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Ed C. (Old67)

HealingWell Forum
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Member Profile
Display Name
Ed C. (Old67)
Profile Created
1/26/2009 10:28 AM
Last Seen
2/24/2020 2:42 PM
Total Posts
2492

Last 50 Posts

A friend with Gleason 9

Other than being 81 years old, he is overweight, with knee and hip problems. He uses a walker to get around and takes pain medication...

2/24/2020 10:02 AM

Prostate Cancer
A friend with Gleason 9

His PSA at the time of the biopsy was 11 which is not high considering the amount of cancer in his prostate. Thank you all for responding....

2/23/2020 12:13 PM

Prostate Cancer
A friend with Gleason 9

I haven't been here for a long time but I just found out that a close friend was diagnosed with Gleason 9. He is 80 years old and not in very good physical condition. His biopsy report Is the worst I...

2/23/2020 10:00 AM

Prostate Cancer
Surgery + ART VS Radiation +ADT in Advanced PC

I was diagnosed with Gleason 8 back in early 2009 and had robotic surgery in 2/2009. My SA has remained undetectable for 10 years already. I didn't have have radiation after the surgery. Other than...

7/3/2019 7:10 AM

Prostate Cancer
Post treatment sexuality-a contrary view

I had my nerve bundles removed at the age of 67. I have complete ED. I tried both Viagra, Cialis and the pump none of them really worked. Trimix did work for me but my wife wasn't interested in sex...

4/10/2019 4:57 PM

Prostate Cancer
Advice needed for recently DX with GL 4+4

I'm a G8 survivor. I had the robotic surgery back in 2009 without nerve sparing which obviously caused permanent ED. Looking back, and seeing all the advances in radiation results I may have chosen...

4/6/2019 5:12 AM

Prostate Cancer
Surprised by a high reading

Colin, I had a similar situation. My surgery was in Feb. 2009 and my PSA remained at <.01 for 8 years. At 9 years it came back .03, 3 month later, 0.29 and six m onth later .038. At 10 years it was...

3/7/2019 8:54 AM

Prostate Cancer
7 Year Update

Congratulations. Not many of us can match your results. You are blessed...

2/27/2019 6:34 AM

Prostate Cancer
Doing ok second time around

That definitely is something to celebrate and be grateful for. Thumbs up for that...

2/26/2019 9:43 AM

Prostate Cancer
Advice on G7 -> G9 from Epstein

Mambo, my DX was Gleason 9 (4+5) in one node and (4+4) in another. The pathology report was similar to your to yours. I had EPE (3mm) but with negative margins. I have been fortunate especially since...

2/19/2019 6:54 AM

Prostate Cancer
Hoping for good result

Thank you for your support. The only other possibility can be is that the lab didn't do the Ultra sensitive PSA but the doctor assured me that it was the UPSA. I repeated the question every time and...

2/18/2019 6:46 PM

Prostate Cancer
Hoping for good result

I received amazingly good news this morning from My DR. My latest PSA test came back as .009 down from .038. I don't know and frankly don't care why the previous 2 tests were both detectable. The...

2/18/2019 10:18 AM

Prostate Cancer
Hoping for good result

Yes i'm considering salvage radIaition if my PSA shows an increase. By the way, It was my mistake regarding the last psa, it was .038 NOT .38....

2/17/2019 2:06 PM

Prostate Cancer
Hoping for good result

I had blood drawn yesterday at the 10 year anniversary of my prostatectomy. As you can see from my signature, my PSA showed its ugly head at 8 years(.01) and was at .038 at 9 years and 9 months. I'm...

2/16/2019 1:52 PM

Prostate Cancer
After TX with solid good PSA numbers when to stop testing?

Roger, I had good numbers for 8 years (Undetectable) and was about to stop testing when suddenly on year 9 my PSA test came at .03. A follow up test 9 month later was .038. I'll be having another...

2/4/2019 3:08 PM

Prostate Cancer
Prostatectomy + 8 Years -- PSA Creep

Jazman, you and I are in the same boat. My PSA was <.01 for 8 years but on the 9th anniversary it was up to .03 and 9 month later it is .038. I'm getting another PSA test on the 10th anniversary and...

1/25/2019 1:44 PM

Prostate Cancer
Salvage radiation without ADT?

