Hi
I am new to the group. I had my first tonic clonic sz in Nov. of 2002. As a rule my seizures occur several months apart. There are usually multiple sz in each episode. I have been taken to an ER each time I have sz.
My neurologists have asked me questions about aura preceeding the sz. I know that each sz has been preeceded by a "feeling" in my head that has been present for various lengths of time from several hours to about 20 minutes. I find it very difficult to dscribe the feeling, i.e. it is not a pain, it is not a preasure or numbness but those are the closest descriptive words. I have "feelings" in my head almost every day. These feelings can be similar to the aura but are not always. Because several months can pass between sz I have a difficult time distinguishing between the aura like feelings and the true aura. Has anyone experienced auras similar to mine and how are the auras described? And, Do any of you experience false auras.
Parksboss
Thanks, I will check out the resource center.
I take lamictal 600 mg and topamax 100 mg
I have also been given adavan to take if I thought I was about to have a sz. Adavan given by IV has been succesfully used in the emergency room after the last two sz to prevent me from having additional sz during the episodes. This is why it is important for me to distinguish between a real aura and the false auras.
I take lamictal 600 mg and topamax 100 mg
I have also been given adavan to take if I thought I was about to have a sz. Adavan given by IV has been succesfully used in the emergency room after the last two sz to prevent me from having additional sz during the episodes. This is why it is important for me to distinguish between a real aura and the false auras.
HI. I don't think they are false auras. An aura is a simple partial in itself. If it doesn't generalize into a full blown seizure you are lucky. But an aura alone is a simple partial seizure. I get these often. They scare me, but I am always thankful that they disappear without generalization. Also, aura can feel similar to panic attacks, but for me there is a severe feeling of doom along with the feeling, I know that is the aura. Take care, Tracy
25 years old
Nursing Student
Hi Parkboss
I am 25, I started taking auras when I was 18. Mine feel sort of tingeliy and enjoylble, or so I thought. I had my first Clonic Tonic sz when I was 21. Anytime I have ever had a Fit ' i got a warning' I dont know if it is a blessing or a curse.
I am 25, I started taking auras when I was 18. Mine feel sort of tingeliy and enjoylble, or so I thought. I had my first Clonic Tonic sz when I was 21. Anytime I have ever had a Fit ' i got a warning' I dont know if it is a blessing or a curse.
Hi Parksboss-
I can identify with what you mean when you say a "feeling" in your head. It's really hard for me to explain to people what goes on inside my head when I begin to feel the onset of a seizure. I can't stop it from happening and even though the "feeling" can't easily be described, I know exactly what it feels like to me. I think of it like a big weight. But it isn't on the outside of my head, it actually is on the inside of my head pushing out. At the same time, I get a feeling in my arms and under my chin like I'm holding a really big ball that is getting bigger and bigger. I feel panicky when the feeling gets intense, partially due to the feeling of claustrophobia and being crushed from all over. The feeling is all over in a matter of about a minute or so.
Although I learned after awhile what the character of these seizures where like, it didn't seem to make them any less intense when I was having them. What did seem to help the most was what I did AFTER it happened. I was always drained of energy afterwards and it really helped me to sit down and do some relaxation breathing.
I've read that a large percentage of people with seizures have non-epileptic seizures as well. It makes me wonder how many I've had! I'd still do the same no matter what the origin. I still have to take my meds. And the relaxation exercises help me anyways!
Glenda 
complex partial seizures since 22
lamictal 200mg 2x/d
zonegran 150mg 3/d
I get an aura about 1 or 2 a month. Wow! are they scary! they feel like some one plugged you in a 120 volt outlet for a minute or 2. Mine start in the head, then go downward to the chest. I think What is this? Here it is again? If a T.V. or radio is on, or people are talkin' I'll hear the same sentence from the last aura, I had while ago. The same thing is said over & over. Then when its over. I"ll forget it. I'm all shookin' scared, for an hour or two.
I experience auras all the time. I do know the feeling you are talking about in your head. Mine are usually accompanied by a violent "streaking" pain, though. I can only describe the feeling as an uncomfortable expanding, contracting, and spinning bubble or something. It feels as if the pressure in my head is changing. I know that is hard to understand. I also have panic and anxiety, which I believe to be a direct result of this. I get a shooting pain up one side (left frontal) of my head which ends at the base of my neck. The pain will last anywhere from 20 secs to 2 mins and cripples me completely. I literally freeze. Happens a lot in grocery stores due to lightning and beeping noises, I have noticed. I hope this helps and that you find a solution to help you soon.
Britt
I haven't had a GM in years (knock on wood), but sometimes I still get that funny feeling. For me, I get kind of anxioius, feel weak and tingly in the bend of my elbows and knees, and things just feel and sound close. Like in the movies or on TV when the rooms close in on someone. When I feel like this, I know I have to sit down and take it easy. Until it passes.
Although I haven't had a GM seizure since 2002 (I think I also had one last fall, I was working outside in the yard and I just remember waking up on the ground with blood all over my face)
Now I frequently have auras in the form of an outerbody experience. (as if I'm looking down on myself from above) then I start to hear Bongo Drums, then disoriented, then a little dizzy, and at the same time I get the slow motion thinking and lots of anxiety. All this lasts about 5 mins, when not followed by a sz and then takes about 5 or 10 mins after that to regain my senses.
A lot of times it is triggered by something at Wal Mart (I don't know why) or Casino noises and all the flashing lights but that usually only happens when I'm tired.
Randy
Diagnosed with epilepsy and ulcerative colitis in 1979,
Diagnosed with epilepsy and ulcerative colitis in 1979,
Been on meds ever since.
275mg-dilantin/day
120mg-pheonobarb/day
3,000mg-Mesasol/day
20mg-Celexa/day
I have aura's. For me it feels like I am going to have a seizures, but it doesn't go all way. I just had them after my brain surgery. They were really strong after my brain surgery, but they have really gotten lighter. Not sure if vitamens effect me but they seemed to have slowed up after I stopped taking them. Also not getting enough sleep causes me to have them to. I hope this helps someone. May the Lord be with you all, my surgery is a pray come true.
Had My Brain surgery, and I was so scared, but the doctors made me feel good and and I did. They kidded with me before the surgery and before I knew it I was in recovery Thanks for helping me. Mine is on the left temporal lobe. They say it is deep it my brain.
Had My Brain surgery, and I was so scared, but the doctors made me feel good and and I did. They kidded with me before the surgery and before I knew it I was in recovery Thanks for helping me. Mine is on the left temporal lobe. They say it is deep it my brain.