Wow.....lots of good reading! Thanks!!...
Oh Lord. I just remembered from reading this post that I did donate BEFORE--like 2 months before--being diagnosed. I do feel bad that someone might have received my blood. That was a year and half...
Thanks for the responses! Don't worry--I'm not going to jeopardize my remission status. I've got my GI doc and my weight loss doc's GI looking into some things. It may or may not work. I don't want...
Yes! You are all making sense. I did call the GI nurse today and she confirmed what you all are saying, too. She said, " you were diagnosed with pancolitis and that remains, but you are better and...
kops2da Wow! This may work, then! Thanks...
Quincy, How would one try to get the medicene past the stomach before it dissolves? I agree with you that the medicene needs to get into the colon and dissolve. Guess that's the way the Lialda is...
I'm just wondering......I was initially diagnosed with pancolitis as of March 2007. When I went in for the flex sigmoidoscopy, my colon was fine--no ulcers and just a tiny little bit of mucous. Now,...
Beth, I was diagnosed with pancolitis and started Lialda and am still on it and doing very well. A flex sigmoidoscopy showed that my colon had healed within a years' time since diagnosis. I am still...
Thanks, everyone! This is great news and I am so glad there is something out there to try!!...
I am just wondering what the UC'er who responds to mesalamine does if they can't tolerate taking horse pills and many of them on a daily basis? Is there a liquid formulation? Anyone out there doing...
Yes, this recent flare I just had started a week before my cycle and ended abrupbtly after my cycle started flowing. I am having peri-menopausal symptoms, so I truly believe the flare I just had was...
I have just recently had a two month streak of remission and months here and there with remission, too. I take the meds throughout. since being diagnosed in March 2007. I consider taking the...
Well, so far so good, after only one dose. Pb4, thank-you! ESM NYC, sorry to hear you are having troubles. I have a coworker with RA who is allergic to many of the types of meds similar to ours...
Thanks Dr. A and Munchkindd! I am to use one per night. Guess I will taper week two to every other night? Does that sound right? I wish I had been given these last year vs. prednisone if there are no...
My flare is not getting much better. Very painful while having a bm and afterwards for what seems like 15 minutes. I did have bleeding a few days ago. I've increased the canasa, and had 4/day on...
Thanks, Quincy. Guess I understand now why the GI doc kept asking, " are you cracked open down there?" "If so, use something like diaper rash ointment." I need to get the Canasa refilled. The...
Thanks Quincy--I believe you are right. The fissures are what I never think of and I believe also that is why I had to start the Canasa to begin with. duh! Hope all is well with you. I've been away...
Bektold-I had the same thing happen when I went off pred. It was about 1-2 months later that my knees and hip were just so stiff and sore. I went to my GP for something unrelated and told them about...
Hi everyone, I've read where UC'ers can have Chrones symptoms. I get the mouth sores when flaring badly and GI says this is Chrones related, although the initial colonoscopy didn't show the granules...
Hi everyone, I've been in remission for two solid months. /community/emoticons/cool.gif However, this past week, I've had soreness in my bottom and some extra bm's. I thought it was something I ate...
Kazygirl, that's pretty interesting. How big are granules? Do you just take them with water and do they dissolve in the GI tract? Thanks!...
Hi Pb4--I've been on Lialda for more than a year and started with 2 pills/day and have been on 4 for awhile. I was having some flare symptoms that I used Canasa for, but have been symptom free for...
Sherry, I think you are doing great by talking to her, reassuring her and also having her see a therapist. I do think asking the therapist what else you could do is a great idea, as are the books at...
I agree! They avg. about $2.50/each through my insurance and my script is only 20 at a time. Why not 30 for the month or half month? I will have to do some research, as maybe they haven't been out...
I agree it is a terrible dilemma! I would feel the same way about my cat. He can usually be fine on his own for several days. He could even go for more, if I had the automatic cat litter box. I'd let...
Thanks everyone for your responses! I have some direction, now, rather than just the paper in the bag-o-prep. I never thought I'd say this, but I wish I could just drink the yucky golytely and get it...
