon! I, too, had a (very successful) TURP when my BPH got to be too much for the finasteride and tamulosin to overcome. As you might suspect,...

Today 7:48 AM

Prostate Cancer
Secondary Bladder Cancer After PCa Treatment: RT vs. RP

This is not news, these secondary (or second primary) cancers are not common, and the incidence has been going down with the advent of methods for more accurate radiation administration. IMO this is...

Today 7:30 AM

Prostate Cancer
Slow, but continued uPSA increase

Hi Melaine, and thanks! I'm happy the scan worked out for your husband. I don't think they've worked out how best to use PSMA scans. On one hand, they can be hard to read, since other tissues/organs...

Today 12:10 AM

Prostate Cancer
Secondary Bladder Cancer After PCa Treatment: RT vs. RP

Secondary Bladder Cancer After Prostate Cancer Treatment: An Age-matched Comparison Between Radiation and Surgery (2023, Full Text) " Abstract Background Secondary malignancy is a long-term risk of...

9/20/2023 6:36 AM

Prostate Cancer
newly here, newly diagnosed, with velocity

nels, We're all delighted that you're doing so well! Congrats! Djin...

9/19/2023 5:26 AM

Prostate Cancer
One year Undetectable

I see you studied hard for your test! Keep up your Good Work! ;) Djin...

9/19/2023 5:25 AM

Prostate Cancer
Not What We Were Hoping For

Here is a German paper I was trying to find when I first posted: Postoperative Radiotherapy of Prostate Cancer: Adjuvant versus Early Salvage (Full Text, 2022) " Abstract Results of three randomized...

9/11/2023 5:41 AM

Prostate Cancer
Not What We Were Hoping For

Other than cost, I can't see the downside of a consultation with another prostate-cancer center of excellence for another opinion. If recommendations agree, you have some peace of mind. If they...

9/10/2023 11:08 AM

Prostate Cancer
Not What We Were Hoping For

Remember that we are not doctors. I seem to remember your husband's situation regarding the neo-adjuvant ADT, but I would add fact this to your signature. I would think that in your husbands case,...

9/10/2023 10:46 AM

Prostate Cancer
Not What We Were Hoping For

Did your husband's post-RP pathology report confirm the Gleason 9 seen in his biopsy? Was the final score 4+5 or 5+4? I'm not understanding why standard-of-care adjuvant therapy wasn't discussed at...

9/10/2023 8:33 AM

Prostate Cancer
Should long-time posters make a farewell post when leaving, as a courtesy to the rest of us?

Why is there no option to vote for "Do whatever you are comfortable with"? Why is the question posed as a black-and-white, yes-or-no issue? Someone may choose to, or have to, leave without saying...

9/5/2023 3:06 PM

Prostate Cancer
WSJ article

Evidently the prevailing philosophy is: Do not get tested for prostate cancer--even though you might be diagnosed with a life-threatening case that could treated in time--because, if you have instead...

9/5/2023 2:53 PM

Prostate Cancer
? About Cialis and eye problems

I have normal-tension glaucoma in one eye for which I use a nighttime drop. I also use Cialis from time to time. This is the first time I've heard anything about adverse reactions. Are you sure you...

8/30/2023 7:59 AM

Prostate Cancer
Prostate Cancer Update

The number of G6 cores isn't the problem (although it is true that a guy with 6 cores would not be a good AS candidate). Rather its the nature of your particular cancer. If you look at the "Test...

8/30/2023 7:14 AM

Prostate Cancer
Slow, but continued uPSA increase

At my visit, my uro suggested we get started on the germline testing and I now see why: the earliest appointment I could get at Duke was in October, and he said the results can take a few weeks as...

8/29/2023 6:13 AM

Prostate Cancer
High PSA

Hi Hugo. Just a personal opinion, but I think your biopsy is overdue by years . Was your high PSA previously investigated? Was prostatitis ruled out? I don't understand why your docs have waited so...

8/24/2023 4:24 PM

Prostate Cancer
Three Pluvicto treatments complete, new scan shows progress

That's wonderful for you and wonderful for us to hear about! Djin...

8/17/2023 4:50 PM

Prostate Cancer
Stressful Day but good news

You're looking out for yourself, which is what each of us needs to do. Keep us posted--we're all with you! Djin...

