Thank you momto2boys and quincy for your responses. Yes, it is a completely frustrating situation! I was hoping there were others who were on sulfasalazine who might give an opinion. I have called...
I have been on Sulfasalazine for 20 years since originally diagnosed. I have done well on it with few flares. I have up'd the dosage from maintenance dosage of 2000 to 3000 thru the years. Now there...
I just wanted to add that Restorative Yoga has helped me tremendously. I do it twice a week, only missing if my body is in a flare. Restorative Yoga is very gentle-- stretching, using bolsters,...
Why don't you do a little research into Red Yeast Rice? I've had my hubby on it and it lowered his cholesterol. His doctor was okay with him trying it. I have tried it myself (mine is somewhat high)...
Thanks Joy and Lym2014 for your response. As for what Reconnective Healing is--that is a good question. Supposedly, the healer does not touch you but hovers his hands over you until he feels a...
Has anyone heard about this Reconnective Healing? My cousin, who attended Eric Pearl's workshop, is just SURE that it works and he wants to try it on me. I am of a skeptical nature and just can't buy...
I tend to be always cold when others are just fine. A few years ago I found some underwear that actually keeps me warm! It is called DuoFold and has two layers--the inner layer is 100% cotton, the...
Hope you are doing better, Angel. I am like Sherrine. I don't rake, sweep, or vacuum. That will put me right into a flare. Luckily my hubby does those chores for me. However, I have found that I can...
Thanks for your input, Portland--I live about 50 miles north of you. Glad to see you are moving to AZ. To Yuma? My actual first choice to live, weather wise, would be S. CA but it is too expensive...
Thanks for your responses. However I'm still hoping someone from the Boise area will give me their opinion....
My husband and I are contemplating a move to Boise ID, Bend OR or Carson City NV. Personally, I have almost eliminated Bend after a recent trip to the area . The sun was out but it frosted every...
Congratulations on the adoption! I have 2 adopted grandkids to go along with my 16 biological grandkids. I love them all. Booklady...
I live in the state of WA so I would think that gives me the go-ahead to talk about the new law. First, I will say I am a 72 year old woman who was diagnosed with fibro at 50, altho I've had it for...
I'm afraid I have to agree with Donna. This is the beginning of socialized medicine and the picture will not be pretty. People on medicare, like me, will have a hard time finding and/or keeping a dr....
Thanks for the tips. I'm going to try making the chicken broth and maybe adding potatoes and a few vegies. Sounds good....
Just had a flare after five or six years with none. Tues. at dr--they gave me a drip of glucose to hydrate me. I'd been going both ends and couldn't keep even a sip of water down. Since then I've...
Hi there, Sounds like fibro to me. Since you have been diagnoised by two drs, I'd believe them. Have you read the thread at the top of the page put there by the moderators? It has all kind of facts...
Several years ago, I had shingles. When it subsided, they gave me the just out shingles vaccine. I had no reaction to it and I've had fibro for 30 years. However, I have never had a flu shot or a...
This has been my laugh for the day! I have given up looking for my favorite paring knife and my kitchen shears. Looked and looked. Must have thrown them out with the garbage. Finally ordered new...
Hi Songwriter, I have hip pain too. Only it is my right hip--doesn't radiate to the knee however. It sometimes keeps me up at night and wakes me almost every morning. With me, I know it is fibro....
Have not tried the raw food diet but I have ulcerative colitis and go real lite on raw foods as they give me trouble. I am however gluten free which has helped my tummy troubles but hasn't done a...
Hi Rose, Welcome to the group. This is a bunch of truly supportive people. I liked what Shirley said about "you have fibro--it doesn't have you." I have had fibro for 30 years and have been going...
Happy to get an update--Been thinking about you. Just TRY to be good to yourself and rest when you can. Lots of gentle hugs, Yo-yo...
Kittybear, Oh---so sorry you are not feeling good. Some days it can be so hard and it sounds like today may be one of them. Not having a diagnosis is the pits because it makes you doubt yourself and...
When I tap or press lightly on my face, I get a light "rushing" sound in my ears like the wind is blowing lightly. I know, I know--a little nutsooo! But actually, I get that same rushing sound in my...
