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talliecat

HealingWell Forum
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Member Profile
Display Name
talliecat
Profile Created
1/8/2009 8:21 AM
Last Seen
8/21/2020 6:53 AM
Total Posts
49

Last 50 Posts

No Medications are working for my UC - looking for advise

I read about this new study/therapy recently.. https://www.crohnscolitisfoundation.org/blog/clinical-trial-findings-show-promising-results-potential-new-uc-treatment...

8/21/2020 4:27 AM

Ulcerative Colitis
Xeljanz dosage

The joint pain started almost immediately but I didn't make a connection right away. I would say it took about a month and a half for the symptoms to start creeping back in....

10/25/2019 2:41 PM

Ulcerative Colitis
Xeljanz dosage

I tried to go down to 5mgs 2 X a day and my symptoms started coming back . I also noticed the joint pain on the lower dosage. I went back up to 10 Mgs 2 X a day and my symptoms subsided. For me the...

10/21/2019 10:18 AM

Ulcerative Colitis
FDA Issues Warning about Xeljanz

I was under the impression that this "ongoing clinical trial" was for Patients that have Rheumatoid Arthritis...?...

7/30/2019 11:49 AM

Ulcerative Colitis
Really, what do you do if you throw up your prep?

I have the same issues as you.. whereas I have thrown up all of the preps. One of my gastroenterologists prescribed Osmoprep ( pills) you can drink with water.. in combination with anti nausea...

4/22/2019 6:02 AM

Ulcerative Colitis
Xeljanz

I have had success with Xeljanz after failing both Humira and Simponi! Let's hope it stays that way.....

4/11/2019 7:32 AM

Ulcerative Colitis
Fiber choice

I have been using the psyllium seed capsules ( purchased on amazon) and they have helped me a lot, however I cannot have a lot of raw vegetables ( lettuce etc), so I am unsure why they work but it is...

3/28/2019 7:01 AM

Ulcerative Colitis
Just saw my GI and he's recommending Xeljanz, but I'm scared

I have been on Xeljanz since Thanksgiving. Like you this was the "last resort" before surgery. I can tell you that initially I responded very well to Xeljanz. The only side effects for me is...

2/7/2019 6:12 AM

Ulcerative Colitis
3 mo update Xeljanz - remission!

I too have had better success with Xeljanz than any other medication. Same as you, Pancolitis was in a flare since July... tried to taper pred while on appeal with BCBS.. threw me into another flare...

1/22/2019 9:30 AM

Ulcerative Colitis
Anyone else jumping through hoops to get Xeljanz?

It took me 3 months to get approved for Xeljanz and it was a nightmare process. I finally did get approved about 2 weeks ago and have been taking it ever since ( 20 mgs a day). I had failed both...

12/14/2018 9:09 AM

Ulcerative Colitis
Getting Xeljanz approved by Insurance

I have already failed ( or they didnt work well enough) 2 other biologics... Humira & Simponi... I have had to be on prednisone since August and stay on it because I can't get Xeljanz. The doctors...

11/20/2018 1:26 PM

Ulcerative Colitis
Getting Xeljanz approved by Insurance

Has anyone else had a ridiculous time getting Xeljanz approved by insurance? I have been trying since September 1st and what I have experienced is actually comical at this point. I was denied at...

11/19/2018 10:00 AM

Ulcerative Colitis
Osmoprep for colonoscopy

Has anyone used this before? Apparently I used these pills when I did a colonoscopy 3years ago.. everything else makes me vomit ( I also had Zofran). My prev Gastro gave me specific instructions (...

1/25/2017 4:02 AM

Ulcerative Colitis
Colonscopy by 35 year old Doctor? Thoughts?

Thanks everyone for your input. I am having a lot of anxiety about the colonoscopy in general, and obviously I don't want a perforated colon. Personality wise I will probably like her better than the...

1/25/2017 3:57 AM

Ulcerative Colitis
Colonscopy by 35 year old Doctor? Thoughts?

Hi- I was called by my gastro nurse today in regards to my colonoscopy ( which I have been dreading) next Monday. The doctor that was suppose to do it was in a ski accident over the weekend and had...

1/23/2017 5:50 PM

Ulcerative Colitis
Fiber Supplement question

I started taking Fiber Con ( Calcium polycarbophil) last year and it helped with the frequency of BMs ( I probably have IBS and IBD). Well I am currently in a flare and I want to add some kind of...

