Thanks Susie, She did end up seeing the Doctor, and he prescribed an anti-biotic just in case it doesn't resolve. Have to keep an eye for a few days....
My Daughter has been on Stelara for several months now. Still a bit of a learning curve with the self administering part. She did her injection the other day, and prefers to use her leg. She's pretty...
Any chance this could be carpal tunnel? Really worth getting checked out for this. If it proves to be, the surgery is very straight forward, with good recovery time....
Welcome to the forum Fitzie, You've come to a great place for support and answers. I would recommend the Colitis forum as well for your questions. I have no expertise in this area at all, so will...
Minnie, You've been going through such a tough time. Starting to wonder if you're having a stricture issue. Are you passing gas, and regular BM's? Have you had a scope very recently. They could use a...
I think this might be good news. Stelara, as I've mentioned to you previously, seems to be rivaling Remicade in effectiveness. Only issue might be the time it takes to reach it's therapeautic level....
Minnie, So sorry that you're still having to deal with this problem. If in fact it is time to try another biologic, there are of course some good alternatives. Might need a refresher on your past...
Can't comment on the TMJ, but the facial swelling that you're experiencing is very typical of Prednisone use. This is a temporary side effect, and will subside as you taper off the dosage prescribed....
No expert here, but I believe that heart rate effects are common symptoms of Prednisone use. Blood pressure as well may be adversely affected. In the short run, it may not be cause for concern, but...
Minnie, Probably not much help, but my Daughter had skin issue for years while on Remicade. Hers were mostly facial though. After years of uncertainty, she finally saw a top dermatologist that...
I'm not exactly sure what you're asking here, but guessing that you're interpreting the results of the biopsies as being inconclusive(?) I'm afraid it does certainly sound like Crohn's to me. Not...
Just wanted to add that your Son is very young, and in his lifetime, and esp. by the time he's an adult, there'll be many new medications to choose from. The advancements in treatment will continue...
You do see Crohn's/Colitis mistaken for UC on occasion. They should be doing a lower scope and biopsies to get an accurate diagnosis. While Crohn's is most common in the small intestine, it can...
I'll jump in here again. As @straydog mentioned, this can be an insidious disease. It can creep along doing considerable damage. If you opt for using the SCD diet, you might find in a few months that...
Hi Wendy, Welcome to HW. You'll find this forum is a tremendous resource, with a lot of support and experience. I'll try to offer you some advice and attempt to answer some of your questions. As with...
Thanks to both for your replies, Minnie, I can certainly understand how you would want to defer having it out with what you've had to deal with already. Hope in your case things stay calm. Susie,...
Quick update on my Daughter, Shes transitioned from Remicade to Stelara a few months back. Seemingly not having any issues, but has complained of some bodyaches, which I had posted about. More...
Welcome to HW. Unfortunately, I really don't have advice for you, but hopefully others will chime in. I would recommend checking the UC forum on HW though, and post your questions there as well....
I was use the "r" word gingerly. I suppose she's doing quite well, and would only like to know if her physical issues are med related. She's seeing a rhum. now, and also an Osteopath. She's also...
As some may remember, my Daughter has transitioned from about 10+ years of Remicade to Stelara. It's been a few months now I would say, and she doesn't appear to be having any digestive issues. She...
Minnie, It seems so abnormal to leave the abscess untreated? I'm not sure how your Health care system works, but in Canada, we would have the option to go to emergency and they would page an oncall...
Thanks Scifi, That puts my mind at ease. Appreciate the reply....
I'm not sure that I have any further ideas on how to deal with this, but I commend you for being proactive and taking precautions to protect your health. You're wise to wear an N-95, and don't be...
Thank-You beave & Clo, Not sure if they've looked at previous bloods for camparitives, and also they didn't say anything about how often they want to do repeat blood work. When on Remicade, blood...
My Daughter has been on Stelara for a few months now. Everything seems to going fine, but her most recent blood work came back showing borderline low blood platelets. I believe anything under 150,000...