8/11/2023 10:42 PM

Prostate Cancer
ADT for 18 months vs 24 months

Of course you should do what, in the end, you feel most comfortable with. However, if it were me and my docs were all or nearly all on the short side, I would choose the 18 months, given both the...

8/10/2023 11:12 AM

Prostate Cancer
In some ways the PCa journey is like playing a sport (competition, strategy, etc.). But which one?

I'll vote for chess, since it's recognized by the IOC as a sport. I'm an amateur up against a very tricky player. After the opening, I was down a prostate and 16 lymph nodes. I don't want to have to...

8/8/2023 3:27 PM

Prostate Cancer
Never get tired of saying ,STILL undetectable !!!

<0.008 !?!? We can barely see you :-) Congrats!...

8/8/2023 6:50 AM

Prostate Cancer
Slow, but continued uPSA increase

Mumbo, my very good path results put me in a quandary. If I had had even a single finding indicating local spread (EPE, SVI, PSM, BNI, LVI) with my G9 (5+4), my uro/surgeon would have strongly...

8/6/2023 6:14 AM

Prostate Cancer
Slow, but continued uPSA increase

Thank you for the encouraging words, Cyclone....

8/5/2023 9:53 PM

Prostate Cancer
Slow, but continued uPSA increase

Thank you, Stephanie! No, after a few years, my uro said he was OK with 6, but I should do whatever is comfortable for me psychologically. I went to 4 months and then 6, but I saw a creep upward and...

8/5/2023 2:35 PM

Prostate Cancer
Pelvic floor rehab

I went for for PT for this and needed just one session to learn how to do proper kegels and get a progressive series of positions and exercises. I would have gone back had they not worked well....

8/4/2023 3:21 PM

Prostate Cancer
Slow, but continued uPSA increase

Thanks, Mumbo.Yes, I have some time *IF* my PSA trend doesn't speed up. At my visit we talked about the sweet spot for PSMA-PET imaging. I think my uro said that for Pylarify, at 0.2 it has a 50%...

8/4/2023 3:15 PM

Prostate Cancer
Slow, but continued uPSA increase

My recent 3-month uPSA readings show a slow but steady increase over recent 3-month intervals: 0.023 0.038 0.036 0.049 0.054 0.065 (today's result of yesterday's blood draw at my 6-year checkup with...

8/4/2023 8:34 AM

Prostate Cancer
Confused About Prolia

I was started on weekly alendronate also and had a slight improvement at my first bone-density scan after 2 years. Djin...

8/4/2023 5:07 AM

Prostate Cancer
Looking for thoughts after prostectomy

Mark, I apologize for the lazy shorthand: G stand for Gleason, so: G6 = Gleason (3+3) G7 = Gleason (3+4) and/or (4+3) G8 = Gleason (4+4), (5+3) and/or (3+5) G9 = Gleason (4+5) and/or (4+5) G10 =...

7/30/2023 12:26 PM

Prostate Cancer
Looking for thoughts after prostectomy

I was the reverse case: after a G10 biopsy my surgeon did frozen sections during surgery (all came back clear of cancer) and removed 16 nodes, all negative. It's all a numbers game regarding...

7/29/2023 5:42 PM

Prostate Cancer
Looking for thoughts after prostectomy

Mark, I'm not saying you have anything to worry about now; rather, I'm of the school that thinks the more information one has about one's particular status , the better. More important than one's...

7/29/2023 12:47 PM

Prostate Cancer
Looking for thoughts after prostectomy

Mumbo, I'm thinking that the lowest value would be <0.05, with the less-than sign, just like all other PSA tests that I'm familiar with, in which case 0.05 would represent a measurable concentration...

7/29/2023 5:07 AM

Prostate Cancer
Looking for thoughts after prostectomy

Mark, what was the highest Gleason score found in your biopsy? I assume it was G6 (3+3); otherwise I cannot fathom why your surgeon didn't sample a single lymph node. Even with a G6 biopsy, not...

7/28/2023 6:25 PM

Prostate Cancer
Looking for thoughts after prostectomy

"The assay shows a range of 0.00 ng/mL - 4.00 ng/mL." Ignore this statement . It simple indicates a range covering the values for healthy men with prostates . It has nothing to do with the range of...