1/21/2017 6:58 AM

Ulcerative Colitis
What did you eat??

I am in another flare ( or maybe the same one and the symptoms were masked by prednisone). I hate to even discuss this with friends or family because they always have the same response... What did...

1/12/2017 5:00 AM

Ulcerative Colitis
Long shot- gastroenterologist in Maine?

Hi-I am mostly a lurker here... but recently my gastro was diagnosed with Melanoma and had to abruptly close his practice. He sent me to someone else and it wasn't a good fit for me. Does anyone on...

1/10/2017 5:31 AM

Ulcerative Colitis
What would you do?

I have been in a flare for about a year now. Started Humira in August. Got off prednisone in October but never "really" felt better. Lots of bandaiding with Imodium, trazodone ( for sleep and it...

2/17/2016 3:26 AM

Ulcerative Colitis
Foul smelling gas?

I have the same issue as most of the posters.. for a couple of days ahead of the flare I get the sulphurous smelling gas... it is disgusting and does smell like something died. My flares are now so...

4/6/2015 4:33 PM

Ulcerative Colitis
Starting Azathioprine while flaring?

Hi- I ended up in the ER on Saturday because i just started a huge flare. The inflammation is much higher this time on the right side. I have bounced between Pred & Mesalamines and Enemas to control...

2/18/2015 2:26 PM

Ulcerative Colitis
News Report on FMT in Australia

This is a topic that is very relevant to me. I met with a new Gastro that does FMT for CDiff. I chose him as I thought he may have some new theories etc. He gave me an hour in his office to consult....

9/23/2014 4:31 PM

Ulcerative Colitis
Uceris Cramping!?

I used this antispasmodic called Clindimidium.. works great. I also had the upper abdominal pain when I started Uceris the first time but I don't notice it now, its definitely lower. I am stopping...

7/11/2014 12:14 PM

Ulcerative Colitis
Uceris Cramping!?

YES!!! I have been totally noticing the belly cramping. Does it almost feel like peroid cramps? I have had it for the past week. Not sure what to do about it....

7/11/2014 3:53 AM

Ulcerative Colitis
Tired

what is the WOO?...

7/7/2014 6:08 PM

Ulcerative Colitis
My UC is constantly on my mind

Hi Quincy- Thanks for responding. I don't know how to change my signature ( I went into profile) and it is incorrect. I use the rectal meds on an " as needed" basis. I am going to call today to get...

7/7/2014 11:18 AM

Ulcerative Colitis
My UC is constantly on my mind

I can't stop thinking about my UC. I started a flare in December after a colonoscopy. Before that I was in remission for about years. I will wake up in the morning and see how I am feeling and then...

7/7/2014 10:59 AM

Ulcerative Colitis
Difference between Uceris vs. Budesonide EC

Hi- Haven't posted in a while because I have been feeling really good.. except for the past 2 months. Had a colonoscopy which caused me to go into a flare ( have not had a flare in over a year) then...

2/10/2014 5:31 PM

Ulcerative Colitis
colonoscopy put me in a flare

I am not taking any maintenance drugs because I did not need them.I did start taking calcium which helped start the remission. I am also Perimenopausel so I think that is what helped as well....

12/22/2013 11:20 AM

Ulcerative Colitis
colonoscopy put me in a flare

Had a colonoscopy in Tuesday with the viviscal prep ( pills). Everything looked good. A few mild spots.I have been flare free for a year. Next day..searing stomach pains after eating..now bloody...

12/22/2013 4:51 AM

Ulcerative Colitis
My colonoscopy experience

I just had a colonoscopy this past Thursday. I had been avoiding it for so long as my last two attempts ( with only one could I have a colonoscopy) were miserable during the prep. This time the nurse...

1/23/2011 12:21 PM

Ulcerative Colitis
Low adrenal function -- what now?

Hi Ellen- I had low functioning adrenal glands after I came off prednisone last year. I went to a naturopath who prescribed licorice extract. I would definitely try it as it seemed to work for me....

6/29/2010 4:17 PM

Ulcerative Colitis
Anyone start flaring with the change of seasons?

Hi everyone. I haven't posted or lurked in a while because I haven't had to. I have been in remission for about 7 months and it felt great! I was just down to taking 1 Lialda a day. However Spring is...

