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jginkc

HealingWell Forum
>
Member Profile
Display Name
jginkc
Profile Created
1/6/2008 6:48 AM
Last Seen
9/3/2009 7:33 AM
Total Posts
692

Last 50 Posts

IV rocephin people

thanks- my LLMD just suspects babesia because i had a sudden onset of symptoms two years ago (flu like, immediate) and had some nightsweats that cleared up with zhang's artemesia and continue to have...

12/17/2008 12:49 PM

Lyme Disease
IV rocephin people

Hey Stacey: It took a good 4 weeks for me to really notice the brain fog going away. Now it only returns when I herx. I started the mepron and zithromax on Saturday and am feeling it today. I don't...

12/15/2008 2:15 PM

Lyme Disease
IV rocephin people

Thanks for the input - I think when week 12 gets here (in two weeks) I will ask for another CD 57 and then reevaluate...

12/15/2008 8:11 AM

Lyme Disease
IV rocephin people

Hi All: haven't been on in awhile - just wanted to get input for those of you who did IV rocephin. I am 9 weeks in, the good news is that the brain fog is gone for almost all of the time -my brain...

12/14/2008 6:49 AM

Lyme Disease
Sorry I haven't been on in forever!

This is great news, congrats to all of you...

12/7/2008 7:19 AM

Lyme Disease
Geez, if these would just go away.

Clark - try what Phsinvent said first, and if that doesn't work, try to see if you can do the IV route. I did a year of orals (zithromax and tindimax) with only small improvement in brain fog - 6...

11/30/2008 7:58 AM

Lyme Disease
insurance

Sojourner2dd: How long did you do rocephin? I have bcbs KC, but it took getting into an ID MD here who actually believes in chronci lyme to get approved for iv rocephin - that and my spect scans...

11/24/2008 11:56 AM

Lyme Disease
Just checking in......

She had to do a year of IV's - she was in really bad shape when she started, and like almost everyone, reported the terrible fatigue when she started rocephin. I'm really tired today, but most of...

11/19/2008 11:05 AM

Lyme Disease
Just checking in......

Hey - I am just finishing up 6 weeks of IV rocephin. It has been interesting. First the bad, the fatigue has been incredible. I h.ad to take two weeks off from work I was so exhausted. Still only at...

11/19/2008 5:58 AM

Lyme Disease
If you have lyme in the central nervous system. what is the choice of drug?

I am coming up on my 4th week of IV rocephin - the fatigue has been unbelivable, but I am now seeing large groups of time where I feel absolutely normal -yesterday from about 3 pm until I went to bed...

11/5/2008 9:43 AM

Lyme Disease
quetion about IV antibiotics

I'm 3 weeks into it - ditto about what Razzle says about being careful. I go once a week to my doctors office where they change the dressing, draw blood to make sure I am doing ok and look at the...

10/31/2008 5:52 AM

Lyme Disease
violets....How was your half marathon?

Kim -that's good to hear that you felt up to running a 5k. I haven't been able to run further than a mile since getting sick. How long did your fatigue last?...

10/28/2008 7:11 AM

Lyme Disease
violets....How was your half marathon?

I just started up again. IV rocephin knocked me down pretty good. I am still coming out of a herx that was incredible fatigue. Like mono - I was basically bedridden for a week. My MD was happy - he...

10/27/2008 8:19 AM

Lyme Disease
violets....How was your half marathon?

Marie- that is awesome. I am going to the gym everyday and doing 20 minutes walking on the treadmill. Forcing myself even when I don't want to. Can't wait until I can post about my first race back. I...

10/27/2008 5:07 AM

Lyme Disease
GEORGIAGIRL WHERE ARE YOU???

Georgiagirl and Kim: This disease sucks, doesn't it? Hard to believe that age 40 I would feel like I am 80. Georgiagirl, I am so sorry you are having to do SSDI. Hang in there -it is good to hear you...

10/24/2008 4:37 AM

Lyme Disease
Lyme and Central Nervous System

Yes, MRI often do not pick up on abnormalities. I had an MRI done in March 2007 that was normal. In May 2007 I had my first SPECT scan showed moderate vasculitis throughout my brain. Thankfully it...

10/22/2008 2:11 PM

Lyme Disease
GEORGIAGIRL WHERE ARE YOU???

Lymebean - I think you should discuss IV's with your LLMD. It is a choice that everyone has to make in concert with their doctor. I wasn't big on going on it - but the Dr. Fallon study showing the...

10/22/2008 7:41 AM

Lyme Disease
GEORGIAGIRL WHERE ARE YOU???

Stacey, I will try to call you at some point in the next day or so. The rocephin is currently kicking my butt. I am having to take time off from work. Dr. B says its a big herx. Right now I am just...