Thank you guys for your responses. I'm scheduled fro blood draw in 4 weeks followed by a visit to a radiation oncologist. I'm sure the PSA result will determine the course of action. Hoping for the...

1/23/2019 7:34 AM

Prostate Cancer
Salvage radiation without ADT?

I posted few days back that my PSA starting rising after 8 years. It is now at .038 after 9 years and 9 months. I'm seeing an oncologist next month and want to see if any one here has had a low and...

1/22/2019 6:05 PM

Prostate Cancer
less than .1 VS less than .01?

I had surgery in 2/2009 and my ultra sensitive PSA was <.01 for 8 years. in 2018 it came back as .03. My urologist is recommending that I see an oncologist because he believes it may be BCR....

1/22/2019 5:43 PM

Prostate Cancer
Post surgery data update

Sorry for the increasing PSA. It is probably time to consult with a radiation Oncologist. I think salvage radiation is in you r future....

1/22/2019 5:36 PM

Prostate Cancer
Waiting for PSA test results, any tips on how not to freak out

PSA anxiety is unavoidable, there is nothing you can do about it. I always asked the nurse to let me know the result ASAP at least it shortens the time of stress. Overtime, the anxiety will decrease...

1/15/2019 5:11 PM

Prostate Cancer
Annual Physical with PSA blood test .. STILL UNDETECTABLE.. Woohoo

Congratulations on being a member of the zero club. Hopefully you can forget about PCA for the rest of your life....

1/14/2019 5:07 PM

Prostate Cancer
Happy Anniversary To Me

Prato, Happy New Year. I hope 2019 will be a good year with undetectable PSA. I think I have a future similar to yours, as you know my PSA started rising after 8 years and I may have to go thru the...

1/9/2019 6:26 AM

Prostate Cancer
Regret over treatment

No regrets for having the surgery. The only regret is that my surgeon didn't recommended radiation soon after the surgery. As it is, My PSA became detectable after 9 years and radiation is probably...

12/26/2018 8:00 PM

Prostate Cancer
When to start salvage radiation

I'm grateful for all your responses and will be asking my Uro and Oncho a lot of questions when I see them in March. Other than the rising PSA , I'm in very good health and exercise regularly. The...

12/21/2018 2:28 PM

Prostate Cancer
When to start salvage radiation

Thank you all for your responses This forum is amazing. I have learned a lot from many during the last 10 years prior to my surgery. I will keep uou posted to my meetin with the Oncologist in March....

12/20/2018 4:49 PM

Prostate Cancer
When to start salvage radiation

Thank you Prato, your advice is what I believe is the right way to go. I have a PSA test schedule for late Feb. I'm also schedule to see an Oncologist a week after that. hopefully the rise will be...

12/20/2018 4:02 PM

Prostate Cancer
When to start Salvage radiation

I was hoping never to ask this question, for 7 years my PSA was undetectable. At 9 years it measured .038 and at 9 years 9 months it was 0.038. My Uro referred me to and oncologist. I'm asking for...

12/20/2018 3:30 PM

Prostate Cancer
When to start salvage radiation

I was hoping never to ask this question but 8 years after my Prostatectomy my PSA measured 0.01 and it rose .03 at 9 years. 9 months later it was .038. My Uro wants me to test again at 10 years and...

12/20/2018 3:01 PM

Prostate Cancer
should I be concerned?

Thanks. I plan on retesting in Feb on the tenth anniversary....

11/16/2018 9:15 PM

Prostate Cancer
should I be concerned?

For 7 years my PSA has been <.01. At 8 years it was 0.01 and at 9 years it jumped to .03. I retested 3 months later and it was .03 again and now (3 months later again) at 9 years 9 months it is up to...

11/16/2018 9:02 PM

Prostate Cancer
Testosterone after prostatectomy?

A friend of mine had his prostate removed 4 years ago and his PSA has been <.05 since his surgery. He has low T and his Urologist doesn't advised him against taking Testosterone. Is this reasonable?...

9/20/2018 12:06 PM

Prostate Cancer
Effects of TURP on ED

Thank you all for your responses....