I also know very little about it, but believe it's an immune booster, supplement category. It may have some nutritive value, or offer some benefits as a meal replacement, but be careful with anything...
First of all, welcome to HW. You've come to a great place for advice and support, and you will get plenty of help with your questions. Being newly diagnosed can be extremely confusing and daunting....
Somewhat of an update: My Daughter has been on Stelara now for about 2 months. Has had the loading dose, and one self administered dose. Seemed to be doing well, but about 2 weeks ago, started having...
Hi Miranda, I too am very sorry for what you're going through. You've been through so much already, and let's all just hope and pray that this will be the last leg of the journey to the "other side"...
She was on combination therapy for many years with Remicade. Her GI decided to take her off of Imuran, and just stay the course with Remicade about a year+ ago. So far no talk about resuming, but...
Hi xy, Thanks for asking. Pretty much the same as my last update. She seems to be doing fine, and gets the first do-it-yourself dose on the 20th of this month. Really hoping she gets the same...
Apologize for my mistake. I didn't realize that Pentasa was that expensive. Hope the generic works for you, but be firm with your GI if it doesn't and get back to the authentic Pentasa....
Pentasa is considered widely now as an antiquated medication for it's use as a maintenance med for Crohn's. That being said, if it has worked for you, and particularly for so long, I would certainly...
Good luck Minnie, Sorry that you are having concerns, but diagnostics are your best route. Keep us posted when you get the results....
Might not be the best person to respond here being male, but I have read several/many post over the years from expectant Mothers with the same concerns. The follow up from what I've seen has been...
Minnie, Sorry to hear that you're still having issues with pain. If there were ulcerations found in your colonoscopy, to the point that they're rampant and causing a lot of pain, then it might be...
Hopefully this will pass. Sorry to hear that it's severe enough to require pain meds. No experience with these kinds of issues. Keep us posted, hope you're feeling better soon....
Pretty much just steady as she goes. Not sure what to expect in the first few weeks. She seems to have no side effects. Also, not sure how long Stelara takes to get to an optimal effectiveness. I...
[quote="U B Tough"]Wonderful news!! I hope it works as well for her as it's done for me.[/quot Thanks very much. Hoping for the best as well....
[quote="straydog"]Awesome news, so glad she finally got approved. Hopefully Stelara will agree with her. I know the first dose is by infusion & the rest is by injection. Any idea when her injection...
Not sure if I should keep adding to my previous posts or not, but since things have been quiet here of late, decided to start fresh. My Daughter had her loading dose of Stelara today. Seemed to go...
Hi Sassml, Thanks for your reply. Glad to hear the positives regarding Stelara. Sorry for the current issues you're having regarding the thickening. I certainly hope there's a surgical procedure...
Thank you all for the replies. Very helpful, (as usual). Still in a holding pattern working out the insurance. My Daughter is getting a bit complacent, as she's raving about how good she feels not...
It sounds like you could really use someone to advocate for you at this point. Do you have a close friend or family member that could possibly be more assertive about getting some kind of pain relief...
Thanks so much Susie, You're pretty much nailing it, as there was a resident at her appointment that gave this perspective to her GI exactly as you put it. Her GI concurred, surprised she didn't...
I'm sure many of the regulars are familiar some of my Daughters journey through this disease via the many posts I've made over the years. Most recently and concisely, she transitioning away from...
Sorry to hear Minnie, Not much choice now but to weather it out. Unless, you could take an anti-viral? I think there's something available now, but not sure or up on that. Hope you're feeling okay...
Sick as a dog after the Moderna booster, (3rd). Nothing with the first 2 shots, and the 3rd booster was only a 1/2 dose. Chills and pretty high fever for 48 hours almost exactly. Totally fine...
Thanks Susie, We actually have 6 biosimilars, but they seem to favor 3 of them. The upper GI issues are pretty severe reflux like symptoms. She did a test for H-pylori, and awaiting results. Might...
Have to agree with @straydog. Your GI shouldn't have had you on a long term steroid treatment. I too have never heard of this. I do know of someone that used low dose Pred. (5mgs daily), for several...