Hi all, My daughter is one of those with fulminant colitis, and we have finally gotten her into a good solid remission. She is taking a lot of immunosupressives, however, more than I feel comfortable...
Best Wishes and speedy recovery to you. I will be thinking of you today, sending good healing energy your way. And in the days to come while you recover.:)...
BostonGirl- I'm sorry to hear about your flare. Is the SloFe ferrous sulfate? I've been told ferrous sulfate can be very irritating to the gi tract, which is the last thing UCer's need. You might...
Hi Wishingtohelp, I'm sorry your daughter is struggling with this ugly beast of a disease. We thought ours would have to get a colectomy, we were resigned to the surgery as of Dec '09, but then she...
Wishing tohelp, I noticed your daughter's past meds had remicade. when did she stop that, (also why) and has she been stable since going off the remicade and 6mp? We are in the process of getting our...
Killcolitis (love the name) My daughter took the Alinia (it's an anti-protozoal I believe) for the "parasite". She took it twice a day for 3 days, that's it. She has been on the Remicade for about a...
What do they want to prescribe the Flagyl for? I would ask for Alinia, it is much better tolerated than Flagyl and if you're trying to treat a bacterial overgrowth or infection, it's better for kids...
Hi, I think going gluten-free is a good idea. My daughter diagnosed UC in 2008 has gone gluten-free this past Dec. and it seems to be the single most effective thing in turning around her colitis....
Thank you Kabash and everyone else for your feedback. This helps, I will look for the window when best for her to take it. (I've started taking it too)...
Greetings to all you forum users! I have read before that some of you take psyllium in addition to other supplements, and I recall some have said you should avoid taking them at the same time with...
Is Imuran a 6MP? My daughter is also on both, with the remicade being 10mg/kg every six weeks. She has been in remission since 12/09, when we increased the Remi dose and intervals. I'm thinking of...
nadaluttiu70! Are you still out there? Wondering where you are with the LDN, haven't seen a posting since '09. Tune back in and let us know....
How did they find the kidney stones, a scan? I'm sorry you had to go through that pain & that you're so young. I hope the Remicade will be your wonder drug. Stay brave!!!...
I have also sought out the help of an integrated physician, who ran a few stool tests, one from entero labs (enterolab.com) and my daughter was gluten sensitive with a high score (highly sensitive)...
Hi Fruitgirl, thank you for sharing your experience. The Remicade reallly isn't working, at least its barely working and I don't see it being her long-term med. However, they upped her dosage and it...