8/9/2018 3:39 PM

Prostate Cancer
Effects of TURP on ED

My brother has been fighting BHP for quite sometime and his doctor is recommending TURP. He lives in Sydney Australia as is concerned about its effect on ED. I'm posting this question hoping someone...

8/6/2018 10:51 AM

Prostate Cancer
Question on Ultra sensitive PSA

I have been getting the ultra sensitive PSA test at a lab used by my Urologist. The result was always <.01. Last year my Uro suggested to just have it tested by my GP when I get my annual physical...

5/15/2018 7:28 PM

Prostate Cancer
Should I be concerned

Tall Allen, My doctor's nurse told me that it was the standard test. I always thought that the standard test cannot detect below 0.1. I'll get the real answer from my doctor next week when I see him....

2/23/2018 7:00 PM

Prostate Cancer
Should I be concerned

I had my ninth year PSA test last week and it came out as .03. This was the first time using the non sensitive test. I don't know whether that is considered normal or if I should follow it up with a...

2/23/2018 3:18 PM

Prostate Cancer
Gleason scores 8-10

Hi Smara, I was diagnosed in early 01/09 with Gleason 8. I had RP in 2/09, my pathology report showed EPE but negative margins. I have had no other treatment and have been in the zero club since....

12/19/2017 11:44 AM

Prostate Cancer
Nine years since prosate surgery for Gleason 8

Congratulations Jerry. I'm and old timer Gleason 8 like you. In January, it will be nine years for me. I'm still in the zero club and hope to stay there....

10/13/2017 11:28 AM

Prostate Cancer
Nine years at HW PC

Hello David, I joined HW in early January 2009 and remember that you were the first person to offer advice. It has been a long time but I have followed your journey and look forward to your posts. I...

10/13/2017 11:25 AM

Prostate Cancer
Better had never known

Ron, I know that sometimes the side effects of treatment can be life changing but I'll never regret my decision. It has been 8.5 years since my surgery and I'm still kicking. Sure my ED is a problem...

9/15/2017 10:16 AM

Prostate Cancer
10 years ---really?

Way to go Billy, That is a great milestone. You can probably stop getting a PSA test. My stats are similar to yours, Gleason 8, non nerve sparing. I'm at 8.5 years so hopefully I'll catch up with...

8/31/2017 1:04 PM

Prostate Cancer
Gleason 8, T1c, EPE-,LN-,m- and SV- Why has the uPSA increased after18 months of the RRP?

I no longer post much but I do check in occasionally. As a G8 I wanted to encourage you and give some peace of mind. As you can tell from my signature, I had my surgery in 2/2009. My PSA fluctuated...

8/28/2017 7:34 PM

Prostate Cancer
Upcoming Tests

Hal, sorry about everything you had to deal with this summer, hopefully your PSA result will be good. I'm having a PSA test in 10 days and even though I have been in the zero club for 8 years I still...

8/8/2017 7:22 AM

Prostate Cancer
End of life journey

Beth, I wish I could say or do something that will make yours and Gary's life any better but, words and prayers is all I can offer. I will pray for you and Gary for peace and comfort. God bless....

7/15/2017 9:56 AM

Prostate Cancer
Hospice update

Reading your post touch me in a very real way. I wish there was something I can do for Chris. I'll pray for comfort and peace for him and strength for you and the rest of your family. God bless....

7/13/2017 11:51 AM

Prostate Cancer
Just Checking In -- need laminetomy info

Mel, I had a laminectomy (L4/L5) in early January for stenosis. It took about 8 weeks to start doing few exercises (mostly walking). Prior to surgery, I had pain on the right side just above the hip...

6/11/2017 10:57 AM

Prostate Cancer
Mel (compiler) paralyzed from accident

Terrible news about Mel, Prayers for healing and full recovery....

3/14/2017 10:29 AM

Prostate Cancer
March Tests

I had my 8 year PSA test yesterday. The nurse called me today and told me that the result was 0.01. She didn't say if there was a "<" sign infront. In the past, I always had the "<" sign and two...

2/23/2017 1:23 PM

Prostate Cancer
February Tests

I just got my 8 year PSA test result as 0.01. the nurse didn't indicate if there was a "<" sign infront of the result so I'll have to see when I see the doctor on Monday. Previously I used to have...

2/23/2017 1:14 PM

Prostate Cancer



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