3/16/2010 4:41 AM

Ulcerative Colitis
Urgency even when not flaring?

Thanks for your responses. The doctor decided to up the Lialda to 4 a day as sort of a last ditch effort before going on Imuran. I thought I could stop doing the rectal meds but I guess I will keep...

6/26/2009 12:16 PM

Ulcerative Colitis
Urgency even when not flaring?

Hi everyone.... I think that I am finally coming out of the flare that I have been in ( as i say this I will probably jinx myself). I am taking 4 Lialda a day and have been feeling better for the...

6/26/2009 11:29 AM

Ulcerative Colitis
Drs Appt tomorrow, what should I do next?

I tried Colazal during a really bad flare. I kept puking up orange powder so I think that turned me off. Is there anything else you don't have to take 9 pills a day that will reach your lower colon?...

6/8/2009 2:09 PM

Ulcerative Colitis
Drs Appt tomorrow, what should I do next?

Thank you so much for all of your responses! I just got back from the Dr and he said to double the Lialda for the next 10 days to see how that goes and then it will be either 6 MP or Imuran ( he...

6/8/2009 12:20 PM

Ulcerative Colitis
Drs Appt tomorrow, what should I do next?

I feel like I am in a constant flare and have been for probably the past year. I have a couple days of week where I feel better and them wham, I am running to the bathroom and laying on the couch. I...

6/7/2009 9:52 AM

Ulcerative Colitis
food allergies?

I had this done in the past couple of weeks. I have been in a really bad flare since going off prednisone about a month ago. I was willing to try anything. I ended up going to a Naturopath dr who is...

6/1/2009 10:00 AM

Ulcerative Colitis
Frustrated-Finally off prednisone

Hi- I never really post here but do enjoy reading everyone elses posts. I finally tapered down prednisone after being on it since January. I was feeling great while on the prednisone and thought...

5/7/2009 2:18 PM

Ulcerative Colitis
No way can Pred. be working this fast

When I took prednisone the first time, it worked very fast like you said! Just be glad that you are feeling better!...

3/5/2009 5:13 AM

Ulcerative Colitis
Back from sigmoid - any GOOD stories about prednisone needed...

Hi Elaine- Recently I was in a really bad flare and finally agreed to take prednisone. I was kicking myself for not trying it sooner. I also take Asacol and do either Canasa suppositories or Rowasa...

2/3/2009 5:23 PM

Ulcerative Colitis
How did and how long anyone gain weight back without prednisone? Suggestions?

I have also gone back and forth about prednisone, trying Asacol, Enemas and suppositories. Suffering on and off the whole time. I got a crazy stomach virus back at the beginning of January which...

1/26/2009 12:37 PM

Ulcerative Colitis
Prednisone Hunger

Its kind of unbelievable how hungry I am. Yesterday I think I just kept eating everything. This is my first time I have been on prednisone and I do feel a lot better. I did just lose like 12lbs with...

1/19/2009 11:00 AM

Ulcerative Colitis
What do I stock up on food-wise if I'm going to try going Gluten Free?

I tried going Gluten free for a while, Gluten seems to pop up in so many foods. I was kind of into this blog( you can google "Gluten Free Girl") which had great recipes and ideas etc. You may want to...

1/17/2009 8:36 AM

Ulcerative Colitis
What do you do to protect yourself from "accidents"

I am having a bad flare right now but do need to leave the house now and again to do errands, pick up kids etc? Does anyone wear adult diapers? Pads? Sometimes I keep my sons diapers handy ( he is 20...

1/14/2009 1:54 PM

Ulcerative Colitis
Birth Control Pills and Ulcerative Colitis connection?

I actually feel better when taking birth control pills. I went off of them and before I was to get my period each month the "D" was bad because of all of the cramping etc. . I also think my hormone...

1/13/2009 7:05 AM

Ulcerative Colitis
New to board-Need Advice

OP -Here. I guess you were right to whoever said I probably should have been on Asacol the whole time but the gastro says that my colitis is in the last 8 inches of my colon so he is not so sure that...

1/11/2009 10:38 AM

Ulcerative Colitis
New to board-Need Advice

I am new to the board ( well I have been lurking for a while). I was diagnosed with left sided and proctitis about[b] 4 years ago. My doctor calls my case "mild". I asked him if it is so mild then...

1/11/2009 7:11 AM

Ulcerative Colitis



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