Well today i had another doc apt with my GI doctor. I just discovered i have GERD, CFRD,and surgery within a fews months from inhernia from coughing so much. since i have a chronic cough due to my Cf part of my stomach lining is seperated which is causing me a great amount of pain on my left pelvis.surgery scares me. my pfts r also down from 95% to 89% which is the worst for me yet. as well my vitamins are going low again so im not on 2 diff types of vitamins multivitamins of course. its never gonna end and im never gonna stop fighting. i am so tired medicine tho. i take 36 enymes a day, prevacid,reglan,zantac, zelnorm,a cough medicine with codine in it,betyl,duoneb,alburtol,the list goes on..errrrr..i wish this would stop and i start improving not getting worse. but my doc says its part of the disease. i will alway get worse. cf is to progressive and i dont have a mild case. i see there are some new ppl here with possiblities of their kids having cf, i wish u the best and i pray for the best. the one good thing bout being so ill is..my doc said anytime someone is as ill as a CFer they have a enormous heart. i dont think i do but i do care for everyone. i love life and i love ppl. even tho i dont like talking to ppl in general bout my medical problems, i dont want ne one to feel sorry for me ya no or to run from being scared. i have my days were im down and depressed but overall i think mentally i do pretty good.
Good luck to everyone
Tricia
Tricia, hope you are feeling better.
Tricia....you give us inspiration!.
Just thought I would let you know this.
Hugs!
Kathy, mom to identical twin boys with CF (10 yrs), daughter 21, grandaughter 3, Newborn grandson
Just thought I would let you know this.
Hugs!
Kathy, mom to identical twin boys with CF (10 yrs), daughter 21, grandaughter 3, Newborn grandson
If there is a CURE for Cystic Fibrosis this very moment and this is "not soon enough"...you would hear this twins mom "Across America" "YESSSSSSSSSS"!!.
Moderator, Cystic Fibrosis. "If there is questionable doubt, check it out"....with your healthcare provider!. We are here to offer support, encouragement, a shoulder to lean on, and answer your questions as best we can. Don't hesitate to step on in and enjoy and remember! "Never give up hope for a cure" one day we will get there!".
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