Monica, I thought about posting on Tues. but my pain level (on a scale of 1-10 with 10 being the absolute worst) a 8! Terrible rough night and pain everywhere all of Tues. All I kept telling myself...
I receive a subscription to the fma and had seen the article and taken the test. I was thoroughly disgusted after reading and taking the test. I barely passed the test and have had fibro for 40...
Hopegirl, So sorry about your fall. Gentle hugs. Yes, it does seem that we get more clumsy when we are in pain or in a bad flare. Hope you will get to feel better. Yo-yo...
I have just finished reading 2 pages of this posting. I am one of those who won't try any meds Phobic I guess. I survive on suppliments mainly under the care of a naturopath. My comment is: Why in...
Naturopathic Doctor....
Note to Chicken Princess: It is just too funny you printed the story of watching the PBS thing on the Ultramind Solution by Mark Hyman MD. It was this book that led me to having my ND do the Organic...
Hey Libby Just wanted to say thanks for the positive post. Sometimes we forget to post when things are going well and tend to post when we want to whine! Have a good day. Yo-yo...
I think this discussion is very fascinating. I too tend to try to use food and suppliments to improve my general health. I have been gluten free for about a year and a half and saw some major...
In answer to your question, the blueberry plants are about 20 yrs old and quite prolific. Our weather this winter, spring and early summer has been very different than normal which is why we are not...
Ya-hoo! Blueberries came out of the pants. And yes, I am fortunate to have fresh blue berries. My 3 bushes produced 58 qt. bags last year and I'm up to 27 qts this year. My kids and grandkids LOVE to...
So this morning I decide to go out and pick blueberries--I have a couple of bushes in my back yard. On my way out I'm showing my hubby my new pants I bought yesterday, stretchy jean-type with metal...
I don;t have knee problems, thank God. But I would be making an appt with my dr if I was having as much pain as you are having. There could be something else going on in your knee--a little piece of...
Can't say I worked in a medical setting. But does 10 years working with teen age pregnant girls count? I worked with them during pregnancy and for the first year after their babies were born. I...
Lin, That was what I was trying to get across with my story about the migraine headaches and the TMJ. Basically, I have no jaw pain and very rarely do I get a migraine so the mouthpiece worked for me...
Hi Lin Welcome to the forum. I too have fibro and also TMJ. about 25 yrs ago I was having severe migraines and through alot of research contacted my dentist to be checked for TMJ (I had the clicking...
A very interesting topic! I think part of the problem is the reference ranges used. How do they decide what is NORMAL? This has been the problem with so many tests. Some times they will use college...
Welcome Mrs. Arizona, Just wanted to welcome you to the forum. Sorry about the fibro diagnosis--it is definitely the pits! Sounds like you are doing alot of the right things, getting tests to...
Just wanted to make a suggestion. Since you love to work in your yard but can now only do about an hours worth of work, why not take the opportunity this summer to re-vamp your yard to something more...
Thanks for all your replies. My DH went to the store and returned with Terro ant killer. The interesting thing is that I googled about killing ants and someone said to use borax and something sweet...
Karen, Just had to comment after I looked up where you live. Another Washingtonian! Isn't this so-called summer a joke? I'm in SW WA. Yo-yo...
Every spring we get some kind of ant invasion but this year we have been invaded! Probably due to the unusual weather we had this winter. My DH gave a holler to look come look and they were carrying...
Kellyjo, Great! Sounds like you found someone who not only listens but has fibro herself. This should get you on the road to some answers. And your hubby is a doll--to go with you and explain what...
Hey there, Just another thought. I had the same thing for a long time-- thought I had IBS and just lived with it. However, it got worse to the extent of 15 or more BMs a day then I saw blood. Off to...
Could the fever, etc have been caused by an allergic reaction to the the injection for the procedure? Just a thought. Yo-yo...
I'm with steppingstone--I WAIT it seems forever for summer to come around. And living in western WA, we have two seasons summer and the rest of the year! The sunny warm or hot days make we feel SO...