I get to have a lovely sigmoidoscopy Tuesday to determine why I keep bleeding and lately have those terrible cramps back. I just picked up my "prep bag" tonight and I have two dulcolax pills to take...
What is fleet? I might have to do that next week for a procto (aka sigmoidoscopy is what I'm seeing on google that it is called). Or, I'm taking enemas. I can't remember what the GI nurse said...
As stated on here many a time, what one person can/can't eat doesn't mean it's the same for others. I am able to drink diet coke and also use numerous packs of splenda daily in my tea. It's the...
Niki, HI! I started out on 2 Lialda/day and am now on 4/day plus Canasa suppositories. I noticed that the bleeding stopped, decrease to 2 bm's /day and no urgency within a few weeks and formed bms...
Happy St. Patrick's Day, everyone! I remember as a kid, each year going to school on this day. Mom and I would always make a shamrock for me to wear and I'd ask her every year, " Now what am I, mom?"...
This was really great to listen to. Thanks for posting it! I learned some things I didn't know and will have to watch it again. Thanks again!...
I agree with you, sore_guts! The study should be for long term use! I, too, have the hair loss. I haven't related my headaches with the Lialda, though. I usually get sinus headaches treated with...
Thanks, Quincy! Although I hate the expense of the Canasa, it is worth it's weight in gold if I can find the right format to get into remission and maintain! I will follow the tapering schedule...
Hi dmacell- For Lialda, you can go up to four 1.2 mg/day--the dose I'm on. I started at 2 and increased up to 4. Perhaps your doc would increase the Lialda before going on the pred? I would ask and...
Wow! Such great information. It is so very helpful. I have thought a million times and never said it out loud until now: the docs just don't tell you this kind of information, at least mine doesn't....
Do you take it by a dose, or cook it in food?...
I eat bread--double fiber by Narture's Way with no problems. I did SCD for one month and went back to eating low residue until I could add more fiber and eat like I did before diagnosis. Before I was...
Yup, I agree with you all that stress more than the every day 'normal' can upset the body's functioning, as evidenced in our colon--more gas, looser bm's, blood/mucous, rumbly tummies, etc. This past...
I want to say I felt better within a week or two, at the very most. How many are you taking per day? I started off with 2 and increased to 4 later on. What did your GI tell you to expect? Hang in...
Quincy--just a quick question--does the retention enema go up higher and/or stay in the rectum area longer? When I call the GI nurse Monday, I want to tell her about my 'hit and miss' trials with...
That's awesome! I looked it up I can go to the one in B'ham. I will look into. Keep us posted on your fundraising and walk!!!...
I recently posted something like this, too. I had been using Canasa each time I noticed pain or some blood and then within a day--two at the most, everything was fine and I'd go off the Canasa....
Eva Lou--you sound very optimistic to me and it sounds like you also have a very understanding and "on top of it" GI--who lets you have information galore about your colonoscopy and results as well...
LOL. It's true. Lialda caused me lots of gas, initially, too. I just made many trips to the bathroom to let it go and go and go and go! I would get worried that I was go ing to pass more than gas and...
I am interested in what others have to say, too. At times, I get really frustrated trying to figure cause and relationship out with the UC, IBS, etc. ad naseum!...
Ok, thanks all--I am beginning to get it. :) I thought I was to use the Canasa until symptoms left and so I've been going on and off every two weeks for a couple of days. It makes sense to use them...
hmmmm, that's interesting and makes sense. I don't have the D. The stools are firm. Makes me think I need to call GI nurse tomorrow and let them know. I had some cramps tonight, too. added: Honestly,...
Do you have flares? Increase in bm's? Blood in stool? Cramps? I have been having 'mini' flares every two weeks (little blood on TP when wiping and sore bottom) and treat with canasa. I had a really,...
LOL, Sherry! A Nesco Roaster is just a roasting pan that plugs into the outlet. I've tried the same recipe in the crockpot and it turned out too mushy and gooky. I like to eat desserts, too!! The...