10/22/2008 7:37 AM

Lyme Disease
GEORGIAGIRL WHERE ARE YOU???

Thanks Kim: My LLMD here told me that the minimum I will do is 3 months - most likely more and then he will have me on orals, maybe indefinitely. The nurses that change my bandages say that Dr. B....

10/21/2008 5:11 AM

Lyme Disease
Lyme and Central Nervous System

Bella: My understanding is that if your CNS is involved, that means that spirochetes have infected your brain, causing encephelitis (sp?) From all I have read, the only way you are going to get that...

10/21/2008 4:48 AM

Lyme Disease
GEORGIAGIRL WHERE ARE YOU???

Georgiagirl - great to hear you are getting energy back. I am in the middle of my first major herx with this - the fatigue is unbelivable!...

10/20/2008 10:12 AM

Lyme Disease
GEORGIAGIRL WHERE ARE YOU???

I'm hanging in there - I know Dr. J. in Wichita reads this post and I haven't told him yet, but its my life and I have to make decisions that are best for me and my family. I got a call the day I got...

10/19/2008 1:50 PM

Lyme Disease
If I could only push rewind..............

Brandon: I could have written your post, only I didn't see any tick or get a rash or anything. I just got sick as a dog after spending a week in the Texas Hill Country and was misdiagnosed for over 4...

10/19/2008 12:16 PM

Lyme Disease
Went to a LLMD today, here is what she said...

Most ID are worthless. They go with the IDSA guidelines. I went to one, and he said "I know you are sick (after looking at my SPECT scan and my western blot) but I don't know if you have lyme."...

10/15/2008 9:52 AM

Lyme Disease
GEORGIAGIRL WHERE ARE YOU???

georgiagirl - how are the iv's working for you? I think of you often, hope you are seeing improvement...

10/15/2008 9:27 AM

Lyme Disease
has anyone healed bart with jernigan's protocol

Hiker 53: email me if you want, I have experience with Dr. R in KC and Dr. J in Wichita: jkgreen98@mac.com...

10/14/2008 5:31 AM

Lyme Disease
Still in the Lyme Light Politicians and Hollywood enter the debate over "chronic Lyme disease

Gretchen - you seem to have recovered pretty well - could you tell me what got you feeling good. I recall at one point you did IV rocephin, if I remember correctly....

10/10/2008 5:34 AM

Lyme Disease
jginkc

I'm ok - talked to jernigan and we cut back on a bunch of stuff, hopefully that will help....

10/10/2008 5:33 AM

Lyme Disease
Yeast Infection is not going away!!

cut out all sugar and limit your yeast intake on top of the probiotics...

10/7/2008 10:58 AM

Lyme Disease
Nothing looks like it helps! Is it hopeless?

People get well. Since I have been on here since January I have read of several people on this website who have gone into remission and are feeling good. Dejavu and Wackowoman are only a few who got...

10/6/2008 11:04 AM

Lyme Disease
Taking a Break - Need Ideas

Hi Bella: So sorry to hear about your continuing heart problems. I am kind of beginning to think that all of us self treating either Zhang's or whatever can be dangerous since we don't have any LLMD...

10/6/2008 5:03 AM

Lyme Disease
IV vs. Oral? Opinions appreciated

I think a lot of depends on how long you have been sick and what your symptoms are. My understanding from all I have read is that if you have CNS involvement, like seen in a SPECT scan, that IV's are...

10/5/2008 10:58 AM

Lyme Disease
Daughter may have recurring Lyme - help please

Tons of people relapse. Your daughter is very young, I wouldn't mess around with this....

10/3/2008 12:00 PM

Lyme Disease
Daughter may have recurring Lyme - help please

Yes, he was talking about bands that are reactive for lyme. She needs to be treated for much longer than 3 weeks. Find a doctor who knows about chronic lyme and get her treated sooner than later....

10/3/2008 9:10 AM

Lyme Disease
treatment options

I just started Jernigan's protocol after spending a week at his clinic. I have tried doing lots of detoxing with the baths and am doing the microbojen and neurotox cns/pns. It is too early to say if...

10/3/2008 6:25 AM

Lyme Disease
HH capsule (Jginkc)

snake you can email me at:jkgreen98@mac.com....

10/3/2008 5:27 AM

Lyme Disease
6 wks rocephin under my belt Hello World

glad to hear you are feeling much better- what exactly has the IV rocephin done for you as far as symptoms? How long will you need to be treated. I was fortunate in the fact that only I have it my...

10/2/2008 9:02 AM

Lyme Disease
HH capsule (Jginkc)

HH took awhile - at 3 a day you'll just notice some anxiety and some insomnia. If you up it (I tried 6 a day once) you'll get terrible anxiety and won't be able to sleep over an hour at a time...

10/1/2008 4:01 PM

Lyme Disease
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