Hi, my name is Jennifer---Just had my 1st & hopefully last seizure on 1-26-06....New to all of this...I am currently taking Dilantin--but my Neurologist says that Dilantin causes unusual hair growth in women, so he wants to try me on something different...I have already tried Tegatol & had an allergic reaction to it---they just had me stop that today...Just curious about the hairgrowth...I have a very interesting story to tell about my seizure...Will tell anyone who is interested...
Thank You!
Jennifer
Therefore if any man is in Christ, he is a new creature; the ols things passed away; behold, new things have come. (NASB)
I've been taking dilantin or the generic in recent years for maybe 10 years. I have grand mal seizures - so when i have one i'm out for the count! and can't even go back to work for almost 2 days. the dilantin was a life-saver. as for hair - very very little an i've been taking it a long time.
i've had no facial hair - but once in a while i'll get like a single strange hair growing on the underside of my arm. i only notice it because it's black as coal, and i'm a dirty blonde. it hasn't been a big deal for me - i pluck it and go on.
i'm just thankful the dilantin controls my seizures. as there are a lot of people out there who can't find the right medication.
i'd ask your dr. about your concerns. perhaps he can put it in the "right light" or put you on a diff. medication.
if i had weird hair growing all over or on my face i'd be concerned too, but it just hasn't happened. God bless!
seizure disorder - chronic myofacia pain - B-12 anemia - severe neutropenia - bulging disk in neck, etc.
Thanks for checking on me! Boy have I really been through it!
I started taking Carbamazepine (generic for Tegretol) on 2-10-06. The next evening after I started--we were @ one of our friends--they have cats--I am allergic to cats!!! Within minutes of being there--my eyes started itching...The next morning I woke up with swollen-goopy-sealed shut eyes!!! I was freaking out that the cats affected me so much. Few days later--was still having allergy issues--talked to some people--they said the pollen was high---I thought it was weird that I was having allergies so bad---severe itchy eyes--sneezing--stopped up/runny nose
I didn't know what was going on...Had thought it might be allergy to meds---Then Sunday 2-19-06 I started breaking out in a rash. My husband said I should call the Dr., so I did...Nurse returned my call after I left her a detailed message---she said I was definately having an allergic reaction---Dr. said to stop the Carbamazepine immediately!!! I got worse before I got better... During the time I was on the new med I felt something I'd NEVER felt before--DEPRESSION!! It was aweful---I always wondered how someone that serves the Lord & has that joy- could ever be depressed...Now I know---it's almost something you cannot control...I hate that!! It started to take over me... Now that the new med is totally out of my system--rash is gone--depression is gone I feel like Jennifer again...Still debating on trying another med---but we will see!! I'm very thankful that I found this site---reading all the postings & getting replys to my thread has helped me so much! Thanks for caring! I'm gonna hold off for a few weeks before I have them try another med on me---I want to enjoy being myself for awhile...
Thanks Again!
Jennifer
Therefore if any man is in Christ, he is a new creature; the old things passed away; behold, new things have come. (NASB)
wow! what you have been thru!!!! my heart goes out to you...
God bless! I will continue to keep you in prayer.
I can understand your feelings about being yourself for a while after going thru that!
I want to mention that when i first started on my meds, it made me pretty loopy - and i asked the dr. if i could cut back 1 pill an evening. he didn't like it because my blood work indicated i needed more - but i couldn't function on what he had me on. Well i've been on this for over 10 yrs or something and it has worked for me.
Things will get better. When we are weak, he is strong.
seizure disorder - chronic myofacia pain - B-12 anemia - severe neutropenia - bulging disk in neck, etc.
Thank you so much! I love how you and others are checking up on me & being concerned... I'm very thankful that I found this site--It has been very encouraging...
Jennifer
Therefore if any man is in Christ, he is a new creature; the old things passed away; behold, new things have come. (NASB)
Welcome to HealingWell. Good luck with everything Jennifer I just read all of the posts. Keep us updated if you can. We are happy to help. Take care, Tracy
Daisy9980 Thanks for checking this post out...I've learned so much - just reading all the other postings...And all the replies I have receieved... Thanks
Therefore if any man is in Christ, he is a new creature; the old things passed away; behold, new things have come. (NASB)
Hi Jennifer, My name is Candace. I am 23 and had my first seizure at the age 20, right out of the blue. No past history of it. They don't know why or what is causing them. Very frustrating! I have had two Grand Mal Seizures very violent and scary. My doctor put me on dilantin after my second one and I have had only a mild one since, due to me not taking my medication. When I take if faithfully I was seizure free. I have notice some excessive gum growth but not hair. My gums are fine as long as I brush thoroughly twice a day and I use peroxide diluted with water for mouthwash. Hope this helps. Good luck!
Thanks for your response!!!!I'm not sure about the gum thing...That's crazy!!!! Since i've been on Dilantin for nearly 2 months now, i've noticed a little extra hair growth on my chin...But if that's all I end up having, I can deal with that...Have you talked to your doc about the gum thing??? Is that a side affect???
Jennifer
Therefore if any man is in Christ, he is a new creature; the old things passed away; behold, new things have come. (NASB)
Hi Jennyo, Yes that is one of the side effects, actually from what I have read it is one of the most common. It feels more like an inflamation (only sometimes). My dentist told me as long as a floss and keep my mouth really clean it shouldn't be a problem. How is the Dilantin working for you?
C
Diagnosed with Epilepsy in 2000
Medication: 600mg of Dilantin a day
"Never frown, even when you are sad, because you never know who is falling in love with your smile"
Yes, I have slight gum swelling also from dilantin. Some people do get it much worse though. My dentist says he can't tell mine are swollen until he does that test to see how deep the gum tissue is (pockets). He even has told me that some people have such bad swelling that they have to laser off the excess gum tissue - awful, huh?
Yes, the peroxide-water thing is good for anyone. Besides flossing everyday, I also have a water pick that i won't be without.
seizure disorder - chronic myofacia pain - B-12 anemia - severe neutropenia - bulging disk in neck, etc.
The dilantin so far is working just fine...I only had a cluster of about 4-5 black hairs sprout off my chin...If that is all I get--every once in a while---then I will be fine...I'll pluck them off & go about my business!!! So it seems to be working fine for me...I hope I don't ever get the excess gum growth...
Therefore if any man is in Christ, he is a new creature; the old things passed away; behold, new things have come. (NASB)
For a while there I was getting a weird black hair growing on the inside of my arm. But after I plucked it like a hundred times - it finally didn't come back.
LOL
seizure disorder - chronic myofacia pain - B-12 anemia - severe neutropenia - bulging disk in neck, etc.