7/28/2023 8:57 AM

Prostate Cancer
PSMA PET/CT for Primary Staging of PCa - An Updated Overview

If I had just learned my biopsy result--G10--today, the first thing I would want is a PSMA PET scan. Seeing nothing light up outside the prostate would have either corroborated my educated guess that...

7/26/2023 5:08 AM

Prostate Cancer
PSMA PET/CT for Primary Staging of PCa - An Updated Overview

Yes. However they will need to factor in any cost-saving aspects as well: how many cases of metastatic disease can be prevented? Each one entails years of imaging and therapy costs. What diagnostic...

7/25/2023 10:21 PM

Prostate Cancer
PSMA PET/CT for Primary Staging of PCa - An Updated Overview

A just-published Danish paper: PSMA PET/CT for Primary Staging of Prostate Cancer - An Updated Overview (2023, Review, Full Text) "Prostate-specific membrane antigen PET/CT for primary staging of...

7/25/2023 5:55 AM

Prostate Cancer
End of life rally: when dying comatose patients become entirely lucid just before passing

This phenomenon explains how Violetta, the soprano in Verdi's La traviata , dying of consumption, is able to sit up from her deathbed and rally just enough to make it through her final aria in Act...

7/24/2023 7:30 AM

Prostate Cancer
5 years undetectable and a fine glass of Scotch

Great to hear about your status and low PSA! We're not doctors, but I wonder if you experienced only vasovagal syncope at the good news rather than a panic attack. Anyway... stay out of trouble ;)...

7/18/2023 5:45 AM

Prostate Cancer
5 year results

In your original post I took " 5 out of 14" to mean that 5 of the 14 cores taken were positive, but in the biopsy report you later posted, I count 6 , bilateral, at the top (base), middle, and bottom...

7/15/2023 4:41 PM

Prostate Cancer
5 year results

Hi Kindnesswinsoverall and Welcome to the Forum! Not all G6 men are considered good candidates for entering (or remaining on) AS . I believe some of the factors considered are total tumor burden...

7/14/2023 2:35 AM

Prostate Cancer
Friday humor (July 7): some shorties

An elderly woman goes to a new doctor, who holds up one of the pill containers she brought in. The doctor says "You know, you need to be careful with these--they're habit forming." To which the old...

7/14/2023 12:25 AM

Prostate Cancer
Cialis Shortage?

Hi PM. I was getting my sildenafil online, but switched to tadalafil recently. I got my first Rx filled at my uro's practice (slightly higher prices), but will likely use this other mail-order...

7/10/2023 8:12 AM

Prostate Cancer
RO follow-up visits: how many years?

Hi Paul, Great to hear that you're doing fine! Looking at your posted history, I believe you had adjuvant RT for persistent PSA after RP (0.1 and higher) rather than salvage RT for BCR (a PSA of 0.2...

7/9/2023 10:24 AM

Prostate Cancer
Are all Robotic Prostatectomy's Considered "Nerve Sparing?"

Based on the location of one of the two positive cores near the top of my prostate in my 14-core biopsy, my uro/surgeon said--when we were discussing my surgical option (which I did decide on)--that...

7/6/2023 5:23 PM

Prostate Cancer
15-year Zero

Heartfelt congrats from a fellow "niner"! Djin...

7/1/2023 5:36 PM

Prostate Cancer
Friday humor (June 23): some observations on irony

A new restaurant just opened on the moon. It has great food, but no atmosphere....

6/28/2023 11:54 AM

Prostate Cancer
New Diagnosis-March 28, 2023

Congrats on reaching the other side of surgery, Tim! FWIW, I think my incontinence recovery was fairly average. I saw daily improvements for a couple of weeks, then weekly improvement for a few...

6/26/2023 1:32 PM

Prostate Cancer
Friday humor (June 23): some observations on irony

Next week's meeting of the Clairvoyants Society has been cancelled due to unforeseen circumstances....

6/23/2023 9:57 AM

Prostate Cancer
Men shouldn't stand to pee, but sit like Germans do, urologist says

Do you stand at the start or end of the stream? Is there an extra stand if you hear the national anthem? Djin...

6/23/2023 9:54 AM

Prostate Cancer
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